Re: Balloon Sinuplasty - Wow!

April 6, 2006

Penny, This does look like exciting news. I wish they had done this when I first started with sinus surgeries in 1987. The surgery never helped and in fact I think made things worse. Mariepenny <pennyhoule@...> wrote: http://www.acclarent.com/professional/balloon.htmlBe sure to watch the technology animation. It's really good.I'm going to have this done in a couple of weeks. Despite being one of those people who lacks symptoms and never seemed a candidate for sinusitis, my CT scans show a different story. My right maxillary sinus is completely full (and the gunk in there is very old). Basically like a big abscess in my head that's been there a long time. The CT scans also show my teeth roots are in my sinuses,

so the infected teeth aren't helping things. However, the infected sinuses aren't helping the infected teeth either.I've found an awesome ENT who does this new balloon sinuplasty and is having great success with it. Recovery only takes a day. So far, only a couple of docs are doing it here in SD, but it's going to become very common, probably an office procedure in the future. This ENT also does cultures and sensitivities for bacteria and mold until you're well. Eureka, finally hit the jackpot with a doctor. She truly is the best doctor I've ever met. Very thorough, very persistent, understands the fatigue/illness factor from chronic infection and she doesn't quit until you get better. Interestingly, she said that mold is the culprit in only a very small percentage of people. She said the Mayo Clinic fungal study threw everybody into a tizzy, but no one's ever been able to reproduce it. She tests

for it, and I know one person who she's treated for it, but it's not the big bad that some people seem to think. And I trust this doc to be a completely straight shooter. Mainly based on the people she's gotten well. Some take as long as two years, but she doesn't give up.I'm so excited about this new technology. Should help a lot of people.penny

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April 6, 2006

Penny, Your information on fungal sinusitis is just plain wrong....Far from

fading away into obscurity the Mayo Clinics report is becoming the standard

explanation for chronic sinusitis

Some interesting sites on the subject, considering your taking Antifungals

and like most of us on this group by definition chronically ill therefore

immucompromised the contents are should be even more interesting...

http://www.sinuses.com/fungal.htm

http://www.entnet.org/healthinfo/sinus/fungal_sinusitis.cfm

The Diagnosis and Incidence of Allergic Fungal Sinusitis.. this has some

beautiful photo's

http://www.aspergillus.man.ac.uk/secure/laboratory_protocols/Ponikau.pdf

[infections] Balloon Sinuplasty - Wow!

http://www.acclarent.com/professional/balloon.html

Be sure to watch the technology animation. It's really good.

I'm going to have this done in a couple of weeks. Despite being one

of those people who lacks symptoms and never seemed a candidate for

sinusitis, my CT scans show a different story. My right maxillary

sinus is completely full (and the gunk in there is very old).

Basically like a big abscess in my head that's been there a long

time. The CT scans also show my teeth roots are in my sinuses, so

the infected teeth aren't helping things. However, the infected

sinuses aren't helping the infected teeth either.

I've found an awesome ENT who does this new balloon sinuplasty and

is having great success with it. Recovery only takes a day. So far,

only a couple of docs are doing it here in SD, but it's going to

become very common, probably an office procedure in the future.

This ENT also does cultures and sensitivities for bacteria and mold

until you're well. Eureka, finally hit the jackpot with a doctor.

She truly is the best doctor I've ever met. Very thorough, very

persistent, understands the fatigue/illness factor from chronic

infection and she doesn't quit until you get better.

Interestingly, she said that mold is the culprit in only a very

small percentage of people. She said the Mayo Clinic fungal study

threw everybody into a tizzy, but no one's ever been able to

reproduce it. She tests for it, and I know one person who she's

treated for it, but it's not the big bad that some people seem to

think. And I trust this doc to be a completely straight shooter.

Mainly based on the people she's gotten well. Some take as long as

two years, but she doesn't give up.

I'm so excited about this new technology. Should help a lot of

people.

penny

April 6, 2006

,

All you've done is post the same 1999 mayo study, and some anecdotal

evidence.

I'm not saying that fungus is not involved or isn't a contributor.

But it's the militant stand some are taking that all sinusitis is

caused by fungus that I have a problem with. There simply isn't

enough evidence. And it's certainly counter to my own experience.

I was tested for fungus, remember? What came up on my tests was not

fungus, but abx resistant staph, strep and pseudomonas.

I even asked the doc if I perhaps have a fungal overgrowth now due

to all the abx I'm on. She said that she doesn't see evidence of

fungus in my case. Remember, she is familiar with it and does treat

for it (she recently prescribed aphotecin B for a a friend of mine).

