Re: Lyme Hearings in Massachusetts -

[Guest guest]

I'd like to write in. Are you sending yours to the snail mail address

for the MA LD Coalition (below)? Does that fax number reach them too,

or the legislature?

> I wanted to attend these hearings and read my testimony- but

couldn't

> be guaranteed the time- as they're taking Mass residents first- so

> I'm sending my written testimony.

>

> This is fairly short notice- but for those of you have have maybe

> already written your story- please forward it to the address below

so

> it'll go on record.

> Thanks,

> Barb

>

>

>

>

>

_____________________________________________________________________

> LYME HEARINGS IN MASSACHUSETTS

>

>

> The Joint Massachusetts Legislative Committee on Public Health has

> announcedthat there will be a Public Hearing on Lyme Disease

> beginning 10:00 am,Wednesday, October 12th in Hearing Room A-1 at

the

> Massachusetts State House,Beacon Hill, Boston.

>

>

> The program will begin with testimony from an expert panel

consisting

> of:

>

> * Fallon, MD, MPH Columbia University College of Physicians

> and Surgeons; Director, Lyme Disease Research Program, NY State

> Psychiatric Institute; Principle Investigator for N.I.H. Chronic

> Lyme Retreatment Study

>

>

> * Cameron, MD, MPH Principle Investigator,N.I.H. Lyme

> Double-Blind Randomized Placebo-Controlled Study; Board of

Directors,

> ILADS;Private Practice, Mt. Kisco, New York

>

>

> * Ray MD Private Practice: Pediatric and Adolescent

> Lyme Disease, New Haven Connecticut

>

> * V. President, (national) Lyme Disease Association,

> Inc.; Vice President, Political Affairs, ILADS (International Lyme &

> Associated Diseases Society)

>

>

> The general public will then be invited to testify. Lyme patients

from

> everywhere are welcome; however, Massachusetts residents will be

given

> preference regarding testimony. Although legislators have asked the

> public to testify limited to 5 minutes (IMPORTANT, one to two

typed

> pages is about 5 speaking minutes; there is, however, no limit to

the

> written testimony that you may

>

> choose to submit to the Public Health Committee). Bring your written

>

>

> testimony to the hearing, and please forward a copy of your

statement

> by October 1:

>

> FAX: (508) 563-7780

>

>

> Snail-Mail:

> Massachusetts Lyme Disease Coalition

> P.O. Box 1916

> Mashpee, MA 02649

>

>

>

>

>

>

>

>

>

>

> (

> _

>

>

>

> _

>

>

>

>

>

> The Massachusetts

> Legislature has never, EVER held hearings on Lyme disease at the

State

> House in the past

> We have, at this event, the opportunity to begin changing

conditions

> for

>

> Coughlan

>

>

> Director

>

>

> Massachusetts Lyme Disease Coalition

>

>

> Ph: (508) 563-7033

>

>

> *NOTE: there is a possibility that a physician from

the " conservative "

>

>

> Steere/Klempner group may be added to the program.

[Guest guest]

My interest being, that I would rather attest independantly, not via

an organization whose views I may not completely share in fine

(whether due to actual differences of views, or to them knowing more

than I yet know about things like outcomes of erythema migrans

patients).

<usenethod@y...> wrote:

> I'd like to write in. Are you sending yours to the snail mail

address

> for the MA LD Coalition (below)? Does that fax number reach them

too,

> or the legislature?

[Guest guest]

I spoke to Coughlan (his phone number is in the attached post)

and I decided to send it to him at the snail mail addy- because I

didn't want to send it to some committee in never never land.

He's going to hand deliver the ones sent to him.

I'm not sure if the fax number is his or not - you'd need to ask him

that.

Barb

> > I wanted to attend these hearings and read my testimony- but

> couldn't

> > be guaranteed the time- as they're taking Mass residents first-

so

> > I'm sending my written testimony.

