Re: Jeanie's view

[Guest guest]

Jeanie,

How long did it take for your daughter to return to the way she was prior to taking MiraLAX?

-- www.thepreemieexperiment.blogspot.commom to Paige, 8 years old, former 25.5 week preemie and the biggest Josh Groban fan you will ever meet

www.caringbridge.org/il/paige mom to Tyler-born 5/1/06 at 35.4 weekswww.caringbridge.org/visit/babytyler

Dear Melody, I've been researching this for 7 yrs. because my dd was on this for 10 days. She started to lose all humor and farcical expression and it all spiraled down from that as the week went on and they tried to reassure me that her nervousness and isolated behavior was because her bowels were moving for the first time, in a long time. I never believed her, but she was the doc so I gave her the benefit of the doubt because she assured me it wasn't absorbed. I started her out on about a quarter of a capful, going against their dose, because the dose stated adult dose, so I eyed it per say. When she still hadn't gone, they told me to increase the med, so by that weekend, they had increased it to 1 capful (17 grams and 1 1/2 capfuls) by the end of the weekend. This is what I call the weekend from hell that changed her life. She began shivering so bad we wondered if it was convulsions, hiding under her blankie on the side of the bed, afraid of her baby sister, who was 1 at the time, afraid of the coo-coo clock, afraid of people closing doors and walking down the hallway. (we lived in an apartment at that time.) She went on, lining up toys like an autistic child till 3 in the morning and wouldn't look at us or even try to focus, she was " out-there " . We took her to a birthday party that weekend with all her family friends and she was gone, we found her hiding on the side of the bed upstairs? I thought, What the hell did this stuff do to my daughter? A few days later, we took her to the ER at Children's Memorial and the couldn't find anything. I had the whole GI team out in the hallway, and one Doctor said to me, " well it is possible that through osmosis this could have soaked through her stomach wall and went to her brain. So........... I left the hospital and started researching this and I found everything I suspected. I have found people in my own neighborhood, my own pharmacist that had it happen to his next door neighbor along with many others. I requested any adverse side affects from the fda and only got 7 people back, in 2000. Now there are 447 as of '05 I'm waiting on my next submission. I also asked for the individual reports, which is the report behind the FOIA sheet, stating exactly what the person wrote to the FDA. I am re-petitioning them because if you don't, all this data of people sending their adverse reactions just builds up and no one red flags it per say.

They say it's not absorbed, my findings are quite different. The FDA sheets speak for themselves. This board speaks for itself. People that have neuro behaviors, tics, tremors, dilusions, seizures, suicidal tendencies, renal failure, hyponatremia, and death is OBVIOUSLY a sign that this med is ABSORBED! They based this study on Laboratory studys and it's like a invisable poison, because the side affects are hardly visable to the untrained eye. There are little or no human studies performed and yet the FDA approved the drug for adults, I have the NDA (new drug appoval, from the FDA and that's quite a controversy as well.) They were blacking out their trade mark when they submitted the documents. When asked for the documents, the letter questions why they blacked it out and documented a patent trade mark sign before it was approved) this document came to me by sheer luck. I had submitted for my regular FDA reports and I ended up with a CD and all the paperwork for the NDA ,new drug approval. Some one had a bright idea, I'd like to know who, to give this med to children and never bothered to look up a proper dose, so I did ,and it has to be calculated by the doctor or physcian. Which not one of the people I've ever talked to even knows one exists. At 35 lbs. it's about 3 grams, so they are giving sometimes, 9 times the dose and that's still going against Braintree Labs. regulations. I'll ask anyone, call the company, they will even tell you NOT to give to children.

We formed this group to connect all the people that this happened to, so we could all share the simiarities of the side affects. The chemical makeup alone, should raise red flags. Made from a derivitive of antifreeze and Poly, made from ethynol, a by product of gasoline and crude oil. Please look all my old posts I have posted the instructions on how to submitt your adverse reactions to the FDA. As far as diagnosing your child with anything, they won't even ackknowlege this happened because of the protocol. If the protocol states, it's not absorbed, even though they did laboratory studies, which are in test tubes and on animals such as rats , then they believe it's not absorbed. My theory is that at recommended doses, the side affects are so low, so you wouldn't see them if you tried, but that doesn't mean there not there. When you increase the dose, the side affects seem to amplify, so my theory is, if alot puts you in a state of toxicity, then a little dose does the same only milder. There's the same logic with anything toxic, they approve pesticides at certain doses, safe for humans and the environment, at recommended doses, but if this recommened dose is toxic and can kill a cockroach, then increased doses could be very toxic and that's where you would see toxic reactions. So in theory, if this toxic med causes these side affects, it's still doing the same thing but milder, in lower doses. The question is: why are some people absorbing this and others arn't? No one will ever know unless this matter is addressed. They aren't even acknowledging the already desparate " Moms " asking why their child is having all these sided affects to begin with. Because it's not in the protocol. They simply send them to a Phsyciatrist. If someone would take them time to put all the pieces together and realize that so many children are having the same side affects from the same medication, and acknowledge that it is obviously the medication causing this, then, the protocol could be changed and we as parents would at least have a choice to weigh the benefits. The way it stands, they are misleading, and in my opinion, incorrect. Adverse and toxic reactions to pestiscides happen because the product is toxic and the severity of the reaction depends on how much they were exposed to, human error, mixing the solutions with high concentrations can be the cause of this. But even at recommemed doses,pesticides are still labeled a toxic chemical. If you look up the MSDS for PEG they state, there is little or no human studies done. Luckely , I have two very close physicians, who've helped me, read all my research and said, you're absolutely right. But it's our job to bring it to their attention. The material safety data sheets( MSDS) for PEG state: do not flush down the sewer systems or down the toilet. A Toxicologist stated to me, that with topical use, they know PEG causes renal failure with topical use, so what do they think there doing giving this internally. If Ethylene glycol (Antifreeze) causes calcium oxylate crystals and renal failure and Polyethylene glycol (PEG) causes oxalate crystals and renal failure, then they must be similar. The state of CA declared this a carcinogen. I've posted PEG safety data sheets about peg 400 and heard all the arguments that they arn't the same but the underlying issue that some people are missing, or in denial over, is the fact: PEG 400 is just a smaller molecule than PEG 3350 They are the same toxic chemical, only a bigger size. Doesn't anybody wonder why there's little or no information on PEG 3350? Because they don't have any!!!!

