Guest guest Posted October 30, 2008 Report Share Posted October 30, 2008 Hi: I was looking for information about gluten intolerance, diets etc. and I found this laboratory. The Great Plains Laboratory, Inc. directed by Dr. Shaw, PhD he is the author of Biological Treatments for Autism and PDD. It call my attention that under Health Conditions they do have Down Syndrome and at the end of the article there is an option to see a slide presentation made by Dr. Shaw about Down Syndrome. It seems interesting. If anyone wants to check it out the site is: http://www.greatplainslaboratory.com/home/eng/downssyndrome.asp The reason I am looking for this information is because since my son started eating foods as a baby his stool has never been normal. It is not diarrea, but close, and he always has undigested foods in his stool. Has anyone experienced this? ANy suggestions? My concern is that he might not be getting the nutrients he needs. Even though he is growing, he is always underweight for his hight. None of my kids have been shuby babys but they were never underweight. Jannette Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 Hi Jannette! Interesting study, even if I could only understand a small percentage of all that medical jargon. It's got me wondering if I could ever get 's pediatrician to read it. I'd love to have him order that allergy testing for . I've heard it's really expensive, but if his pediatrician would order it and insurance would pay for it, that would be great! Like your son, 's stools have never been normal. After he started eating pureed baby food and cereal, he had a lot of trouble with constipation Now that he eats some table food, he has the opposite problem. His stools are almost always extremely loose and sloppy with undigested food in them. I can't see how the undigested food is going to do him any good, so I've gone back to putting certain things through the little food mill, which makes textured ground. I do this with whatever foods tend to come through whole, like soft-cooked green beans, peas, and carrots. I never give him corn as it is so hard to digest. I guess he must just swallow most things without chewing, and since digestion begins in the mouth as the food is chewed and mixed with saliva, it's not happening. His stools are a little better when I give him ground food, but I think there are other things that affect his stools. Like all the supplements I give him, for example. But I don't know for sure which one or which ones are giving him loose stools, though I suspect certain ones. And does the benefit of the supplement outweigh the side effect of loose stools? I, too, have heard that gluten and dairy are often the culprits for what ails our kids, even if they don't actually have celiac disease. They may just have a sensitivity to gluten and dairy, and sugar is another thing that seems to only add to their problems. So, about 6 or 7 months ago, I decided to eliminate gluten, dairy, and sugar from 's diet. He has adjusted to that just fine, and while he is still having asthma trouble whenever he gets a cold, he doesn't seem to be getting as sick with it as he used to. And he has gained weight beautifully in the last 6 months! His pediatrician is finally pleased with both his weight and height. So, I think the change in his diet has benefited him. And we have been able to get raw goat's milk for him, which he loves, so I think that has also helped him to gain weight. Our whole family has been doing this together, so that helps tremendously. We do allow oats and rice, and you can get oat flour and rice flour for baking. Our main sweeteners are stevia and xylitol. A little honey, occasionally. 's favorite treat is banana bread. He also loves fruit smoothies. If you want to know anything else, you are welcome to email me. Blessings! (one and only wife to Fred; mom to Kari, Melody, Faith, Heidi, Isaac, Josiah, , Alana, and ! Yes, they're all ours!) Is. 40:31 "They that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles, they shall run and not be weary, they shall walk and not faint." Subject: Re: [DownSyndromeInfoExchange] The Great Plains Laboratory, Inc.To: DownSyndromeInfoExchange Date: Thursday, October 30, 2008, 9:45 AM Hi: I was looking for information about gluten intolerance, diets etc. and I found this laboratory. The Great Plains Laboratory, Inc. directed by Dr. Shaw, PhD he is the author of Biological Treatments for Autism and PDD. It call my attention that under Health Conditions they do have Down Syndrome and at the end of the article there is an option to see a slide presentation made by Dr. Shaw about Down Syndrome. It seems interesting. If anyone wants to check it out the site is: http://www.greatpla inslaboratory. com/home/ eng/downssyndrom e.asp The reason I am looking for this information is because since my son started eating foods as a baby his stool has never been normal. It is not diarrea, but close, and he always has undigested foods in his stool. Has anyone experienced this? ANy suggestions? My concern is that he might not be getting the nutrients he needs. Even though he is growing, he is always underweight for his hight. None of my kids have been shuby babys but they were never underweight. Jannette Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail. com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 If you "Breaking the Vicious Cycle" It explains why milk is often the first sign of a dysfunctional gut, also gluten. It's not really an allergy, it's that the gut is 'wounded' and can't produce the enzymes needed to digest those foods. Heal the gut, and the enzymes will begin to be made by the gut again. Elaine Gottschall never had much good to say about spending money on allergy tests for the gut. I did do it, and it told me just what Elaine said it would, and it healed, also as Elaine said it would. 