Re: Re: location of tcs, acm, etc. sufferers

[Guest guest]

Hi guys...

In talking to Jeanne I realized that I really wasn't clear enough in my

original post on this...I'm sorry. I'm dealing with a chiari-brain, too! <g>

What I was referring to was not a " cluster " per se... it was a potential

genetic situation. I just managed to find one reference, so I know I am not

totally losin' it ;-}

>>

How common are Chiari malformations?

In the past, it was estimated that the condition occurs in about one in

every 1,000 births. However, the increased use of diagnostic imaging has

shown that CM may be much more common. Complicating this estimation is the

fact that some children who are born with the condition may not show

symptoms until adolescence or adulthood, if at all. CMs occur more often in

women than in men and Type II malformations are more prevalent in certain

groups, including people of Celtic descent. <<

http://www.ninds.nih.gov/disorders/chiari/detail_chiari.htm

I honestly don't know how or where the original research for this was done.

Just wanted to clarify my original statement..

Take care,

Sally R...Decompression '91... Hydro..VP shunt with 2 revisions...Doing

well, without medication, in Bethlehem,Pa.

Re: location of tcs, acm, etc.

sufferers

> Sally wrote:

>> As far as " cluster " concepts... a few years ago I had heard that there

>> seemed to be more people with backgrounds of family from the British

>> isles

>> and Celtic backgrounds with chiari... I honestly don't know if this is

>> still the belief. This is a category that I would fall into. <g>

>>

> Wouldn't it just reflect the ethnic background of a lot of Americans

> (myself excluded....)?

> After all, there are lots of you British Isles descendents in the US, so

> the sample is biased.

> Chiari also occurs in animals and seems to be spread throughout the human

> population.

> For the record, one of my grandparents was in fact born in London, but

> that still doesn't put

> me in the British/Celtic group, as his parents were newly arrived from E.

> Europe. And my

> ethnic group has enough genetic tsoris of its own. Jeanne in Madison

>

>