These are our precious children. We as a Country, need to put the patients first, not the Patent. Especially in children.

Jeanie

melody andersen <melody_andy> wrote:

Ok I am reading this and freaking out. My 22 month old daughter has been on double adult doses of this since she was 3 months old. It does nothing for her and now I am worried about side affects. They want to put my new baby girl who is 3 months old suffering from the same symtums on this med to....More info please. I need help to know what to do.

Thanks

MelodyJeanie Ward wrote:

Note: forwarded message attached.Date: Thu, 5 Apr 2007 07:17:10 -0700 (PDT)Subject: Fwd: OTC MIralax (Polyethylene glycol)

To: mdanczyk@...Note: forwarded message attached.Date: Thu, 5 Apr 2007 06:21:20 -0700 (PDT)From: Jeanie Ward <

dreamjeanie@...>Subject: OTC MIralax (Polyethylene glycol)To: Elyse <erobertsdigi-flicks

>

Dear ,

I spoke to you many years ago regarding the article you wrote titled, Fatal Dysnatremia caused by Elective Colonoscopy. When I spoke to you I was concerned about the use of Miralax in pediatric patients. Braintree Labs just made Miralax OTC without a prescription. There is a growing number of people including children dying from this. What can we do? You are the only person I know that knows how harmful this med is and what this chemical can do to the body. I have been researching this for 7 years and I have two doctor's helping me, getting me information about gut permeability and so fourth. I have 447 people, Adults and many children through the FDA and they are giving adult doses to children as little as 20 months of age. According to the FOIA sheets, they are expieriencing many side affects including tics, tremors, hyponaetremia, neuro behaviors, renal failure and death. This med is not approved for use in children and they are using it off label, in an Adult dose. Someone has to stop this. I am waiting on my next submittion from the FDA, that should have another increase in adverse reactions, it shoud be here in a few weeks, we have a website consisting of 228 people called miralax of people complaing of the same symptoms. The pamphlet on the counter says Safe and effective*,( with an asterisk) , at the bottom is a key, ( *) means, when used as directed, so if they are giving and adult dose, then it wouldnt' be safe or effective because it's not being used as directed, and they can't change the dose, because it states not to give to children. It also states no painful cramps and no excess gas** ( with 2 asterisks) meaning based on laboratory study, individual results may vary. Laboratory studies are done before they use it in humans. I feel this is very misleading These children have all been used as an expieriment, , the doctors are misdirecting patients stating that it's not absorbed, it even states that on the pamphlet. If the protocol is wrong, they will continue to use this unless proven otherwise. The reasearch I've found and what my doctor's have found are contraditory to their claims, as your study was as well. The doctors are using this against the labeling instructions, and manufacturers, knowingly filling prescriptions for children against their own labeling instructions. How can they get away will this? Would you be interested in researching what I have? If not, what can I do? Some one needs to protect our children.

Jeanie Ward

May the Lord continue to bless you, more abundantly!

Love ya,

Melody

Expecting? Get great news right away with

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[Guest guest]

, what I'm finding is that some symptoms has a residual reaction, meaning they never go away and as for the spooked behavior, about a year. The urinary issues got worse, because she was peeing out oxalate crystals for 2 years. Jeanie wrote: Jeanie, How long did it take for your daughter to return to the way she was prior to taking MiraLAX? -- www.thepreemieexperiment.blogspot.commom to Paige, 8 years old, former 25.5 week preemie and the biggest Josh Groban fan you will ever meet www.caringbridge.org/il/paige mom to Tyler-born 5/1/06 at 35.4 weekswww.caringbridge.org/visit/babytyler On 4/6/07, Jeanie Ward <dreamjeaniesbcglobal (DOT) net> wrote: Dear Melody, I've been researching this for 7 yrs. because my dd was on this for 10 days. She started to lose all humor and farcical expression and it all spiraled down from

that as the week went on and they tried to reassure me that her nervousness and isolated behavior was because her bowels were moving for the first time, in a long time. I never believed her, but she was the doc so I gave her the benefit of the doubt because she assured me it wasn't absorbed. I started her out on about a quarter of a capful, going against their dose, because the dose stated adult dose, so I eyed it per say. When she still hadn't gone, they told me to increase the med, so by that weekend, they had increased it to 1 capful (17 grams and 1 1/2 capfuls) by the end of the weekend. This is what I call the weekend from hell that changed her life. She began shivering so bad we wondered if it was convulsions, hiding under her blankie on the side of the bed, afraid of her baby sister, who was 1 at the time, afraid of the coo-coo clock, afraid of people closing doors and walking down the hallway. (we lived in an apartment at that time.) She went on, lining

