Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 We've added a few new members in the past week--feel free to post your questions! Welcome! W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 Hi, I'm Becky. My friend referred me to this group because my son, (18 months) has constipation issues and was on glycolax for 5 months. I say " was " because I recently stopped giving it to him. It has never really worked that great for him it was always either too much (like 10-12 explosive dirty diapers a day) or not enough. The final straw was a 9 day stint without going, despite trying to go everyday and producing nothing. We have an appt with a Pedi-GI at the end of January. Hopefully, we'll figure it out or come up with some more alternatives to the glycolax. Right now we're giving him psyllium husks and it's not working that great either, but at least it's more natural. > > We've added a few new members in the past week--feel free to post your > questions! Welcome! > > W > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2006 Report Share Posted December 31, 2006 Hi I am Charlotte. My son is 13 with Aspergers Syndrome. Friday the pedi GI put him on Miralax for a full colon. I filled the script yesterday and before giving it to him started researching. I was a bit freaked out by what I have read and so I have not given him any yet. The problem is that we have to get him cleaned out this week because we have to check his stool for blood once it is. What brought this all on was rectal bleeding this week, enough to make me bring him to the ER. It seems to have stopped but if it is not being caused by the constipation he will need a colonoscopy. I can’t call the doctor until Tuesday to discuss alternative treatment so I have just been giving him magnesium since yesterday. Can anyone help with ideas? Thanks! Charlotte Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2007 Report Share Posted January 1, 2007 Chances are that the Miralax will not even get things cleared out that quickly. It takes a few days to start working, and could take months to get everything cleared out. It made my son have accidents on the carpet, and he never did this before, not even when potty training. We've been using prune juice, mag.citrate, and vit C. He goes at least twice per day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2007 Report Share Posted January 1, 2007 Charlotte: I read your message on the miralax board. I have a 13 year old AS kid too. Constipation is a BIG problem for him, but unfortunately miralax nearly destroyed him…ped GI specialist knew nothing of these needs. My take is that my son has/had leaky gut from yeast overgrowth and the polyethylene glycol in the miralax leaked into his blood stream and got in his brain. His AS symptoms were nondetectable before that, and we nearly lost him to suicide. Megadoses of vitamin C and magnesium citrate now keep him regular and we had to use Oxypowder to get it all going and still occasionally use one if he doesn’t have a BM in two days. So many of the spectrum kids use oxypowder. Hope this helps, P.S. We are also doing the DAN protocol with him to pull out heavy metals and he is about 80% well now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2007 Report Share Posted January 1, 2007 My son is very limited too. We just started the mag.citrate so we're still low, but we do up to 4000mg in divided doses throughout the day. C is not toxic, the body gets rid of whatever is doesn't need. With the prune juice, I mix it with V8 Splash and he can't tell the difference. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2007 Report Share Posted January 1, 2007 Hi , The problem is that I need to get him cleaned out pretty quick to check to see if there is still blood when he is cleaned out. I just bought fiber choice which he was on a while back and seemed to help. Is the stuff so bad that we couldn’t use it for a week just to get things moving? Or does it do that much damage that fast? I am so frustrated right now! Are you saying your son did not have AS prior to taking this product or that he was just really high functioning? Thanks for responding Charlotte From: miralax [mailto:miralax ] On Behalf Of Ausley Sent: Monday, January 01, 2007 11:04 AM To: cscottdesigns@... Cc: miralax Subject: Re: new members please post Charlotte: I read your message on the miralax board. I have a 13 year old AS kid too. Constipation is a BIG problem for him, but unfortunately miralax nearly destroyed him…ped GI specialist knew nothing of these needs. My take is that my son has/had leaky gut from yeast overgrowth and the polyethylene glycol in the miralax leaked into his blood stream and got in his brain. His AS symptoms were nondetectable before that, and we nearly lost him to suicide. Megadoses of vitamin C and magnesium citrate now keep him regular and we had to use Oxypowder to get it all going and still occasionally use one if he doesn’t have a BM in two days. So many of the spectrum kids use