5 years ago could not tolerate ANY wheat or sugars, yesterday she ate 2 Oreo cookies and NO side effects. It's amazing how the SCD has healed her gut, just amazing.Now I as get older I have noticed my body does not like dairy or wheat much anymore, a common side effect of aging, and so if I stay away from it or take enzymes, I do much better.Carol in ILMom to , 8 DS My problem is not how I look. It's how you see me.VOTE NOBAMA '08Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/ http://downsyndromeinfoexchange.blogspot.com/Listen to oldest dd's music http://www.myspace. com/vennamusicTo: DownSyndromeInfoExchange Sent: Saturday, November 1, 2008 2:10:15 PMSubject: Re: [DownSyndromeInfoExchange] The Great Plains Laboratory, Inc. Hi Jannette! Interesting study, even if I could only understand a small percentage of all that medical jargon. It's got me wondering if I could ever get 's pediatrician to read it. I'd love to have him order that allergy testing for . I've heard it's really expensive, but if his pediatrician would order it and insurance would pay for it, that would be great! Like your son, 's stools have never been normal. After he started eating pureed baby food and cereal, he had a lot of trouble with constipation Now that he eats some table food, he has the opposite problem. His stools are almost always extremely loose and sloppy with undigested food in them. I can't see how the undigested food is going to do him any good, so I've gone back to putting certain things through the little food mill, which makes textured ground. I do this with whatever foods tend to come through whole, like soft-cooked green beans, peas, and carrots. I never give him corn as it is so hard to digest. I guess he must just swallow most things without chewing, and since digestion begins in the mouth as the food is chewed and mixed with saliva, it's not happening. His stools are a little better when I give him ground food, but I think there are other things that affect his stools. Like all the supplements I give him, for example. But I don't know for sure which one or which ones are giving him loose stools, though I suspect certain ones. And does the benefit of the supplement outweigh the side effect of loose stools? I, too, have heard that gluten and dairy are often the culprits for what ails our kids, even if they don't actually have celiac disease. They may just have a sensitivity to gluten and dairy, and sugar is another thing that seems to only add to their problems. So, about 6 or 7 months ago, I decided to eliminate gluten, dairy, and sugar from 's diet. He has adjusted to that just fine, and while he is still having asthma trouble whenever he gets a cold, he doesn't seem to be getting as sick with it as he used to. And he has gained weight beautifully in the last 6 months! His pediatrician is finally pleased with both his weight and height. So, I think the change in his diet has benefited him. And we have been able to get raw goat's milk for him, which he loves, so I think that has also helped him to gain weight. Our whole family has been doing this together, so that helps tremendously. We do allow oats and rice, and you can get oat flour and rice flour for baking. Our main sweeteners are stevia and xylitol. A little honey, occasionally. 's favorite treat is banana bread. He also loves fruit smoothies. If you want to know anything else, you are welcome to email me. Blessings! (one and only wife to Fred; mom to Kari, Melody, Faith, Heidi, Isaac, Josiah, , Alana, and ! Yes, they're all ours!) Is. 40:31 "They that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles, they shall run and not be weary, they shall walk and not faint." From: Jannette Janson de de la Lastra <jannettejanson@ yahoo.com. br>Subject: Re: [DownSyndromeInfoEx change] The Great Plains Laboratory, Inc.To: DownSyndromeInfoExc hange@yahoogroup s.comDate: Thursday, October 30, 2008, 9:45 AM Hi: I was looking for information about gluten intolerance, diets etc. and I found this laboratory. The Great Plains Laboratory, Inc. directed by Dr. Shaw, PhD he is the author of Biological Treatments for Autism and PDD. It call my attention that under Health Conditions they do have Down Syndrome and at the end of the article there is an option to see a slide presentation made by Dr. Shaw about Down Syndrome. It seems interesting. If anyone wants to check it out the site is: http://www.greatpla inslaboratory. com/home/ eng/downssyndrom e.asp The reason I am looking for this information is because since my son started eating foods as a baby his stool has never been normal. It is not diarrea, but close, and he always has undigested foods in his stool. Has anyone experienced this? ANy suggestions? My concern is that he might not be getting the nutrients he needs. Even though he is growing, he is always underweight for his hight. None of my kids have been shuby babys but they were never underweight. Jannette Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail. com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 What is "SCD"? The interesting thing about this is that my son does not eat any dairy products, and the only wheat he has is bread for breakfast and sometimes pasta (both whole grain). He does not eat any sugar either, only the one in natural fruits and natural honey. I never gave him packed or canned foods and the only cookies he has eaten I make at home without artificial color. THis week by chance I discovered that the milk (soy milk) that he was drinking has sugar in it. I bought the "light" version of the soy milk by mistake and gave it to him and I noticed that his stool changed dramatically (a more consistent and normal appearance - a lot less undigested food). I wonder if it is that the light version does not have sugar among its ingredientes? Could such a small amount of sugar make a difference? This was the only change in his diet that I can think of. Thanks, Jannette--- Em sáb, 1/11/08, Carol in IL escreveu: De: Carol in IL Assunto: Re: [DownSyndromeInfoExchange] The Great Plains Laboratory, Inc.Para: DownSyndromeInfoExchange Data: Sábado, 1 de Novembro de 2008, 17:22 If you "Breaking the Vicious Cycle" It explains why milk is often the first sign of a dysfunctional gut, also gluten. It's not really an allergy, it's that the gut is 'wounded' and can't produce the enzymes needed to digest those foods. Heal the gut, and the enzymes will begin to be made by the gut again. Elaine Gottschall never had much good to say about spending money on allergy tests for the gut. I did do it, and it told me just what Elaine said it would, and it healed, also as Elaine said it would. 