up toys like an autistic child till 3 in the morning and wouldn't look at us or even try to focus, she was "out-there". We took her to a birthday party that weekend with all her family friends and she was gone, we found her hiding on the side of the bed upstairs? I thought, What the hell did this stuff do to my daughter? A few days later, we took her to the ER at Children's Memorial and the couldn't find anything. I had the whole GI team out in the hallway, and one Doctor said to me, "well it is possible that through osmosis this could have soaked through her stomach wall and went to her brain. So........... I left the hospital and started researching this and I found everything I suspected. I have found people in my own neighborhood, my own pharmacist that had it happen to his next door neighbor along with many others. I requested any adverse side affects from the fda and only got 7 people back, in 2000. Now there are 447 as of '05 I'm waiting on my next

submission. I also asked for the individual reports, which is the report behind the FOIA sheet, stating exactly what the person wrote to the FDA. I am re-petitioning them because if you don't, all this data of people sending their adverse reactions just builds up and no one red flags it per say. They say it's not absorbed, my findings are quite different. The FDA sheets speak for themselves. This board speaks for itself. People that have neuro behaviors, tics, tremors, dilusions, seizures, suicidal tendencies, renal failure, hyponatremia, and death is OBVIOUSLY a sign that this med is ABSORBED! They based this study on Laboratory studys and it's like a invisable poison, because the side affects are hardly visable to the untrained eye. There are little or no human studies performed and yet the FDA approved the drug for adults, I have the NDA (new drug appoval, from the FDA and that's quite a controversy as well.) They were blacking out their

trade mark when they submitted the documents. When asked for the documents, the letter questions why they blacked it out and documented a patent trade mark sign before it was approved) this document came to me by sheer luck. I had submitted for my regular FDA reports and I ended up with a CD and all the paperwork for the NDA ,new drug approval. Some one had a bright idea, I'd like to know who, to give this med to children and never bothered to look up a proper dose, so I did ,and it has to be calculated by the doctor or physcian. Which not one of the people I've ever talked to even knows one exists. At 35 lbs. it's about 3 grams, so they are giving sometimes, 9 times the dose and that's still going against Braintree Labs. regulations. I'll ask anyone, call the company, they will even tell you NOT to give to children. We formed this group to connect all the people that this happened to, so we could all share the simiarities of the side affects. The

chemical makeup alone, should raise red flags. Made from a derivitive of antifreeze and Poly, made from ethynol, a by product of gasoline and crude oil. Please look all my old posts I have posted the instructions on how to submitt your adverse reactions to the FDA. As far as diagnosing your child with anything, they won't even ackknowlege this happened because of the protocol. If the protocol states, it's not absorbed, even though they did laboratory studies, which are in test tubes and on animals such as rats , then they believe it's not absorbed. My theory is that at recommended doses, the side affects are so low, so you wouldn't see them if you tried, but that doesn't mean there not there. When you increase the dose, the side affects seem to amplify, so my theory is, if alot puts you in a state of toxicity, then a little dose does the same only milder. There's the same logic with anything toxic, they approve pesticides at certain doses, safe

for humans and the environment, at recommended doses, but if this recommened dose is toxic and can kill a cockroach, then increased doses could be very toxic and that's where you would see toxic reactions. So in theory, if this toxic med causes these side affects, it's still doing the same thing but milder, in lower doses. The question is: why are some people absorbing this and others arn't? No one will ever know unless this matter is addressed. They aren't even acknowledging the already desparate "Moms" asking why their child is having all these sided affects to begin with. Because it's not in the protocol. They simply send them to a Phsyciatrist. If someone would take them time to put all the pieces together and realize that so many children are having the same side affects from the same medication, and acknowledge! that it is obviously the medication causing this, then, the protocol could be changed and we as parents would at least

have a choice to weigh the benefits. The way it stands, they are misleading, and in my opinion, incorrect. Adverse and toxic reactions to pestiscides happen because the product is toxic and the severity of the reaction depends on how much they were exposed to, human error, mixing the solutions with high concentrations can be the cause of this. But even at recommemed doses,pesticides are still labeled a toxic chemical. If you look up the MSDS for PEG they state, there is little or no human studies done. Luckely , I have two very close physicians, who've helped me, read all my research and said, you're absolutely right. But it's our job to bring it to their attention. The material safety data sheets( MSDS) for PEG state: do not flush down the sewer systems or down the toilet. A Toxicologist stated to me, that with topical use, they know PEG causes renal failure with topical use, so what do they think there doing giving this

internally. If Ethylene glycol (Antifreeze) causes calcium oxylate crystals and renal failure and Polyethylene glycol (PEG) causes oxalate crystals and renal failure, then they must be similar. The state of CA declared this a carcinogen. I've posted PEG safety data sheets about peg 400 and heard all the arguments that they arn't the same but the underlying issue that some people are missing, or in denial over, is the fact: PEG 400 is just a smaller molecule than PEG 3350 They are the same toxic chemical, only a bigger size. Doesn't anybody wonder why there's little or no information on PEG 3350? Because they don't have any!!!! These are our precious children. We as a Country, need to put the patients first, not the Patent. Especially in children. Jeanie melody andersen <melody_andy> wrote: Ok I am reading this and freaking out. My 22 month old daughter has been on double adult doses of this since she was 3 months old. It does nothing for her and now I am worried about side affects. They want to put my new baby girl who is 3 months old suffering from the same symtums on this med to....More info please. I need help to know what to do. Thanks MelodyJeanie Ward <dreamjeaniesbcglobal (DOT) net> wrote: Note: forwarded message attached.Date: Thu, 5 Apr 2007 07:17:10 -0700 (PDT)From: Jeanie Ward <dreamjeaniesbcglobal (DOT) net>Subject: Fwd: OTC MIralax (Polyethylene glycol) To: mdanczyksenrNote: forwarded message attached.Date: Thu, 5 Apr 2007 06:21:20 -0700 (PDT)From: Jeanie Ward < dreamjeaniesbcglobal (DOT) net>Subject: OTC MIralax (Polyethylene glycol)To: Elyse <erobertsdigi-flicks > Dear , I spoke to you many years ago regarding the article you wrote titled, Fatal Dysnatremia caused by Elective Colonoscopy. When I spoke to you I was concerned about the use of Miralax in pediatric patients. Braintree Labs just made Miralax OTC without a prescription. There is a growing number of people including children dying from this. What can we do? You are the only person I know that knows how harmful this med is and what this chemical can do to the body. I have been researching this for 7 years and I have two doctor's

