Re: good infectious disease dr/root canal

[Guest guest]

Amy, it's hard to find good docs who understand any of this unless

you get very, very lucky.

You've got to find one problem that they can't write off, and work

from there. Build your own case. Get scans, blood tests, biopsies,

coagulation tests, anything you can to support your case.

It's difficult as hell.

One thing that gets me in the door is a CT scan that the radiologist

describes as " consistent with osteomyelitis " . And other CT scans

that show diseased sinuses, and how they look before and after abx.

Also, I ave lab tests that show antibiotic resistance which helps my

case against generic treatment.

Even then, it's hard to get help that actually means anything.

You've got to come up with a plan and stick to it, because if you go

in with a basket full of symptoms, most docs are going to kick you

out the door. Did you know that docs are taught that if you list

more than 3 symptoms, you're probably not really sick? You've got to

have evidence, or they write you off as a head case.

And it makes sense to hit them with one or two symptoms at a time,

if you want any help at all. I.E. if you think your problem is

originating in your jaw, then you have to scream bloody murder about

symptoms that point to your jaw only, or you're not going to get

helped. You have to support your case with evidence that will get

you the tests you believe will help you. Don't let them write you

off, when they can't find an answer. Ask for the next test, and the

next test, or a referral to another doc, until you have some

evidence to support a diagnosis that can help you.

penny

>

>

> I am requesting a referral for an ID doctor from my physiatrist

(pain

> and brain rehab doc)

>

> is the request for a lymes doc a seperate doc or same?

>

> I have root canal with air pocket of cause of all health brain and

> sinus problems/disabled, also cfids(if those virus/infections

counts

> for infectious doc)

>

>

> the pain and brain doc would give a better referral being a brain

> specialist, but is likely to refer me back to my family doc for

this

> referral, and I think their referrral not as good.

>

> none of them will understand about root canals causing infectious

> disease. and related to high lymes.

>

> do I also want an ENT and arthritis drs testing for bacterias?

>

> I am certain I ahve mold (bacteria/viral ) caused infectious

> arthritis. it got worse from the mold meds I am on, as a die off

> effect. molds from old root canal, especailly bad due to RC air

pocket.

>

> the pain and brain doc willing to try to get me hyperbaric but does

> not understand you need ABX corrctly prescribed first.

>

> I think arthritis docs test from a bone sample???? is that correct,

> and I don't think I want that. prefer blood or nasal test.

>

> any feedback, thanks, amy

>