> >

> > This is fairly short notice- but for those of you have have maybe

> > already written your story- please forward it to the address

below

> so

> > it'll go on record.

> > Thanks,

> > Barb

> >

> >

> >

> >

> >

>

_____________________________________________________________________

> > LYME HEARINGS IN MASSACHUSETTS

> >

> >

> > The Joint Massachusetts Legislative Committee on Public Health has

> > announcedthat there will be a Public Hearing on Lyme Disease

> > beginning 10:00 am,Wednesday, October 12th in Hearing Room A-1 at

> the

> > Massachusetts State House,Beacon Hill, Boston.

> >

> >

> > The program will begin with testimony from an expert panel

> consisting

> > of:

> >

> > * Fallon, MD, MPH Columbia University College of Physicians

> > and Surgeons; Director, Lyme Disease Research Program, NY State

> > Psychiatric Institute; Principle Investigator for N.I.H. Chronic

> > Lyme Retreatment Study

> >

> >

> > * Cameron, MD, MPH Principle Investigator,N.I.H. Lyme

> > Double-Blind Randomized Placebo-Controlled Study; Board of

> Directors,

> > ILADS;Private Practice, Mt. Kisco, New York

> >

> >

> > * Ray MD Private Practice: Pediatric and Adolescent

> > Lyme Disease, New Haven Connecticut

> >

> > * V. President, (national) Lyme Disease

Association,

> > Inc.; Vice President, Political Affairs, ILADS (International

Lyme &

> > Associated Diseases Society)

> >

> >

> > The general public will then be invited to testify. Lyme patients

> from

> > everywhere are welcome; however, Massachusetts residents will be

> given

> > preference regarding testimony. Although legislators have asked

the

> > public to testify limited to 5 minutes (IMPORTANT, one to two

> typed

> > pages is about 5 speaking minutes; there is, however, no limit to

> the

> > written testimony that you may

> >

> > choose to submit to the Public Health Committee). Bring your

written

> >

> >

> > testimony to the hearing, and please forward a copy of your

> statement

> > by October 1:

> >

> > FAX: (508) 563-7780

> >

> >

> > Snail-Mail:

> > Massachusetts Lyme Disease Coalition

> > P.O. Box 1916

> > Mashpee, MA 02649

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > (

> > _

> >

> >

> >

> > _

> >

> >

> >

> >

> >

> > The Massachusetts

> > Legislature has never, EVER held hearings on Lyme disease at the

> State

> > House in the past

> > We have, at this event, the opportunity to begin changing

> conditions

> > for

> >

> > Coughlan

> >

> >

> > Director

> >

> >

> > Massachusetts Lyme Disease Coalition

> >

> >

> > Ph: (508) 563-7033

> >

> >

> > *NOTE: there is a possibility that a physician from

> the " conservative "

> >

> >

> > Steere/Klempner group may be added to the program.

[Guest guest]

I agree- I am not a groupy type.

My testimony was addressed to the Joint Massuchausetts Legislative

Committee on Public Health, ther subject was my Testimony for the

Hearings and the return address was my personal address.... I did

not reference the coalition.

He'll just make sure it gets in the right hands.

Barb

> > I'd like to write in. Are you sending yours to the snail mail

> address

> > for the MA LD Coalition (below)? Does that fax number reach them

> too,

> > or the legislature?

[Guest guest]

Thanks, Barb. I am fairly certain that I contracted Lyme while growing

up in Massachusetts. Even though I am Canadian now, I will send

something.

- Kate

On Sunday, September 18, 2005, at 10:08 AM, Barb Peck wrote:

> I wanted to attend these hearings and read my testimony- but couldn't

> be guaranteed the time- as they're taking Mass residents first- so

> I'm sending my written testimony.

>

> This is fairly short notice- but for those of you have have maybe

> already written your story- please forward it to the address below so

> it'll go on record.

> Thanks,

> Barb