Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 LAnelle? Your daughter in law is a microbiologist?How lucky are you. I know your working hard on your immunity but in order for your body to up and run you should focus on rehydration, toxin reduction and infection eradication.Your basically got to get your microcirculation, circulating.Unfortunately there's this type of infection called cellulitis that may be at the heart of the compromised circulation.The fact that you see a pain doctor tells me that your on the wrong side of the infection/toxins debarcle. I know this sounds pretty wrong ended and your bone marrow isn't performing like it's supposed to and you need the immunity of other people but until you try and get your own systems running you can't really tell.Unfortunately many have tried to get things rolling- very spasmodically though(shoemaker).Your virtually got a hole in the bucket lanelle and unless you plug the whole first it's hard to tell what should be next. > Header Text > > > Anyone up for a challenge? I have been thinking about a recent post > by Sue regarding the Co-Cure story and passing of Casey > Fero and the steps that his mother is taking in his honor. > > > infections/messag > e/5421 > > I also have a son diagnosed with CFS, Lyme and FM who will be 22 > next week. Even though he is not as ill as I am currently, I am > constantly talking about things he can do to bolster his immunity > and build the life he and other young adults deserve. I truly > believe that awareness is so vital to the cure for all disease. I > have always been a pro-active, take charge kind of person and to be > couch-confined has been one of the hardest things for me i.e. > feeling like there is nothing that I can contribute anymore. > > SO................. > > I printed up 50 of the flyers http://www.co- cure.org/flyer_WI.pdf > and my son Bo has offered to post them at the college where he > attends. My daughter-in- law also is a micro-biologist for major > university research hospital and my oldest son also works for a > large corporation so I will be sending them flyers to post around > their home and offices as well. I am also sending a flyer out in > each letter I write this month in a very very small effort to simply > bring awareness to a cause that deserves attention. > > So often, I have heard people say, " Oh, I don't know why you are > wasting your time when it is such a drop in the bucket, compared to > the huge contributions needed. " But I truly believe it is like > putting a note in a balloon, and letting it go. It is not whether or > not I believe something important will happen. It is that I feel one > little act of faith will send out a universal energy of awareness > and one step will lead to another. And another and > another........... > > So I hope no one will take offense if I challenge the members here, > to print up five or so copies and post them up somewhere. Whether > it be at the doctor's office or the post office. or the electric > pole at the end of your street. Take that step with me? > I will not wait for a celebrity to go before Congress to make > others aware there is a terrible illness out there. Generations do > not have to be forfeited whenever new diseases emerge. Ignorance > shouldn't be fatal. Just because we are not all seen, doesn't mean > we don't exist. I will not give up and I will not be forgotten. Not > for myself, or my son or my son's son. Somehow , someway, one by one > we will be heard. > > Peg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 Good idea. I have already passed the flyer on to several people including my Dr. who would be ordering labs. mariePeg <lanelle@...> wrote: Header TextAnyone up for a challenge? I have been thinking about a recent post by Sue regarding the Co-Cure story and passing of Casey Fero and the steps that his mother is taking in his honor. infections/message/5421I also have a son diagnosed with CFS, Lyme and FM who will be 22 next week. Even though he is not as ill as I am currently, I am constantly talking about things he can do to bolster his immunity and build the life he and other young adults deserve. I truly believe that awareness is so vital to the cure for all disease. I have always been a pro-active, take charge kind of person and to be couch-confined has been one of the hardest things for me i.e. feeling like there is nothing that I can contribute anymore. SO.................I printed up 50 of the flyers http://www.co-cure.org/flyer_WI.pdf and my son Bo has offered to post them at the college where he attends. My daughter-in- law also is a micro-biologist for major university research hospital and my oldest son also works for a large corporation so I will be sending them flyers to post around their home and offices as well. I am also sending a flyer out in each letter I write this month in a very very small effort to simply bring awareness to a cause that deserves attention. So often, I have heard people say, "Oh, I don't know why you are wasting your time when it is such a drop in the bucket, compared to the huge contributions needed." But I truly believe it is like putting a note in a