Re: What's appropriate on the list - personal attacks and threats are not

[Guest guest]

Actually, I worded that wrong. Tony owns his own place in Hawaii. Not

that it's relevant to anything on this list, other than setting the

record straight.

penny

[Guest guest]

Penny

Thanks for all that. You know how all this really doesn't faze me- I

just had a small issue with Jill. I just thought it would have been

interesting to read if an agent capable of attacking 2 major

pathogens(colchicine) which no antibiotics would attack would have

proven a positive treatment plan(after near on a

month).Unfortunately with the way the weather is and the way the

hormones run, suggesting that maybe blood thinning/healing -aspro

may be the most important substance in there jaw bone (3 stages of

healing)from extraction was a joke- I must obviously be a lunatic

and be interested in keeping them sick, instead of trying to

encourage them to thin there blood.This was after being asked

repeatedly 'what's the best thing to take'- I have amoxacillin was

the only antimicrobial choice.

How excited should I be if I shared photo's and asked for any

questions as very welcome in people's understanding of normal

pathogens.IMO the whole exericise gets hyjacked by the ususal

bullshit articles from camps of researchers that have no idea of

what is wrong with anyone.

The other thing that made me open my eyes to moving along is the

fact that many many many many many many many many many many cases of

cfs come about from exposures to some agents. (incline village)plus

many other scenario's and the morons that call themselves experts

want you to donate to prove that you have a GENETIC DISORDER.Plus

there's a strong push to making you believe non truths-garlic kills

bacteria/fungi.

Please get back to getting your head around- you have an

infection!!!!!!!!! mainly sinus and the systemic consequences are in

line with anyone developing sinus

disease!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!You want to address

glutathione, metholyione and spasalione it's up to you-but until you

address the infection correctly and you try and get your pathogens

characteristics isolated and get your infection billions lower....

GOOD LUCK...Then once you fill up with toxins- The same size as

viruses you can write books till the cows come home.The other angle

a push towards lyme is also controversial and rightfully so, because

many people that copped it in incline village/scotland/europe just

got an inhalation exposure infection that never went away to make

them ill, it wasn't a tick bite...Again a huge infection that keels

you over doesn't hide, it has all the bells and whistles of

infection if anyone bothers looking.Remenber we discovered how

useless trying to locate inflammation markers has been for the last

year.No one is looking and no-one really is going to upset there

budget(docs) to make anyone better IMO.

Remember these ilnesses don't stand you in line for a long healthy

life, the exact opposite is the norm and everything you do is

positive in my book- as opposed to the waiting game that others play.

All I know is 'pretty vegas' is a killer song...Penny catch ya.

tony

>

> Weird that I would pop in today after such a long abscence from

the

> list.

>

> Since I haven't been following the posts recently, I don't know

what

> exactly has gone on, but I would like to say, based on the little

> I've caught, that I think it's extremely bad form to repeat things

> in public that have been said privately, or to make disparaging

> remarks about someone just because you're upset.

>

> For example, it's now been alluded that Tony lives at home with

his

> parents. Which seems intended as a put down. At first I thought

> about just deleting the posts that were so personal and irrelevant

> to this list but realized that perhaps the other side of the story

> should be shared because I know Tony won't bother to respond.

Tony's

> is a tight knit family and his parents live in the kind of place

> that is very large and nice enough to accomodate extended family

> while allowing everyone to lead independent lives. I also know

that

> they own several residences including Tony's place in Hawaii and

he

> helps oversee these properties. So that kind of shot is really

below

> the belt and misinformed besides.

>

> I don't know if Tony said something equally personal to incite the

> kind of public attack that was just made on this board, but I

don't

> think these kinds of attacks are fitting, whomever they come from.

>

> In general, if you've got a problem with someone, it should be

dealt

> with off the list. If you can't see the difference between what's

an

> appropriate topic for on list discussion, then refrain from

posting.

