Guest guest Posted October 2, 2005 Report Share Posted October 2, 2005 Just curious, when did you get sick and do all the ER visits, when did you start abx, and when did you become able to start exercising again? Is your exercise capacity normal? Recently I have been able to exercise rather significantly, and recover normally, which is definitely a change. I am of course deconditioned, but beyond that my capacity is also somewhat pathologically subnormal. Also I second Sues question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2005 Report Share Posted October 2, 2005 I'll answer both here.I bcome ill turn of the century about 2000 had intermittent courses of drugs.But about the mid 2001 point I realised this is rediculous, need to get the job done properly, non of this stab in the dark stuff and obviously realised your dealing with bozo's calling themselves proffesionals in the hospital system. There basic game plan is try and convince everyone everything is normal, yet the medical literature describes everything as look for this and that. Anyway so mid 2001 realised keep cutting thru the infection and keep attacking like tuberculosis, I also benefit from cutting thru the infection aggresively as opposed to doing the pissy stuff- I believe a lot of this aspect has to do with lifestyle choice and age as you can see- eric can improve nicely with simple therapy, age and disease progession really matter. I can now do things like I used to s far as exercise and at times again if I push hard at the gym the benefits seem to stack up to better aerobic conditioning of the heart.My therapy is till important becauseyou need to fix your body from cfs then age related diseases.Anyways I have been non stop on drugs for 3 and a half years.and believe when I have no symptom for six moinths is when I decide what to do next. As far as the sample goes I haven't done much in the last six weeks and thought I would add one to the photo's section as soon as it becomes available- which was this week.The guy has spoken on the phone long distance and he is very big around the lyme circles and knows his lyme stuff and even told me he grows his spiro's- how and who I didn't get into it with him. I thought this may also be an eye opener because the medical literature is so warped that it becomes gospel, when it shouldn't even fit the fiction category.There's something wrong when you can get pseudonomads out of people on a regular basis and it never gets a mention anywhere in medical circles and the ENT's that do cultures are confronted constantly..This dude is also complaining of lots of head /mastoid pressure. > Just curious, when did you get sick and do all the ER visits, when did > you start abx, and when did you become able to start exercising again? > Is your exercise capacity normal? > > Recently I have been able to exercise rather significantly, and > recover normally, which is definitely a change. I am of course > deconditioned, but beyond that my capacity is also somewhat > pathologically subnormal. > > Also I second Sues question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Ishould get a scientist to swab a tickgut and send it to you. You'd probably find all the crap that is in the ticks. I wouldn't put it past those bloodsuckers to be injecting us with 10 or 20 pathogens. > > Just curious, when did you get sick and do all the ER visits, when > did > > you start abx, and when did you become able to start exercising > again? > > Is your exercise capacity normal? > > > > Recently I have been able to exercise rather significantly, and > > recover normally, which is definitely a change. I am of course > > deconditioned, but beyond that my capacity is also somewhat > > pathologically subnormal. > > > > Also I second Sues question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Jill You gotta understand the size of these things is 1000 will fit on a full stop...there's three thousand.There's a part of ilness that you can't get you head around and is very common knowledge in most medical circles. Whatever you have in your sinus cavity is likely to be your infection when presenting at the hospital. If you have surgery and get an infection this is your own that you've been brewing.Lanelle is a perfect example of being someone that is waiting to brew an infection- basically anything you do can lead you down that garden path- a vaccination, an injury, car accident, dehydration event. So many ways to become ill..being handled with infected hands in a hospital setting see's many deaths.. There's more than tickbites, I know a friend who developed meningitis recently and he just had a tooth worked on not that long before..there's so many starnge scenario's and your neighbours have possably had more ticks than you, yet there fine.Remember there's something huge going on because a car accident victim gets a saline IV to make sure they don't dehydrate- obviously to avoid these ugly scenario's that they must have observed over many years that occur thru a simple dehydration. Basically open up your mind to all the possabilities and get all your ducs in a row to