Re: Poofters in Piano Clinics

[Guest guest]

Jill

You don't know what a poofter is I think.the american version you

put your feet on-the australian version you put more than your feet

on a poofter.Actually you help them with there stools.

tony

> > > > > Hi there, I'm glad to hear you got a different infusion

> > company.

> > > > > Just FYI, I take sometimes 2 hours to do just five grams.

I

> > drip

> > > > it

> > > > > so slowly you could see geologic time change while I drip

> > it .

> > > I

> > > > > read a book or talk to folks.

> > > > >

> > > > > Also on another note, is I really react if its not

gamunex.

> > > > Yesterday

> > > > > they only had Gammagard there (at my doc's office) as

she'd

> > been

> > > > away

> > > > > for 3 weeks. I was desperate as I hadn't had it for 3

weeks,

> > > > > therefore, and had had bad PMS and really wanted it. The

> sugar

> > > and

> > > > > salt solution they use, plus the solvents, I react to. I

get

> > > > > extremely thirsty and hungry while dripping it, and I also

> > > > sometimes

> > > > > get wheezing, and even odd little chest pains. Once after

> > using

> > > > > Gammagard I had significant chest pain that lasted for 24

> > hours

> > > > > (significant to me anyway) and wheezing for weeks. The

> > soreness

> > > > and

> > > > > chest wall pain lasted for weeks too, and I had the whole

> > thing

> > > > > checked out by docs iwth xrays echocardigoram and

discussion

> > of

> > > > the

> > > > > rare possibility of thrombosis, but it appeared totally

> > unlikely

> > > > and

> > > > > did go away.

> > > > >

> > > > > But with gamunex, which comes refrigerated, already in

> > solution,

> > > > has

> > > > > no preservatives, no sugar, no salt, I really do pretty

well.

> > > > >

> > > > > So just realize that you may have to try different IVIG's

> > until

> > > > you

> > > > > find one you don't react to.

> > > > >

> > > > > Also, its HUGELY important to hydrate yourself. People can

> > > > minimize a

> > > > > lot of reactions that way. Remember, its a big moleucle--a

> > > protein-

> > > > -

> > > > > and viscous. So drink a lot of water before during and

after,

> > and

> > > > to

> > > > > really protect yourself, have a sterile saline IV

first...let

> > > that

> > > > > drip in for half an hour, so you are really well hydrated,

> > then

> > > > add

> > > > > the IVIG.

> > > > >

> > > > > Too bad on THEM if they think you are a HASSLE or

something.

> > You

> > > > know

> > > > > what, bring them flowers, as I brought my doctor flowers

as a

> > > > thank

> > > > > you. Bring them beautiful flowers, and come in with a big

> > smile

> > > > and

> > > > > say, you know, I had a bad time before and what I'd like

to

> do

> > is

> > > > > this: I've drunk a lot of water because I hear that helps,

> and

> > > I'd

> > > > > also like a saline or sterile water IV to really hydrate

me,

> > and

> > > > then

> > > > > drip real slow...is tha tokay?

> > > > >

> > > > > My HMO doc...he agreed to do a blood smear and have the

> > > > pathologist

> > > > > at the hospital look at my blood. You can imagine he was

not

> > > happy

> > > > I

> > > > > forced his hand to do this (after I showed him my positive

> > Igenex

> > > > > FISH test that my holistic doc did for me). I also really

> > pushed

> > > > the

> > > > > limit todya, which he doesn't know, by EMAILING the head

> > > > pathologist

> > > > > at the hospital and telling her about my case, and

> apologizing

> > > for

> > > > > breaking protocol but requesting that she herself look at

my

> > > blood.

> > > > >

> > > > > I'm going to leave him a bottle of white wine and a thank

you

> > > note

> > > > > and a confession of what I did, and a request that he also

> > > request

> > > > > she look at it.

> > > > >

> > > > > That's the best I can do. Hopefully it'll work.

> > > > >

> > > > > Remember, they are not on your side. They have to be won

> over.

> > > > Also,

> > > > > medicine is just not a fun profession for most o fthem

> > anymore.

> > > > > They're overworked and they're overmanaged by annoying

> > insurance

> > > > and

> > > > > managed care companies.

[Guest guest]

Hey maybe she'll even find little cocci in my blood cells (yuck).