balloon, and letting it go. It is not whether or not I believe something important will happen. It is that I feel one little act of faith will send out a universal energy of awareness and one step will lead to another. And another and another...........So I hope no one will take offense if I challenge the members here, to print up five or so copies and post them up somewhere. Whether it be at the doctor's office or the post office. or the electric pole at the end of your street. Take that step with me? I will not wait for a celebrity to go before Congress to make others aware there is a terrible illness out there. Generations do not have to be forfeited whenever new diseases emerge. Ignorance shouldn't be fatal. Just because we are not all seen, doesn't mean we don't exist. I will not give up and I will not be forgotten. Not for myself, or my son or my son's son. Somehow , someway, one by one we will be heard. Peg for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 I know Tony, I'm peddling as fast as I can. I've already done the Shoemaker thing, remember. I ended up with losing teeth due to the lovely staph phage lysate, so he dropped me quicker than a hot potatoe when the FDA moved in. (no,I didn't call em) Unfortunately, I must admit for the first time I'm starting to question what is being spent in terms of results. not necessarily monititary. But I've been spinning my wheels so long that I'm literally exhausted and no better for the wear. I'm tired of being constantly turned away, playing games and feeling like I have to motivate the ducs that I'm worth their effort. Family members have given up and I now must resort to the yellow pages for transportation. All I can find to take me to the ducs are under the heading of " party planners " Evidently disability assistance isn't big business in the south. gotta go but I do hear you....I hear you... Peg -- In infections , " dumbaussie2000 " <dumbaussie2000@y...> wrote: > LAnelle? > Your daughter in law is a microbiologist?How lucky are you. I know > your working hard on your immunity but in order for your body to up > and run you should focus on rehydration, toxin reduction and > infection eradication.Your basically got to get your > microcirculation, circulating.Unfortunately there's this type of > infection called cellulitis that may be at the heart of the > compromised circulation.The fact that you see a pain doctor tells me > that your on the wrong side of the infection/toxins debarcle. > I know this sounds pretty wrong ended and your bone marrow isn't > performing like it's supposed to and you need the immunity of other > people but until you try and get your own systems running you can't > really tell.Unfortunately many have tried to get things rolling- > very spasmodically though(shoemaker).Your virtually got a hole in > the bucket lanelle and unless you plug the whole first it's hard to > tell what should be next. > > > > > > > Header Text > > > > > > Anyone up for a challenge? I have been thinking about a recent > post > > by Sue regarding the Co-Cure story and passing of Casey > > Fero and the steps that his mother is taking in his honor. > > > > > > > infections/messag > > e/5421 > > > > I also have a son diagnosed with CFS, Lyme and FM who will be 22 > > next week. Even though he is not as ill as I am currently, I am > > constantly talking about things he can do to bolster his immunity > > and build the life he and other young adults deserve. I truly > > believe that awareness is so vital to the cure for all disease. > I > > have always been a pro-active, take charge kind of person and to > be > > couch-confined has been one of the hardest things for me i.e. > > feeling like there is nothing that I can contribute anymore. > > > > SO................. > > > > I printed up 50 of the flyers http://www.co- > cure.org/flyer_WI.pdf > > and my son Bo has offered to post them at the college where he > > attends. My daughter-in- law also is a micro-biologist for major > > university research hospital and my oldest son also works for a > > large corporation so I will be sending them flyers to post around > > their home and offices as well. I am also sending a flyer out in > > each letter I write this month in a very very small effort to > simply > > bring awareness to a cause that deserves attention. > > > > So often, I have heard people say, " Oh, I don't know why you are > > wasting your time when it is such a drop in the bucket, compared > to > > the huge contributions needed. " But I truly believe it is like > > putting a note in a balloon, and letting it go. It is not whether > or > > not I believe something important will happen. It is that I feel > one > > little act of faith will send out a universal energy of awareness > > and one step will lead to another. And another and > > another........... > > > > So I hope no one will take offense if I challenge the members > here, > > to print up five or so copies and post them up somewhere. > Whether > > it be at the doctor's office or the post office. or the electric > > pole at the end of your street. Take that step with me? > > I will not wait for a celebrity to go before Congress