Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 This is my belief -- these 4 points are linked -- but it doesn't seem they are until you read about it. ARI found about 20 years ago that high dose B6 and magnesium helped a high % of autistic kids. B6 is used to mitigate the damage of ethylene glycol poisoning Ethylene glycol causes oxalate crystals to form - especially in the kidneys -- leading to kidney damage. Last year a link between high oxalic acid levels and autism was proven by Great Plains Labs So, given the above, if I was in your sitution, I would give my child B6 and magnesium (Kirkman makes a chewable tablet). I would push water (no fluoride!)Please search for oxalic acid in previous posts for more information. If you have recently removed gluten, you may be seeing a reaction to that. For some kids it is like coming off of a drug, and I believe the time frame I heard the most was that it would be 3 weeks +/- . I did not see this -- but kept on with the diet because it is supposed to help heal the gut -- whether there is a true inflammatory response to gluten or not -- sort of preventative medicine. I also removed dairy, which I believe made a big difference. >> Hi everyone,> I'm new here and was hoping that some of you can shed some light on my son's regression > since taking Miralax.> > My son has Sensory Integration Disorder (autism spectrum). He had been dong really well for > the first time in his life since we had discovered brushing/joint compressions (a SID therapy). > Then about 2 weeks ago he started complaining of stomach pains and was having > constipation. The doc prescribed Miralax. He took it for 5 days before I noticed that he was > regressing (all of his autistic behaviors came back). I immediately stopped the Miralax.> > He was starting to get a little better I think, when it became evident ha the stomach problems > probably indicate gluten allergies (if not celiac). I put him on a gluten free diet starting this > past Monday. He has *really* been regressing since then. I can't figure out if this is a > reaction to stopping the gluten or if it's the Miralax still in his system.> > Can the Miralax stay in the system for a long time, even though he only took it for 5 days? > And if so, how can I help him detox?> > Thanks for your time, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 we're not sure the behaviors will ever go away. According to my doctor, they think it crossed the blood barrier of her brain, which would mean brain damage, my doctor has helped me research this and agree's these children are absorbing this more than first thought. Please read over all the old posts and the adverse reactions from the fda that other people submitted.............they will get better with time............. Jeanieklt9751 wrote: Hi everyone,I'm new here and was hoping that some of you can shed some light on my son's regression since taking Miralax.My son has Sensory Integration Disorder (autism spectrum). He had been dong really well for the first time in his life since we had discovered brushing/joint compressions (a SID therapy). Then about 2 weeks ago he started complaining of stomach pains and was having constipation. The doc prescribed Miralax. He took it for 5 days before I noticed that he was regressing (all of his autistic behaviors came back). I immediately stopped the Miralax.He was starting to get a little better I think, when it became evident ha the stomach problems probably indicate gluten allergies (if not celiac). I put him on a gluten free diet starting this past Monday. He has *really* been regressing since then. I can't figure out if this is a reaction to stopping the gluten or if it's the Miralax still in his system.Can the Miralax stay in the system for a long time, even though he only took it for 5 days? And if so, how can I help him detox?Thanks for your time, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 Wow, that's scary. I'll research the old posts, and I wish you the best as you try to help your daughter. > > we're not sure the behaviors will ever go away. According to my doctor, they think it crossed the blood barrier of her brain, which would mean brain damage, my doctor has helped me research this and agree's these children are absorbing this more than first thought. Please read over all the old posts and the adverse reactions from the fda that other people submitted.............they will get better with time............. > Jeanie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 Thanks for the suggestions and info. It's really helpful. I went ahead and removed dairy, too. My son was a little better today, so i'm hoping it's the gluten that is the problem. Thanks, > > > This is my belief -- these 4 points are linked -- but it doesn't seem > they are until you read about it. > > * ARI found about 20 years ago that high dose B6 and magnesium helped > a high % of autistic kids. > * B6 is used to mitigate the damage of ethylene glycol poisoning > * Ethylene glycol causes oxalate crystals to form - especially in the > kidneys -- leading to kidney damage. > * Last year a link between high oxalic acid levels and autism was > proven by Great Plains Labs > > So, given the above, if I was in your sitution, I would give my child B6 > and magnesium (Kirkman makes a chewable tablet). I would push water > (no fluoride!) > Please search for oxalic acid in previous posts for more information. > > If you have recently removed gluten, you may be seeing a reaction to > that. For some kids it is like coming off of a drug, and I believe the > time frame I heard the most was that it would be 3 weeks +/- . I did > not see this -- but kept on with the diet because it is supposed to help > heal the gut -- whether there is a true inflammatory response to gluten > or not -- sort of preventative medicine. I also removed dairy, which I > believe made a big difference. