Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 > hello " scap_64 " , > > Yes, these results left me totally puzzled - now we don't know what > > else to think of. I do firmly believe that her Crohn's was caused by > > Hep B vaccine (we don't have any other cases in the family, and she > > was very healthy and energetic all her life) and now am totally lost > > on what else can be done to help her - was hopeful that chelation > > might. Hello Scap_64 I find this post interesting, I have researched Crohns for two years or more because I have an autoimmune condition. I'd like some more detail on this case and I might be able to offer some suggestions that will help. Sorry I missed your first post, I only found Moria's reply. Regards Stidolph, NI, NZ. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 Hello , thank you for your reply. I have a daughter who is now almost 16 years old and had always been very healthy and athletic until two years ago she suddenly became very sick (sharp stomach pains, rapid weight loss, extreme weakness) and was diagnosed with Crohn's Disease. A year before that, she received 3 mandatory Hepatitis B vaccinations. We don't have any other cases of Crohn's in our family, and I believe that HepB shots are the culprit. Her initial onset was treated with prednisone that brought on a lot of nasty side effects (weight gain, moonface, longterm skin discolorations etc). After that, they put her on imuran and pentasa which did not do a thing to stop her next flareup. Thank goodness, we found a Chinese pharmacy; their herbal tea really helps to stop her pains, but only temporarily. She is off meds as of now, and not on any diet (it's hard to make a junk-food loving teenager diet). I sent her hair for DDI analysis, it came back almost normal, with relatively high aluminum and very high iodine. We would appreciate any and all ideas and suggestions. Thanks a lot! > Hello Scap_64 > > I find this post interesting, I have researched Crohns for two years or more because I have an autoimmune condition. I'd like some more detail on this case and I might be able to offer some suggestions that will help. Sorry I missed your first post, I only found Moria's reply. > > Regards > Stidolph, NI, NZ. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 > Hello , thank you for your reply. > I have a daughter who is now almost 16 years old and had always been > very healthy and athletic until two years ago she suddenly became > very sick (sharp stomach pains, rapid weight loss, extreme weakness) > and was diagnosed with Crohn's Disease. A year before that, she > received 3 mandatory Hepatitis B vaccinations. We don't have any > other cases of Crohn's in our family, and I believe that HepB shots > are the culprit. I am not sure how close Crohn's is the IBD?? I'm currently reading about Feline IBD -- which is believed by some/many to be an autommune disorder caused by vaccinations. Some of the potential treatments for FELINE IBD are the herb slippery elm, and some homeopathic remedies..... I'm just a " newbie " reading about this topic, but let me know if you would like URL's or clues from the " cat world " . best wishes, Moria p.s. in cats, IBD often occurs along with hyperthyroid. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 Moria, Crohn's is one of the IBD. IBD stands for " inflammatory bowel disease " ; it's not a particular single disease, but group of disorders affecting GI tract. Two most common types of IBD are Crohn's and ulcerative colitis. Wow, cats get it too??? i heard of at least one dog with Crohn's...and just received a reminder from our city to renew our dog license and update our poochie's shots....now i'm afraid he may get it too...:-( Hyperthyroid? Lily's iodine was wayyy of the charts in her hair test...does it mean we should check her thyroid too? Thank you, -Lana > I am not sure how close Crohn's is the IBD?? I'm currently > reading about Feline IBD -- which is believed by some/many to > be an autommune disorder caused by vaccinations. Some of > the potential treatments for FELINE IBD are the herb > slippery elm, and some homeopathic remedies..... I'm just a > " newbie " reading about this topic, but let me know if you > would like URL's or clues from the " cat world " . > > best wishes, > Moria > p.s. in cats, IBD often occurs along with hyperthyroid. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 Hi, I don't have alot of experience with Crohns's but have a cousin who has it and my Grandmother who is big into herbs put him on Essiac Tea (Ojibwa) which seemed to help. He also said he used Primal Defense with good results but I never used it with my son's Gastro problems so cannot personally recommend it. We do use Essiac tea and it has helped both of us. Hope this helps! Suzanne > > Hello , thank you for your reply. > > I have a daughter who is now almost 16 years old and had always been > > very healthy and athletic until two years ago she suddenly became > > very sick (sharp stomach pains, rapid weight loss, extreme weakness) > > and was diagnosed with Crohn's Disease. A year before that, she > > received 3 mandatory Hepatitis B vaccinations. We don't have any > > other cases of Crohn's in our family, and I believe that HepB shots > > are the culprit. > > > I am not sure how close Crohn's is the IBD?? I'm currently > reading about Feline IBD -- which is believed by some/many to > be an autommune disorder caused by vaccinations. Some of > the potential treatments for FELINE IBD are the herb > slippery elm, and some homeopathic remedies..... I'm just a > " newbie " reading about this topic, but let me know if you > would like URL's or clues from the " cat world " . > > best wishes, > Moria > p.s. in cats, IBD often occurs along with hyperthyroid. