Guest guest Posted November 9, 2005 Report Share Posted November 9, 2005 Yes indeed. I am 95% well after one year of combination oral antimicrobials. I dont know if borrelia caused my illness. I was equivocal by IGeneX western blot. My illness was not extreme, but it was truly severe. I essentially couldnt do anything at all. I was in bed about half the day and usually felt shockingly horrible, could only live a few hours at a time. It was total agony. Now I feel normal alot of the time and can run 3 miles. I only feel sick when it rains. This took a looooong time and I didnt think it was ever going to happen. For instance it took 10 months of treatment to stop having major depression. Its resolution was unexpected. I do not agree with the notion one should stop treatment after 3 months asymptomatic, or whatever it is. It depends on whether you have tolerance issues with abx, etc. But still thats too little. Personally I would probably go another year or more if I ever become asymptomatic. But I might also keep doing a few months a year for my whole life, too. Or if my case doesnt resolve I may end up on multiple abx every day for rest of my life, I dont know. OCD and gland swellings dont seem to be changing at all so far. I will never stop driving towards 100.00% resolution. No one really knows how many people get how well. S Donta has data on his regimes but personally I would not call them aggressive regimes. I might guess there is roughly an even distribution, ie 1/4 of people get 0-25% well, 1/4 get 25-50% well, 1/4 get 50-75% well, etc. I have read alot of papers and alot of posts on sick lists, but this estimate is very very rough, a total guess. It could be quite far off. Well people tend to leave the lists to some extent, tho they sometimes drop by to say theyre well. With the recovery estimates, I'm talking not just about people with a lyme dx, but also RA, MS, CFS, Crohns, whatever; they all behave about the same. Newer cases seem to do better on average, but this tendency is a moderate one. > > Network BlitzIs anyone feeling better on antibiotics? How long does that > wellness last? Is it curing, getting rid of the lyme? Or just slowing it > down for a while? > > How functional/well are those of you who used abx therapy? > > Thanks! > > Ann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2005 Report Share Posted November 10, 2005 That is a very honest, good post, and smart post.I try and make people understand that your misiion has to be attacked 100% and your the best to know when the jobs done.The decent dose opf multi antibiotics with the odd rotation is the most imortant thing people should have in there medical chest.Then if they understand the odds and ends that infection causes like all your internals to clog up with slime and your high levels of scar tissue from the painfull toxins, there should be no surprises. tony > > > > Network BlitzIs anyone feeling better on antibiotics? How long does > that > > wellness last? Is it curing, getting rid of the lyme? Or just > slowing it > > down for a while? > > > > How functional/well are those of you who used abx therapy? > > > > Thanks! > > > > Ann > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2005 Report Share Posted November 10, 2005 : For people (other than myself) I don't think I can flatly say it's proper to stay on abx continually for months, nor can I say when it's proper for someone to stop abx treatment. IMO, there are alot of variables and black magic that come into play: gender (i.e. hormones), age, pathogen, lenghth of illness, heath of the host going into treatment - immune status, drug metabolism etc. Treatment has to be tailored to the individual. I've been driving towards a productive healthy life longer than you've been alive (I think I'm twice your age, becoming ill at 26 or 27) so I've lived one of the lives that could have been your future. You're fortunate you've treated your illness early and I think you'll avoid what I went through. A agree with the need for abx in the future though & I have entertained the thought of doing one month of antibiotics per year also - sort of like a reverse vaccination. I happy for you that you're 95% well.! Barb ERIC WROTE IN PART: " I do not agree with the notion one should stop treatment after 3 months asymptomatic, or whatever it is. It depends on whether you have tolerance issues with abx, etc. But still thats too little. Personally I would probably go another year or more if I ever become asymptomatic. But I might also keep doing a few months a year for my whole life, too. Or if my case doesnt resolve I may end up on multiple abx every day for rest of my life, I dont know. OCD and gland swellings dont seem to be changing at all so far. I will never stop driving towards 100.00% resolution. No one really knows how many people get how well. S Donta has data on his regimes but personally I would not call them aggressive regimes. I might guess there is roughly an even distribution, ie 1/4 of people get 0-25% well, 1/4 get 25-50% well, 1/4 get 50-75% well, etc. I have read alot of papers and alot of posts on sick lists, but this estimate is very very rough, a total guess. It could be quite far off. Well people tend to leave the lists to some extent, tho they sometimes drop by to say theyre well. With the recovery estimates, I'm talking not just about people with a lyme dx, but also RA, MS, CFS, Crohns, whatever; they all behave about the same. Newer cases seem to do better on average, but this tendency is a moderate one. " > > > > Network BlitzIs anyone feeling better on antibiotics? How long does > that > > wellness last? Is it curing, getting rid of the lyme? Or just > slowing it > > down for a while? > > > > How functional/well are those of you who used abx therapy? > > > > Thanks! > > > > Ann > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2005 Report Share Posted November 10, 2005 - I'd be interested in reading that. Barb > > > > Network BlitzIs anyone feeling better on antibiotics? How long does > that > > wellness last? Is it curing, getting rid of the lyme? Or just > slowing it > > down for a while? > > > > How functional/well are those of you who used abx therapy? > > > > Thanks! > > > > Ann > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 > I've been driving towards a productive healthy life longer than > you've been alive (I think I'm twice your age, becoming ill at 26 or > 27) so I've lived one of the lives that could have been your future. > You're fortunate you've treated your illness early and I think you'll > avoid what I went through. > I happy for you that you're 95% well.! > Barb Thanks Barb. You especially taught me left from right when I was getting started, and your help was generous. I owe terribly much to what I learned from this list (thanks in turn to Pennys resiliance). Without the whole infection community, patients cooperating on knowledge, researchers doggedly bickering with the rigid-minded, doctors slogging thru all kinds of bogus bullshit for us, all of it put together, I'd probably be dead. Instead Im becoming happy. I can spend time kayaking and cycling feeling just fine, and I feel the value of those things pretty damn intensely. Quote Link to comment Share on other sites More sharing options...
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