> But if you're going to come on the list and ask all kinds of

> questions and ask for help, and initiate email contact, and ask

for

> addresses to mail samples to, and then discuss it all very

publicly,

> you should expect that you will also be answered publicly. If you

> don't like the answers, that's your perogative, but you don't need

> to make a scene. If you want to discontinue correspondence with

> someone, then you can block their email address. If you want to

> break off a relationship, that should be taken care of behind the

> scenes, not here, and threats of " reporting " anyone do not belong

> here either.

>

> This group is about helping each other get well. Not attacking

other

> people's personalities or personal lives just because we don't

agree

> with them. We're all different with different opinions. On a

> personal note, I know Tony can be hard headed. I argue with him

all

> the time (which neither of us holds against the other), but I also

> know that everything he does is for the sole purpose of trying to

> help others. As far as I'm concerned, intention counts. And we

don't

> need drama to get well.

>

> To threaten to " report " him for trying to help is really beyond

> belief. And this is why I warned him from the beginning to not get

> involved in these kinds of situations. I've learned that we should

> all be careful about getting involved with people we meet on the

> internet. I've tried to help people, have been very concerned for

> them, and they've turned around and done really nasty things, i.e.

> sent me nasty emails, called me names, betrayed my confidence,

even

> sued me.

>

> If I've learned anything, it's that we all need to be cautious and

> remember that we don't really " know " who we're dealing with at

all,

> and because of that, we shouldn't have any personal expectations

of

> people one way or the other or be disappointed or resort to

threats

> when they don't live up to our expectations.

>

> penny

>

[Guest guest]

LOL! You're friggin' nuts, Tony.

I wasn't asking for a he said/she said account of whatever it was

that happened. I just came on and first thing I read is what I

consider to be personal slurs, and I just don't think this is the

place for it.

Anyone who knows you at all knows you're pig headed and opinionated

up the wazoo, when it comes to this illness. That's fine by me.

Anybody can be pigheaded. I can learn from everybody. It's up to me

to decide what to buy and what not to buy. Fortunately for me, your

pigheadedness has helped me out a lot, but doesn't mean it's for

everyone.

Geez, my computer is running some kind of automatic program and I

can't shut it off. It's going to restart any second now!

aghhhh!!!!

> >

> > Weird that I would pop in today after such a long abscence from

> the

> > list.

> >

> > Since I haven't been following the posts recently, I don't know

> what

> > exactly has gone on, but I would like to say, based on the

little

> > I've caught, that I think it's extremely bad form to repeat

things

> > in public that have been said privately, or to make disparaging

> > remarks about someone just because you're upset.

> >

> > For example, it's now been alluded that Tony lives at home with

> his

> > parents. Which seems intended as a put down. At first I thought

> > about just deleting the posts that were so personal and

irrelevant

> > to this list but realized that perhaps the other side of the

story

> > should be shared because I know Tony won't bother to respond.

> Tony's

> > is a tight knit family and his parents live in the kind of place

> > that is very large and nice enough to accomodate extended family

> > while allowing everyone to lead independent lives. I also know

> that

> > they own several residences including Tony's place in Hawaii and

> he

> > helps oversee these properties. So that kind of shot is really

> below

> > the belt and misinformed besides.

> >

> > I don't know if Tony said something equally personal to incite

the

> > kind of public attack that was just made on this board, but I

> don't

> > think these kinds of attacks are fitting, whomever they come

from.

> >

> > In general, if you've got a problem with someone, it should be

> dealt

> > with off the list. If you can't see the difference between

what's

> an

> > appropriate topic for on list discussion, then refrain from

> posting.

> > But if you're going to come on the list and ask all kinds of

> > questions and ask for help, and initiate email contact, and ask

> for

> > addresses to mail samples to, and then discuss it all very

> publicly,

> > you should expect that you will also be answered publicly. If

you

> > don't like the answers, that's your perogative, but you don't

need

> > to make a scene. If you want to discontinue correspondence with

> > someone, then you can block their email address. If you want to

> > break off a relationship, that should be taken care of behind

the

> > scenes, not here, and threats of " reporting " anyone do not

belong

> > here either.