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 I have had problems in the past with severe painful irritation in the colon. I took a pound of Slippery Elm powder, 1 pound of ground up Flax Seeds, and 1 pound of Psyllium husks powder, and mixed all of this thoroughly in a large bowl, then bagged most of it and put some in a jar for use, the rest I put in the freezer to keep fresh. I took a heaping teaspoonful in either apple juice or just water and stirred it up and drank immediately. I took this twice a day. It will help the pain to relieve over night. It will heal the colon of the irritation. Slippery Elm is very healing for the entire digestive tract. The herb book says that it can be given to weakly & sick people because it is very nutritious. I still take this for preventative measure. When needed, I will take an herbal laxative also. Marshmallow is also good if you can't get the Slippery Elm. Children can handle this and the flax is a good fatty acid. Blessings, > Hi, I don't have alot of experience with Crohns's but have a cousin > who has it and my Grandmother who is big into herbs put him on > Essiac Tea (Ojibwa) which seemed to help. He also said he used > Primal Defense with good results but I never used it with my son's > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 My suggestion is to get the book Adrenal Fatigue: The 21st Century Stress Syndrome, by , ND, DC, PhD. It is the definitive book on Adrenal Fatigue (hypoadrenia). It is available here: http://www.amazon.com/exec/obidos/ASIN/1890572152/qid=1016870081/sr=8-1/ref= sr_8_3_1/102-9927177-2583322 If you have any disease or syndrome which requires the use of prednisone as a treatment, your problem is a dearth of the hormone " cortisol " which is produced in the cortex of your adrenal gland. Will send you everything I have on this privately with comments. But get the book and follow the advise, perhaps even make an appointment with if you live close enough. In her case it sounds like the Hepatitis shots but you can guarantee that's only part of it. Regards . > [ ] Re: Crohns > > > Hello , thank you for your reply. > I have a daughter who is now almost 16 years old and had always been > very healthy and athletic until two years ago she suddenly became > very sick (sharp stomach pains, rapid weight loss, extreme weakness) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2002 Report Share Posted August 24, 2002 --I'm not sure, but I think in the past, my brother has taken prednisone for a skin condition he has. He never really had problems with his skin until he joined the Air National Guard reserves and was sent off to boot camp. While there, he was given the standard round of vaccinations that they do to the recruits. He developed a sort of eczema while at boot camp... then his tinea versicolor got worse. Now, his whole body has eczema and tinea issues that flare up. I was wondering if you have come across either of these in your reading, and if you could (or if anyone could) share some info with me that I can use to help him. I'm thinking of putting together a SKIN box of all the products that I can think of that might help him, since I know he is too lazy to go out and buy these for himself (only a bratty little sister can talk about her brother this way, right?!). :-) W > > > If you have any disease or syndrome which requires the use of prednisone > as a treatment, your problem is a dearth of the hormone " cortisol " which > is produced in the cortex of your adrenal gland. > Regards > . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 My neice is in the hospital in England with Crohns. If I weren't so jaded already I really be more upset than I am. If I were my neices' mother, I'd be on a plane to England where my neice is in the hospital: She's 22 and in the Military - been in Quatar for a year and just finished a vacation tour around the world - spent a week with her parent in Indianna and returned to her Base in England in June. She has had severe stomach pains, nausea, rapid weight loss since returning to England.