Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 I think this is so important that I'm re-posting it here, in case you didn't see it on Co-Cure today. Sue , Upstate New York ------------------------- Date: Mon, 12 Sep 2005 13:24:50 -0400 From: " Pat Fero <bp.fero@...> via Co-Cure Moderators " <co-cure-mod@...> Subject: NOT,ACT: Casey Fero ME/CFS Tissue and Blood Bank [Moderator's Note: The first part of this message comes from a flyer created by the Wisconsin CFS Association. ly, this plain text rendition doesn't do it justice. Please see the actual flyer at http://www.co-cure.org/flyer_WI.pdf . [AOL: <a href= " http://www.co-cure.org/flyer_WI.pdf " >Here</a>] ___________________________________________________________ From Pat Fero <bp.fero@...>: Casey Fero ME/CFS Tissue and Blood Bank On July 4, 2005, at the age of 23, Casey Fero died in his sleep. He died of unknown causes far too young. As a lasting tribute to Casey, the Fero family, the Wisconsin Chronic Fatigue Syndrome Association, Inc., and Mothers against Myalgic Encephalomyelitis, Inc. (MAME) will create the first universal access blood and tissue bank for ME-CFS patients. Casey was diagnosed with CFS at age 9 and again at age 15. It caused him to feel weak, unable to think, and exhausted. He was plagued with headaches, and had major sleep disorder among a list of daily symptoms. Casey persevered and did not want people to know his condition. Early on, he knew that medical help was unavailable and furthermore, he was met with disbelief in the school and in the doctor's office. Sound medical research is the key to understanding the cause of these disorders and to developing treatments that can help patients manage daily living. Many recognized illnesses, such as Alzheimer's, were poorly understood before the creation of tissue and blood banks. Precious gifts of tissue and blood benefit all individuals and families living with illness. A universal access specimen bank means that any scientist can ask for samples provided that their study meets careful guidelines. The Institute for Viral Pathogenesis, a Medical Diagnostic Laboratory in Milwaukee, will house the freezer for specimens. <www.ivpresearch.org> Government regulated procedures are already in place to care for donated tissue and blood. Right now, we are fund raising to buy an additional freezer for storage at the facility. The cost is about $10,000. Will you help us? Your contribution is tax deductible through the Wisconsin CFS Association, Federal ID number 39 -1614649. You can send a check to the association at the address listed below. Please specify CASEY'S FUND. Wisconsin CFS Association 747 Lois Drive Sun Prairie, WI 53590 You can also donate online at <www.wicfs-me.org.> These contributions are dedicated to Casey and will not be used for any other purpose. _________________________________________________ Please let it be known that as of September 8th, 2005 the Fero's have confirmation of the following: The University of Wisconsin forensic pathologist found that our son Casey died of myocarditis, that is, he had heart damage, inflammation and the tissue was full of viral infection. Casey also had old fibrosis, indicating that the viral infection was not of a new onset. The pathologist was " shocked " at this finding. I am not shocked considering Casey's long standing CFS and the research in this area. My inability to do anything to have helped my son is almost intolerable. BUT... we loved him, taught him to love and to learn and to question. Casey had bull dog determination. In his mind, he had overcome all illness and if he just worked harder he could do anything. Interesting, how he died so well, with so much enthusiasm to live. PAT FERO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 Was this kid treated? I wonder if this boy was treated conventionally - meaning nothing at all.... > I think this is so important that I'm re-posting it here, in case you > didn't see it on Co-Cure today. > > Sue , > Upstate New York > ------------------------- > > Date: Mon, 12 Sep 2005 13:24:50 -0400 > From: " Pat Fero <bp.fero@v...> via Co-Cure Moderators " > <co-cure-mod@L...> > Subject: NOT,ACT: Casey Fero ME/CFS Tissue and Blood Bank > > [Moderator's Note: The first part of this message comes from a flyer > created by the Wisconsin CFS Association. ly, this plain text > rendition doesn't do it justice. Please see the actual flyer at > http://www.co-cure.org/flyer_WI.pdf . > > [AOL: <a href= " http://www.co-cure.org/flyer_WI.pdf " >Here</a>] > ___________________________________________________________ > > From Pat Fero <bp.fero@v...