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Just read my first digest of postings. Looks like the group is off to a

good start. I am diagnosed with SM, but not certain of ACM. I have been

lucky to find a neurologist that is taking this seriously!! He might

not be a expert but he is taking my many symptoms seriously and has

just done EMG all 4 limbs. Not good. Scheduling tests for central nerve

damage next. Just the basics but very important to know how much damage

the syrinx has done.

This is important for us in TN. who are having trouble being believed!

I am being the guinea pig I guess. Had seen this doctor back years ago

when I thought for sure I had MS. So he has prior testing to compare to.

That is important to document progression.

Want to thank everyone for using the short paragraph format as

suggested by moderators. It has made it possible for me to actually

read all the posts!! Now I can actually benefit from the messages

instead of deleting cause too hard to read.

Dawn, from TN.

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