Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 hi nelly - i don't think i can logically link it all up - it's kind of based on my experience and intuitive feelings... first, somewhere someone posted or maybe it was on one of the celiac websites about neurological celiac disease...and i think that the etiology was lyme ....and that fit me to a T secondly, i'm type o blood - nobody ever mentions blood tyes on this list - i didn't have any symptoms until i became a vegetarian for 10 years starting in the mid- eighties (probably about the same time i got the hep b shots - i was a nurse and they were mandatory (i only mention this as hyde mentions in his paper about slow onset types and the hep b shots screwing with the immune system). and d'adamo (eat right for your blood type) says for type o's to avoid all wheat produtcs and gluten (also says to avoid corn but that seems to work ok with me).....this diet is quite similar to the kappa ayurvedic one...i asked my doc if the blood type - food diet was all hogwash and he stated that no, foods had antigens, too.... my experience - about three years ago i had 4 wonderful months - started about a month after i started shoe's no-amylose diet....even was able to get back on a bike and do 10 or so slightly hilly miles....was also losing about 5 lbs a month (i've put on 75 lbs since i became mostly housebound 6 years ago!!)...then my doc in early dec started me back on heparin - this time orally - and at my sister's engagement party around christmas i cheated on my diet- 3 weeks later i relapsed.....i didn't understand at that time that any teeny tiny amout of gluten could do me in - or maybe it was the heparin as i wasn't on any antibx at all...or maybe, just fate!! have stayed pretty much low carb but not totally away from gluten - just didn't understand the damage in small amts it does to me ....i didn't eat some bread one day and crash the next.....more insidious than that.... a year and a half ago was finally diagnosed with babs (lyme by inference - lyme test now starting to become pos)....did 3 cycles of mepron and zith and starting doing better - small walks, etc.....then (without rechecking for babs or lyme which, in retrospect i think was a major error - i.e.probably should have stayed on that combo longer)....then i begged my doc to go on benicar......slowly worsened - had a small ileus in july or aug - cleared when i took a holiday from benicar - (in nov my doc kept me on benicar and switched me to mepron and ketek - at first it was for about a week a magic bullet!) then in jan and again in feb relapsed big time with 2 ileus' - really was ready to die - my mmp9 was 1400+...went on flagyl and slowly started to improve....about that time i read donta's paper where he mentions that lyme or antbx can totally screw up the gut flora and flagyl for some reason seems to help - it did with me.... i do think paul j and smart aussie are right on when they talk about gut flora and their endotoxins.....and i think that putting the body in an alkaline state is primary - for type o's that means no gluten or wheat... when i reached a plateau i asked my doc to put me on donta's plaquenil (an allkalizing agent) and biaxin regime - very slow ups and downs but i think the direction is up....when i crashed i added back flagyl and that helped in 24 -48 hrs......then read up on celiac disease and went gluten free. (over a month ago)....have now been dressed and out of the house for 5 days straight - a record for me...my mmp-9 is down to the 200's...i told my doc that my brain is healing faster than my body and he thinks it's due to the fact that flagyll penetrates better into all neuro cells.... and,my guess, is that it penetrates better if the body is alkaline.... so, i can't really tie it up scientifically - just a gut reaction...am also doing buhner's protodol - HEALING LYME - and the ca't claw that he recommends from raintree (not toa free) really seems to clean out my gut - much more effectively than other cat's claws... as you can see, i'm really a slow learner when it comes to listening to my body - but maybe this time.??????.....also, since i've gone gluten free my sweet tooth is gone - sugar acidizes.... deb Quote Link to comment Share on other sites More sharing options...
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