5 years ago could not tolerate ANY wheat or sugars, yesterday she ate 2 Oreo cookies and NO side effects. It's amazing how the SCD has healed her gut, just amazing.Now I as get older I have noticed my body does not like dairy or wheat much anymore, a common side effect of aging, and so if I stay away from it or take enzymes, I do much better.Carol in ILMom to , 8 DS My problem is not how I look. It's how you see me.VOTE NOBAMA '08Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/http://downsyndrome infoexchange. blogspot. com/Listen to oldest dd's music http://www.myspace. com/vennamusic From: Keener <ninepreciousgiftsfr omgodyahoo (DOT) com>To: DownSyndromeInfoExc hange@yahoogroup s.comSent: Saturday, November 1, 2008 2:10:15 PMSubject: Re: [DownSyndromeInfoEx change] The Great Plains Laboratory, Inc. Hi Jannette! Interesting study, even if I could only understand a small percentage of all that medical jargon. It's got me wondering if I could ever get 's pediatrician to read it. I'd love to have him order that allergy testing for . I've heard it's really expensive, but if his pediatrician would order it and insurance would pay for it, that would be great! Like your son, 's stools have never been normal. After he started eating pureed baby food and cereal, he had a lot of trouble with constipation Now that he eats some table food, he has the opposite problem. His stools are almost always extremely loose and sloppy with undigested food in them. I can't see how the undigested food is going to do him any good, so I've gone back to putting certain things through the little food mill, which makes textured ground. I do this with whatever foods tend to come through whole, like soft-cooked green beans, peas, and carrots. I never give him corn as it is so hard to digest. I guess he must just swallow most things without chewing, and since digestion begins in the mouth as the food is chewed and mixed with saliva, it's not happening. His stools are a little better when I give him ground food, but I think there are other things that affect his stools. Like all the supplements I give him, for example. But I don't know for sure which one or which ones are giving him loose stools, though I suspect certain ones. And does the benefit of the supplement outweigh the side effect of loose stools? I, too, have heard that gluten and dairy are often the culprits for what ails our kids, even if they don't actually have celiac disease. They may just have a sensitivity to gluten and dairy, and sugar is another thing that seems to only add to their problems. So, about 6 or 7 months ago, I decided to eliminate gluten, dairy, and sugar from 's diet. He has adjusted to that just fine, and while he is still having asthma trouble whenever he gets a cold, he doesn't seem to be getting as sick with it as he used to. And he has gained weight beautifully in the last 6 months! His pediatrician is finally pleased with both his weight and height. So, I think the change in his diet has benefited him. And we have been able to get raw goat's milk for him, which he loves, so I think that has also helped him to gain weight. Our whole family has been doing this together, so that helps tremendously. We do allow oats and rice, and you can get oat flour and rice flour for baking. Our main sweeteners are stevia and xylitol. A little honey, occasionally. 's favorite treat is banana bread. He also loves fruit smoothies. If you want to know anything else, you are welcome to email me. Blessings! (one and only wife to Fred; mom to Kari, Melody, Faith, Heidi, Isaac, Josiah, , Alana, and ! Yes, they're all ours!) Is. 40:31 "They that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles, they shall run and not be weary, they shall walk and not faint." From: Jannette Janson de de la Lastra <jannettejanson@ yahoo.com. br>Subject: Re: [DownSyndromeInfoEx change] The Great Plains Laboratory, Inc.To: DownSyndromeInfoExc hange@yahoogroup s.comDate: Thursday, October 30, 2008, 9:45 AM Hi: I was looking for information about gluten intolerance, diets etc. and I found this laboratory. The Great Plains Laboratory, Inc. directed by Dr. Shaw, PhD he is the author of Biological Treatments for Autism and PDD. It call my attention that under Health Conditions they do have Down Syndrome and at the end of the article there is an option to see a slide presentation made by Dr. Shaw about Down Syndrome. It seems interesting. If anyone wants to check it out the site is: http://www.greatpla inslaboratory. com/home/ eng/downssyndrom e.asp The reason I am looking for this information is because since my son started eating foods as a baby his stool has never been normal. It is not diarrea, but close, and he always has undigested foods in his stool. Has anyone experienced this? ANy suggestions? My concern is that he might not be getting the nutrients he needs. Even though he is growing, he is always underweight for his hight. None of my kids have been shuby babys but they were never underweight. Jannette Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail. com. Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 HI : I have been reading about the gluten free diet ( has never had dairy products or sugar) and in some of them I read that they should not have oats either? The thing with purees for is that he hates them. I started giving him small pices since he was very little and he neve had much pured food so now he does not like it. I think it is the texture he does not like. What I have not been able to find is a recipe for making bread with the other types of flour. Do you have a recipe? Do you have a recipe for banana bread? I am sure would love banana bread because he like bananas a lot. Is the goats milk ok? THank you, Jannette--- Em sáb, 1/11/08, Keener escreveu: De: Keener Assunto: Re: [DownSyndromeInfoExchange] The Great Plains Laboratory, Inc.Para: DownSyndromeInfoExchange Data: Sábado, 1 de Novembro de 2008, 17:10 Hi Jannette! Interesting study, even if I could only understand a small percentage of all that medical jargon. It's got me wondering if I could ever get 's pediatrician to read it. I'd love to have him order that allergy testing for . I've heard it's really expensive, but if his pediatrician would order it and insurance would pay for it, that would be great! Like your son, 's stools have never been normal. After he started eating pureed baby food and cereal, he had a lot of trouble with constipation Now that he eats some table food, he has the opposite problem. His stools are almost always extremely loose and sloppy with undigested food in them. I can't see how the undigested food is going to do him any good, so I've gone back to putting certain things through the little food mill, which makes textured ground. I do this with whatever foods tend to come through whole, like soft-cooked green beans, peas, and carrots. I never give him corn as it is so hard to digest. I guess he must just swallow most things without chewing, and since digestion begins in the mouth as the food is chewed and mixed with saliva, it's not happening. His stools are a little better when I give him ground food, but I think there are other things that affect his stools. Like all the supplements I give him, for example. But I don't know for sure which one or which ones are giving him loose stools, though I suspect certain ones. And does the benefit of the supplement outweigh the side effect of loose stools? I, too, have heard that gluten and dairy are often the culprits for what ails our kids, even if they don't actually have celiac disease. They may just have a sensitivity to gluten and dairy, and sugar is another thing that seems to only add to their problems. So, about 6 or 7 months ago, I decided to eliminate gluten, dairy, and sugar from 's diet. He has adjusted to that just fine, and while he is still having asthma trouble whenever he gets a cold, he doesn't seem to be getting as sick with it as he used to. And he has gained weight beautifully in the last 6 months! His pediatrician is finally pleased with both his weight and height. So, I think the change in his diet has benefited him. And we have been able to get raw goat's milk for him, which he loves, so I think that has also helped him to gain weight. Our whole family has been doing this together, so that helps tremendously. We do allow oats and rice, and you can get oat flour and rice flour for baking. Our main sweeteners are stevia and xylitol. A little honey, occasionally. 's favorite treat is banana bread. He also loves fruit smoothies. If you want to know anything else, you are welcome to email me. Blessings! (one and only wife to Fred; mom to Kari, Melody, Faith, Heidi, Isaac, Josiah, , Alana, and ! Yes, they're all ours!) Is. 40:31 "They that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles, they shall run and not be weary, they shall walk and not faint." From: Jannette Janson de de la Lastra <jannettejanson@ yahoo.com. br>Subject: Re: [DownSyndromeInfoEx change] The Great Plains Laboratory, Inc.To: DownSyndromeInfoExc hange@yahoogroup s.comDate: Thursday, October 30, 2008, 9:45 AM Hi: I was looking for information about gluten intolerance, diets etc. and I found this laboratory. The Great Plains Laboratory, Inc. directed by Dr. Shaw, PhD he is the author of Biological Treatments for Autism and PDD. It call my attention that under Health Conditions they do have Down Syndrome and at the end of the article there is an option to see a slide presentation made by Dr. Shaw about Down Syndrome. It seems interesting. If anyone wants to check it out the site is: http://www.greatpla inslaboratory. com/home/ eng/downssyndrom e.asp The reason I am looking for this information is because since my son started eating foods as a baby his stool has never been normal. It is not diarrea, but close, and he always has undigested foods in his stool. Has anyone experienced this? ANy suggestions? My concern is that he might not be getting the nutrients he needs. Even though he is growing, he is always underweight for his hight. None of my kids have been shuby babys but they were never underweight. Jannette Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail. com. Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Thank you Carol for all the urls!Janette, There is really very little on the market today that does not have sugar in it. Even if the label says, 'No added sugar' you can bet it still has it. One of the only juices out there that really don't is, Welch's Grape juices in the bottles, not the cans and just the white and purple plain grape juices. Oh.. and Tropicana OJ- again the plain.Everything on the SCD is homemade to avoid eating any illegals as they say. The basis of the diet is to only eat foods that have single sugars and are very easy to digest. The practically digest themselves. :-) And in doing so, relieve the gut of the work, allows it heal and doesn't any undigested food behind to feed the nasty gut bugs that have often gotten all out of whack by a gut that doesn't function well.If you can't digest your food, obviously you are not getting enough nutrition and your gut flora is not going to allow your gut to function correctly and that can cause problems with your immune system both weakening it and also causing aut-immune problems. This often begins with people developing more and more food 'allergies' as their gut becomes worse.Left go long enough, serotonin production slows way down and that can start to cause sleep and behavior problems too. ( I forget the exact number now, but I think the gut produces 80% of the bodies serotonin) This is the enzyme I have used with . I don't have to use them much anymore, though I can say *I* have been taking it more and more, and they really work!Each person is totally different, and I could not predict how a child's gut would heal, or what path you should take. All I