Poofters in Piano Clinics

[Guest guest]

What a great image Tony!!! LOL.

Hey maybe she'll even find little cocci in my blood cells (yuck).

Anyway. You're right about that too--anybody who practices in the

Bronx is far from the beaten tracks of Park Avenue fancy offices.

> > > > Hi there, I'm glad to hear you got a different infusion

> company.

> > > > Just FYI, I take sometimes 2 hours to do just five grams. I

> drip

> > > it

> > > > so slowly you could see geologic time change while I drip

> it .

> > I

> > > > read a book or talk to folks.

> > > >

> > > > Also on another note, is I really react if its not gamunex.

> > > Yesterday

> > > > they only had Gammagard there (at my doc's office) as she'd

> been

> > > away

> > > > for 3 weeks. I was desperate as I hadn't had it for 3 weeks,

> > > > therefore, and had had bad PMS and really wanted it. The

sugar

> > and

> > > > salt solution they use, plus the solvents, I react to. I get

> > > > extremely thirsty and hungry while dripping it, and I also

> > > sometimes

> > > > get wheezing, and even odd little chest pains. Once after

> using

> > > > Gammagard I had significant chest pain that lasted for 24

> hours

> > > > (significant to me anyway) and wheezing for weeks. The

> soreness

> > > and

> > > > chest wall pain lasted for weeks too, and I had the whole

> thing

> > > > checked out by docs iwth xrays echocardigoram and discussion

> of

> > > the

> > > > rare possibility of thrombosis, but it appeared totally

> unlikely

> > > and

> > > > did go away.

> > > >

> > > > But with gamunex, which comes refrigerated, already in

> solution,

> > > has

> > > > no preservatives, no sugar, no salt, I really do pretty well.

> > > >

> > > > So just realize that you may have to try different IVIG's

> until

> > > you

> > > > find one you don't react to.

> > > >

> > > > Also, its HUGELY important to hydrate yourself. People can

> > > minimize a

> > > > lot of reactions that way. Remember, its a big moleucle--a

> > protein-

> > > -

> > > > and viscous. So drink a lot of water before during and after,

> and

> > > to

> > > > really protect yourself, have a sterile saline IV first...let

> > that

> > > > drip in for half an hour, so you are really well hydrated,

> then

> > > add

> > > > the IVIG.

> > > >

> > > > Too bad on THEM if they think you are a HASSLE or something.

> You

> > > know

> > > > what, bring them flowers, as I brought my doctor flowers as a

> > > thank

> > > > you. Bring them beautiful flowers, and come in with a big

> smile

> > > and

> > > > say, you know, I had a bad time before and what I'd like to

do

> is

> > > > this: I've drunk a lot of water because I hear that helps,

and

> > I'd

> > > > also like a saline or sterile water IV to really hydrate me,

> and

> > > then

> > > > drip real slow...is tha tokay?

> > > >

> > > > My HMO doc...he agreed to do a blood smear and have the

> > > pathologist

> > > > at the hospital look at my blood. You can imagine he was not

> > happy

> > > I

> > > > forced his hand to do this (after I showed him my positive

> Igenex

> > > > FISH test that my holistic doc did for me). I also really

> pushed

> > > the

> > > > limit todya, which he doesn't know, by EMAILING the head

> > > pathologist

> > > > at the hospital and telling her about my case, and

apologizing

> > for

> > > > breaking protocol but requesting that she herself look at my

> > blood.

> > > >

> > > > I'm going to leave him a bottle of white wine and a thank you

> > note

> > > > and a confession of what I did, and a request that he also

> > request

> > > > she look at it.

> > > >

> > > > That's the best I can do. Hopefully it'll work.

> > > >

> > > > Remember, they are not on your side. They have to be won

over.

> > > Also,

> > > > medicine is just not a fun profession for most o fthem

> anymore.

> > > > They're overworked and they're overmanaged by annoying

> insurance

> > > and

> > > > managed care companies.