- and long story short has been dx's with severe Crohns - bad enough to be in the hospital and on IV steroids, which are failing to " open " the damaged portion of small intestine... which if it still doesn't work in a few days, she'll be opened up and that section removed. I've sent all the data I have on Crohns and possible infection as the cause... my sister in law said " they've checked her for everything " (which means squat to me...) God. she's 22. She could end up with a bag on her side permanently if they can't quell the inflammation to reconnect her later after this operation. I've asked and asked if she's been checked for bacteria and parasites but I've really gotten no where. Interestinglt, she was operated on (although it may have been laprascopic - I don't know) for Endometriosis a month ago - JUST before this presented.. and they don't think there's a connection.. I think there is. Big Sigh. It's just impossible sometimes to talk to others who still think conventionally, and just blindly follow the status quo. Another Big Sigh. Barb PS this was edited for spelling - > > > " Since most of us are exposed to and/or colonized by aureus and > > epi, > > > youd think we would all have some level of response to them > > already. > > > But obviously that somehow doesnt work out too well. " >>> > > > I alway's felt that it was tied in with the body and it's ageing > > that makes one more susceptable.It's like you need high > > concentrations to make infections and the older you are the more > > oppurtunities are presented > > It sure looks that way with alzheimers, which I would guess will more > likely than not get sorted out as infectious in the end. At large > ages the prevalance of alz is extreeeeeemely high. I think most > people with parkinsons are also older. > > But hell, I'm 24, so my perspective is, damn. As for MS I think it > develops only rarely in the 50s. I think the rate of new cases drop > off quite alot after age 35 or so. > > > ...There's also that point of entry like > > a festering sore often not clearly evident that no-one is looking > > out for. I think if you poked around your teeth especially above > > caps and the like- you've got things constantly brewing.It's a > shame > > really that many feel there's an immune system problem for > > oppurtunistic infections when it's got nothing at all to do with > the > > immune system, there's millions visiting doctors daily being on the > > wrong side of the receiving end of bacterial infections.. > > Maybe... but immunodeficiency is hard to disprove given that the > environment is increasingly full of wacky chemicals (which on the > other hand certainly doesnt *prove* anything). I'm not sure if we > know for certain what every last chem emitted by industry is - or if > we do know what they all are, im not sure they have all been > experimented with re safety. Also, there is the odd chem which is > grossly toxic to some mammals and not others, so I think mouse and > rat toxicity experiemnts will almost but not quite cover our ass. > > Also, especially since you also tend to reject the hygeine hypothesis > (Im undecided on that one myself), your model has a hard time showing > why so many of these diseases appear to be on the rise. There are > data re Crohns disease going back to the 1940s, which you can read > online (free text), from your favorite guys the mayo clinic. It looks > pretty clear that the disease has come up from scanty to common > before plateauing in the 70s. If you dont like mayo, check out > similar data from Japan, where the same curve happened, but 2 or 3 > decades delayed as compared to Mayo country, Minnesota, USA. I dont > think theres any degree of consensus on MS clearly growing more > common... autism on the other hand? awfully rapid growth in our own > time sure looks likely, tho some still insist it could be > artifactual, and special things like thimerosol have to be looked at > re that one; who knows if its typically an infectious condition. CFS? > Some act like its pretty much new, especiallt the non-epidemic kind, > but if you go thru 1910s, 1920s volumes of J Psychol & Neurol youll > find quite a few people youd recognize as one of us, all of whom (as > far as I've seen) were of course treated as neurotics, probably > exhausted and deranged by continually repressing their appalling > desire to try having sex upside down, or some unbelieveable freudian > crap like that. But it does seem rather likely CFS has gone up in > incidence last century. How do you explain all that? My views dont > generate any particularly clear ideas about why such increases in > prevalance would come about, but I dont think yours do either. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Barb, Sorry about your niece. Crohn's was my first diagnosis, my illness started with intestinal pain, diarrhea and weight loss (and a bit of a temperature). Everybody was certain that's what I had, but they found no lesions in a colonoscopy. That was it, no further investigations, I didn't have Crohn's, I could go home, no diagnosis, no treatment. I also know exactly how you feel, it's really hard when people say this "they've done all the tests"!!!! If you insist people get really furious, they're already worried and scared and they just want to be able to trust doctors blindly. Been there several times with family and with a couple of friends. Hard to let a 22yr-old suffer with what MIGHT be infectious and treatable but unfortunately you probably won't be able to offer much in the way of advice if the girl's parents don't want to take things in their own hands. Nelly [infections] Crohns My neice is in the hospital in England with Crohns.If I weren't so jaded already I really be more upset than I am.If I were my neices' mother, I'd be on a plane to England where myneice is in the hospital:She's 22 and in the Military - been in Quatar for a year and justfinished a vacation tour around the world - spent a week with herparent in Indianna and returned to her Base in England in June.She has had severe stomach pains, nausea, rapid weight loss since returning to England.