can offer if what worked for . and this diet worked a miracle. :-) I hope this makes sense, feel free to ask questions. Carol in ILMom to , 8 DS My problem is not how I look. It's how you see me.VOTE NOBAMA '08Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/ http://downsyndromeinfoexchange.blogspot.com/Listen to oldest dd's music http://www.myspace. com/vennamusicFrom: Jannette Janson de de la Lastra To: DownSyndromeInfoExchange Sent: Saturday, November 1, 2008 7:46:46 PMSubject: Re: [DownSyndromeInfoExchange] The Great Plains Laboratory, Inc. What is "SCD"? The interesting thing about this is that my son does not eat any dairy products, and the only wheat he has is bread for breakfast and sometimes pasta (both whole grain). He does not eat any sugar either, only the one in natural fruits and natural honey. I never gave him packed or canned foods and the only cookies he has eaten I make at home without artificial color. THis week by chance I discovered that the milk (soy milk) that he was drinking has sugar in it. I bought the "light" version of the soy milk by mistake and gave it to him and I noticed that his stool changed dramatically (a more consistent and normal appearance - a lot less undigested food). I wonder if it is that the light version does not have sugar among its ingredientes? Could such a small amount of sugar make a difference? This was the only change in his diet that I can think of. Thanks, Jannette--- Em sáb, 1/11/08, Carol in IL <ps1272000yahoo (DOT) com> escreveu: De: Carol in IL <ps1272000yahoo (DOT) com>Assunto: Re: [DownSyndromeInfoEx change] The Great Plains Laboratory, Inc.Para: DownSyndromeInfoExc hange@yahoogroup s.comData: Sábado, 1 de Novembro de 2008, 17:22 If you "Breaking the Vicious Cycle" It explains why milk is often the first sign of a dysfunctional gut, also gluten. It's not really an allergy, it's that the gut is 'wounded' and can't produce the enzymes needed to digest those foods. Heal the gut, and the enzymes will begin to be made by the gut again. Elaine Gottschall never had much good to say about spending money on allergy tests for the gut. I did do it, and it told me just what Elaine said it would, and it healed, also as Elaine said it would. 5 years ago could not tolerate ANY wheat or sugars, yesterday she ate 2 Oreo cookies and NO side effects. It's amazing how the SCD has healed her gut, just amazing.Now I as get older I have noticed my body does not like dairy or wheat much anymore, a common side effect of aging, and so if I stay away from it or take enzymes, I do much better.Carol in ILMom to , 8 DS My problem is not how I look. It's how you see me.VOTE NOBAMA '08Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/http://downsyndrome infoexchange. blogspot. com/Listen to oldest dd's music http://www.myspace. com/vennamusic From: Keener <ninepreciousgiftsfr omgodyahoo (DOT) com>To: DownSyndromeInfoExc hange@yahoogroup s.comSent: Saturday, November 1, 2008 2:10:15 PMSubject: Re: [DownSyndromeInfoEx change] The Great Plains Laboratory, Inc. Hi Jannette! Interesting study, even if I could only understand a small percentage of all that medical jargon. It's got me wondering if I could ever get 's pediatrician to read it. I'd love to have him order that allergy testing for . I've heard it's really expensive, but if his pediatrician would order it and insurance would pay for it, that would be great! Like your son, 's stools have never been normal. After he started eating pureed baby food and cereal, he had a lot of trouble with constipation Now that he eats some table food, he has the opposite problem. His stools are almost always extremely loose and sloppy with undigested food in them. I can't see how the undigested food is going to do him any good, so I've gone back to putting certain things through the little food mill, which makes textured ground. I do this with whatever foods tend to come through whole, like soft-cooked green beans, peas, and carrots. I never give him corn as it is so hard to digest. I guess he must just swallow most things without chewing, and since digestion begins in the mouth as the food is chewed and mixed with saliva, it's not happening. His stools are a little better when I give him ground food, but I think there are other things that affect his stools. Like all the supplements I give him, for example. But I don't know for sure which one or which ones are giving him loose stools, though I suspect certain ones. And does the benefit of the supplement outweigh the side effect of loose stools? I, too, have heard that gluten and dairy are often the culprits for what ails our kids, even if they don't actually have celiac disease. They may just have a sensitivity to gluten and dairy, and sugar is another thing that seems to only add to their problems. So, about 6 or 7 months ago, I decided to eliminate gluten, dairy, and sugar from 's diet. He has adjusted to that just fine, and while he is still having asthma trouble whenever he gets a cold, he doesn't seem to be getting as sick with it as he used to. And he has gained weight beautifully in the last 6 months! His pediatrician is finally pleased with both his weight and height. So, I think the change in his diet has benefited him. And we have been able to get raw goat's milk for him, which he loves, so I think that has also helped him to gain weight. Our whole family has been doing this together, so that helps tremendously. We do allow oats and rice, and you can get oat flour and rice flour for baking. Our main sweeteners are stevia and xylitol. A little honey, occasionally. 