> >

> > This group is about helping each other get well. Not attacking

> other

> > people's personalities or personal lives just because we don't

> agree

> > with them. We're all different with different opinions. On a

> > personal note, I know Tony can be hard headed. I argue with him

> all

> > the time (which neither of us holds against the other), but I

also

> > know that everything he does is for the sole purpose of trying

to

> > help others. As far as I'm concerned, intention counts. And we

> don't

> > need drama to get well.

> >

> > To threaten to " report " him for trying to help is really beyond

> > belief. And this is why I warned him from the beginning to not

get

> > involved in these kinds of situations. I've learned that we

should

> > all be careful about getting involved with people we meet on the

> > internet. I've tried to help people, have been very concerned

for

> > them, and they've turned around and done really nasty things,

i.e.

> > sent me nasty emails, called me names, betrayed my confidence,

> even

> > sued me.

> >

> > If I've learned anything, it's that we all need to be cautious

and

> > remember that we don't really " know " who we're dealing with at

> all,

> > and because of that, we shouldn't have any personal expectations

> of

> > people one way or the other or be disappointed or resort to

> threats

> > when they don't live up to our expectations.

> >

> > penny

> >

>

[Guest guest]

Agreed! Could not have been said better.

I think some of the disease that we are dealing with on this board

can (literally) make sensible people go temporarily off the deep end.

I think back at my sickest and I did and said some stupid, ridiculous

things, and it seemed like a constant battle to keep my mind focused,

and thinking like it normally did. I did something that could have

gotten me canned, and came out clean through much prayer. It's really

hard to convince someone that " you " actually, really, honestly didn't

say what came out of your mouth or do what you just did. I can

remember spending tons of money on cures and supplements, and after

about a year I still thought I had the same amount of money in

savings, but was in trouble. I started tets and macs and seemed to

wake from a dream, like I had been in a time warp, yet all those

things really happened.

Not making excuses for anyone, just food for thought.

>

> Weird that I would pop in today after such a long abscence from the

> list.

>

> Since I haven't been following the posts recently, I don't know

what

> exactly has gone on, but I would like to say, based on the little

> I've caught, that I think it's extremely bad form to repeat things

> in public that have been said privately, or to make disparaging

> remarks about someone just because you're upset.

>

> For example, it's now been alluded that Tony lives at home with his

> parents. Which seems intended as a put down. At first I thought

> about just deleting the posts that were so personal and irrelevant

> to this list but realized that perhaps the other side of the story

> should be shared because I know Tony won't bother to respond.

Tony's

> is a tight knit family and his parents live in the kind of place

> that is very large and nice enough to accomodate extended family

> while allowing everyone to lead independent lives. I also know that

> they own several residences including Tony's place in Hawaii and he

> helps oversee these properties. So that kind of shot is really

below

> the belt and misinformed besides.

>

> I don't know if Tony said something equally personal to incite the

> kind of public attack that was just made on this board, but I don't

> think these kinds of attacks are fitting, whomever they come from.

>

> In general, if you've got a problem with someone, it should be

dealt

> with off the list. If you can't see the difference between what's

an

> appropriate topic for on list discussion, then refrain from

posting.

> But if you're going to come on the list and ask all kinds of

> questions and ask for help, and initiate email contact, and ask for

> addresses to mail samples to, and then discuss it all very

publicly,

> you should expect that you will also be answered publicly. If you

> don't like the answers, that's your perogative, but you don't need

> to make a scene. If you want to discontinue correspondence with

> someone, then you can block their email address. If you want to

> break off a relationship, that should be taken care of behind the

> scenes, not here, and threats of " reporting " anyone do not belong

> here either.

>

> This group is about helping each other get well. Not attacking

other

> people's personalities or personal lives just because we don't

agree

> with them. We're all different with different opinions. On a

> personal note, I know Tony can be hard headed. I argue with him all

> the time (which neither of us holds against the other), but I also

> know that everything he does is for the sole purpose of trying to

> help others. As far as I'm concerned, intention counts. And we

don't

> need drama to get well.

>

> To threaten to " report " him for trying to help is really beyond

> belief. And this is why I warned him from the beginning to not get

> involved in these kinds of situations. I've learned that we should

> all be careful about getting involved with people we meet on the

> internet. I've tried to help people, have been very concerned for

> them, and they've turned around and done really nasty things, i.e.