-and long story short has been dx's with severe Crohns - bad enough tobe in the hospital and on IV steroids, which are failing to "open"the damaged portion of small intestine... which if it still doesn'twork in a few days, she'll be opened up and that section removed.I've sent all the data I have on Crohns and possible infection as thecause... my sister in law said "they've checked her for everything"(which means squat to me...)God. she's 22. She could end up with a bag on her side permanentlyif they can't quell the inflammation to reconnect her later afterthis operation.I've asked and asked if she's been checked for bacteria and parasitesbut I've really gotten no where.Interestinglt, she was operated on (although it may have been laprascopic - I don't know) for Endometriosis a month ago - JUST before this presented..and they don't think there's a connection.. I think there is.Big Sigh.It's just impossible sometimes to talk to others who still thinkconventionally, and just blindly follow the status quo.Another Big Sigh.BarbPS this was edited for spelling - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 I was told some moths back an old friend had developed cancer..He is in remission at the moment or at least he's doing OK To speak with him I managed to arrange a gathering at a restaurant last Friday & of course told him of the destructive role of inflammation in cancer ...What a reaction , you a doctor! was the [too much beer] theme with almost everyone warning Doug [my friend] not to pay any attention . You don't know what side effects there are , I pointed out the effect of cancer is all too usually death ..[you've gotta be cruel to be kind] ..Anyway upshot is he rang me today and asked for the info to be faxed to him ..I just hope he can sit back and view the info objectively ..we'll see Here's a piece on infection & Chrohn's The bacterium Mycobacterium avium subspecies paratuberculosis (Map), which has long been known to cause gut infections in cattle and sheep, has been linked to bowel diseases in humans. Researchers at St 's Hospital Medical School in London have found that in patients with Crohn's disease, at least nine out of ten have the bacterium, and in patients without the disease, less than three out of ten have the bug. This suggests that the bacterium plays a role in the spread of the disease. Also, a small number of patients with irritable bowel syndrome (IBS) were all found to have Map. Links between Map and human bowel disease have been examined for years, but this is by far the strongest association found. Crohn's disease affects about one in 600 people and one in ten suffer from IBS. (BBC News Online, Guardian -----Original Message-----From: infections [mailto:infections ]On Behalf Of Sent: 19 September 2005 19:50infections Subject: [infections] Re: CrohnsDude, it is like sssssooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooo possibly infectious (of course).I know what you mean about people... I'm trying to talk to someone with very mild, early RA these days. It would be no surprise for such a person to end up 90-100% disease free. But theyre naturally like, what the hell, how could the entire treatment establishment be significantly off base re dozens of diseases? But I hope youll try hard. In a fresh case in a young person theres probably so much potential for recovery.When I made a sorta-superficial search for direct observation of microbes in the Crohns gut tissue, I didnt find too much that I personally found convincing. (The Wirostko finding of bacteria in Crohns-related uveitis I do find rather convincing.)One Gibson is behind the forthcoming multi-year Australian multi-abx treatment study. It seems to have had good success. Perhaps you could email him to request a preprint copy, or just some data, or overall impressions. How I know about it is, I read some conference x-script where he was chewin the fat about it with some other gastroenterologists.When I looked at some "pateint reports" kinda site re flagyl, there were like 15 or maybe dozens of people reporting using it for Crohns, or flares thereof - casually, as if it were common. This suggests that there may be some kinda semi-mainstream such usage, which you might be able to find traces of in peer-reviewed sources, which you could show to the patient. I can dig out that site if you want to possibly email the people who reported using flagyl for crohns, to ask about their doctor or whatever.<Sigh> indeed.<egroups1bp@y...> wrote:> My neice is in the hospital in England with Crohns.> > If I weren't so jaded already I really be more upset than I am.> If I were my neices' mother, I'd be on a plane to England where my> neice is in the hospital:> > She's 22 and in the Military - been in Quatar for a year and just> finished a vacation tour around the world - spent a week with her> parent in Indianna and returned to her Base in England in June.> > She has had severe stomach pains, nausea, rapid weight loss since > returning to England.-> and long story short has been dx's with severe Crohns - bad enough to> be in the hospital and on IV steroids, which are failing to "open"> the damaged portion of small intestine... which if it still doesn't> work in a few days, she'll be opened up and that section removed.