And of course, when I have the surgery, I'll be tested again. But

it's just too much of a leap to think one study proves that ALL

sinusitis is caused by fungus. It's much more rational to think that

fungus is a co-infection in many cases, not the sole cause.

Here's how I see my own case. I was feeling better for well over 6

months and then the abx started failing. All that time I've also

been on antifungals. Once the abx failed, my sinuses filled up

again, just as they did the last time I relapsed. Only difference is

back then I wasn't taking any anti-fungals. Only abx. Same result

with and without the antifungals.

The antifungals are still working in other ways, but they haven't

helped my sinuses one bit.

I'm hoping that this new procedure will allow my sinuses to finally

start draining properly, removing at least some of the cess pool in

my head, much as the abx do, when they're working.

Anyone considering sinus surgery, I hope you can locate a doc doing

this new procedure. It's minimally invasive and the results being

reported are incredible. And you can be back to work in a day,

achieving better results than the old surgery did with far less

damage.

My big question now is a chicken or egg one. Will unblocking my

sinuses get rid of the inflammation that may be causing the blockage

which causes the chronic infection to begin with, or is the

inflammation just a side effect of a preexisting infection? I still

think being able to drain the gunk out of my head is going to help.

penny

>

> Penny, Your information on fungal sinusitis is just plain

wrong....Far from

> fading away into obscurity the Mayo Clinics report is becoming the

standard

> explanation for chronic sinusitis

>

> Some interesting sites on the subject, considering your taking

Antifungals

> and like most of us on this group by definition chronically ill

therefore

> immucompromised the contents are should be even more

interesting...

>

> http://www.sinuses.com/fungal.htm

>

> http://www.entnet.org/healthinfo/sinus/fungal_sinusitis.cfm

>

> The Diagnosis and Incidence of Allergic Fungal Sinusitis.. this

has some

> beautiful photo's

>

http://www.aspergillus.man.ac.uk/secure/laboratory_protocols/Ponikau.

pdf

>

> [infections] Balloon Sinuplasty - Wow!

>

> http://www.acclarent.com/professional/balloon.html

>

> Be sure to watch the technology animation. It's really good.

>

> I'm going to have this done in a couple of weeks. Despite being one

> of those people who lacks symptoms and never seemed a candidate for

> sinusitis, my CT scans show a different story. My right maxillary

> sinus is completely full (and the gunk in there is very old).

> Basically like a big abscess in my head that's been there a long

> time. The CT scans also show my teeth roots are in my sinuses, so

> the infected teeth aren't helping things. However, the infected

> sinuses aren't helping the infected teeth either.

>

> I've found an awesome ENT who does this new balloon sinuplasty and

> is having great success with it. Recovery only takes a day. So far,

> only a couple of docs are doing it here in SD, but it's going to

> become very common, probably an office procedure in the future.

>

> This ENT also does cultures and sensitivities for bacteria and mold

> until you're well. Eureka, finally hit the jackpot with a doctor.

>

> She truly is the best doctor I've ever met. Very thorough, very

> persistent, understands the fatigue/illness factor from chronic

> infection and she doesn't quit until you get better.

>

> Interestingly, she said that mold is the culprit in only a very

> small percentage of people. She said the Mayo Clinic fungal study

> threw everybody into a tizzy, but no one's ever been able to

> reproduce it. She tests for it, and I know one person who she's

> treated for it, but it's not the big bad that some people seem to

> think. And I trust this doc to be a completely straight shooter.

> Mainly based on the people she's gotten well. Some take as long as

> two years, but she doesn't give up.

>

> I'm so excited about this new technology. Should help a lot of

> people.

>

> penny

>

April 7, 2006

Yes, fungi as a co-infection , I'll buy that , in fact it's fairly clear

that with chronic infection be it fungal or bacterial if you contract one

you soon have the other, saying that I think that fungi are the missing

link, the underling cause with much illness...I'm still trying to fathom

the improvement I experienced when I had the flu virus, I hope it activated

my stressed IS. I see my GP Monday I'm hoping he will prescribe

Tagamet...I'll keep you posted ..good luck with the unblocking ....

Case report: successful treatment with cimetidine and zinc sulphate in

chronic mucocutaneous candidiasis.

Polizzi B, Origgi L, Zuccaro G, Matti P, Scorza R.

Institute of Internal Medicine, Infectious Disease and Immunopathology,

Univerity of Milan, Italy.

The authors evaluated the clinical efficacy of a treatment with cimetidine

and zinc sulphate in a patient with chronic mucocutaneous candidiasis.