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2007 Report Share Posted July 1, 2007 http://www.kirkmanlabs.com/products/vitamins/b6/B6W291_120.html I bought a sample sized and used it, but did not buy more. I was recommending it only as a short term detox solution. It contains sucralose, so it's not good for long term use. Note -- it is NOT a source of a great deal of magnesium. Most of our kids would need additional magnesium supplementation. Kirkmans sells sample sizes for a low cost. Be careful with Kirkmans -- read the entire list of ingredients. > > > > > > This is my belief -- these 4 points are linked -- but it doesn't seem > > they are until you read about it. > > > > * ARI found about 20 years ago that high dose B6 and magnesium helped > > a high % of autistic kids. > > * B6 is used to mitigate the damage of ethylene glycol poisoning > > * Ethylene glycol causes oxalate crystals to form - especially in the > > kidneys -- leading to kidney damage. > > * Last year a link between high oxalic acid levels and autism was > > proven by Great Plains Labs > > > > So, given the above, if I was in your sitution, I would give my child B6 > > and magnesium (Kirkman makes a chewable tablet). I would push water > > (no fluoride!) > > Please search for oxalic acid in previous posts for more information. > > > > If you have recently removed gluten, you may be seeing a reaction to > > that. For some kids it is like coming off of a drug, and I believe the > > time frame I heard the most was that it would be 3 weeks +/- . I did > > not see this -- but kept on with the diet because it is supposed to help > > heal the gut -- whether there is a true inflammatory response to gluten > > or not -- sort of preventative medicine. I also removed dairy, which I > > believe made a big difference. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2007 Report Share Posted July 6, 2007 I really played it by ear. My son seemed to tolerate B6 quite well, so I went up to 20mg per day. I had to give him a lot of magnesium at first -- about 1000mg per day, but tapered off to now -- it's only 300mg per day. I think Brainchild Nutritionals are worth it for awhile. They are pricy, though. > > > > Hi everyone, > > I'm new here and was hoping that some of you can shed some light on my son's regression > > since taking Miralax. > > > > My son has Sensory Integration Disorder (autism spectrum). He had been dong really well for > > the first time in his life since we had discovered brushing/joint compressions (a SID therapy). > > Then about 2 weeks ago he started complaining of stomach pains and was having > > constipation. The doc prescribed Miralax. He took it for 5 days before I noticed that he was > > regressing (all of his autistic behaviors came back). I immediately stopped the Miralax. > > > > He was starting to get a little better I think, when it became evident ha the stomach problems > > probably indicate gluten allergies (if not celiac). I put him on a gluten free diet starting this > > past Monday. He has *really* been regressing since then. I can't figure out if this is a > > reaction to stopping the gluten or if it's the Miralax still in his system. > > > > Can the Miralax stay in the system for a long time, even though he only took it for 5 days? > > And if so, how can I help him detox? > > > > Thanks for your time, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2007 Report Share Posted July 7, 2007 I found a ND who does muscle testing and he tested better to SS II with Pak. The problem is that he's 50 lbs now, so the dose is so high - both for the $$ and just trying to hide 6tsp per day! I'm thinking about buying the Herbathione and giving with his capsule vitamins. I have him on Vitacost's MitoChPower for B's now. > >> > > >> > Hi everyone, > >> > I'm new here and was hoping that some of you can shed some > > light on my son's regression > >> > since taking Miralax. > >> > > >> > My son has Sensory Integration Disorder (autism spectrum). He > > had been dong really well for > >> > the first time in his life since we had discovered > > brushing/joint compressions (a SID therapy). > >> > Then about 2 weeks ago he started complaining of stomach pains > > and was having > >> > constipation. The doc prescribed Miralax. He took it for 5 days > > before I noticed that he was > >> > regressing (all of his autistic behaviors came back). I > > immediately stopped the Miralax. > >> > > >> > He was starting to get a little better I think, when it became > > evident ha the stomach problems > >> > probably indicate gluten allergies (if not celiac). I put him > > on a gluten free diet starting this > >> > past Monday. He has *really* been regressing since then. I > > can't figure out if this is a > >> > reaction to stopping the gluten or if it's the Miralax still in > > his system. > >> > > >> > Can the Miralax stay in the system for a long time, even though > > he only took it for 5 days? > >> > And if so, how can I help him detox? > >> > > >> > Thanks for your time, > >> > > >> > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.