Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 My doctor tells me that mino and doxy are the same thing,basicily. I would get zithromax asap. jimd --- Jim Kepner <jimk192002@...> wrote: > Sue- > The missing element I see in her combination is > Flagyl > (or the more costly but tolerable Tinidazole). What > we > have found in Cpn is that the addition of this > liberates a lot of cellular energy which cryptic Cpn > seems to steal from the mitochondria. Since it also > kills the cystic form of Borelia ( has given us > citations before on this) really, really well, it is > good for both infections as well as other protozoan, > etc. > > The symptom of relapse suggests there is some form > or > phase not getting killed. Interesting that she > responds so well to glutathione. NAC, a glut > precursor, because of it's thiol-reducing capacity > is > now being used instead of amoxicillan to kill the > spore-like Elementary Bodies of Cpn that build up in > the extracellular tissues and cause reinfection. It > also contributes to build up of glutathione, which > also is antichlamydial and antimycoplasmic. > Jim > www.cpnhelp.org > > Sue's dtr on: > minocycline 100 mg bid > doxycycline 100 mg bid (This might be replaced by > Zithromax later.) > hydrochlor (Plaquenil) 200 mg bid > fluconazole (Diflucan) 200 mg qd > nystatin 2 tablets tid > Malarone (This is for later.) > __________________________________ FareChase: Search multiple travel sites in one click. http://farechase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 Hi Jim, > The missing element I see in her combination is Flagyl > (or the more costly but tolerable Tinidazole). What we > have found in Cpn is that the addition of this > liberates a lot of cellular energy which cryptic Cpn > seems to steal from the mitochondria. The PA did mention Flagyl and Tinidazole. My daughter did test positive for Cpn so I'll tell her if she does take them again that it might liberate a lot of cellular energy. They were often included in the drug combinations her LLMD used earlier. In fact, Flagyl was the very first drug she used after her sudden onset in 1994. She tried it about a year after onset, and it made her very, very sick. With the first dose, she flipped from hypersomnolence to terrible insomnia, and this continued for years after that single 10-day course of Flagyl in 1995. She had other severe symptoms with the early Flagyl also. At that time, we looked up Flagyl side effects and they matched her symptoms. Her symptoms were so severe that it was years before she would even consider using it again--or any other drug. When she used it later, as part of her LLMD treatment, it was not so bad. Now we're not so sure that her original reaction to Flagyl was a side effect. It could have been tick-borne die-off, but of course at that time we didn't know. If she had continued Flagyl instead of stopping it after ten days would she have recovered? She'd had a negative ELISA and it was years before we thought about it again. For years, every time she was offered Flagyl she said no. Sue , Upstate New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 Hi Jill, > Flagyl is a tough drug and can cause permanent neuropathy. Already, > looking at her regimen, I feel they're throwing too many drugs at her > at once. She has to detox ALL those drugs. Yes, it worries us a lot. She's hoping to do it for just a short time and get a little lift so that she can go get a midline and start pushing glutathione. She's taking it a day at a time. And as I read more about gene variants, I wonder if she should be tested not just for the nutrition-related variants a la Amy Yasko, but for drug-related variants. I read that 40 out of 50 psychiatrists at the Mayo Clinic are doing genetic testing now before they prescribe drugs. Are any of the LLMDs doing it? Have you heard? Sue , Upstate New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2005 Report Share Posted November 24, 2005 Hi Jill, > Get her p450 genes tested. She's too > disabled to experiment with a drug that might damage her. Yes, but then what? Where do we find someone who can tell us what it means? I don't even know what it means when I see broccoli in a column on a chart. (I've ordered a couple of books that might help.) Several companies will do the gene testing without a prescription, but they don't offer counseling. I could always google " genetic counselors " and pick a name at random, but I wish I could find someone who knows something about the antibiotics used to treat TBDs. I've not read LymeNet for a long time. Does anyone know if there's any discussion of P450 gene testing there? Are any Lyme doctors doing gene variant tests related to the drugs they are using? Sue , Upstate New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2005 Report Share Posted November 24, 2005 Didn't you go to that URL I posted? You can see which drugs inhibit which p450 subsets. Go onto CFS Epxerimental where you already post and find Kurt Rowley and email him privately. He did this testing. It's easy to figure out yourself. The other way is to really listen to your body. Add in one thing at a time, starting with small doses if you're as disabled as . Not that I'm saying STAY at small doses (as Tony points out high doses are often necessary). But testing yourself with small doses is good. You'll see if this is a drug you can tolerate. I tolerate amoxy better than any other abx EXCEPT I get such bad yeast problems so I have to try and import allitridi, I think, because if I can control that (and I cannot handle diflucan so probably not sporonax or vfend tho you never know), then I can do some periods of high dose amoxy which is also a nice, cheap drug. That' smy plan for now. You have so much good organic food and stuff up there. I'd keep up with the organic foods, raw kefir, and make nice green juices with an Omega juicer every day (if she can, if not, you make them an dfreeze them and she can unfreeze one every day). omega is the best juicer for the price, in terms of getting the most nutrition. Flood her body with nutrition. My prejuidce is more to what Barb did...one thing at a time, if toleraed, intensively for short bursts. Its a different type of person who is very strong who can tolerate all these drugs all at once. They could interact in unknown ways. We don't know what 's worst issue now is. You say the babs symptoms went away. I posted I found out I have babs. I don't know HOW but someday they will undersand the synergy of the two in disabling the immune system. Maybe in about 20 years! You are a good mom for trying so hard for so long. I still wish she could get a chamber, but thats obviously not possible and I'm sorry she couldn't use mine more when she was here. > > Hi Jill, > > > Get her p450 genes tested. She's too > > disabled to experiment with a drug that might damage her. > > Yes, but then what? Where do we find someone who can tell us what it > means? I don't even know what it means when I see broccoli in a column > on a chart. (I've ordered a couple of books that might help.) > > Several companies will do the gene testing without a prescription, but > they don't offer counseling. I could always google " genetic counselors " > and pick a name at random, but I wish I could find someone who knows > something about the antibiotics used to treat TBDs. > > I've not read LymeNet for a long time. Does anyone know if there's any > discussion of P450 gene testing there? Are any Lyme doctors doing > gene variant tests related to the drugs they are using? > > Sue , > Upstate New York > Quote Link to comment Share on other sites More sharing options...
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