Cimetidine was given at a dose of 400 mg three times daily; zinc sulphate at

a dose of 200 mg daily, then adjusted to maintain blood zinc levels at the

upper normal range. This treatment lasted 16 months. An impressive and

significant reduction of the infectious events and an increased CD4

(helper/inducer) cell counts were observed. The authors conclude that this

combined immunopotentiating treatment is safe and inexpensive to treat

immunodeficiency disorders.

Publication Types:

· Case Reports

PMID: 8602650 [PubMed - indexed for MEDLINE]

Chronic mucocutaneous candidiasis in a 6-year-old boy

http://jmii.org/content/pdf/v37n3p196.pdf

[infections] Balloon Sinuplasty - Wow!

>

> http://www.acclarent.com/professional/balloon.html

>

> Be sure to watch the technology animation. It's really good.

>

> I'm going to have this done in a couple of weeks. Despite being one

> of those people who lacks symptoms and never seemed a candidate for

> sinusitis, my CT scans show a different story. My right maxillary

> sinus is completely full (and the gunk in there is very old).

> Basically like a big abscess in my head that's been there a long

> time. The CT scans also show my teeth roots are in my sinuses, so

> the infected teeth aren't helping things. However, the infected

> sinuses aren't helping the infected teeth either.

>

> I've found an awesome ENT who does this new balloon sinuplasty and

> is having great success with it. Recovery only takes a day. So far,

> only a couple of docs are doing it here in SD, but it's going to

> become very common, probably an office procedure in the future.

>

> This ENT also does cultures and sensitivities for bacteria and mold

> until you're well. Eureka, finally hit the jackpot with a doctor.

>

> She truly is the best doctor I've ever met. Very thorough, very

> persistent, understands the fatigue/illness factor from chronic

> infection and she doesn't quit until you get better.

>

> Interestingly, she said that mold is the culprit in only a very

> small percentage of people. She said the Mayo Clinic fungal study

> threw everybody into a tizzy, but no one's ever been able to

> reproduce it. She tests for it, and I know one person who she's

> treated for it, but it's not the big bad that some people seem to

> think. And I trust this doc to be a completely straight shooter.

> Mainly based on the people she's gotten well. Some take as long as

> two years, but she doesn't give up.

>

> I'm so excited about this new technology. Should help a lot of

> people.

>

> penny

>

April 9, 2006

can anyone comment on this

a top US mold dr who also specializes in immune and allergy and also

expert witness for mold cases

tells me that you must treat the sinus molds first or the antibiotics

will not work.

I find that ot be a rather bold statement but he is a top doc.

I ahve not heard that from anyone else

and I ahve other docs telling me to goet on ABX along wiht the mold.

now, even trying just the mold nizoral nasal spray alone is causing me

so much die off that I cannot imageine adding abx also.

do ABX cause folks die off or feeling worse first?

penny, I think you are getting the wrong mold test. you do ahve mold

in there too. I had a prior wrong mold test myself which showed

absolutely nothing. this doc uses a blood antigen test and I showed 8

molds, including aspergillus.my problems are from Root canal. he has

other panels that he says will show LOTS MORE molds but does not think

I need to spend the $ for the tests as the treatment is the same.

amy

>

April 10, 2006

Wow, there's that cimetidine again. It keeps popping up everywhere.

Antiviral results are potentially very impressive as well. I'm

keeping it on hand in case of bird flu.

You need a prescript for tagament? It's OTC here.

penny

> >

> > Penny, Your information on fungal sinusitis is just plain

> wrong....Far from

> > fading away into obscurity the Mayo Clinics report is becoming

the

> standard

> > explanation for chronic sinusitis

> >

> > Some interesting sites on the subject, considering your taking

> Antifungals

> > and like most of us on this group by definition chronically ill

> therefore

> > immucompromised the contents are should be even more

> interesting...

> >

> > http://www.sinuses.com/fungal.htm

> >

> > http://www.entnet.org/healthinfo/sinus/fungal_sinusitis.cfm

> >

> > The Diagnosis and Incidence of Allergic Fungal Sinusitis.. this

> has some

> > beautiful photo's

> >

>

http://www.aspergillus.man.ac.uk/secure/laboratory_protocols/Ponikau.

> pdf

> >

> > [infections] Balloon Sinuplasty - Wow!

> >

> > http://www.acclarent.com/professional/balloon.html

> >

> > Be sure to watch the technology animation. It's really good.

> >

> > I'm going to have this done in a couple of weeks. Despite being

one

> > of those people who lacks symptoms and never seemed a candidate

for

> > sinusitis, my CT scans show a different story. My right maxillary

> > sinus is completely full (and the gunk in there is very old).