> > I've sent all the data I have on Crohns and possible infection as the> cause... my sister in law said "they've checked her for everything"> (which means squat to me...)> > God. she's 22. She could end up with a bag on her side permanently> if they can't quell the inflammation to reconnect her later after> this operation.> > I've asked and asked if she's been checked for bacteria and parasites> but I've really gotten no where.> Interestinglt, she was operated on (although it may have been > laprascopic - I don't know) for Endometriosis a month ago - JUST > before this presented..> and they don't think there's a connection.. I think there is.> > Big Sigh.> It's just impossible sometimes to talk to others who still think> conventionally, and just blindly follow the status quo.> Another Big Sigh.> Barb> PS this was edited for spelling - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Guys The main drug used in inflammatory bowel disaeses is a sulpha drug similar in fashion to bactrim and the like, but again it's not targeting INFECTIONS according to the literature.The aussie hospital in my city (royal melbourne) supplied the three tuberculosis antibiotics rifampin/ethambutol/ and one I can't think of at the moment.I did ring a few years ago to see how thing's were going with crohn's and not much excitment was forthcoming. Barb outside the endometreosis at least ask if she has constant sinus infections?It's that drip drip drip that makes alot of these diseases fester IMO. > > My neice is in the hospital in England with Crohns. > > > > If I weren't so jaded already I really be more upset than I am. > > If I were my neices' mother, I'd be on a plane to England where my > > neice is in the hospital: > > > > She's 22 and in the Military - been in Quatar for a year and just > > finished a vacation tour around the world - spent a week with her > > parent in Indianna and returned to her Base in England in June. > > > > She has had severe stomach pains, nausea, rapid weight loss since > > returning to England.- > > and long story short has been dx's with severe Crohns - bad enough > to > > be in the hospital and on IV steroids, which are failing to " open " > > the damaged portion of small intestine... which if it still doesn't > > work in a few days, she'll be opened up and that section removed. > > > > I've sent all the data I have on Crohns and possible infection as > the > > cause... my sister in law said " they've checked her for everything " > > (which means squat to me...) > > > > God. she's 22. She could end up with a bag on her side permanently > > if they can't quell the inflammation to reconnect her later after > > this operation. > > > > I've asked and asked if she's been checked for bacteria and > parasites > > but I've really gotten no where. > > Interestinglt, she was operated on (although it may have been > > laprascopic - I don't know) for Endometriosis a month ago - JUST > > before this presented.. > > and they don't think there's a connection.. I think there is. > > > > Big Sigh. > > It's just impossible sometimes to talk to others who still think > > conventionally, and just blindly follow the status quo. > > Another Big Sigh. > > Barb > > PS this was edited for spelling - > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 the other abx was biaxin bleu On 19 Sep 2005, at 22:13, dumbaussie2000 wrote: > Guys > The main drug used in inflammatory bowel disaeses is a sulpha drug > similar in fashion to bactrim and the like, but again it's not > targeting INFECTIONS according to the literature.The aussie hospital > in my city (royal melbourne) supplied the three tuberculosis > antibiotics rifampin/ethambutol/ and one I can't think of at the > moment.I did ring a few years ago to see how thing's were going with > crohn's and not much excitment was forthcoming. > Barb outside the endometreosis at least ask if she has constant > sinus infections?It's that drip drip drip that makes alot of these > diseases fester IMO. > > > > > > > >  > My neice is in the hospital in England with Crohns. > >  > > >  > If I weren't so jaded already I really be more upset than I am. > >  > If I were my neices' mother, I'd be on a plane to England > where my > >  > neice is in the hospital: > >  > > >  > She's 22 and in the Military - been in Quatar for a year and > just > >  > finished a vacation tour around the world - spent a week with > her > >  > parent in Indianna and returned to her Base in England in June. > >  > > >  > She has had severe stomach pains, nausea, rapid weight loss > since > >  > returning to England.