Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Dear , You are in a position to help your friends get the correct testing and treatments you did not get during the Lake Tahoe epidemic. You may want to refer them to the " announcement-only " list we set to distribute this information. <MycoplasmaRegistry- subscribe > " ...FREE Brochure: 'How to Get an Accurate Polymerase Chain Reaction (PRC) Blood Test for Mycoplasmal and Other Infections with a List of International Laboratories'© by Dudley and Leslee Dudley is emailed to new subscribers. Its updated with current information and the new version is posted to this list each month. ... " For years we have seen people not recover because their physicians had not identified all their infections therefore treatments failed. We have also been frustrated for patients who did not get accurate tests. To help fellow patients we have complied recommendations from our own experiences and patients' feedback. Today more labs are doing PCR tests which are 70% for Lyme Disease and 96% for mycoplasmas. More patients will be able go directly to a lab nearest them and get their blood drawn fresh which greatly increases the accuracy rate. Accurate testing increases patients changes of recovering or at least being on the most effective antibiotics for their pathogen(s). The longer a patient has been ill the more opportunities to acquire additional infections or reactivated old viruses, and all need to be dealt with. There are many nonviral infections that takes 2 to five years or more to recover from with the correct antibiotics/drugs such as: mycoplasmas, borrelias, Q-fever, tularemia, brucellosis, hepatitis C, babesias, bartonellas ... That's a long commitment for both physicians and patients so its important to really what we all have. Best of luck, Dudley & Leslee Dudley, Mycoplasma Registry Copyright 2005 . > > My x-girlfriend has had a relapsing/remitting sore throat with fever, > nasal congestion for many many months. I was like damn why didnt you > tell me! I havent seen her in about 3 years. > > I went to highschool with a guy who had something somewhat similar, > but more dyspneic in symptoms I think. Mycoplasma pneumoniae was > detected and he did " heavy " abx for some months and got well. I hadnt > talked to him in years until this month, turns out hes a virology > student. > > I'm sending my girlfriend some work of Strattons, and a 1992 case > series, on chronic refractory respiratory infections that had > indications of causition by Cpn. And I'll be explaining to her all > about bacterial models for diseases that are slowly/poorly responsive > to abx. She was once a pre-med student so it should be easy to > communicate it. If anyone else has any information they think I should > take in, specific to this subject, fire away. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Mycoplasma dudes? What is the treatment for all the 'bells and whistles'(infections) your talking about??? I don't think too many labs do anything past recommend doxycycline for so called mycoplasma positives....This generally does squat for all the poeple I know. What happens with you guys- do you add in pulsed low dose zithromax and call it therapy???I have observed one very powerfull thing in the past few years the people that do a couple or a few drugs (eric is an egs. )and don't mess around actually almost make a great recovery.Single therapy has proved to be next to useless as it only goes so far and turns, or just barely holds back the hurricane brewing.You gotta read the stories to appreciate how pathetic many things are ESPECIALLY MYCOPLASMA TESTING and it's TREATMENTS.Nicholson was pretty much at the head of trying to help the gulf war veterans and not many of them are still around????He took the millions, did his mycoplasma testing and doxy therapy on them and it's become almost a joke. tony > > > > My x-girlfriend has had a relapsing/remitting sore throat with > fever, > > nasal congestion for many many months. I was like damn why didnt > you > > tell me! I havent seen her in about 3 years. > > > > I went to highschool with a guy who had something somewhat similar, > > but more dyspneic in symptoms I think. Mycoplasma pneumoniae was > > detected and he did " heavy " abx for some months and got well. I > hadnt > > talked to him in years until this month, turns out hes a virology > > student. > > > > I'm sending my girlfriend some work of Strattons, and a 1992 case > > series, on chronic refractory respiratory infections that had > > indications of causition by Cpn. And I'll be explaining to her all > > about bacterial models for diseases that are slowly/poorly > responsive > > to abx. She was once a pre-med student so it should be easy to > > communicate it. If anyone else has any information they think I > should > > take in, specific to this subject, fire away. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Tony, In your view, what would be a very aggressive and powerful therapy for mycoplasma? I will try it! > > > > > > My x-girlfriend has had a relapsing/remitting sore throat with > > fever, > > > nasal congestion for many many months. I was like damn why didnt > > you > > > tell me! I havent seen her in about 3 years. > > > > > > I went to highschool with a guy who had something somewhat > similar, > > > but more dyspneic in symptoms I think. Mycoplasma pneumoniae was > > > detected and he did " heavy " abx for some months and got well. I > > hadnt > > > talked to him in years until this month, turns out hes a > virology > > > student. > > > > > > I'm sending my girlfriend some work of Strattons, and a 1992 > case > > > series, on chronic refractory respiratory infections that had > > > indications of causition by Cpn. And I'll be explaining to her > all > > > about bacterial models for diseases that are slowly/poorly > > responsive > > > to abx. She was once a pre-med student so it should be easy to > > > communicate it. If anyone else has any information they think I > > should > > > take in, specific to this subject, fire away. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 > You are in a position to help your friends get the correct testing > and treatments you did not get during the Lake Tahoe epidemic. Im with a C, no relation to , the one you mean. Its easy to confuse us, especially since I often agree with his views. > Accurate testing increases patients changes of recovering or at least > being on the most effective antibiotics for their pathogen(s). The > longer a patient has been ill the more opportunities to acquire > additional infections or reactivated old viruses, and all need to be > dealt with. I partially disagree. Because its hard IMO for qualitative tests to determine which of any organisms present are " keystone " ones, and because in vitro sensitivity testing doesnt give the whole story for some organisms/drugs, I emphasize the data of other patients treatment responses most when I choose my therapies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 > > Accurate testing increases patients changes of recovering or at > least > > being on the most effective antibiotics for their pathogen(s). The > > longer a patient has been ill the more opportunities to acquire > > additional infections or reactivated old viruses, and all need to be > > dealt with. > > I partially disagree. Because its hard IMO for qualitative tests to > determine which of any organisms present are " keystone " ones, and > because in vitro sensitivity testing doesnt give the whole story for > some organisms/drugs, I emphasize the data of other patients treatment > responses most when I choose my therapies. Well, many of the LLMDs and others would disagree with me there, and maybe theyre right. I dono. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Dan I'm not sure doing any therapy based on mycoplasma stacks up.I do believe bacteria are constantly evolving and don't have cells walls and then they do. The funny thing is time and time again the cell wall drug of penicillin and amoxacillin have proven strong therapy for many patients-this fact alone makes having such a head in the sand approach, (mycoplasma positive) a really poor thing to chase up and treat- they only have tetracycline groups of drugs generally and throw in the odd zithromax. This is by no means ideal therapy for anyone because having an infected heart (wether you believe this or not) makes taking these drugs a negative experience and dangerous at times. Again I'm all for people finding 2 or 3 drugs to suit there groups of bugs, to get there infection toxic load down. > > > > > > > > My x-girlfriend has had a relapsing/remitting sore throat with > > > fever, > > > > nasal congestion for many many months. I was like damn why > didnt > > > you > > > > tell me! I havent seen her in about 3 years. > > > > > > > > I went to highschool with a guy who had something somewhat > > similar, > > > > but more dyspneic in symptoms I think. Mycoplasma pneumoniae > was > > > > detected and he did " heavy " abx for some months and got well. > I > > > hadnt > > > > talked to him in years until this month, turns out hes a > > virology > > > > student. > > > > > > > > I'm sending my girlfriend some work of Strattons, and a 1992 > > case > > > > series, on chronic refractory respiratory infections that had > > > > indications of causition by Cpn. And I'll be explaining to her > > all > > > > about bacterial models for diseases that are slowly/poorly > > > responsive > > > > to abx. She was once a pre-med student so it should be easy to > > > > communicate it. If anyone else has any information they think > I > > > should > > > > take in, specific to this subject, fire away. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 i'm very interested in your response, but not sure what you mean by " a really poor thing to chase up and treat- " Ann -----Original Message-----From: infections [mailto:infections ]On Behalf Of dumbaussie2000Sent: Friday, December 02, 2005 12:08 AMinfections Subject: [infections] Re: chronic respiratory infectionDanI'm not sure doing any therapy based on mycoplasma stacks up.I do believe bacteria are constantly evolving and don't have cells walls and then they do. The funny thing is time and time again the cell wall drug of penicillin and amoxacillin have proven strong therapy for many patients-this fact alone makes having such a head in the sand approach, (mycoplasma positive) a really poor thing to chase up and treat- they only have tetracycline groups of drugs generally and throw in the odd zithromax. This is by no means ideal therapy for anyone because having an infected heart (wether you believe this or not) makes taking these drugs a negative experience and dangerous at times.Again I'm all for people finding 2 or 3 drugs to suit there groups of bugs, to get there infection toxic load down.