helping me, getting me information about gut permeability and so fourth. I have 447 people, Adults and many children through the FDA and they are giving adult doses to children as little as 20 months of age. According to the FOIA sheets, they are expieriencing many side affects including tics, tremors, hyponaetremia, neuro behaviors, renal failure and death. This med is not approved for use in children and they are using it off label, in an Adult dose. Someone has to stop this. I am waiting on my next submittion from the FDA, that should have another increase in adverse reactions, it shoud be here in a few weeks, we have a website consisting of 228 people called miralax of people complaing of the same symptoms. The pamphlet on the counter says Safe and effective*,( with an asterisk) , at the bottom is a key, ( *) means, when used as directed, so if they

are giving and adult dose, then it wouldnt' be safe or effective because it's not being used as directed, and they can't change the dose, because it states not to give to children. It also states no painful cramps and no excess gas** ( with 2 asterisks) meaning based on laboratory study, individual results may vary. Laboratory studies are done before they use it in humans. I feel this is very misleading These children have all been used as an expieriment, , the doctors are misdirecting patients stating that it's not absorbed, it even states that on the pamphlet. If the protocol is wrong, they will continue to use this unless proven otherwise. The reasearch I've found and what my doctor's have found are contraditory to their claims, as your study was as well. The doctors are using this against the labeling instructions, and manufacturers, knowingly filling prescriptions for children against their

own labeling instructions. How can they get away will this? Would you be interested in researching what I have? If not, what can I do? Some one needs to protect our children. Jeanie Ward May the Lord continue to bless you, more abundantly! Love ya, Melody Expecting? Get great news right away with email Auto-Check.Try the Yahoo! Mail Beta.

[Guest guest]

Jeanie, My daughter had been on it since age 5, she's 12 now. She has

been off it about 3 weeks. Although she is autistic I think the miralax has

caused regression since she hasn't made much progress over the years.

I'm wondering also how long it will take to detox her from this and to start

making progress.

Kathy

OTC MIralax (Polyethylene glycol)To: Elyse <erobertsdigi-flicks>

Dear ,

I spoke to you many years ago regarding the article you wrote titled, Fatal Dysnatremia caused by Elective Colonoscopy. When I spoke to you I was concerned about the use of Miralax in pediatric patients. Braintree Labs just made Miralax OTC without a prescription. There is a growing number of people including children dying from this. What can we do? You are the only person I know that knows how harmful this med is and what this chemical can do to the body. I have been researching this for 7 years and I have two doctor's helping me, getting me information about gut permeability and so fourth. I have 447 people, Adults and many children through the FDA and they are giving adult doses to children as little as 20 months of age. According to the FOIA sheets, they are expieriencing many side affects including tics, tremors, hyponaetremia, neuro behaviors, renal failure and death. This med is not approved for use in children and they are using it off label, in an Adult dose. Someone has to stop this. I am waiting on my next submittion from the FDA, that should have another increase in adverse reactions, it shoud be here in a few weeks, we have a website consisting of 228 people called miralax of people complaing of the same symptoms. The pamphlet on the counter says Safe and effective*,( with an asterisk) , at the bottom is a key, ( *) means, when used as directed, so if they are giving and adult dose, then it wouldnt' be safe or effective because it's not being used as directed, and they can't change the dose, because it states not to give to children. It also states no painful cramps and no excess gas** ( with 2 asterisks) meaning based on laboratory study, individual results may vary. Laboratory studies are done before they use it in humans. I feel this is very misleading These children have all been used as an expieriment, , the doctors are misdirecting patients stating that it's not absorbed, it even states that on the pamphlet. If the protocol is wrong, they will continue to use this unless proven otherwise. The reasearch I've found and what my doctor's have found are contraditory to their claims, as your study was as well. The doctors are using this against the labeling instructions, and manufacturers, knowingly filling prescriptions for children against their own labeling instructions. How can they get away will this? Would you be interested in researching what I have? If not, what can I do? Some one needs to protect our children.

Jeanie Ward

May the Lord continue to bless you, more abundantly!

Love ya,

Melody

Expecting? Get great news right away with email Auto-Check.Try the Yahoo! Mail Beta.