You would have to ask them to look for jolly howell stuff before

even discussing cocci. The interesting bit would be if they thought

something unusual that they can't explain was visable as well as

your babesia.I just hope they can give you a clear indication of

babesia and the best treatment option with sensitivities would help

as wel;l.

tony

> > > > > Hi there, I'm glad to hear you got a different infusion

> > company.

> > > > > Just FYI, I take sometimes 2 hours to do just five grams.

I

> > drip

> > > > it

> > > > > so slowly you could see geologic time change while I drip

> > it .

> > > I

> > > > > read a book or talk to folks.

> > > > >

> > > > > Also on another note, is I really react if its not

gamunex.

> > > > Yesterday

> > > > > they only had Gammagard there (at my doc's office) as

she'd

> > been

> > > > away

> > > > > for 3 weeks. I was desperate as I hadn't had it for 3

weeks,

> > > > > therefore, and had had bad PMS and really wanted it. The

> sugar

> > > and

> > > > > salt solution they use, plus the solvents, I react to. I

get

> > > > > extremely thirsty and hungry while dripping it, and I also

> > > > sometimes

> > > > > get wheezing, and even odd little chest pains. Once after

> > using

> > > > > Gammagard I had significant chest pain that lasted for 24

> > hours

> > > > > (significant to me anyway) and wheezing for weeks. The

> > soreness

> > > > and

> > > > > chest wall pain lasted for weeks too, and I had the whole

> > thing

> > > > > checked out by docs iwth xrays echocardigoram and

discussion

> > of

> > > > the

> > > > > rare possibility of thrombosis, but it appeared totally

> > unlikely

> > > > and

> > > > > did go away.

> > > > >

> > > > > But with gamunex, which comes refrigerated, already in

> > solution,

> > > > has

> > > > > no preservatives, no sugar, no salt, I really do pretty

well.

> > > > >

> > > > > So just realize that you may have to try different IVIG's

> > until

> > > > you

> > > > > find one you don't react to.

> > > > >

> > > > > Also, its HUGELY important to hydrate yourself. People can

> > > > minimize a

> > > > > lot of reactions that way. Remember, its a big moleucle--a

> > > protein-

> > > > -

> > > > > and viscous. So drink a lot of water before during and

after,

> > and

> > > > to

> > > > > really protect yourself, have a sterile saline IV

first...let

> > > that

> > > > > drip in for half an hour, so you are really well hydrated,

> > then

> > > > add

> > > > > the IVIG.

> > > > >

> > > > > Too bad on THEM if they think you are a HASSLE or

something.

> > You

> > > > know

> > > > > what, bring them flowers, as I brought my doctor flowers

as a

> > > > thank

> > > > > you. Bring them beautiful flowers, and come in with a big

> > smile

> > > > and

> > > > > say, you know, I had a bad time before and what I'd like

to

> do

> > is

> > > > > this: I've drunk a lot of water because I hear that helps,

> and

> > > I'd

> > > > > also like a saline or sterile water IV to really hydrate

me,

> > and

> > > > then

> > > > > drip real slow...is tha tokay?

> > > > >

> > > > > My HMO doc...he agreed to do a blood smear and have the

> > > > pathologist

> > > > > at the hospital look at my blood. You can imagine he was

not

> > > happy

> > > > I

> > > > > forced his hand to do this (after I showed him my positive

> > Igenex

> > > > > FISH test that my holistic doc did for me). I also really

> > pushed

> > > > the

> > > > > limit todya, which he doesn't know, by EMAILING the head

> > > > pathologist

> > > > > at the hospital and telling her about my case, and

> apologizing

> > > for

> > > > > breaking protocol but requesting that she herself look at

my

> > > blood.

> > > > >

> > > > > I'm going to leave him a bottle of white wine and a thank

you

> > > note

> > > > > and a confession of what I did, and a request that he also

> > > request

> > > > > she look at it.

> > > > >

> > > > > That's the best I can do. Hopefully it'll work.

> > > > >

> > > > > Remember, they are not on your side. They have to be won

> over.

> > > > Also,

> > > > > medicine is just not a fun profession for most o fthem

> > anymore.

> > > > > They're overworked and they're overmanaged by annoying

> > insurance

> > > > and

> > > > > managed care companies.