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It has been a while since I have reviewed the groups discussions so

forgive me if I am repeating anything preciously covered.

I recently moved into a new apartment and can hear my upstairs

neighbor going through her morning routine...walking around mainly,

pair that with some uncertainty about my college application and a new

boyfriend and you have a situation where my stress level and

sensitivity level has increased. I have spoken to my new bf about my

sound sensitivities and he is understanding and trying to keep me

happy. I am writing though to see if there is more I can do for

myself. Someone recently recommended some sort of alternative

treatment, like acupuncture or a chiropractor. I am a logical person

and don't see the connection with such treatments, but desperation

makes me consider giving them a try. Does anyone have any experience

with alternative treatments? Can some one provide some advise etc.

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Obviously these 800 members and MYSELF INCLUDED don't really have a

sound sensitivity problem. It doesn't really exist. BALONEY!!! It is a

REAL problem for a lot of people, MYSELF INCLUDED!!!

I was just told that people chewing gum around me -- in my face -- isn't

a problem. And I shouldn't be having a problem with this. And this is

from someone I thought really understood and cared about me and who

always makes me stop doing things that bother her.

Life is hell right now.

Multi-Facets Wolfu-chan wrote:

>

>

> Eight hundred members here and it " isn't common " ? (giggles)

>

>

> = M-F.

>

>

> ----- Original Message -----

> >From: Hardenbergh

> >I'm skeptical of alternative treatments too, but I did go to an

> acupuncturist for stomach problems (out of desperation). I mentioned my

> sound sensitivities, and she said, " Oh that's really common. There's a

> point under your ears that will help. " Of course I knew then that she

> didn't understand, because I know 4s isn't common. A little noise

> sensitivity is probably common, but full-blown 4s is certainly not.

>

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^O_o^ I-I was cracking a joke.

= M-F.

----- Original Message -----

> Obviously these 800 members and MYSELF INCLUDED don't really have a

> sound sensitivity problem. It doesn't really exist. BALONEY!!! It is a

> REAL problem for a lot of people, MYSELF INCLUDED!!!

>

> I was just told that people chewing gum around me -- in my face -- isn't

> a problem. And I shouldn't be having a problem with this. And this is

> from someone I thought really understood and cared about me and who

> always makes me stop doing things that bother her.

>

> Life is hell right now.

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That must be frustrating to have someone say that they know about your problem when they really don't. The best luck I have had with an alternative practitioner who really did understand my problem was with a craniosacral therapist who used to be an occupational therapist. In the occupational therapy world, the problem is known as sensory defensiveness and comes in many flavors of which 4S is one type. I found this type of therapy to be very relaxing and it did help me with an insomnia issue I had. That helped my 4S indirectly--because it is much worse when I don't sleep, but it definitely is not a cure. I did feel like I was getting a good deal though because it is much cheaper to get a massage than to go for occupational therapy and during my massage I learned a lot from her. She also showed me ways I could massage my head when I am stressed out.

-----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of HardenberghSent: Saturday, August 09, 2008 12:58 PMTo: Soundsensitivity Subject: Re:Hello

I'm skeptical of alternative treatments too, but I did go to an acupuncturist for stomach problems (out of desperation). I mentioned my sound sensitivities, and she said, "Oh that's really common. There's a point under your ears that will help." Of course I knew then that she didn't understand, because I know 4s isn't common. A little noise sensitivity is probably common, but full-blown 4s is certainly not. Anyway, after 3 or 4 sessions, there was no change. Big waste of money for both my stomach and ears.

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I take my daughter to an orthogonal chiropractor, and she swears that all the bizarre treatments she's endured has helped her. Unfortunately there have been so many different ones I'm not sure exactly what might have helped. Our plan ran out and I haven't taken her there for about a month, and now she is totally regressing and has been super sensitive again. I guess I am going to take her on Monday for an adjustment. Hopefully she'll find relief.

I think alternative treatments can be good--at least the doctors seem to believe that 4s exists and don't make you feel like it's in your head.

Good luck--

Kathy

-----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of Kristy-Ann Sent: Friday, August 08, 2008 3:29 PMTo: Soundsensitivity Subject: Hello

It has been a while since I have reviewed the groups discussions soforgive me if I am repeating anything preciously covered.I recently moved into a new apartment and can hear my upstairsneighbor going through her morning routine...walking around mainly,pair that with some uncertainty about my college application and a newboyfriend and you have a situation where my stress level andsensitivity level has increased. I have spoken to my new bf about mysound sensitivities and he is understanding and trying to keep mehappy. I am writing though to see if there is more I can do formyself. Someone recently recommended some sort of alternativetreatment, like acupuncture or a chiropractor. I am a logical personand don't see the connection with such treatments, but desperationmakes me consider giving them a try. Does anyone have any experiencewith alternative treatments? Can some one provide some advise etc.

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I should have said I'm skeptical but open to alternative treatment--there's nothing a conventional doctor can do for us, apparently.

Has anyone here been tested for pyroluria or histadelia? A friend of mine looked at our website, and she thought that our symptoms could be related to one or both of those conditions. Pyoluria is related to depression, sound sensitivity, and schizophrenia, while histadelia is linked to OCD. I'm definitely getting tested for pyoluria--it fits me extremely well. Here's more info:

http://www.naturopathyonline.com/PatientRoles/pyroluria.htm

http://www.drkaslow.com/html/histadelia.html

Neither of these conditions are considered "real" by the medical community, by the way.

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