[Guest guest]

Hi, Jeanie...sorry about last post. Switched to my laptop and I'm not quite as used to it. I was wondering if in your researching you came across anything on ppg or propylene glycol. I can't handle all the chemicals I'm seeing in "beauty" products now that I'm really looking. And I can't help but wonder if this is part of the problem with today's youth's behavior...we're swamping their systems with all this crap. Just looking for a bit more guidance as to what is related to what and how. Thanks much.Jeanie Ward wrote: Dear Melody, I've been researching this for 7 yrs. because my dd was on this for 10 days. She started to lose all humor and farcical expression and it all spiraled down from that as the week went on and they tried to reassure me that her nervousness and isolated behavior was because her bowels were moving for the first time, in a long time. I never believed her, but she was the doc so I gave her the benefit of the doubt because she assured me it wasn't absorbed. I started her out on about a quarter of a capful, going against their dose, because the dose stated adult dose, so I eyed it per say. When she still hadn't gone, they told me to increase the med, so by that weekend, they had increased it to 1 capful (17 grams and 1 1/2 capfuls) by the end of the weekend. This is what I call the weekend from hell that changed

her life. She began shivering so bad we wondered if it was convulsions, hiding under her blankie on the side of the bed, afraid of her baby sister, who was 1 at the time, afraid of the coo-coo clock, afraid of people closing doors and walking down the hallway. (we lived in an apartment at that time.) She went on, lining up toys like an autistic child till 3 in the morning and wouldn't look at us or even try to focus, she was "out-there". We took her to a birthday party that weekend with all her family friends and she was gone, we found her hiding on the side of the bed upstairs? I thought, What the hell did this stuff do to my daughter? A few days later, we took her to the ER at Children's Memorial and the couldn't find anything. I had the whole GI team out in the hallway, and one Doctor said to me, "well it is possible that through osmosis this could have soaked through her stomach wall and went to her brain. So........... I left the hospital and started

researching this and I found everything I suspected. I have found people in my own neighborhood, my own pharmacist that had it happen to his next door neighbor along with many others. I requested any adverse side affects from the fda and only got 7 people back, in 2000. Now there are 447 as of '05 I'm waiting on my next submission. I also asked for the individual reports, which is the report behind the FOIA sheet, stating exactly what the person wrote to the FDA. I am re-petitioning them because if you don't, all this data of people sending their adverse reactions just builds up and no one red flags it per say. They say it's not absorbed, my findings are quite different. The FDA sheets speak for themselves. This board speaks for itself. People that have neuro behaviors, tics, tremors, dilusions, seizures, suicidal tendencies, renal failure, hyponatremia, and death is OBVIOUSLY a sign that this med is ABSORBED! They based this study on Laboratory studys

and it's like a invisable poison, because the side affects are hardly visable to the untrained eye. There are little or no human studies performed and yet the FDA approved the drug for adults, I have the NDA (new drug appoval, from the FDA and that's quite a controversy as well.) They were blacking out their trade mark when they submitted the documents. When asked for the documents, the letter questions why they blacked it out and documented a patent trade mark sign before it was approved) this document came to me by sheer luck. I had submitted for my regular FDA reports and I ended up with a CD and all the paperwork for the NDA ,new drug approval. Some one had a bright idea, I'd like to know who, to give this med to children and never bothered to look up a proper dose, so I did ,and it has to be calculated by the doctor or physcian. Which not one of the people I've ever talked to even knows one exists. At 35 lbs. it's about 3 grams, so they

are giving sometimes, 9 times the dose and that's still going against Braintree Labs. regulations. I'll ask anyone, call the company, they will even tell you NOT to give to children.We formed this group to connect all the people that this happened to, so we could all share the simiarities of the side affects. The chemical makeup alone, should raise red flags. Made from a derivitive of antifreeze and Poly, made from ethynol, a by product of gasoline and crude oil. Please look all my old posts I have posted the instructions on how to submitt your adverse reactions to the FDA. As far as diagnosing your child with anything, they won't even ackknowlege this happened because of the protocol. If the protocol states, it's not absorbed, even though they did laboratory studies, which are in test tubes and on animals such as rats , then they believe it's not absorbed. My theory is that at recommended doses, the side affects are so low, so you wouldn't see

them if you tried, but that doesn't mean there not there. When you increase the dose, the side affects seem to amplify, so my theory is, if alot puts you in a state of toxicity, then a little dose does the same only milder. There's the same logic with anything toxic, they approve pesticides at certain doses, safe for humans and the environment, at recommended doses, but if this recommened dose is toxic and can kill a cockroach, then increased doses could be very toxic and that's where you would see toxic reactions. So in theory, if this toxic med causes these side affects, it's still doing the same thing but milder, in lower doses. The question is: why are some people absorbing this and others arn't? No one will ever know unless this matter is addressed. They aren't even acknowledging the already desparate "Moms" asking why their child is having all these sided affects to begin with. Because it's not in the protocol. They simply send them

to a Phsyciatrist. If someone would take them time to put all the pieces together and realize that so many children are having the same side affects from the same medication, and acknowledge that it is obviously the medication causing this, then, the protocol could be changed and we as parents would at least have a choice to weigh the benefits. The way it stands, they are misleading, and in my opinion, incorrect. Adverse and toxic reactions to pestiscides happen because the product is toxic and the severity of the reaction depends on how much they were exposed to, human error, mixing the solutions with high concentrations can be the cause of this. But even at recommemed doses,pesticides are still labeled a toxic chemical. If you look up the MSDS for PEG they state, there is little or no human studies done. Luckely , I have two very close physicians, who've helped me, read all my research and said, you're absolutely right. But it's