> > > >> > > > My x-girlfriend has had a relapsing/remitting sore throat with > > > fever, > > > > nasal congestion for many many months. I was like damn why > didnt > > > you > > > > tell me! I havent seen her in about 3 years. > > > > > > > > I went to highschool with a guy who had something somewhat > > similar, > > > > but more dyspneic in symptoms I think. Mycoplasma pneumoniae > was > > > > detected and he did "heavy" abx for some months and got well. > I > > > hadnt > > > > talked to him in years until this month, turns out hes a > > virology > > > > student.> > > > > > > > I'm sending my girlfriend some work of Strattons, and a 1992 > > case > > > > series, on chronic refractory respiratory infections that had > > > > indications of causition by Cpn. And I'll be explaining to her > > all > > > > about bacterial models for diseases that are slowly/poorly > > > responsive > > > > to abx. She was once a pre-med student so it should be easy to > > > > communicate it. If anyone else has any information they think > I > > > should > > > > take in, specific to this subject, fire away.> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Many experiences over the years.Also just chasing down facts, talking to lab technicians that actually do the mycoplasma testing. Mycoplamsa is the biggest dud for anyone to have diagnosed and to bother treating. The actual docs that get you diagnosed only sell herbs and weeds nowadays due to the pathetic doxy attempts of there past. > > > > > > > > > > My x-girlfriend has had a relapsing/remitting sore throat > with > > > > fever, > > > > > nasal congestion for many many months. I was like damn why > > didnt > > > > you > > > > > tell me! I havent seen her in about 3 years. > > > > > > > > > > I went to highschool with a guy who had something somewhat > > > similar, > > > > > but more dyspneic in symptoms I think. Mycoplasma pneumoniae > > was > > > > > detected and he did " heavy " abx for some months and got > well. > > I > > > > hadnt > > > > > talked to him in years until this month, turns out hes a > > > virology > > > > > student. > > > > > > > > > > I'm sending my girlfriend some work of Strattons, and a 1992 > > > case > > > > > series, on chronic refractory respiratory infections that > had > > > > > indications of causition by Cpn. And I'll be explaining to > her > > > all > > > > > about bacterial models for diseases that are slowly/poorly > > > > responsive > > > > > to abx. She was once a pre-med student so it should be easy > to > > > > > communicate it. If anyone else has any information they > think > > I > > > > should > > > > > take in, specific to this subject, fire away. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 Ann Just got to add that the gulf war vets were all supposedly suffering mycoplasma's, most of them positive by nicholson labs and the majority are no longer with us(read this somewhere). The diagnosis of this led someone to give the nicholson people some big bucks to do mycoplasma therapy- which basically failed. I think 5 million dollar study into treating gulf war vets for mycoplasma infections.The money was pissed up against a wall if you ask me, had of I been given a script for a few hundred different antibiotics and a gas allowance, I feel I could have kicked butt. tony > > > > > > > > > > My x-girlfriend has had a relapsing/remitting sore throat > with > > > > fever, > > > > > nasal congestion for many many months. I was like damn why > > didnt > > > > you > > > > > tell me! I havent seen her in about 3 years. > > > > > > > > > > I went to highschool with a guy who had something somewhat > > > similar, > > > > > but more dyspneic in symptoms I think. Mycoplasma pneumoniae > > was > > > > > detected and he did " heavy " abx for some months and got > well. > > I > > > > hadnt > > > > > talked to him in years until this month, turns out hes a > > > virology > > > > > student. > > > > > > > > > > I'm sending my girlfriend some work of Strattons, and a 1992 > > > case > > > > > series, on chronic refractory respiratory infections that > had > > > > > indications of causition by Cpn. And I'll be explaining to > her > > > all > > > > > about bacterial models for diseases that are slowly/poorly > > > > responsive > > > > > to abx. She was once a pre-med student so it should be easy > to > > > > > communicate it. If anyone else has any information they > think > > I > > > > should > > > > > take in, specific to this subject, fire away. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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