Re: When Alfie's mother said he had a brain tum...

[Guest guest]

God, Vicky, it's so painful reading that - what is wrong with these people? What happens to them?

I guess at least we've realised that no one is going to help our kids unless we push them into it (or pay them into it sadly).

D xx

>>>>Darla, you remind me of when was dx at Nottingham early years, and the report came back.The first line was "Parents will need counselling" maybe we did lol, but we wondered where the bit about having early interventions was, absolutely nowhere, nuttin, not a word of advice for us or the authorities on what to do.We were also told by hospital that dropping down to the 2nd percentile was normal, no teeth at 8 yrs old was normal, bald spots was normal, diahrea was normal, etc, etc.I so wish I knew than what I know now, but hindsight is 20/20 vision.Vicky>>>>