our job to bring it to their attention. The material safety data sheets( MSDS) for PEG state: do not flush down the sewer systems or down the toilet. A Toxicologist stated to me, that with topical use, they know PEG causes renal failure with topical use, so what do they think there doing giving this internally. If Ethylene glycol (Antifreeze) causes calcium oxylate crystals and renal failure and Polyethylene glycol (PEG) causes oxalate crystals and renal failure, then they must be similar. The state of CA declared this a carcinogen. I've posted PEG safety data sheets about peg 400 and heard all the arguments that they arn't the same but the underlying issue that some people are missing, or in denial over, is the fact: PEG 400 is just a smaller molecule than PEG 3350 They are the same toxic chemical, only a bigger size. Doesn't anybody wonder why there's little or no information on PEG 3350? Because they don't have any!!!! These are our

precious children. We as a Country, need to put the patients first, not the Patent. Especially in children. Jeanie melody andersen <melody_andy> wrote: Ok I am reading this and freaking out. My 22 month old daughter has been on double adult doses of this since she was 3 months old. It does nothing for her and now I am worried about side affects. They want to put my new baby girl who is 3 months old suffering from the same symtums on this med to....More info please. I need help to know what to do. Thanks MelodyJeanie Ward <dreamjeaniesbcglobal (DOT) net> wrote: Note: forwarded

message attached.Date: Thu, 5 Apr 2007 07:17:10 -0700 (PDT)From: Jeanie Ward <dreamjeaniesbcglobal (DOT) net>Subject: Fwd: OTC MIralax (Polyethylene glycol)To: mdanczyksenrNote: forwarded message attached.Date: Thu, 5 Apr 2007 06:21:20 -0700 (PDT)From: Jeanie Ward <dreamjeaniesbcglobal (DOT) net>Subject: OTC MIralax (Polyethylene glycol)To: Elyse <erobertsdigi-flicks> Dear , I spoke to you many years ago regarding the article you wrote titled, Fatal Dysnatremia caused by Elective Colonoscopy. When I spoke to you I was concerned about the use of Miralax in pediatric patients. Braintree Labs just made Miralax OTC without a prescription. There is a growing number of people including children dying from this. What can we do? You are the only person I know that knows how harmful this med is and what this chemical

can do to the body. I have been researching this for 7 years and I have two doctor's helping me, getting me information about gut permeability and so fourth. I have 447 people, Adults and many children through the FDA and they are giving adult doses to children as little as 20 months of age. According to the FOIA sheets, they are expieriencing many side affects including tics, tremors, hyponaetremia, neuro behaviors, renal failure and death. This med is not approved for use in children and they are using it off label, in an Adult dose. Someone has to stop this. I am waiting on my next submittion from the FDA, that should have another increase in adverse reactions, it shoud be here in a few weeks, we have a website consisting of 228 people called miralax of people complaing of the same symptoms. The pamphlet on the counter says Safe and effective*,( with an asterisk)

, at the bottom is a key, ( *) means, when used as directed, so if they are giving and adult dose, then it wouldnt' be safe or effective because it's not being used as directed, and they can't change the dose, because it states not to give to children. It also states no painful cramps and no excess gas** ( with 2 asterisks) meaning based on laboratory study, individual results may vary. Laboratory studies are done before they use it in humans. I feel this is very misleading These children have all been used as an expieriment, , the doctors are misdirecting patients stating that it's not absorbed, it even states that on the pamphlet. If the protocol is wrong, they will continue to use this unless proven otherwise. The reasearch I've found and what my doctor's have found are contraditory to their claims, as your study was as well. The doctors are using this against the labeling instructions,

and manufacturers, knowingly filling prescriptions for children against their own labeling instructions. How can they get away will this? Would you be interested in researching what I have? If not, what can I do? Some one needs to protect our children. Jeanie Ward May the Lord continue to bless you, more abundantly! Love ya, Melody Expecting? Get great news right away with email Auto-Check.Try the Yahoo! Mail Beta.

Need Mail bonding?Go to the Yahoo! Mail Q&A for great tips from Yahoo! Answers users.

[Guest guest]

BINGO The number of artificial chemicals found in mother's milk can

be high as 260 compounds! Only about 10% of the chemical compounds

we are exposed to every day(6000!) have been tested and are listed as

EPA substances. Not that Europe (EEC) is perfect -- but they seem

to do a much better job protecting their citizens.

This has a lot of valuable information.

http://www.pnf.org/Heavy_Metal_and_Solvents_Detoxification.pdf

I can't find a SINGLE study where they tested the safety of PEG 3350

on people with gut issues (leaky gut). This whole issue smells.

>

>

> Note: forwarded message attached.

>

> Date: Thu, 5 Apr 2007 07:17:10 -0700 (PDT)

>

> Subject: Fwd: OTC MIralax (Polyethylene glycol)

> To: mdanczyk@...

>

>

>

> Note: forwarded message attached.Date: Thu, 5 Apr 2007 06:21:20 -

0700 (PDT)

>

> Subject: OTC MIralax (Polyethylene glycol)

> To: Elyse

>

> Dear ,

> I spoke to you many years ago regarding the article you wrote

titled, Fatal Dysnatremia caused by Elective Colonoscopy. When I

spoke to you I was concerned about the use of Miralax in pediatric

patients. Braintree Labs just made Miralax OTC without a

prescription. There is a growing number of people including children

dying from this. What can we do? You are the only person I know that

knows how harmful this med is and what this chemical can do to the

body. I have been researching this for 7 years and I have two

doctor's helping me, getting me information about gut permeability

and so fourth. I have 447 people, Adults and many children through

the FDA and they are giving adult doses to children as little as 20

months of age. According to the FOIA sheets, they are expieriencing

many side affects including tics, tremors, hyponaetremia, neuro

behaviors, renal failure and death. This med is not approved for use

in children and they are using it off label, in an Adult dose.

