Guest guest Posted November 27, 1999 Report Share Posted November 27, 1999 Hello All, I'm Kim Raub (39) and I live in Connecticut with my husband Bob (40) and our four children. They are BJ (11), Duncan (9), and twins Hunter & Teddy (27 months). Teddy was diagnosed at 5 weeks with Lissencephaly when an MRI was done to look for reasons for his difficulty in eating, but I didn't discover the loop until he was 18 months old. It has been wonderful to have so many people to talk to when you have questions or even when you don't. His diagnosis was changed to Polymicrogyria (PMG) by Dr. Dobyns at the Dallas Lissencephaly Convention. Teddy and Hunter are identical twins. Their cords became tangled when their sacks were perforated during an amniocentesis. Hunter has developed normally and Teddy is doing pretty well himself. We don't have his latest developmental results but I figure it's around 18 months. He rides a big wheel, plays tag and is learning sign language. We have problems with him eating but are still fighting the idea of getting a tube, although listening to how much Merritt's gained is making me a bit jealous. We've also been having problems with his oxygen level and are trying various strategies to keep it above 90%. Teddy's not having seizures so his list of current medications aren't too long. He's taking Albuterol and Prednisolone in the hopes that his current respiratory problems are from asthma. Thanks to all who responded to my cry for help, the information was helpful when I went back to the doctors office. Welcome all to the loop. Quote Link to comment Share on other sites More sharing options...
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