oxypowder. Hope this helps, P.S. We are also doing the DAN protocol with him to pull out heavy metals and he is about 80% well now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2007 Report Share Posted January 1, 2007 How much Mag.citrate and vit C are most people using on a daily basis? Does anyone use the fiber wafers too? He wont touch prune juice and he eats a very limited range of foods. -Charlotte From: miralax [mailto:miralax ] On Behalf Of deputy465@... Sent: Monday, January 01, 2007 2:07 PM To: miralax Subject: Re: Re: new members please post Chances are that the Miralax will not even get things cleared out that quickly. It takes a few days to start working, and could take months to get everything cleared out. It made my son have accidents on the carpet, and he never did this before, not even when potty training. We've been using prune juice, mag.citrate, and vit C. He goes at least twice per day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 Charlotte: My son had virtually no symptoms before using Miralax. It is still debatable if he is actually on the spectrum or not, but he DID become nonfunctioning and we are removing heavy metals and chemicals (we assume) quite successfully now…l8 months into biomed. The oxypowder works very fast. I would order it online, express it and GO! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 Thanks , I will look into the Oxypowder. Charlotte From: miralax [mailto:miralax ] On Behalf Of Ausley Sent: Tuesday, January 02, 2007 3:55 PM To: miralax Subject: Re: new members please post Charlotte: My son had virtually no symptoms before using Miralax. It is still debatable if he is actually on the spectrum or not, but he DID become nonfunctioning and we are removing heavy metals and chemicals (we assume) quite successfully now…l8 months into biomed. The oxypowder works very fast. I would order it online, express it and GO! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Hi Charlotte-- other options for cleanout would be the bottled Magnesium Citrate drink that they sell at the local pharmacies... there is also Fleet Phospho-Soda, although that tastes so bad that most kids will not drink it. There is also a type of pill that can be used for cleanout--maybe the pharmacist would know the name of it. I do believe it is a prescription, but at least getting the name of it, and some information about whether or not it is safe for kids, tested on kids, etc. would be good for you to talk to a pharmacist about. It's hard for me to answer as to whether or not using the miralax just for cleanout would be bad because my memories of what my son was like it, are still so vivid. However, I can say that he did not change for the first few days or so on it, so take that for what it's worth. I wouldn't ever put it back in him, but there are children who take it, who don't seem to be any different personality or neurologically-wise. What we find difficult to deal with, is figuring out who are the kids who reacted so badly and why...what did they have in common that caused the miralax to harm them. We don't have solid answers for that at this point. So if he will drink magnesium citrate, I would use that in lieu of miralax, but you'll have to decide what is best for you. But definitely stick around this board to see what other options you can find for treating the constipation once the testing is completed. :-) W Charlotte wrote: Hi , The problem is that I need to get him cleaned out pretty quick to check to see if there is still blood when he is cleaned out. I just bought fiber choice which he was on a while back and seemed to help. Is the stuff so bad that we couldn’t use it for a week just to get things moving? Or does it do that much damage that fast? I am so frustrated right now! Are you saying your son did not have AS prior to taking this product or that he was just really high functioning? Thanks for responding Charlotte From: miralax [mailto:miralax ] On Behalf Of AusleySent: Monday, January 01, 2007 11:04 AMTo: cscottdesignscomcast (DOT) netCc: miralax Subject: Re: new members please post Charlotte: I read your message on the miralax board. I have a 13 year old AS kid too. Constipation is a BIG problem for him, but unfortunately miralax nearly destroyed him…ped GI specialist knew nothing of these needs. My take is that my son has/had leaky gut from yeast overgrowth and the polyethylene glycol in the miralax leaked into his blood stream and got in his brain. His AS symptoms were nondetectable before that, and we nearly lost him to suicide. Megadoses of vitamin C and magnesium citrate now keep him regular and we had to use Oxypowder to get it all going and still occasionally use one if he doesn’t have a BM in two days. So many of the spectrum kids use oxypowder. Hope this helps, P.S. We are also doing the DAN protocol with him to pull out heavy metals and he is about 80% well now. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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