CFS-What's in a name?

[Guest guest]

The name Chronic Fatigue Syndrome is a stupid name; it's an

insult to every ME patient. Physicians who use this word, don't

know where they are talking about. In the first place it is not

chronic at all, but more important is, that there don't exist a

name for the deep and indescribable experience of exhaustion

of an ME patient. It is an experience, which can't be explained to

a healthy person. They will never understand how terrible and

unbearable it is to be a " living dead " .

I feel much more comfortable with the name " Chronic Disease

Syndrome " . It's more " coming home " . Yes that's what it is:

" Chronic Disease Syndrome " .

written by Koolhaas

*Posted by CF Alliance Moderators