to make > > others aware there is a terrible illness out there. Generations do > > not have to be forfeited whenever new diseases emerge. Ignorance > > shouldn't be fatal. Just because we are not all seen, doesn't mean > > we don't exist. I will not give up and I will not be forgotten. > Not > > for myself, or my son or my son's son. Somehow , someway, one by > one > > we will be heard. > > > > Peg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 I know Tony, I'm peddling as fast as I can. I've already done the Shoemaker thing, remember. I ended up with losing teeth due to the lovely staph phage lysate, so he dropped me quicker than a hot potatoe when the FDA moved in. (no,I didn't call em) Unfortunately, I must admit for the first time I'm starting to question what is being spent in terms of results. not necessarily monititary. But I've been spinning my wheels so long that I'm literally exhausted and no better for the wear. I'm tired of being constantly turned away, playing games and feeling like I have to motivate the ducs that I'm worth their effort. Family members have given up and I now must resort to the yellow pages for transportation. All I can find to take me to the ducs are under the heading of " party planners " Evidently disability assistance isn't big business in the south. gotta go but I do hear you....I hear you... Peg -- In infections , " dumbaussie2000 " <dumbaussie2000@y...> wrote: > LAnelle? > Your daughter in law is a microbiologist?How lucky are you. I know > your working hard on your immunity but in order for your body to up > and run you should focus on rehydration, toxin reduction and > infection eradication.Your basically got to get your > microcirculation, circulating.Unfortunately there's this type of > infection called cellulitis that may be at the heart of the > compromised circulation.The fact that you see a pain doctor tells me > that your on the wrong side of the infection/toxins debarcle. > I know this sounds pretty wrong ended and your bone marrow isn't > performing like it's supposed to and you need the immunity of other > people but until you try and get your own systems running you can't > really tell.Unfortunately many have tried to get things rolling- > very spasmodically though(shoemaker).Your virtually got a hole in > the bucket lanelle and unless you plug the whole first it's hard to > tell what should be next. > > > > > > > Header Text > > > > > > Anyone up for a challenge? I have been thinking about a recent > post > > by Sue regarding the Co-Cure story and passing of Casey > > Fero and the steps that his mother is taking in his honor. > > > > > > > infections/messag > > e/5421 > > > > I also have a son diagnosed with CFS, Lyme and FM who will be 22 > > next week. Even though he is not as ill as I am currently, I am > > constantly talking about things he can do to bolster his immunity > > and build the life he and other young adults deserve. I truly > > believe that awareness is so vital to the cure for all disease. > I > > have always been a pro-active, take charge kind of person and to > be > > couch-confined has been one of the hardest things for me i.e. > > feeling like there is nothing that I can contribute anymore. > > > > SO................. > > > > I printed up 50 of the flyers http://www.co- > cure.org/flyer_WI.pdf > > and my son Bo has offered to post them at the college where he > > attends. My daughter-in- law also is a micro-biologist for major > > university research hospital and my oldest son also works for a > > large corporation so I will be sending them flyers to post around > > their home and offices as well. I am also sending a flyer out in > > each letter I write this month in a very very small effort to > simply > > bring awareness to a cause that deserves attention. > > > > So often, I have heard people say, " Oh, I don't know why you are > > wasting your time when it is such a drop in the bucket, compared > to > > the huge contributions needed. " But I truly believe it is like > > putting a note in a balloon, and letting it go. It is not whether > or > > not I believe something important will happen. It is that I feel > one > > little act of faith will send out a universal energy of awareness > > and one step will lead to another. And another and > > another........... > > > > So I hope no one will take offense if I challenge the members > here, > > to print up five or so copies and post them up somewhere. > Whether > > it be at the doctor's office or the post office. or the electric > > pole at the end of your street. Take that step with me? > > I will not wait for a celebrity to go before Congress to make > > others aware there is a terrible illness out there. Generations do > > not have to be forfeited whenever new diseases emerge. Ignorance > > shouldn't be fatal. Just because we are not all seen, doesn't mean > > we don't exist. I will not give up and I will not be forgotten. > Not > > for myself, or my son or my son's son. Somehow , someway, one by > one > > we will be heard. > > > > Peg Quote Link to comment Share on other sites More sharing options...
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