attempt getting better.Remember babesia therapy ain't glowing with enthusiasm anywhere I know of. > > > Just curious, when did you get sick and do all the ER visits, > when > > did > > > you start abx, and when did you become able to start exercising > > again? > > > Is your exercise capacity normal? > > > > > > Recently I have been able to exercise rather significantly, and > > > recover normally, which is definitely a change. I am of course > > > deconditioned, but beyond that my capacity is also somewhat > > > pathologically subnormal. > > > > > > Also I second Sues question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 well that's not exactly true is it, people get vanco resistant infections in the hospital...that they weren't carrying. also, it's not exactly true that the others got lots of tickbites and aren't sick. in retrospect the lady i visited WAS sick, she suffered severe migraines (typical of lyme and babesia), she'd have hip pain that required percocet and a few days of bed, she'd get bronchitis in the spring or summer requiring abx...she had energy tho and coul dexercise, so it didn't cause her massive fatigue. she also had manic depression. and her daughter had migraines nad her husband had knee surgery and blade bla. ie they had tickborne disease. and when you read about whole families struck down by it and i often do. like when my hyperbaric chamber was out for repair i went to new jersey to get a session in the home of a nurse who had a professional chamber she bought for herself and her husband. previously totally healthy, they had landscaped their other home in a different new jersey town, both got tickbites, both came down with seirous illness reuqiring IV antibiotics and still did not get well (tho improved)-- she had typical symptoms including paralysis one day while driving, for a few hours....the hyperbaric has gotten both of them back to functional although not completely well. They moved from that home, where they had gotten both lyme and bartonella (both of them--because the tick nest was the same exposure for both) and in their new home n a different town 30 minutes away there is a different ecosystem. Both neighbors on either side have had lyme and both neighbors got well with a month of oral antibiotics. So I've heard SO many stories that I'm absolutely covinced it's not just pre existing inectious load, sinus problems, tooth problems, or relative health. Its the virulence of the bugs, and ohw many bugs ie lyme babesia bartonella erlichia mycoplasma and microfilarial worms and wh oknows what viruses--the virulence of the strains, how many strains, and that is dependent on the particular ecosystem of that neighorhood. And studies I've seen back this up--one farm will have lyme only, another farm not far away, lyme and erlichia, in the resident ticks. In addition, I see on lyement very often, stories where lymies ONLY began to improve once they began babesia treatment. There are two such posts on there today alone. I do think you are correct in almost all your statements except that you don't undestand tickborne disease because you haven't experienced or studied it. > > > > Just curious, when did you get sick and do all the ER visits, > > when > > > did > > > > you start abx, and when did you become able to start > exercising > > > again? > > > > Is your exercise capacity normal? > > > > > > > > Recently I have been able to exercise rather significantly, > and > > > > recover normally, which is definitely a change. I am of course > > > > deconditioned, but beyond that my capacity is also somewhat > > > > pathologically subnormal. > > > > > > > > Also I second Sues question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Jill I studied alot but found I need to stop reading and start observing. I chose the start observing. I never draw any conclusions lightely- I spat the dummy with the mycoplamsa 3 or 4 years ago and as you can observe- as a topic here it doesn't get a mention, because it sucks.I live in australia- melbourne and we have just as many chronically ill as you if not more possably due to high antibiotic prescribing and I don't think anyone in our state has ever been near a tick.Now that doesn't mean I don't believe you have a bacterial zoo for an ilness BUT you gotta try weed out the targets instaed of rambling off literature- 100 pubmed articles a week.How is it the literature never mentions coag neg staph is implicated in sinus disease, not even pseudonmads gets a mention. The other thing is no one gives a rats arse what is doing the backstroke in your blood because we are reassured our blood is sterile...so you have to change the way things are being done- you also got to break down the challenge at hand. If that was your swab we were looking at you wouldn't be jumping up and down about tick borne ilness when pseudonmads is the 4 th highest hospital bacteria to send people to the cemetery.It definately would change the way you view things as well if your respond as clearly as I do to my cultures. > > > > > Just curious, when did you get sick and do all the ER visits, > > > when > > > > did > > > > > you start abx, and when did you become able to start > > exercising > > > > again? > > > > > Is your exercise capacity normal? > > > > > > > > > > Recently I have been able to exercise rather significantly, > > and > > > > > recover normally, which is definitely a change. I am of > course > > > > > deconditioned, but beyond that my capacity is also somewhat > > > > > pathologically subnormal. > > > > > > > > > > Also I second Sues question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Well I want to do a swab and have you look at it. I believe that of what you observe, you have made some brilliant conclusions it'll take a while for medicine to catch up to and I always read your posts with interests. You have some blind spots--for instance the poor methylation genes and mercury--there's a ton of literature on that. And tickborne illness--these are baaaad ass bugs, man. These bugs can take formerly healthy folks with no sinus symptoms or pseundomonads and bring them down as if a machine gun had pummeled them. They downregulate specific aspects of the immune system with their endotoxins, and then proably this other stuff grows wild and then you're really screwed. And in other cases it may be as you said, it starts with sinus/teeth/bad blood. > > > > > > Just curious, when did you get sick and do all the ER > visits, > > > > when > > > > > did > > > > > > you start abx, and when did you become able to start > > > exercising > > > > > again? > > > > > > Is your exercise capacity normal? > > > > > > > > > > > > Recently I have been able to exercise rather > significantly, > > > and > > > > > > recover normally, which is definitely a change. I am of > > course > > > > > > deconditioned, but beyond that my capacity is also > somewhat > > > > > > pathologically subnormal. > > > > > > > > > > > > Also I second Sues question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Jill I don't give a rats what people think or believe, all I'm trying to teach you is that you have to accumulate as much science as possable.Genetics are a waste of time because the most important component that is ignored is that you inherit your mothers colonising bacteria. I have a classic example of this down the street my aunty has strep throat all her kids suffer strep throat.If I keep pumping toxins into your cells you'll have plenty of genetic defects- then the clowns of the world doctors will convince you you can't get well because you have this genetic defect.My problem with this arguement is MR. D how was it I was fine for 43 years, now I can't get well.The other problem with any type of suffering is that long term these inflammation events will cause psych disorders, many times of a manageable nature often combined with bad habits and environmental changes they will hit new levels of uncontrollable symptoms. Anyways I just get this ilness from a clear and unobstructed by medicine angle- THAT IS- WE ARE SUFFERING THE BYPRODUCT OF TOXIC OVERLOAD.TOXEMIA OF SORTS. Wether you want it to be all tcikbites or flea bites get your culprits all in a row and do the best possable protocol and prefferably monitor the progress is all anyone can do. I find it sad that often it's all done by pubmed articles and the rediculously silly drug of choice is rocephin which on the sample in the photo is the most useless choice. completely resistant to both organisms, but you can alway's add the herx story. tony > > > > > > > Just curious, when did you get sick and do all the ER > > visits, > > > > > when > > > > > > did > > > > > > > you start abx, and when did you become able to start > > > > exercising > > > > > > again? > > > > > > > Is your exercise capacity normal? > > > > > > > > > > > > > > Recently I have been able to exercise rather > > significantly, > > > > and > > > > > > > recover normally, which is definitely a change. I am of > > > course > > > > > > > deconditioned, but beyond that my capacity is also > > somewhat > > > > > > > pathologically subnormal. > > > > > > > > > > > > > > Also I second Sues question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 Ok Try this tkourlinis(at)iprimus.net.au > > > > > > I've been trying to email you but I must have an old email. > Could > > you > > > please send me your email at my address of > > > " needamiracle at inmail24 dot com " > > > Does that make sense? > > > Lanelle > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 > > > > I've been trying to email you but I must have an old email. Could > you > > please send me your email at my address of > > " needamiracle at inmail24 dot com " > > Does that make sense? > > Lanelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 Lanelle I just thought it was unfriendly to other email formats wanting you to use there's. tony > > > > > > I've been trying to email you but I must have an old email. Could > > you > > > please send me your email at my address of > > > " needamiracle at inmail24 dot com " > > > Does that make sense? > > > Lanelle > > > > > > Quote Link to comment Share on other sites More sharing options...
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