> Someone has to stop this. I am waiting on my next submittion from

the FDA, that should have another increase in adverse reactions, it

shoud be here in a few weeks, we have a website consisting of 228

people called miralax of people complaing of the same

symptoms. The pamphlet on the counter says Safe and effective*,( with

an asterisk) , at the bottom is a key, ( *) means, when used as

directed, so if they are giving and adult dose, then it wouldnt' be

safe or effective because it's not being used as directed, and they

can't change the dose, because it states not to give to children. It

also states no painful cramps and no excess gas** ( with 2 asterisks)

meaning based on laboratory study, individual results may vary.

Laboratory studies are done before they use it in humans. I feel this

is very misleading These children have all been used as an

expieriment, , the doctors are misdirecting patients stating that

it's not absorbed, it even states that on the

> pamphlet. If the protocol is wrong, they will continue to use this

unless proven otherwise. The reasearch I've found and what my

doctor's have found are contraditory to their claims, as your study

was as well. The doctors are using this against the labeling

instructions, and manufacturers, knowingly filling prescriptions for

children against their own labeling instructions. How can they get

away will this? Would you be interested in researching what I have?

If not, what can I do? Some one needs to protect our children.

> Jeanie Ward

>

>

>

>

> May the Lord continue to bless you, more abundantly!

> Love ya,

> Melody

>

> ---------------------------------

> Expecting? Get great news right away with email Auto-Check.

> Try the Yahoo! Mail Beta.

>

>

>

>

>

>

>

>

>

> ---------------------------------

> Need Mail bonding?

> Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users.

>

[Guest guest]

Wow! very interesting! Thank You. You seem to know quite a bit on this issue. Was your child on Miralax? Did you chelate? I can't remember if I wrote this in the text below but on my last submission from the fda, there was a woman who reported drug exposure via breastmilk and right after hers, was a 2 month old with symptoms, I had to ask my doctor what it was, he was born with testicle cancer and his testicles were up inside him. Very disturbing. It's only our testimonies that will ever make an impact on this situation. According to my research, THEY throw it out there and WE have to do all the leg work to prove them wrong. This hardly seems fair. The chemical companies just throw anything they can get their hands on that could be profitable out there, and we as parents have to take what short time we all have and research there work. Hardly seems fair. Jeaniemommtlc

wrote: BINGO The number of artificial chemicals found in mother's milk can be high as 260 compounds! Only about 10% of the chemical compounds we are exposed to every day(6000!) have been tested and are listed as EPA substances. Not that Europe (EEC) is perfect -- but they seem to do a much better job protecting their citizens.This has a lot of valuable information. http://www.pnf.org/Heavy_Metal_and_Solvents_Detoxification.pdfI can't find a SINGLE study where they tested the safety of PEG 3350 on people with gut issues (leaky gut). This whole issue smells.> > > Note:

forwarded message attached.> > Date: Thu, 5 Apr 2007 07:17:10 -0700 (PDT)> > Subject: Fwd: OTC MIralax (Polyethylene glycol)> To: mdanczyk@...> > > > Note: forwarded message attached.Date: Thu, 5 Apr 2007 06:21:20 -0700 (PDT)> > Subject: OTC MIralax (Polyethylene glycol)> To: Elyse > > Dear ,> I spoke to you many years ago regarding the article you wrote titled, Fatal Dysnatremia caused by Elective Colonoscopy. When I spoke to you I was concerned about the use of Miralax in pediatric patients. Braintree Labs just made Miralax OTC without a prescription. There is a growing number of people including children dying from this. What can we do? You are the only person I know that knows how harmful this med is and what

this chemical can do to the body. I have been researching this for 7 years and I have two doctor's helping me, getting me information about gut permeability and so fourth. I have 447 people, Adults and many children through the FDA and they are giving adult doses to children as little as 20 months of age. According to the FOIA sheets, they are expieriencing many side affects including tics, tremors, hyponaetremia, neuro behaviors, renal failure and death. This med is not approved for use in children and they are using it off label, in an Adult dose.> Someone has to stop this. I am waiting on my next submittion from the FDA, that should have another increase in adverse reactions, it shoud be here in a few weeks, we have a website consisting of 228 people called miralax of people complaing of the same symptoms. The pamphlet on the counter says Safe and

effective*,( with an asterisk) , at the bottom is a key, ( *) means, when used as directed, so if they are giving and adult dose, then it wouldnt' be safe or effective because it's not being used as directed, and they can't change the dose, because it states not to give to children. It also states no painful cramps and no excess gas** ( with 2 asterisks) meaning based on laboratory study, individual results may vary. Laboratory studies are done before they use it in humans. I feel this is very misleading These children have all been used as an expieriment, , the doctors are misdirecting patients stating that it's not absorbed, it even states that on the> pamphlet. If the protocol is wrong, they will continue to use this unless proven otherwise. The reasearch I've found and what my doctor's have found are contraditory to their claims, as your study was as well. The doctors are using this against the labeling

instructions, and manufacturers, knowingly filling prescriptions for children against their own labeling instructions. How can they get away will this? Would you be interested in researching what I have? If not, what can I do? Some one needs to protect our children.> Jeanie Ward> > > > > May the Lord continue to bless you, more abundantly!> Love ya,> Melody> > ---------------------------------> Expecting? Get great news right away with email Auto-Check.> Try the Yahoo! Mail Beta. > > > > > > > > > > ---------------------------------> Need Mail bonding?> Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users.>

[Guest guest]

What are the symptoms of oxalate dumping?