>: > > > Casey Fero > ME/CFS Tissue and Blood Bank > > > On July 4, 2005, at the age of 23, Casey Fero died in his sleep. He > died of > unknown causes far too young. As a lasting tribute to Casey, the Fero > family, the Wisconsin Chronic Fatigue Syndrome Association, Inc., and > Mothers against Myalgic Encephalomyelitis, Inc. (MAME) will create the > first universal access blood and tissue bank for ME-CFS patients. > > Casey was diagnosed with CFS at age 9 and again at age 15. It caused > him to > feel weak, unable to think, and exhausted. He was plagued with > headaches, > and had major sleep disorder among a list of daily symptoms. Casey > persevered and did not want people to know his condition. Early on, he > knew > that medical help was unavailable and furthermore, he was met with > disbelief in the school and in the doctor's office. > > Sound medical research is the key to understanding the cause of these > disorders and to developing treatments that can help patients manage > daily > living. Many recognized illnesses, such as Alzheimer's, were poorly > understood before the creation of tissue and blood banks. Precious > gifts > of tissue and blood benefit all individuals and families living with > illness. > > A universal access specimen bank means that any scientist can ask for > samples provided that their study meets careful guidelines. The > Institute > for Viral Pathogenesis, a Medical Diagnostic Laboratory in Milwaukee, > will > house the freezer for specimens. <www.ivpresearch.org> Government > regulated > procedures are already in place to care for donated tissue and blood. > > Right now, we are fund raising to buy an additional freezer for storage > at > the facility. The cost is about $10,000. Will you help us? Your > contribution is tax deductible through the Wisconsin CFS Association, > Federal ID number 39 -1614649. You can send a check to the association > at > the address listed below. Please specify CASEY'S FUND. > > > Wisconsin CFS Association > 747 Lois Drive > Sun Prairie, WI 53590 > > You can also donate online at <www.wicfs-me.org.> These contributions > are > dedicated to Casey and will not be used for any other purpose. > _________________________________________________ > > > Please let it be known that as of September 8th, 2005 the Fero's have > confirmation of the following: > > The University of Wisconsin forensic pathologist found that our son > Casey > died of myocarditis, that is, he had heart damage, inflammation and the > tissue was full of viral infection. Casey also had old fibrosis, > indicating that the viral infection was not of a new onset. The > pathologist was " shocked " at this finding. I am not shocked > considering Casey's long standing CFS and the research in this area. > > My inability to do anything to have helped my son is almost > intolerable. BUT... we loved him, taught him to love and to learn and > to question. Casey had bull dog determination. In his mind, he had > overcome all illness and if he just worked harder he could do anything. > Interesting, how he died so well, with so much enthusiasm to live. > > PAT FERO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 Yeah I sure dont like to hear about kids of all people getting this. A tissue bank is an *absolutely* great thing to start, tho. Hopefully it will have particularly assiduous clinical details on the subjects, since so many things could arguably cause some cases of CFS, including virtually any infection of any kind. > I think this is so important that I'm re-posting it here, in case you > didn't see it on Co-Cure today. > > Sue , > Upstate New York > ------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 Imagine if the kid had a sample of fluid removed from his pericardium, he'd have something to treat?This cardiomyopathy is so pathetic when simple non invasive procedures would yield possable explanations for these crappy conditions that can loose lives. I wonder where- cheney- the cfs protecting us fits in this picture of a long term sufferer.I'm from the school if bad sh...s happening it catches up with ya. and the longer you leave it the harder it becomes to fix.I also find this virus damage is such bad pathology. If they suspect viruses plaese do cultures. tony > > I think this is so important that I'm re-posting it here, in case > you > > didn't see it on Co-Cure today. > > > > Sue , > > Upstate New York > > ------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 It not only saddens me, it scares the CRAP out of me. My son had his first bought of pericarditis at the age of 23. He is almost 25 now and has had what we think/thought is CFS since he was about 15. Suspisions are high that it is actually Lyme at least in part, born with it. He feels terrible, but with a new family he doesn't have time to seek out treatment. I hate to scare him to death, but maybe if I email this to him, he will taken action. > I think this is so important that I'm re-posting it here, in case you > didn't see it on Co-Cure today. > > Sue , > Upstate New York > ------------------------- > > Date: Mon, 12 Sep 2005 13:24:50 -0400 > From: " Pat Fero <bp.fero@v...> via Co-Cure Moderators " > <co-cure-mod@L...> > Subject: NOT,ACT: Casey Fero ME/CFS Tissue and Blood Bank > > [Moderator's Note: The first part of this message comes from a flyer > created by the Wisconsin CFS Association. ly, this plain text > rendition doesn't do it justice. Please see the actual flyer at > http://www.co-cure.org/flyer_WI.pdf . > > [AOL: <a href= " http://www.co-cure.org/flyer_WI.pdf " >Here</a>] > ___________________________________________________________ > > From Pat Fero <bp.fero@v...