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Our story...newbie w/3.5 yr old chronic constipation-long

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Well it all began when our son was introduced to solid foods at 7

months old. He was still breastfed but also having some baby foods,

he started out not having bowels as often then it turned into once a

week and later turned to 1x a month he would have a bowel. At under a

year he was on several script laxes,otc,home remidies and nothing

worked. They started (the GI specialist) to tell me my baby, my less

than 1 yr old, was stool with holding. At around 18 months nothing

had improved so we started Miralax. The doctor said do enough to get

the bowels moving, eventhough on the bottle it say 17g 1x a

day....doctor wanted us to give 17g 3x a day or more....well it

wasn't working. Then we went through some power stuff at just before

age 2 where they placed a tube down his nose into his tummy pumped

with meds and gave tons of enemas. That was so aweful he had every

side effect imaginable (vomit,diharriah..etc), this was a regular ped

who did this in her office I should have sued but the head of peds

stood up for her....

Anyways fast forward to age 3. Poor thing still constipated having

bowels on average every 21 days. We switched health plans and new GI

had us do magnissium citrate for a few days and miralax and we got

blockage removed...then we were to stay on Miralax 17 g a day until

he's potty trained.

Next, I took him off miralax and he immediately got constipated

again. I went to a natropath doctor who gave him chinese herbs, which

didn't seem to help. So we went back to miralax and doctor said start

high 17g a day and then slowly make it smaller doseage. So we are

down to that maybe less than a 1 tsp or so a day but still if he

doesn't get the miralax for a few days he starts to get blocked again.

I'm sure all this has caused damage to him...it wasn't untill just

recently that the poor lil guys tummy is no longer extended and

bloated. He's always been developmentally delayed and we just

recently found out he has mild cp and absence seizures. When he is on

high doses of the miralax his speech is more slurred and not

understandable and his sensory deffensiveness is more present.

Well thanks for reading our long story. My little guy is now 3.5 yrs

old.

Janel in Northern CA

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