Re: the unmentionable protocol

[Guest guest]

And even more mysterious, is that the third stage of the protocol is

secret - abx are not mentioned - and everytime I ask one of the

participants if they've signed a confidentiality agreement - they don't

answer - so I take that to mean they HAVE signed what amounts to a gag

order.

I have been freely open about my protocol, but there are several

people that just won't talk at all about it.

Tight ship I'd say.

Barb

> Hi all

> Recently went over and had a bit of a read at the site that must not

> be mentioned. After 18 months of suffering you'd think that things

are

> supposed to get better. I'm afraid the rigmarol is still the same and

> no improvement just more suffering (seems criminal).The stars at the

> site have long since had there light extinguished...Why is a dead

> horse being thrashed when someone get's a lot of it but misses

> something that is bigger than north america.It just doesn't even

stack

> up as a decent protocol for anyone simple or hard case.

[Guest guest]

Barb

I think anyone expecting a good outcome from that unamed protocol is

gotta be kidding me.My first problem with ARB drugs in general use

is how they'll wop your ass everytime you get a flu or everytime you

get a little problem they'll nail you. This observation comes dircet

from relatives using these things for blood pressure control.I've

noticed they get nailed to the couch everytime something small

manifests. BASICALLY THEY SHOULD BE USED VERY CAREFULLY AND WHAT i

THOUGHT WAS A WONDERFULL DRUG IS PROVING TO BE A NIGHTMARE DRUG THAT

I CAN SEE NO BENEFIT FROM USING.tHE NEXT THING i SHOULD CLEARLY MAKE

AN EFFORT TO SHOW ALL IS HOW YOU CAN SEE THAT ZITHROMAX AND MINO ARE

SHOWING SOME PROMISE EARLY IN THE LYME PATIENTS CULTURE,- I SHOULD

THEN USE LOW LEVELS AND SHOW HOW POINTLESS USING THESE DRUGS BECOMES-

AND EVEN SHOW HOW YOU'LL ACTUALLY GROW AN INFECTION IN LOW LEVELS

OF THESE DRUGS.So regardless what he thinks I can imagine going back

in five years and reading the patient reports and find them

encouragiung each other thru the herx(crap)..

Anyways if you have a mild lung problem expect a full blown asthma

diagnosis from ARB's..Lower back is sore you gonna end up on

morphine for excrutiating back problems... bad drug, bad

science ..equals imbecile protocol.IMO there may be a use for arb's

or other antiinflammatories like aspirin and co in high dose short

spurts rellying purely on getting the bacterial count down by heavy

antimicrobial use. As soon as the inflammation stops being

suppressed the drug should be sent to the other aussie and told to

shove it gracefully up his rear.

Whatever the third stage is I feel he should encourage people to buy

bing cosby christmas cd's because this is the only protocol that

will lift the spirits, no low dose drug is going to get any votes

from me.

> > Hi all

> > Recently went over and had a bit of a read at the site that must

not

> > be mentioned. After 18 months of suffering you'd think that

things

> are

> > supposed to get better. I'm afraid the rigmarol is still the

same and

> > no improvement just more suffering (seems criminal).The stars at

the

> > site have long since had there light extinguished...Why is a

dead

> > horse being thrashed when someone get's a lot of it but misses

> > something that is bigger than north america.It just doesn't even

> stack

> > up as a decent protocol for anyone simple or hard case.

[Guest guest]

I agree with you and always thought that about the Marshall protocol.

For a few weeks I was on a list (email) on which he and other docs

and patients were on, and he said things like, He hasn't seen the

protocol fail in any lyme patients. I just put a filter on his email

address because I knew I could/would never answer such general

statements and I couldn't stand reading them.

I am not sure I agree about aspirin though. before i got sick there

were two tihngs I liked and relied on from time to time; vitamin C,

and aspiring. And for a flu, hot water and fresh squeezed lemons (ie

hot lemonade).

> > > Hi all

> > > Recently went over and had a bit of a read at the site that

must

> not

> > > be mentioned. After 18 months of suffering you'd think that

> things

> > are

> > > supposed to get better. I'm afraid the rigmarol is still the

> same and

> > > no improvement just more suffering (seems criminal).The stars

at

> the

> > > site have long since had there light extinguished...Why is a

> dead

> > > horse being thrashed when someone get's a lot of it but misses

> > > something that is bigger than north america.It just doesn't

even

> > stack

> > > up as a decent protocol for anyone simple or hard case.

[Guest guest]

I agree about low dose just not cutting it.

I've just asked my standard 2 questions to a spokeperson/patient

advocate of this alt therapy on LymeNet .

I've been unsucessfull in the past getting answers as no one posts

again after I ask if they signed a confidentiality agreement - and I

also ask them to specifically talk about the third phase abx and how

they think it helped them.

Barb

> > > Hi all

> > > Recently went over and had a bit of a read at the site that

must

> not

> > > be mentioned. After 18 months of suffering you'd think that

> things

> > are

> > > supposed to get better. I'm afraid the rigmarol is still the

> same and

> > > no improvement just more suffering (seems criminal).The stars

at

> the

> > > site have long since had there light extinguished...Why is a

> dead

> > > horse being thrashed when someone get's a lot of it but misses

> > > something that is bigger than north america.It just doesn't

even

> > stack

> > > up as a decent protocol for anyone simple or hard case.

[Guest guest]

Barb

My problem is the understanding of some aspects is very load and

clear about this disease. You've got differing levels of cellulitis

(undiagnosed) virtually your layers of fat beneath the surface are

infected- I need chaemotherapy to get this aspect of the ilness to

progress forward, how on god's green earth are you going to cut thru

the solid wall of infection with 16 mg of mino.I only knew 'small

victories' in this area with 'hard attack'...basically the total

opposite and mind you I have an obvious mission and MUST ACHIEVE IT

AT ALL COSTS if I expect to get well.This is the reason why we have

reduced blood volume, because the tissue is so infected it get's

burnt out and you need to get the infection out and reestablish the

blood vessels and healthy fat and muscle beneath...

Doesn't matter how you look at things the only thing we can do is

attack from 10 different angles to get better. the thing to avoid is

anything that fuels your inflammation- this includes supplements and

certain foods. Many here are adamant that this that and whatever is

so vital to there ilness yet they can't leave the house.You really

can't afford to fuel the inflammation, and your the best to know

what is fueling itin your own scenario no-one can really tell you

that.

> > > > Hi all

> > > > Recently went over and had a bit of a read at the site that

> must

> > not

> > > > be mentioned. After 18 months of suffering you'd think that

> > things

> > > are

> > > > supposed to get better. I'm afraid the rigmarol is still the

> > same and

> > > > no improvement just more suffering (seems criminal).The

stars

> at

> > the

> > > > site have long since had there light extinguished...Why is a

> > dead

> > > > horse being thrashed when someone get's a lot of it but

misses

> > > > something that is bigger than north america.It just doesn't

> even

> > > stack

> > > > up as a decent protocol for anyone simple or hard case.