Re: sleep disturbances

[Guest guest]

She either wakes super early in the morning or wakes in the night and is up for 2 hours or both.

My son started doing that around 6 mos old and he was already pulling up to stand at that time so I thought he was just doing that to work on his new skills but he kept it up and now he is 9 yrs old and he still does that. We never know how much sleep he actually gets during the night until after school when he is horrible. So it's not miralax related for him because he wasn't on mirlax when that started and he's not on miralax anymore and he still does it.

We had him in afternoon kindergarten and it was really frustrating because he would wake up at 5AM and so was ready for a nap by school starting at 12:30 but we could not get the school to move him to the morning class. Same thing though he either wakes up earlier in the morning or he will get up for 2 hours and then go back to sleep and normally by the time he does that it's almost time to get up. He's in the 4th grade now and it's still going on.

e

[Guest guest]

Hi , Can you elaborate on what the issues were, and what you've done

to recover from the Miralax problems?

Thanks,

Kathy H.

sleep disturbances

Yes, I agree. Get off the Miralax…it causes all sorts of problems. We used it for l8 months and

Our child continued to worsen and worsen in the behavior department (sleep disturbances was a mild

problem comparatively, but one of the first symptoms). You guys read the archives, please. Miralax will hurt your child.

We have spent $20,000 now trying to recover our kid and he is not right yet….those chemicals crossed the blood/brain barrier and nearly destroyed him.

He is having a BM daily now with magnesium citrate and vitamin C (3 doses each). Oxypowder is what got him

finally regulated, which has a lot of magnesium in it…

[Guest guest]

Anyone wanting to call Oprah? Ausley wrote: Yes, I agree. Get off the Miralax…it causes all sorts of problems. We used it for l8 months and Our child continued to worsen and worsen in the behavior department (sleep disturbances was a

mild problem comparatively, but one of the first symptoms). You guys read the archives, please. Miralax will hurt your child. We have spent $20,000 now trying to recover our kid and he is not right yet….those chemicals crossed the blood/brain barrier and nearly destroyed him. He is having a BM daily now with magnesium citrate and vitamin C (3 doses

each). Oxypowder is what got him finally regulated, which has a lot of magnesium in it…

[Guest guest]

I don't think she really cares to tell you the truth !!!

Re: sleep disturbances

Anyone wanting to call Oprah? Ausley <lausleyvalp (DOT) net> wrote:

Yes, I agree. Get off the Miralax…it causes all sorts of problems. We used it for l8 months and

Our child continued to worsen and worsen in the behavior department (sleep disturbances was a mild

problem comparatively, but one of the first symptoms). You guys read the archives, please. Miralax will hurt your child.

We have spent $20,000 now trying to recover our kid and he is not right yet….those chemicals crossed the blood/brain barrier and nearly destroyed him.

He is having a BM daily now with magnesium citrate and vitamin C (3 doses each). Oxypowder is what got him

finally regulated, which has a lot of magnesium in it…

[Guest guest]

Oprah... I like her, but she probably has conflicts of interests with

pharmaceutical in that they do help her supply meds at a reduced/free

rate to Africa (e.g. AIDS meds). For many years, the autism community

has asked her to do a story on autism and mercury and she hasn't

touched it with a ten foot pole. Come to think of it, I can't even

recall any autism stories from her. Kind of a shame, really.

W

>

> Anyone wanting to call Oprah?

>

[Guest guest]

Dear Kathy, out of curiosity, Do you have a doc that agree's with you about the miralax? I'm just wondering because Childrens Memorial tried to tell me that this didn't happen and now we have so many people and it's hard to stop this when even the doc's don't know what happened. If you do, I'd love to give him all my info that I've gathered over the years. Jeanie Hudson wrote: I don't think she really cares to tell you the truth !!! Re: sleep disturbances Anyone wanting to call Oprah? Ausley <lausleyvalp (DOT) net> wrote: Yes, I agree. Get off the Miralax…it causes all sorts of problems. We used it for l8 months and Our child continued to worsen and worsen in the behavior department (sleep disturbances was a mild problem comparatively, but one of the first symptoms). You guys read the archives, please. Miralax will hurt your child. We have spent $20,000 now trying to

recover our kid and he is not right yet….those chemicals crossed the blood/brain barrier and nearly destroyed him. He is having a BM daily now with magnesium citrate and vitamin C (3 doses each). Oxypowder is what got him finally regulated, which has a lot of magnesium in it…

[Guest guest]