> sent me nasty emails, called me names, betrayed my confidence, even

> sued me.

>

> If I've learned anything, it's that we all need to be cautious and

> remember that we don't really " know " who we're dealing with at all,

> and because of that, we shouldn't have any personal expectations of

> people one way or the other or be disappointed or resort to threats

> when they don't live up to our expectations.

>

> penny

>

[Guest guest]

I agree completely about our illness affecting our thinking, and for

that reason it's always good to give each other the benefit of

doubt, along with a little compassion.

I'd also like to say that I've met, by far, many more wonderful,

kind, and compassionate people on the internet than the few hurtful

ones I've come across. I'm extremely grateful to all of you for

being a part of this network of support that is so crucial to our

recovery. As a matter of fact, there are some people whom I may

never actully meet face to face, but they have been so wonderful and

supportive of me, that I will always consider them to be lifelong

and true friends.

penny

> >

> > Weird that I would pop in today after such a long abscence from

the

> > list.

> >

> > Since I haven't been following the posts recently, I don't know

> what

> > exactly has gone on, but I would like to say, based on the

little

> > I've caught, that I think it's extremely bad form to repeat

things

> > in public that have been said privately, or to make disparaging

> > remarks about someone just because you're upset.

> >

> > For example, it's now been alluded that Tony lives at home with

his

> > parents. Which seems intended as a put down. At first I thought

> > about just deleting the posts that were so personal and

irrelevant

> > to this list but realized that perhaps the other side of the

story

> > should be shared because I know Tony won't bother to respond.

> Tony's

> > is a tight knit family and his parents live in the kind of place

> > that is very large and nice enough to accomodate extended family

> > while allowing everyone to lead independent lives. I also know

that

> > they own several residences including Tony's place in Hawaii and

he

> > helps oversee these properties. So that kind of shot is really

> below

> > the belt and misinformed besides.

> >

> > I don't know if Tony said something equally personal to incite

the

> > kind of public attack that was just made on this board, but I

don't

> > think these kinds of attacks are fitting, whomever they come

from.

> >

> > In general, if you've got a problem with someone, it should be

> dealt

> > with off the list. If you can't see the difference between

what's

> an

> > appropriate topic for on list discussion, then refrain from

> posting.

> > But if you're going to come on the list and ask all kinds of

> > questions and ask for help, and initiate email contact, and ask

for

> > addresses to mail samples to, and then discuss it all very

> publicly,

> > you should expect that you will also be answered publicly. If

you

> > don't like the answers, that's your perogative, but you don't

need

> > to make a scene. If you want to discontinue correspondence with

> > someone, then you can block their email address. If you want to

> > break off a relationship, that should be taken care of behind

the

> > scenes, not here, and threats of " reporting " anyone do not

belong

> > here either.

> >

> > This group is about helping each other get well. Not attacking

> other

> > people's personalities or personal lives just because we don't

> agree

> > with them. We're all different with different opinions. On a

> > personal note, I know Tony can be hard headed. I argue with him

all

> > the time (which neither of us holds against the other), but I

also

> > know that everything he does is for the sole purpose of trying

to

> > help others. As far as I'm concerned, intention counts. And we

> don't

> > need drama to get well.

> >

> > To threaten to " report " him for trying to help is really beyond

> > belief. And this is why I warned him from the beginning to not

get

> > involved in these kinds of situations. I've learned that we

should

> > all be careful about getting involved with people we meet on the

> > internet. I've tried to help people, have been very concerned

for

> > them, and they've turned around and done really nasty things,

i.e.

> > sent me nasty emails, called me names, betrayed my confidence,

even

> > sued me.

> >

> > If I've learned anything, it's that we all need to be cautious

and

> > remember that we don't really " know " who we're dealing with at

all,

> > and because of that, we shouldn't have any personal expectations

of

> > people one way or the other or be disappointed or resort to

threats

> > when they don't live up to our expectations.

> >

> > penny

> >

>