- > >  > and long story short has been dx's with severe Crohns - bad > enough > >  to > >  > be in the hospital and on IV steroids, which are failing > to " open " > >  > the damaged portion of small intestine... which if it still > doesn't > >  > work in a few days, she'll be opened up and that section > removed. > >  > > >  > I've sent all the data I have on Crohns and possible infection > as > >  the > >  > cause... my sister in law said " they've checked her for > everything " > >  > (which means squat to me...) > >  > > >  > God. she's 22. She could end up with a bag on her side > permanently > >  > if they can't quell the inflammation to reconnect her later > after > >  > this operation. > >  > > >  > I've asked and asked if she's been checked for bacteria and > >  parasites > >  > but I've really gotten no where. > >  > Interestinglt, she was operated on (although it may have been > >  > laprascopic - I don't know) for Endometriosis a month ago - > JUST > >  > before this presented.. > >  > and they don't think there's a connection.. I think there is. > >  > > >  > Big Sigh. > >  > It's just impossible sometimes to talk to others who still > think > >  > conventionally, and just blindly follow the status quo. > >  > Another Big Sigh. > >  > Barb > >  > PS this was edited for spelling - > > > > > > > > > >  Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Barb -- Sorry about your niece. My dad has had a combo of crohn's & ulcerative colitis for a few years now (yes, both. The GI guys are completely flumoxed by it). It's quite bad and honestly, the thing that has worked the best for him is prednisone. He's tried every drug in every combination and permutation including abx and flagyl (I brought up the infectious route and his new GI doc was totally gung ho and unclear as to why last GI doc hadn't tried it). He's off prednisone now just because he'd been on it for so long and it so screws up everything else, but that guy reminises about it every day because nothing has worked as well. So shoot this messenger if you must, but sometimes its the thing that helps the most. It has helped him avoid surgery a few times. The endometriosis surgery is certainly suspicious. On an equally suspicious note, my dad had sarcoidosis in the past all symptoms of which did resolve on prednisone. He's had no problem since the treatment of it several years ago. Nevertheless, I (and Occam) always wonder about some common explanation of these two diseases... > > My neice is in the hospital in England with Crohns. > > > > If I weren't so jaded already I really be more upset than I am. > > If I were my neices' mother, I'd be on a plane to England where my > > neice is in the hospital: > > > > She's 22 and in the Military - been in Quatar for a year and just > > finished a vacation tour around the world - spent a week with her > > parent in Indianna and returned to her Base in England in June. > > > > She has had severe stomach pains, nausea, rapid weight loss since > > returning to England.- > > and long story short has been dx's with severe Crohns - bad enough > to > > be in the hospital and on IV steroids, which are failing to " open " > > the damaged portion of small intestine... which if it still doesn't > > work in a few days, she'll be opened up and that section removed. > > > > I've sent all the data I have on Crohns and possible infection as > the > > cause... my sister in law said " they've checked her for everything " > > (which means squat to me...) > > > > God. she's 22. She could end up with a bag on her side permanently > > if they can't quell the inflammation to reconnect her later after > > this operation. > > > > I've asked and asked if she's been checked for bacteria and > parasites > > but I've really gotten no where. > > Interestinglt, she was operated on (although it may have been > > laprascopic - I don't know) for Endometriosis a month ago - JUST > > before this presented.. > > and they don't think there's a connection.. I think there is. > > > > Big Sigh. > > It's just impossible sometimes to talk to others who still think > > conventionally, and just blindly follow the status quo. > > Another Big Sigh. > > Barb > > PS this was edited for spelling - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Geez Dura That's what troubles me, people shoot the messenger everytime something like steroids is brought up.The fact that people got 10 brilliant years makes you wonder what is actually occuring (precisely). > > > My neice is in the hospital in England with Crohns. > > > > > > If I weren't so jaded already I really be more upset than I am. > > > If I were my neices' mother, I'd be on a plane to England where my > > > neice is in the hospital: > > > > > > She's 22 and in the Military - been in Quatar for a year and just > > > finished a vacation tour around the world - spent a week with her > > > parent in Indianna and returned to her Base in England in June. > > > > > > She has had severe stomach pains, nausea, rapid weight loss since > > > returning to England.- > > > and long story short has been dx's with severe Crohns - bad enough > > to > > > be in the hospital and on IV steroids, which are failing to " open " > > > the damaged portion of small intestine... which if it still doesn't > > > work in a few days, she'll be opened up and that section removed. > > > > > > I've sent all the data I have on Crohns and possible infection as > > the > > > cause... my sister in law said " they've checked her for everything " > > > (which means squat to me...) > > > > > > God. she's 22. She could end up with a bag on her side permanently > > > if they can't quell the inflammation to reconnect her later after > > > this operation. > > > > > > I've asked and asked if she's been checked for bacteria and > > parasites > > > but I've really gotten no where. > > > Interestinglt, she was operated on (although it may have been > > > laprascopic - I don't know) for Endometriosis a month ago - JUST > > > before this presented.. > > > and they don't think there's a connection.. I think there is. > > > > > > Big Sigh. > > > It's just impossible sometimes to talk to others who still think > > > conventionally, and just blindly follow the status quo. > > > Another Big Sigh. > > > Barb > > > PS this was edited for spelling - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 Hi, Barb and the group. Gregg has come up with some nonprescription treatments for Crohn's disease that have helped quite a few people. I know two of them personally (one was my father-in-law, who suffered with Crohn's for 20 years or more before getting relief from Dave's remedies). I encourage you to check out Dave's website at http://www.krysalis.net (Click on Crohn's and Crohn's testimonials--the testimonials are for real, by the way.) Dave has four treatments, and I think he told me that all the Crohn's cases he has encountered are put into remission by one or the other of them. This may sound hokey, but it's the real deal. Rich > My neice is in the hospital in England with Crohns. > > If I weren't so jaded already I really be more upset than I am. > If I were my neices' mother, I'd be on a plane to England where my > neice is in the hospital: > > She's 22 and in the Military - been in Quatar for a year and just > finished a vacation tour around the world - spent a week with her > parent in Indianna and returned to her Base in England in June. > > She has had severe stomach pains, nausea, rapid weight loss since > returning to England.- > and long story short has been dx's with severe Crohns - bad enough to > be in the hospital and on IV steroids, which are failing to " open " > the damaged portion of small intestine... which if it still doesn't > work in a few days, she'll be opened up and that section removed. > > I've sent all the data I have on Crohns and possible infection as the > cause... my sister in law said " they've checked her for everything " > (which means squat to me...) > > God. she's 22. She could end up with a bag on her side permanently > if they can't quell the inflammation to reconnect her later after > this operation. > > I've asked and asked if she's been checked for bacteria and parasites > but I've really gotten no where. > Interestinglt, she was operated on (although it may have been > laprascopic - I don't know) for Endometriosis a month ago - JUST > before this presented.. > and they don't think there's a connection.. I think there is. > > Big Sigh. > It's just impossible sometimes to talk to others who still think > conventionally, and just blindly follow the status quo. > Another Big Sigh. > Barb > PS this was edited for spelling - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 Barb, Boy did my ears perk up when you mentioned that she had surgery for endometriosis earlier. I said, " I wonder if they used an laser instruments in that surgery? Because that is how the surgeon burned 50 holes in my intestines and I got periotonitis in '98. Of course I know my case was extreme, but I found that these laser instruments 1. if defective can arc and burn many things, including a slow burn of the intestines 2. not much training is done sometimes and several doctors will rent these laser machines not truly understanding their incredible power to burn. The bad thing about the burns is that they are not immediately evident, taking sometimes days for the hole to materialize, leaking stomach contents everywhere, i.e. the periotonitis. That is the worst pain in the whole world, and why cowboys always aimed to shoot you in the stomach, because periotonitis is a hellacious death. I was lucky, I guess. It was just a thought, probably just being paranoid.. Peg > > > > > " Since most of us are exposed to and/or colonized by aureus and > > > epi, > > > > youd think we would all have some level of response to them > > > already. > > > > But obviously that somehow doesnt work out too well. " >>> > > > > > I alway's felt that it was tied in with the body and it's ageing > > > that makes one more susceptable.It's like you need high > > > concentrations to make infections and the older you are the more > > > oppurtunities are presented > > > > It sure looks that way with alzheimers, which I would guess will > more > > likely than not get sorted out as infectious in the end. At large > > ages the prevalance of alz is extreeeeeemely high. I think most > > people with parkinsons are also older. > > > > But hell, I'm 24, so my perspective is, damn. As for MS I think it > > develops only rarely in the 50s. I think the rate of new cases drop > > off quite alot after age 35 or so. > > > > > ...There's also that point of entry like > > > a festering sore often not clearly evident that no-one is looking > > > out for. I think if you poked around your teeth especially above > > > caps and the like- you've got things constantly brewing.It's a > > shame > > > really that many feel there's an immune system problem for > > > oppurtunistic infections when it's got nothing at all to do with > > the > > > immune system, there's millions visiting doctors daily being on > the > > > wrong side of the receiving end of bacterial infections.. > > > > Maybe... but immunodeficiency is hard to disprove given that the > > environment is increasingly full of wacky