, What I was asking, is, Do they acknowledge the fact that the M caused anything? And what were the side effects. I'm sure you've read my posts, i've been researching the side effects for 6 years. And yes, I'll send you some but I have 500 people who submitted to the fda and 2 foot high stacks of papers, I need your fax #, I want to post them on the board but can't get the scanner to work, I also need to send them to another woman on here. ( SHE SAYS SHE NEEDS PROOF) I want to call Oprah and watch 10,000 people come out of the woodwork> Hudson wrote: I'm ashamed to say this but she has been on this for a very, very long time. I won't even tell how long......................... Initially it was a GI Doc in Atlanta, but over the years her well known DAN's have prescribed it. They have seen first hand the severe behavior she has when impacted and it can happen in a day or two. I have tried it all. I mean everything !! Nothing works but the dreaded M. I am so hoping the Zelnorm will work. Please, you can send me your info. if possible ! Kathy Re: sleep disturbances Anyone wanting to call Oprah? Ausley <lausleyvalp (DOT) net> wrote: Yes, I agree. Get off the Miralax…it causes all sorts of problems. We used it for l8 months and Our child continued to worsen and worsen in the behavior department (sleep disturbances was a mild problem comparatively, but one of the first symptoms). You guys read the archives, please. Miralax will

hurt your child. We have spent $20,000 now trying to recover our kid and he is not right yet….those chemicals crossed the blood/brain barrier and nearly destroyed him. He is having a BM daily now with magnesium citrate and vitamin C (3 doses each). Oxypowder is what got him finally regulated, which has a lot of magnesium in it…

[Guest guest]

No, they all say it's better than having her impacted. None of them including Dr. Krigsman has

ever seemed too concerned.

You don't need to fax me. I really do believe it. My daughter has really regressed over the years.

She seemed better when she was 4 years old than now. (she's 12).

Kathy

Re: sleep disturbances

Anyone wanting to call Oprah? Ausley <lausleyvalp (DOT) net> wrote:

Yes, I agree. Get off the Miralax…it causes all sorts of problems. We used it for l8 months and

Our child continued to worsen and worsen in the behavior department (sleep disturbances was a mild

problem comparatively, but one of the first symptoms). You guys read the archives, please. Miralax will hurt your child.

We have spent $20,000 now trying to recover our kid and he is not right yet….those chemicals crossed the blood/brain barrier and nearly destroyed him.

He is having a BM daily now with magnesium citrate and vitamin C (3 doses each). Oxypowder is what got him

finally regulated, which has a lot of magnesium in it…

[Guest guest]

Yes, I have been reading all the posts for some time. I also did a search for sleep on the board. I didn't read anything about sleep disturbances. I hope you were trying to be funny and not mean.

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

But not all kids are effected so badly like this. There are several parents on this list who have not seen such terrible symptoms in their children as the other parents claim. So one has to think are children with special needs being affected more? And why is that? And why is it that not all children with special needs are affected as severly as other children with close to the same needs?However any medication for any reason(s) given for so long without any improvement needs to be looked into further as to the "whys". DO NOT EVER feel like a bad mother!!! You're doing what the doctors advised you. Ok? You ARE trying to do your best. That's what matters. :)Perhaps it's time to get a second opinion. Does NOT mean you switch doctors. Rather a time to seek a medical doctor who totally specializes and is knee deep in interest in this topic. See what they have to say. Most insurance co's will pay for this. If not then ask to speak to someone on the medical board for your insurance co. You'll most likely be patched into their own hired nurse. You briefly explain the why's and then they will place approval on your record so that the insurance will pay for this visit.I recommend anyone with any illness or health issue to do this regardless of what it is. Humans are humans, we error so why not check it out? We'd do this without thinking with our money, why not our health?Did you try the obvious first? You need water to poop. If your child drinks or eats a lot of dairy, fried foods, or caffeine (ie chocolates) they will need more water/juice to bring them to normal. Exercise too. At 4 years of age they are constanly moving, that helps the BM's move down to the end. At 12 kids sit a lot. Perhaps only exercise at gym class? How about trying a short bike ride around the neighborhood wiht mom and then trying to BM?How's her vitamins? Vitamin C, magnesium and calcium DOES help children with issues. Is she taking a multivitamin? Make sure the magnesium and calcium she is taking with the vitamin supplement does not put her over the top. Ask her Pediatrician for help in this area. Also, go to an organic store for your vitamins. There you'll have more choices. Or ask your Ped for a brand and order it online :)At 4 I'm sure she was eating more veggies and fiber rather than at age 12. Tweens are funky about veggies I think more than young children. Have her eat anything with a "P" in it, those foods tend to help in the fiber dept: Plums, peaches, prunes, pears, apples (in some this makes them constipated), asparagus, etc.Try to limit or avoid fried foods (give perhaps only as a treat), bananas, too much dried foods at once (have her eat a few veggies and/or fruit to balance it out along with water), rice (watch the quantities on this food!).Watch to not drown her in water for then you can cause another sickness. What a few do is to drink one glass of juice diluted with a teeny bit of water and after that glass is done then they drink a glass of water. Keep doing through the day. :)Oh and some parents find that if they offer or place more fiber in their child's diet that it helps the child as well. Some swear to the juice called "Fruit + Fiber" it has a lot in it and it takes good. Remember these things may be simple but what many parents over look. Those have to ALL be done (not one step above can be left out in this equasion)  in order for you to see any improvement and to make the medications work properly. Constipation is a combination. Lose one of the above and it makes everything go haywire! :)Another idea is to try to have her "go" at the same time each day that she would normally BM. I know for little ones we do that to potty train them and it seems that they will "go" at that time even when they get older. Try getting back to that. At first it may take a lot of sitting and nothing happening but in time it should happen. Sometimes that helps the body to BM later on.Some parents have their kids try to "sit" on the toliet each morning when they get up and the child can read a book or magazine while the parent makes breakfast. Then the child eats and by the time breakfast is done (and they had their vitamin and OJ they have to "GO"! Others due this ritual before bedtime. So try that too. The sitting will make the body relax and her naturally pushing while sitting (even if she does not actually BM) will "move things along" until she has to go.GOOD LUCK! You're a great mother! You're ARE trying, that's all anyone wants a parent to do! I do hope you find some luck to help your child out! Best wishes!!! No, they all say it's better than having her impacted.  None of them including Dr. Krigsman has ever seemed too concerned. You don't need to fax me.  I really do believe it.  My daughter has really regressed over the years. She seemed better when she was 4 years old than now.  (she's 12). Kathy     Re: sleep disturbances Anyone wanting to call Oprah? Ausley <lausleyvalp (DOT) net> wrote: Yes, I agree.  Get off the Miralax…it causes all sorts of problems.  We used it for l8 months and Our child continued to worsen and worsen in the behavior department (sleep disturbances was a mild problem comparatively, but one of the first symptoms).  You guys read the archives, please.  Miralax will hurt your child. We have spent $20,000 now trying to recover our kid and he is not right yet….those chemicals crossed the blood/brain barrier and nearly destroyed him.  He is having a BM daily now with magnesium citrate and vitamin C (3 doses each).  Oxypowder is what got him finally regulated, which has a lot of magnesium in it…