Has anyone done Dr. Shaw's test to check for oxalates?

Kathy

OTC MIralax (Polyethylene glycol)> > To: Elyse <eroberts@>> > > > Dear ,> > I spoke to you many years ago regarding the article you wrote > titled, Fatal Dysnatremia caused by Elective Colonoscopy. When I > spoke to you I was concerned about the use of Miralax in pediatric > patients. Braintree Labs just made Miralax OTC without a > prescription. There is a growing number of people including children > dying from this. What can we do? You are the only person I know that > knows how harmful this med is and what this chemical can do to the > body. I have been researching this for 7 years and I have two > doctor's helping me, getting me information about gut permeability > and so fourth. I have 447 people, Adults and many children through > the FDA and they are giving adult doses to children as little as 20 > months of age. According to the FOIA sheets, they are expieriencing > many side affects including tics, tremors, hyponaetremia, neuro > behaviors, renal failure and death. This med is not approved for use > in children and they are using it off label, in an Adult dose.> > Someone has to stop this. I am waiting on my next submittion from > the FDA, that should have another increase in adverse reactions, it > shoud be here in a few weeks, we have a website consisting of 228 > people called miralax of people complaing of the same > symptoms. The pamphlet on the counter says Safe and effective*,( with > an asterisk) , at the bottom is a key, ( *) means, when used as > directed, so if they are giving and adult dose, then it wouldnt' be > safe or effective because it's not being used as directed, and they > can't change the dose, because it states not to give to children. It > also states no painful cramps and no excess gas** ( with 2 asterisks) > meaning based on laboratory study, individual results may vary. > Laboratory studies are done before they use it in humans. I feel this > is very misleading These children have all been used as an > expieriment, , the doctors are misdirecting patients stating that > it's not absorbed, it even states that on the> > pamphlet. If the protocol is wrong, they will continue to use this > unless proven otherwise. The reasearch I've found and what my > doctor's have found are contraditory to their claims, as your study > was as well. The doctors are using this against the labeling > instructions, and manufacturers, knowingly filling prescriptions for > children against their own labeling instructions. How can they get > away will this? Would you be interested in researching what I have? > If not, what can I do? Some one needs to protect our children.> > Jeanie Ward> > > > > > > > > > May the Lord continue to bless you, more abundantly!> > Love ya,> > Melody> > > > ---------------------------------> > Expecting? Get great news right away with email Auto-Check.> > Try the Yahoo! Mail Beta. > > > > > > > > > > > > > > > > > > > > ---------------------------------> > Need Mail bonding?> > Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users.> >>

[Guest guest]

Where did you get it and who does the test?jhud2 wrote: Yes, I have the kit. I'll send you the link. Kathy Re: Re: Jeanie's view Yes, great Idea! Is there a test that shows if they are extremely high or the ratio? Where do you get it? Jeanie Hudson <jhud2earthlink (DOT) net> wrote: What are the symptoms of oxalate dumping? Has anyone done Dr. Shaw's test to check for oxalates? Kathy OTC MIralax (Polyethylene glycol)> > To: Elyse <eroberts@>> > > > Dear ,> > I spoke to you many years ago regarding the article you wrote > titled, Fatal Dysnatremia caused by Elective Colonoscopy. When I > spoke to you I was concerned about the use of Miralax in pediatric > patients. Braintree Labs just made Miralax OTC without a > prescription. There is a growing number of people including children > dying from this. What can we do? You are the only person I know that > knows how harmful this med is and what this chemical can do to the > body. I have been researching this for 7 years and I have two > doctor's helping me, getting me information abou! t gut pe rmeability > and so fourth. I have 447 people, Adults and many children through > the FDA

and they are giving adult doses to children as little as 20 > months of age. According to the FOIA sheets, they are expieriencing > many side affects including tics, tremors, hyponaetremia, neuro > behaviors, renal failure and death. This med is not approved for use > in children and they are using it off label, in an Adult dose.> > Someone has to stop this. I am waiting on my next submittion from > the FDA, that should have another increase in adverse reactions, it > shoud be here in a few weeks, we have a website consisting of 228 > people called miralax of people complaing of the same > symptoms. The pamphlet on the counter says Safe and effective*,( with > an asterisk) , at the bottom is a key, ( *) means, when used as > directed, so if they are giving and adult dose, then it wouldnt' be > safe or

effective because it's not being used as directed, and they > can't change the dose, because it states not to give to children. It > also states no painful cramps and no excess gas** ( with 2 asterisks) > meaning based on laboratory study, individual results may vary. > Laboratory studies are done before they use it in humans. I feel this > is very misleading These children have all been used as an > expieriment, , the doctors are misdirecting patients stating that > it's not absorbed, it even states that on the> > pamphlet. If the protocol is wrong, they will continue to use this > unless proven otherwise. The reasearch I've found and what my > doctor's have found are contraditory to their claims, as your study > was as well. The doctors are using this against the labeling > instructions, and manufacturers, knowingly filling prescriptions ! for > children

against their own labeling instructions. How can they get > away will this? Would you be interested in researching what I have? > If not, what can I do? Some one needs to protect our children.> > Jeanie Ward> > > > > > > > > > May the Lord continue to bless you, more abundantly!> > Love ya,> > Melody> > > > ---------------------------------> > Expecting? Get great news right away with email Auto-Check.> > Try the Yahoo! Mail Beta. > > > > > > > > > > > > > > > > > > > > ---------------------------------> > Need Mail bonding?> > Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users.> >>