Guest guest Posted August 13, 2008 Report Share Posted August 13, 2008 Hi again! I have found the web site finally and ordered the book " Oral Motor Assessment and Treatment " from Diane Chapman Bahr. I hope to have some new ideas and activities together with our local speech path after reading the book. I also have found Kaufman's website. This sounded really interesting and they also provide video consultations for overseas patients. That is great for me! Their website is http://www.kidspeech.com. (for people who might need it) Thanks a lot once again. This will keep me busy for some time:) Nurgul > > > > > > > > Hello all! > > > > > > > > I am new to this group, but has travelled in autism world for > > more > > > > than 2 years now. I have a 4.5 year old autistic boy who was > > diagnosed > > > > with severe autism by the age of 24 months. > > > > Since then we have tried everything available on the planet one > > by one > > > > that is proven or unproven as scientists say. > > > > >From GF CF diets to chelation, from live cell therapy to > > acoupuncture, > > > > HBOT you name it...We are still on a biomedical intervention > > program > > > > that compromises of chelation, gut treatments, diet etc. > > > > > > > > My son Yusuf has been on an intensive ABA program as well > > together > > > > with speech and sensory integration therapies. He has definitely > > made > > > > a lot of progress that enabled him to be included in a normal > > school > > > > setting with a shadow aide, but he is still nonverbal and this is > > > > really really killing us. > > > > > > > > The living environment has not been very favourable to develop > > > > language either. We had to move out of our contry to Dubai for > > work > > > > when he was one year old. He was showing no autistic symptoms by > > then. > > > > Started regressing by the age of 18 months and continued > > regressing > > > > till the age of 3. > > > > > > > > To cut it short,Our native language is Turkish which he has been > > > > spoken to till the age of 24 months exclusively.When he was > > diagnosed > > > > with autism at the age of 24 months in Dubai, we had to switch > > the > > > > language to English and get help in that language. I and my > > husband > > > > work full time and the nanny, teachers, therapists speak only > > English > > > > here. > > > > > > > > After all this hard work since last two and a half years, he > > still > > > > does not talk. Now I seriously started thinking of going back to > > the > > > > mother tongue and try with that language intensively while the > > ABA and > > > > the scholl going on with English? > > > > > > > > Has anyone been in a similar situation? Trying to teach two > > languages > > > > to their non verbal child?Crazy isnt it?I feel like screaming. > > > > > > > > Of course all the specialists suggest to stick to one language > > till he > > > > develops one, but I am losing hope that he will develop > > functional > > > > language and out of desperation coming up with ideas like he > > might be > > > > refusing to talk this second language. > > > > > > > > The reason for me thinking like this is: There are certain words > > he > > > > will never say in English like " mummy " and " come " .If at all he > > decides > > > > to say it, he will only say it in Turkish. > > > > > > > > I know this really souns mad, but he comes and speaks to me in my > > > > mother tongue in my dreams. > > > > > > > > Please give me some advice. How are you handling bilinguism? I am > > > > afraid of losing my mind... None of the specialists seems to > > have a > > > > great idea about this situation. > > > > Thank you all for reading and sharing. > > > > > > > > Nurgul-mother to Yusuf > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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