[Guest guest]

Hi Robbi, I don't really recall saying I thought I was a "bad mother"?? I think I'm an awesome mother !!!!

I've devoted 16 years of my life to my girls and 12 to a very difficult child !

Anyway, I think you have great advice but she is a very complicated child and actually all you say I've done

for many years. She is just severely damaged from vaccines, in puberty at the moment, has severe hypotonia

and doesn't get exercise, her motor skills are severely affected and I know this affects pushing out any stool that

is not very soft. She has been dairy free since one year old ! And gluten free since age 3, she drinks plenty of water and

has been on tons of supplements all her life. What I meant about regression was not her stools, it's more about her progress.

Thanks for trying to help out.

Kathy

Re: sleep disturbances

Anyone wanting to call Oprah? Ausley <lausleyvalp (DOT) net> wrote:

Yes, I agree. Get off the Miralax…it causes all sorts of problems. We used it for l8 months and

Our child continued to worsen and worsen in the behavior department (sleep disturbances was a mild

problem comparatively, but one of the first symptoms). You guys read the archives, please. Miralax will hurt your child.

We have spent $20,000 now trying to recover our kid and he is not right yet….those chemicals crossed the blood/brain barrier and nearly destroyed him.

He is having a BM daily now with magnesium citrate and vitamin C (3 doses each). Oxypowder is what got him

finally regulated, which has a lot of magnesium in it…

[Guest guest]

Hi, I honestly couldnt tell you if there is a link between miralax

and sleep. I dont know enough about the miralax side affects. Many

in this group does. What I can tell you is that my son would wake up

because he was so soaked with urine from the miralax. Excessive,

excessive wet diapers, sheets, etc. Also, I wanted to mention, now

that my sons movements have been better, he does sleep better. When

he had/has gi discomfort, bloating, backup, or cramps, he well wake

up/be restless due to the bowel discomfort. Now as far as the waking

and staying awake during the night, my son used to do this " alot "

when he was around toddler age. I was so tired then. Even if he

would wake during night, he would still be up bright and early. I

would drag so bad during the day, he seemed fine! I suspect that

alot of young ones do this. My son wasnt on miralax at the time. I

have a teen son who still is restless at night. I now wonder if vacs

had anything to do with my youngest wakeing alot during the night.

Vacs has done so many horrible things with my son. It affects there

nuero and the bowels. Also, I just think sometimes this wakeing

during the night might be a normal toddler thing. I dont know, but

can tell you that many outgrow it, mine did, he is 7yrs now. Now if

his gi is acting up, he is restless and wakes alot, just doesnt have

the need to be out of bed during the night now. I hope for more

sleep for you and your child!! Jennie<><

>

> Has anyone found a correlation between miralax use and sleep

issues.

> My 2.5 year old has been battling sleep issues since around 1 year

of

> age. This is also the time when she got constipated, started milk

and

> started miralx.

>

> She either wakes super early in the morning or wakes in the night

and

> is up for 2 hours or both.

>

> The doc says she is " normal. " I don't think that is normal. She

also

> didn't think she had a milk allergy. I decided to go ahead and

try

> soy anyway and my daughter refuses to touch it, even when it is

mixed

> with regular milk.

>