chemicals (which on the > > other hand certainly doesnt *prove* anything). I'm not sure if we > > know for certain what every last chem emitted by industry is - or > if > > we do know what they all are, im not sure they have all been > > experimented with re safety. Also, there is the odd chem which is > > grossly toxic to some mammals and not others, so I think mouse and > > rat toxicity experiemnts will almost but not quite cover our ass. > > > > Also, especially since you also tend to reject the hygeine > hypothesis > > (Im undecided on that one myself), your model has a hard time > showing > > why so many of these diseases appear to be on the rise. There are > > data re Crohns disease going back to the 1940s, which you can read > > online (free text), from your favorite guys the mayo clinic. It > looks > > pretty clear that the disease has come up from scanty to common > > before plateauing in the 70s. If you dont like mayo, check out > > similar data from Japan, where the same curve happened, but 2 or 3 > > decades delayed as compared to Mayo country, Minnesota, USA. I dont > > think theres any degree of consensus on MS clearly growing more > > common... autism on the other hand? awfully rapid growth in our own > > time sure looks likely, tho some still insist it could be > > artifactual, and special things like thimerosol have to be looked > at > > re that one; who knows if its typically an infectious condition. > CFS? > > Some act like its pretty much new, especiallt the non-epidemic > kind, > > but if you go thru 1910s, 1920s volumes of J Psychol & Neurol youll > > find quite a few people youd recognize as one of us, all of whom > (as > > far as I've seen) were of course treated as neurotics, probably > > exhausted and deranged by continually repressing their appalling > > desire to try having sex upside down, or some unbelieveable > freudian > > crap like that. But it does seem rather likely CFS has gone up in > > incidence last century. How do you explain all that? My views dont > > generate any particularly clear ideas about why such increases in > > prevalance would come about, but I dont think yours do either. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 Was talking to my doctor yesterday and he was telling me how Cimetidine (Tagament) has been shown to slow the metastisizing of stomach cancer quite significantly. When I was doing research on the anti-viral properties of Cimetidine, I noticed there was quite a bit of stuff on cimetidine and cancer as well. Might have your friend look into this. penny > I was told some moths back an old friend had developed cancer..He is in > remission at the moment or at least he's doing OK To speak with him I > managed to arrange a gathering at a restaurant last Friday & of course told > him of the destructive role of inflammation in cancer ...What a reaction , > you a doctor! was the [too much beer] theme with almost everyone warning > Doug [my friend] not to pay any attention . You don't know what side effects > there are , I pointed out the effect of cancer is all too usually death > ..[you've gotta be cruel to be kind] ..Anyway upshot is he rang me today and > asked for the info to be faxed to him ..I just hope he can sit back and view > the info objectively ..we'll see > Here's a piece on infection & Chrohn's > The bacterium Mycobacterium avium subspecies paratuberculosis (Map), which > has long been known to cause gut infections in cattle and sheep, has been > linked to bowel diseases in humans. Researchers at St 's Hospital > Medical School in London have found that in patients with Crohn's disease, > at least nine out of ten have the bacterium, and in patients without the > disease, less than three out of ten have the bug. This suggests that the > bacterium plays a role in the spread of the disease. Also, a small number of > patients with irritable bowel syndrome (IBS) were all found to have Map. > Links between Map and human bowel disease have been examined for years, but > this is by far the strongest association found. Crohn's disease affects > about one in 600 people and one in ten suffer from IBS. (BBC News Online, > Guardian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Hi ette, If your daughter has been on LDN for ten days and her abdominal pains are becoming less frequest, that is a good sign the LDN is working. Bear in mind, however, that it sometimes takes weeks and even months to reap the full therapeutic benefit of LDN. It took time for her condition to develop and it's going to take time to overcome it. With best wishes, Dudley Delany dudley_delany [low dose naltrexone] Crohns Hi again Everyone, I was just wondering if someone w/ Crohns can please answer a question for me. My daughters abdominal pains have lessened but she still gets them. She has ulcers along her colon. Do you think she is healing because her pains are less frequent? I am just hoping that she IS healing and that we just need to wait for more time to pass. I just cant wait until she is without pain. I know that noone can say for sure, just I'd love for you to let me know what you think. she started taking LDN 10 days ago - (4.5) Thank you so much, ette J Quote Link to comment Share on other sites More sharing options...
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