deputy465 Re: Re: new members please post

[Guest guest]

I read an article like that yesterday, I didn't read the whole way through, though. This was recommended by our doctor (not that I'm going to place all faith in a doctor again). We were told as long as the doses were small and throughout the day, that the C would help.

W had an x-ray about 2 months ago. He was blocked pretty bad (impacted), so bad that we needed to address it right away. We have NEVER had constipation issues, so you can imagine my surprise. Off and on diarrhea since birth, but never constipation. We were prescribed Miralax, which I gave to DS for 5 days. He had accidents on days 1 and 2 (he never had accidents even while pottytraining). So we discontinued.

The whole time, he never stopped going. His bms looked very different, but he was still going. I just assumed it was the Flagyl that he was on for bacteria. I forgot to mention that he is 3.5!!!!!!!

So basically, in answer to your question, he has been going everyday. I don't think the C has done anything to jeopardize this.

We are still low dose on the mag. citrate, do I just dose up until we see diarrrhea and then back down slightly?

Thanks, brittany

[Guest guest]

That probably was me. We are due to have another x-ray next week. We were told that if we weren't going to keep the Miralax, then we needed something else to help him empty for the next couple months (for his colon to shrink back down to size). They want him going more than once a day if possible. He hasn't had diarrhea yet, so I figured the mag. can't hurt. I took away the other mag. we were doing because it had mag. oxide (which I learned could constipate). He's 3.5. Why would they prescribe Miralax when they know he has a leaky gut (this is a very well-respected doctor)? BTW - the stool on the x-ray was pretty bad, they made it very clear that I was to contact the office immediately if he stopped going.

[Guest guest]

I think that autism GI docs really need to think about the leaky gut

issue that many kids with autism have, and really decide " if it's

worth it " . To me, it isn't worth it. But to them, it is so easy to

just write a prescription for miralax, that I think they are wearing

the same rose-colored glasses as other MD's. To me it doesn't seem

as though they are trying very hard to see if there is any testing

that they should consider doing before putting a kid on miralax, such

as a mannitol lactulose test to see what degree of leaky gut they

have...or any kidney function tests before and during miralax... or

to even find out what were the common features (if any) between kids

who are known to have had such a bad reaction to miralax. For what

it's worth, my son's story has been on Dana's website for years now,

and I've had parents contact me through her website, but I've never

had one autism doctor or autism GI doc contact me off list. I don't

know if it's the proverbial head-in-the-sand effect or what. I know

Owens had been sharing her concerns about polyethylene glycol

on the lists that they are all a part of, and so again, why they

prescribe it instead of other options is a mystery to me...

Mag Oxide is said to " firm the stool " but that doesn't mean it will

constipate. It is in oxypowder, which is working for a good number

of kids, so it can't be that it constipates. I think that the " firms

the stool " has to do with being able to help the body create

a " formed " stool, which is what's needed to trigger the urge to push

out a bowel movement. But definitely, different kids respond to

different types of magnesium. There's so many out there...mag

stearate, mag hydroxide, mag glycinate, mag citrate... it's worth

trying a different form if no response to one or more types, although

you do have to adjust the dose, i.e. I would not take the same dose

of mag glycinate as mag oxide in that mag oxide is a form that is not

well absorbed by the body, and so you can take a larger dose of mag

oxide than you can of mag glycinate, one of the more easily absorbed

forms of magnesium, or citrate, and so forth. So that's why starting

low and working up is better than starting too high. Too much

magnesium isn't a good thing. :-) You could try both kinds of mag

at the same time if the mag citrate doesn't seem to help, i.e. mag

citrate to me, tends to get things moving but the mag oxide tends to

give some substance to stool, so the combination of both might be an

option. Try the citrate without the oxide for a while and then if

nothing, then try the oxypowder (mag oxide) along with a little

citrate. My dd gets oxypowder plus a little (very little) ground up

epsom salt (magnesium sulfate) in a small empty gelcap. I grind it

only because I don't want the rough edges on it when it dissolves in

her stomach.

W

>

> That probably was me. We are due to have another x-ray next week.

We were

> told that if we weren't going to keep the Miralax, then we needed

something else

> to help him empty for the next couple months (for his colon to

shrink back

> down to size). They want him going more than once a day if

possible. He hasn't

> had diarrhea yet, so I figured the mag. can't hurt. I took away

the other

> mag. we were doing because it had mag. oxide (which I learned

could

> constipate). He's 3.5. Why would they prescribe Miralax when they

know he has a leaky

> gut (this is a very well-respected doctor)? BTW - the stool on the

x-ray was

> pretty bad, they made it very clear that I was to contact the

office

> immediately if he stopped going.

>