> > Basically like a big abscess in my head that's been there a long

> > time. The CT scans also show my teeth roots are in my sinuses, so

> > the infected teeth aren't helping things. However, the infected

> > sinuses aren't helping the infected teeth either.

> >

> > I've found an awesome ENT who does this new balloon sinuplasty

and

> > is having great success with it. Recovery only takes a day. So

far,

> > only a couple of docs are doing it here in SD, but it's going to

> > become very common, probably an office procedure in the future.

> >

> > This ENT also does cultures and sensitivities for bacteria and

mold

> > until you're well. Eureka, finally hit the jackpot with a doctor.

> >

> > She truly is the best doctor I've ever met. Very thorough, very

> > persistent, understands the fatigue/illness factor from chronic

> > infection and she doesn't quit until you get better.

> >

> > Interestingly, she said that mold is the culprit in only a very

> > small percentage of people. She said the Mayo Clinic fungal study

> > threw everybody into a tizzy, but no one's ever been able to

> > reproduce it. She tests for it, and I know one person who she's

> > treated for it, but it's not the big bad that some people seem to

> > think. And I trust this doc to be a completely straight shooter.

> > Mainly based on the people she's gotten well. Some take as long

as

> > two years, but she doesn't give up.

> >

> > I'm so excited about this new technology. Should help a lot of

> > people.

> >

> > penny

> >

April 10, 2006

Yes , prescription here, my doc did prescribe I start tomorrow. I do believe

that the seat of infection is in the gut , once established in the gut

normal drug doses have little effect in eradicating he infection ..it's

interesting that cimetidine alters conditions in the gut,where 80% of our IS

resides, brings to mind Pasteur's dying words: " The germ is nothing, the

inner terrain is everything. " makes you think!..

[infections] Balloon Sinuplasty - Wow!

> >

> > http://www.acclarent.com/professional/balloon.html

> >

> > Be sure to watch the technology animation. It's really good.

> >

> > I'm going to have this done in a couple of weeks. Despite being

one

> > of those people who lacks symptoms and never seemed a candidate

for

> > sinusitis, my CT scans show a different story. My right maxillary

> > sinus is completely full (and the gunk in there is very old).

> > Basically like a big abscess in my head that's been there a long

> > time. The CT scans also show my teeth roots are in my sinuses, so

> > the infected teeth aren't helping things. However, the infected

> > sinuses aren't helping the infected teeth either.

> >

> > I've found an awesome ENT who does this new balloon sinuplasty

and

> > is having great success with it. Recovery only takes a day. So

far,

> > only a couple of docs are doing it here in SD, but it's going to

> > become very common, probably an office procedure in the future.

> >

> > This ENT also does cultures and sensitivities for bacteria and

mold

> > until you're well. Eureka, finally hit the jackpot with a doctor.

> >

> > She truly is the best doctor I've ever met. Very thorough, very

> > persistent, understands the fatigue/illness factor from chronic

> > infection and she doesn't quit until you get better.

> >

> > Interestingly, she said that mold is the culprit in only a very

> > small percentage of people. She said the Mayo Clinic fungal study

> > threw everybody into a tizzy, but no one's ever been able to

> > reproduce it. She tests for it, and I know one person who she's

> > treated for it, but it's not the big bad that some people seem to

> > think. And I trust this doc to be a completely straight shooter.

> > Mainly based on the people she's gotten well. Some take as long

as

> > two years, but she doesn't give up.

> >

> > I'm so excited about this new technology. Should help a lot of

> > people.

> >

> > penny

> >

November 16, 2006

Amy,

Who is the doctor you are seeing? I'm having a

difficult time finding a good doc for mold? Sheila

--- amydent9 <amydent9@...> wrote:

>

> can anyone comment on this

>

> a top US mold dr who also specializes in immune and

> allergy and also

> expert witness for mold cases

> tells me that you must treat the sinus molds first

> or the antibiotics

> will not work.

> I find that ot be a rather bold statement but he is

> a top doc.

> I ahve not heard that from anyone else

> and I ahve other docs telling me to goet on ABX

> along wiht the mold.

>

> now, even trying just the mold nizoral nasal spray

> alone is causing me

> so much die off that I cannot imageine adding abx

> also.

>

> do ABX cause folks die off or feeling worse first?

>

> penny, I think you are getting the wrong mold test.

> you do ahve mold

> in there too. I had a prior wrong mold test myself

> which showed

> absolutely nothing. this doc uses a blood antigen

> test and I showed 8

> molds, including aspergillus.my problems are from

> Root canal. he has

> other panels that he says will show LOTS MORE molds

> but does not think

> I need to spend the $ for the tests as the treatment

> is the same.

>

> amy

> >

>

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