's favorite treat is banana bread. He also loves fruit smoothies. If you want to know anything else, you are welcome to email me. Blessings! (one and only wife to Fred; mom to Kari, Melody, Faith, Heidi, Isaac, Josiah, , Alana, and ! Yes, they're all ours!) Is. 40:31 "They that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles, they shall run and not be weary, they shall walk and not faint." From: Jannette Janson de de la Lastra <jannettejanson@ yahoo.com. br>Subject: Re: [DownSyndromeInfoEx change] The Great Plains Laboratory, Inc.To: DownSyndromeInfoExc hange@yahoogroup s.comDate: Thursday, October 30, 2008, 9:45 AM Hi: I was looking for information about gluten intolerance, diets etc. and I found this laboratory. The Great Plains Laboratory, Inc. directed by Dr. Shaw, PhD he is the author of Biological Treatments for Autism and PDD. It call my attention that under Health Conditions they do have Down Syndrome and at the end of the article there is an option to see a slide presentation made by Dr. Shaw about Down Syndrome. It seems interesting. If anyone wants to check it out the site is: http://www.greatpla inslaboratory. com/home/ eng/downssyndrom e.asp The reason I am looking for this information is because since my son started eating foods as a baby his stool has never been normal. It is not diarrea, but close, and he always has undigested foods in his stool. Has anyone experienced this? ANy suggestions? My concern is that he might not be getting the nutrients he needs. Even though he is growing, he is always underweight for his hight. None of my kids have been shuby babys but they were never underweight. Jannette Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail. com. Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail. com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 HI Carol, It makes perfect sense. I have had a feeling that has something in his gut always but since he does not have an unstopable diarreah the doctor thinks is just the "Down Syndrome". I get so tired of this sometimes, it is the easy way out! Then I read statements like the one about the Changing Minds Foundation and, I do not know if it is only me and I am reading more than there is, but it upsets me to see all this "professionals" talking as if they were the owners of the truth and talking down on someone that is trying to actually do something more than testing mice. As I understood from what I read on the Changing Minds site it is clearly stated that parents need the guidance of a professional and I also understood that the DVD is a way to raise funds to further test the protocol. It actualy asks for scientist to do the appropiate tests of the protocol. And what gets me the most, is that I read between the lines "you poor parents of kids with DS we understand that you want to help your kids but we know better". It gives me the impression that they figure we are not intelligent enough to read, understand and take our own desicions. Many times I feel that not only our kids face prejudice, but we as parents do too and many times from the very professional that care for our kids. I think and all the team at the foundation are very brave and kind in wanting to share what they have found up to now and I hope they get the funding they need to scientifically test the protocol. All medicines, have pros and cons, and side effects and it is for the parents to decide with the doctors what is best in the interest of their child. Now back to the gut. Actually up to now the only thing eats that is from a can is the soy milk, bread, nuts, raisins, the rest of his food is all made at home with no sugar or white flour. I was actually pleasently surprised on his birthday because we made a chocolate cake and I gave him some since he was in school and all his classmates were eating. He tasted the cake, took it out of his mouth, out of his plate. Instead he got his fruit and snack and eat it. He does not eat or drink dairy products either. I have read some information from Doctor Rodney Ford that has written several books about celiac deseas, gluten intolerance etc and how gluten can actually affect the brain. It is interesting. I will read the book about the diet and try it out. Thank you. Jannette--- Em ter, 4/11/08, Carol in IL escreveu: De: Carol in IL Assunto: Re: [DownSyndromeInfoExchange] The Great Plains Laboratory, Inc.Para: DownSyndromeInfoExchange Data: Terça-feira, 4 de Novembro de 2008, 1:13 Thank you Carol for all the urls!Janette, There is really very little on the market today that does not have sugar in it. Even if the label says, 'No added sugar' you can bet it still has it. One of the only juices out there that really don't is, Welch's Grape juices in the bottles, not the cans and just the white and purple plain grape juices. Oh.. and Tropicana OJ- again the plain.Everything on the SCD is homemade to avoid eating any illegals as they say. The basis of the diet is to only eat foods that have single sugars and are very easy to digest. The practically digest themselves. :-) And in doing so, relieve the gut of the work, allows it heal and doesn't any undigested food behind to feed the nasty gut bugs that have often gotten all out of whack by a gut that doesn't function well.If you can't digest your food, obviously you are not getting enough nutrition and your gut flora is not going to allow your gut to function correctly and that can cause problems with your immune system both weakening it and also causing aut-immune problems. This often begins with people developing more and more food 'allergies' as their gut becomes worse.Left go long enough, serotonin production slows way down and that can start to cause sleep and behavior problems too. ( I forget the exact number now, but I think the gut produces 80% of the bodies serotonin) This is the enzyme I have used with . I don't have to use them much anymore, though I can say *I* have been taking it more and more, and they really work!Each person is totally different, and I could not predict how a child's gut would heal, or what path you should take. All I can offer if what worked for . and this diet worked a miracle. :-) I hope this makes sense, feel free to ask questions. Carol in ILMom to , 8 DS My problem is not how I look. It's how you see me.VOTE NOBAMA '08Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/http://downsyndrome infoexchange. blogspot. com/Listen to oldest dd's music http://www.myspace. com/vennamusic From: Jannette Janson de de la Lastra <jannettejanson@ yahoo.com. br>To: DownSyndromeInfoExc hange@yahoogroup s.comSent: Saturday, November 1, 2008 7:46:46 