hello dear fellow lymies

[Guest guest]

----- Forwarded Message ----To: thane17@...Sent: Thu, February 4, 2010 10:48:19 PMSubject: Re: hello dear fellow lymies

Hi folks!I wanted to thank you Thane, and , Tamara, Marsha, Connie and Jim for your welcome and very good insights! (and any one I forgot! One thing several seemed to confirm was that herbal abx is healing people of lyme. I had a question as it sounds like some may takes herbal lyme killers while rifing? I understood from Rosner's book that any abx will cause lyme to hide and because rife kills only spirochetes (correct?) that it would defeat the purpose of rife to do herbal abx at the same time. My decision is still that feeling very sick and having felt bad for most of my 49 years, whether it would be of benefit as Thane mentioned here to do even herbal abx to cause lyme to hide to give the body a break---I guess I'm not dead so I can go on like this but it seems with all the damaged muscles and cognitive problems,

organ probs. maybe I should give my body a break for alittle before too much herxing!!So those are two questions still swirling in my thinking--Should one do herbal abx while rifing and would it be wise to give the body a break by driving it into hiding for awhile. Any other thoughts?Blessings!Debbie

hello dear fellow lymies

Hi friends,I wanted to introduce myself as I have been reading the last 2 weeks and am attempting to post. I just wrote a very long post which I accidentally just hit the wrong key and deleted. Uggghh!! Anyway, I'm Debbie, a 49 year old mother of 5 (4 college age or older) and I just learned this summer through a positive WB test what the root cause of the weird and terrible symptoms I have had most of my life! I remember my heart racing at age 3 and light hurting my eyes. Reading the posts is like looking in the mirror! And I am so happy to have found such a caring and helpful group as I have been "on my own" for most of my 15 year health journey. I only have a couple hours of energy each day for typing, thinking, studying, minor chores, etc. but I hope to become a more contributing member!I have major bodywide muscle pain and weakness, profound fatigue and cognitive problems, some neurological stuff like tremors and have had a few

small seizures, sensitivity to noise and light and eye pain, headaches, etc. Although my joints have little pain, just crackling ! happy for that!About 95% of the muscles above my shoulder blades and in my neck have turned to scar tissue and now I know why! I have had weekly sessions of neural therapy (about 70 shots of procaine which dissolves scar tissue) Dr. K trained most the docs in the country for this. After 60 sessions, we are just getting down to the bones in some spots where it was plastered to my ribs and spine in the neck.Paydirt! and am starting to be able to move the shoulder, but the problem is there is no muscle in there to move anything, but is less painful and hopefully is freeing up nerves to the organs, etc. I will get a neck brace next week to hold my head up I hope. I guess this is lyme damage and I hope not an indicator of what my brain and other parts have gone through.In trying to get a handle on lyme

treatments I have Rosner's book on the Top 10 treatments and rife. We got a rife machine from the dear man in upstate New York and have tried it 4x. It really calms my brain down but then feel sick for a few days. It's great that I have many of the natural type treatments for years which people do for lyme but now have questions about antibiotics tha I would love feedback on. I realize they are only opinions and I will be respionsible for the decision! In studying, I see the big probs with pharma stuff--the hiding it causes after awhile, the resistance, and t damage to probiotics. I know Rosner and Connie Stasheim don't seem to recommend it as it if often prescribed. I was surprised to read in Connie's book of Insights to Lyme Treatments that even the most naturally minded docs seems to say antibiotics were very eseential in their view. I have had symptoms my whole life so I am def a chonic case. I did see an LLMD in Nashville TN

who is being trained by Horowitz, etc. and his program is some straight/not pulsed abx. I am unsure if I want to do his protocol if the bacteria is just going to hide. But I wonder, is it worth the benefit of just having it go dormant for awhile? Is that why many docs still recommend it? I really have alot of bad symptoms--I wonder if that would make pharma abx more necessary for awhile to give the body a break? Of course I would do as much natural stuff as I can. And in the book they seemed to call the herbal abx (little guns) and pharma (big guns) as if it was much better. Of course I do have the Enem machine and seem to be getting some herxs and know you have to be patient. I just feel so on my own in making the right choice--a perhaps I will just have trial and error! Well, thanks for any input you wonderful Lymie friends you!Blessings,Debbie