PMSubject: Re: [DownSyndromeInfoEx change] The Great Plains Laboratory, Inc.. What is "SCD"? The interesting thing about this is that my son does not eat any dairy products, and the only wheat he has is bread for breakfast and sometimes pasta (both whole grain). He does not eat any sugar either, only the one in natural fruits and natural honey. I never gave him packed or canned foods and the only cookies he has eaten I make at home without artificial color. THis week by chance I discovered that the milk (soy milk) that he was drinking has sugar in it. I bought the "light" version of the soy milk by mistake and gave it to him and I noticed that his stool changed dramatically (a more consistent and normal appearance - a lot less undigested food). I wonder if it is that the light version does not have sugar among its ingredientes? Could such a small amount of sugar make a difference? This was the only change in his diet that I can think of. Thanks, Jannette--- Em sáb, 1/11/08, Carol in IL <ps1272000yahoo (DOT) com> escreveu: De: Carol in IL <ps1272000yahoo (DOT) com>Assunto: Re: [DownSyndromeInfoEx change] The Great Plains Laboratory, Inc.Para: DownSyndromeInfoExc hange@yahoogroup s.comData: Sábado, 1 de Novembro de 2008, 17:22 If you "Breaking the Vicious Cycle" It explains why milk is often the first sign of a dysfunctional gut, also gluten. It's not really an allergy, it's that the gut is 'wounded' and can't produce the enzymes needed to digest those foods. Heal the gut, and the enzymes will begin to be made by the gut again. Elaine Gottschall never had much good to say about spending money on allergy tests for the gut. I did do it, and it told me just what Elaine said it would, and it healed, also as Elaine said it would. 5 years ago could not tolerate ANY wheat or sugars, yesterday she ate 2 Oreo cookies and NO side effects. It's amazing how the SCD has healed her gut, just amazing.Now I as get older I have noticed my body does not like dairy or wheat much anymore, a common side effect of aging, and so if I stay away from it or take enzymes, I do much better.Carol in ILMom to , 8 DS My problem is not how I look. It's how you see me.VOTE NOBAMA '08Join our Down Syndrome information group - http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/http://downsyndrome infoexchange. blogspot. com/Listen to oldest dd's music http://www.myspace. com/vennamusic From: Keener <ninepreciousgiftsfr omgodyahoo (DOT) com>To: DownSyndromeInfoExc hange@yahoogroup s.comSent: Saturday, November 1, 2008 2:10:15 PMSubject: Re: [DownSyndromeInfoEx change] The Great Plains Laboratory, Inc. Hi Jannette! Interesting study, even if I could only understand a small percentage of all that medical jargon. It's got me wondering if I could ever get 's pediatrician to read it. I'd love to have him order that allergy testing for . I've heard it's really expensive, but if his pediatrician would order it and insurance would pay for it, that would be great! Like your son, 's stools have never been normal. After he started eating pureed baby food and cereal, he had a lot of trouble with constipation Now that he eats some table food, he has the opposite problem. His stools are almost always extremely loose and sloppy with undigested food in them. I can't see how the undigested food is going to do him any good, so I've gone back to putting certain things through the little food mill, which makes textured ground. I do this with whatever foods tend to come through whole, like soft-cooked green beans, peas, and carrots. I never give him corn as it is so hard to digest. I guess he must just swallow most things without chewing, and since digestion begins in the mouth as the food is chewed and mixed with saliva, it's not happening. His stools are a little better when I give him ground food, but I think there are other things that affect his stools. Like all the supplements I give him, for example. But I don't know for sure which one or which ones are giving him loose stools, though I suspect certain ones. And does the benefit of the supplement outweigh the side effect of loose stools? I, too, have heard that gluten and dairy are often the culprits for what ails our kids, even if they don't actually have celiac disease. They may just have a sensitivity to gluten and dairy, and sugar is another thing that seems to only add to their problems. So, about 6 or 7 months ago, I decided to eliminate gluten, dairy, and sugar from 's diet. He has adjusted to that just fine, and while he is still having asthma trouble whenever he gets a cold, he doesn't seem to be getting as sick with it as he used to. And he has gained weight beautifully in the last 6 months! His pediatrician is finally pleased with both his weight and height. So, I think the change in his diet has benefited him. And we have been able to get raw goat's milk for him, which he loves, so I think that has also helped him to gain weight. Our whole family has been doing this together, so that helps tremendously. We do allow oats and rice, and you can get oat flour and rice flour for baking. Our main sweeteners are stevia and xylitol. A little honey, occasionally. 's favorite treat is banana bread. He also loves fruit smoothies. If you want to know anything else, you are welcome to email me. Blessings! (one and only wife to Fred; mom to Kari, Melody, Faith, Heidi, Isaac, Josiah, , Alana, and ! Yes, they're all ours!) Is. 40:31 "They that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles, they shall run and not be weary, they shall walk and not faint." From: Jannette Janson de de la Lastra <jannettejanson@ yahoo.com. br>Subject: Re: [DownSyndromeInfoEx change] The Great Plains Laboratory, Inc.To: DownSyndromeInfoExc hange@yahoogroup s.comDate: Thursday, October 30, 2008, 9:45 AM Hi: I was looking for information about gluten intolerance, diets etc. and I found this laboratory. The Great Plains Laboratory, Inc. directed by Dr. Shaw, PhD he is the author of Biological Treatments for Autism and PDD. It call my attention that under Health Conditions they do have Down Syndrome and at the end of the article there is an option to see a slide presentation made by Dr. Shaw about Down Syndrome. It seems interesting. If anyone wants to check it out the site is: http://www.greatpla inslaboratory. com/home/ eng/downssyndrom e.asp The reason I am looking for this information is because since my son started eating foods as a baby his stool has never been normal. It is not diarrea, but close, and he always has undigested foods in his stool. Has anyone experienced this? ANy suggestions? My concern is that he might not be getting the nutrients he needs. Even though he is growing, he is always underweight for his hight. None of my kids have been shuby babys but they were never underweight. Jannette Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail. com. Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail. com. Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2008 Report Share Posted November 5, 2008 I have not seen a GI but I will look for one. does not drink orange juice but he does love apple juice that is made at home every day...Does the fresh apple juice also has too much sugar? Thank you, Jannette--- Em ter, 4/11/08, McElwee escreveu: De: McElwee Assunto: Re: [DownSyndromeInfoExchange] The Great Plains Laboratory, Inc.Para: DownSyndromeInfoExchange Data: Terça-feira, 4 de Novembro de 2008, 19:49  Have you seen a GI about 's diarreah? had diarreah from age 1 till age 4---turned out to be orange juice, apple juice and anything with too much sugar in it! That was AFTER the lactose, celliac and parasite tests. ---The ped kept telling me, "Kids with DS have digestive issues..." My response, "Yes, CONSTAPATION not diarreah!" Then I finally asked, "If you had a patient who had diarreah for 3 years who didn't have DS what would you do?" Answer, " I would refer them to a pediatric gastroenterologist. " My response, "Well lets try that." Ugh...who's the slow learner?? , Mom to 15, DS, Southern CaliforniaTo succeed in life,you need three things:a wishbone, a backbone and a funny bone.~ Reba McIntyre Diagnosis Down Syndrome: A Site of Hope for New Parents or Parents with a Prenatal Diagnosishttp://www.leeworks ..net/DDS/What to Say to Parents of a Child with a Diagnosishttp://www.leeworks .net/DDS/ speech.html Re: [DownSyndromeInfoEx change] The Great Plains Laboratory, Inc.To: DownSyndromeInfoExc hange@yahoogroup s.comDate: Thursday, October 30, 2008, 9:45 AM Hi: I was looking for information about gluten intolerance, diets etc. and I found this laboratory. The Great Plains Laboratory, Inc. directed by Dr. Shaw, PhD he is the author of Biological Treatments for Autism and PDD. It call my attention that under Health Conditions they do have Down Syndrome and at the end of the article there is an option to see a slide presentation made by Dr. Shaw about Down Syndrome. It seems interesting. If anyone wants to check it out the site is: http://www.greatpla inslaboratory. com/home/ eng/downssyndrom e.asp The reason I am looking for this information is because since my son started eating foods as a baby his stool has never been normal. It is not diarrea, but close, and he always has undigested foods in his stool. Has anyone experienced this? ANy suggestions? My concern is that he might not be getting the nutrients he needs. Even though he is growing, he is always underweight for his hight. None of my kids have been shuby babys but they were never underweight. Jannette Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail. com. Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail. com. Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail. com. Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2008 Report Share Posted November 5, 2008  I don't know how much sugar is in apple juice...too many grapes also does it for . What our GI did was have 'eat' the same for 2 weeks, but only gave him milk or water to drink (he already had the lactose test and was not lactose intollerant) He had a solid BM by the end of the 1st week for the 1st time in 3 years...that was our answer. BUT there are many reasons for diarreah, and a pediatric GI is the one that can help diagnoss---your pediatrition can refer you to one. , Mom to 15, DS, Southern CaliforniaTo succeed in life,you need three things:a wishbone, a backbone and a funny bone.~ Reba McIntyre Diagnosis Down Syndrome: A Site of Hope for New Parents or Parents with a Prenatal Diagnosishttp://www.leeworks.net/DDS/What to Say to Parents of a Child with a Diagnosishttp://www.leeworks.net/DDS/speech.html Re: [DownSyndromeInfoEx change] The Great Plains Laboratory, Inc.To: DownSyndromeInfoExc hange@yahoogroup s.comDate: Thursday, October 30, 2008, 9:45 AM Hi: I was looking for information about gluten intolerance, diets etc. and I found this laboratory. The Great Plains Laboratory, Inc. directed by Dr. Shaw, PhD he is the author of Biological Treatments for Autism and PDD. It call my attention that under Health Conditions they do have Down Syndrome and at the end of the article there is an option to see a slide presentation made by Dr. Shaw about Down Syndrome. It seems interesting. If anyone wants to check it out the site is: http://www.greatpla inslaboratory. com/home/ eng/downssyndrom e.asp The reason I am looking for this information is because since my son started eating foods as a baby his stool has never been normal. It is not diarrea, but close, and he always has undigested foods in his stool. Has anyone experienced this? ANy suggestions? My concern is that he might not be getting the nutrients he needs. Even though he is growing, he is always underweight for his hight. None of my kids have been shuby babys but they were never underweight. Jannette Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail. com. Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail. com. Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail. com. Novos endereços, o Yahoo! que você conhece. Crie um email novo com a sua cara @ymail.com ou @rocketmail.com. Quote Link to comment Share on other sites More sharing options...
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