>: > > > Casey Fero > ME/CFS Tissue and Blood Bank > > > On July 4, 2005, at the age of 23, Casey Fero died in his sleep. He > died of > unknown causes far too young. As a lasting tribute to Casey, the Fero > family, the Wisconsin Chronic Fatigue Syndrome Association, Inc., and > Mothers against Myalgic Encephalomyelitis, Inc. (MAME) will create the > first universal access blood and tissue bank for ME-CFS patients. > > Casey was diagnosed with CFS at age 9 and again at age 15. It caused > him to > feel weak, unable to think, and exhausted. He was plagued with > headaches, > and had major sleep disorder among a list of daily symptoms. Casey > persevered and did not want people to know his condition. Early on, he > knew > that medical help was unavailable and furthermore, he was met with > disbelief in the school and in the doctor's office. > > Sound medical research is the key to understanding the cause of these > disorders and to developing treatments that can help patients manage > daily > living. Many recognized illnesses, such as Alzheimer's, were poorly > understood before the creation of tissue and blood banks. Precious > gifts > of tissue and blood benefit all individuals and families living with > illness. > > A universal access specimen bank means that any scientist can ask for > samples provided that their study meets careful guidelines. The > Institute > for Viral Pathogenesis, a Medical Diagnostic Laboratory in Milwaukee, > will > house the freezer for specimens. <www.ivpresearch.org> Government > regulated > procedures are already in place to care for donated tissue and blood. > > Right now, we are fund raising to buy an additional freezer for storage > at > the facility. The cost is about $10,000. Will you help us? Your > contribution is tax deductible through the Wisconsin CFS Association, > Federal ID number 39 -1614649. You can send a check to the association > at > the address listed below. Please specify CASEY'S FUND. > > > Wisconsin CFS Association > 747 Lois Drive > Sun Prairie, WI 53590 > > You can also donate online at <www.wicfs-me.org.> These contributions > are > dedicated to Casey and will not be used for any other purpose. > _________________________________________________ > > > Please let it be known that as of September 8th, 2005 the Fero's have > confirmation of the following: > > The University of Wisconsin forensic pathologist found that our son > Casey > died of myocarditis, that is, he had heart damage, inflammation and the > tissue was full of viral infection. Casey also had old fibrosis, > indicating that the viral infection was not of a new onset. The > pathologist was " shocked " at this finding. I am not shocked > considering Casey's long standing CFS and the research in this area. > > My inability to do anything to have helped my son is almost > intolerable. BUT... we loved him, taught him to love and to learn and > to question. Casey had bull dog determination. In his mind, he had > overcome all illness and if he just worked harder he could do anything. > Interesting, how he died so well, with so much enthusiasm to live. > > PAT FERO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 After reading this and pondering about CFS this morning, it seems that CFS is a common denominator and that there are different organisms associated with the symptoms. The virus and mostly CWD bacteria also have a common denominator, the ability to subvert the host immune system for their survival. The Th1 response is suppressed, Th2 is often activated, the Cytokine profile is changed, Il-10 is found amongst other cytokines. NK cell activity is suppressed, Nuclear Factor-Kappa B is activated. Immune support with transfer factor, IP-6, mycologicals, PSK should be explored as should blocking NF-KB with the likes of curcumin or whatever else works that's non steroidal. Then, beating on bacterial pathogens with antibiotic combinations or using Rife devices or Beck to disable viral and or bacterial illness should deliver the final blow. Decoupling the immune system from the infective agent's grip, balancing the Th1/Th2 and atacking the pathogen in theory should get you well. Tom Brown > > > I think this is so important that I'm re-posting it here, in > case > > you > > > didn't see it on Co-Cure today. > > > > > > Sue , > > > Upstate New York > > > ------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 Hmmm. This is kind of in line with Cheney's theory of CFS (the myocarditis). Let me pause here for a commercial break: I hate most doctors. HATE THEM. They were SURPRISED? They should've done everything possible to help him. > I think this is so important that I'm re-posting it here, in case you > didn't see it on Co-Cure today. > > Sue , > Upstate New York > ------------------------- > > Date: Mon, 12 Sep 2005 13:24:50 -0400 > From: " Pat Fero <bp.fero@v...> via Co-Cure Moderators " > <co-cure-mod@L...> > Subject: NOT,ACT: Casey Fero ME/CFS Tissue and Blood Bank > > [Moderator's Note: The first part of this message comes from a flyer > created by the Wisconsin CFS Association. ly, this plain text > rendition doesn't do it justice. Please see the actual flyer at > http://www.co-cure.org/flyer_WI.pdf . > > [AOL: <a href= " http://www.co-cure.org/flyer_WI.pdf " >Here</a>] > ___________________________________________________________ > > From Pat Fero <bp.fero@v...>: > > > Casey Fero > ME/CFS Tissue and Blood Bank > > > On July 4, 2005, at the age of 23, Casey Fero died in his sleep. He > died of > unknown causes far too young. As a lasting tribute to Casey, the Fero > family, the Wisconsin Chronic Fatigue Syndrome Association, Inc., and > Mothers against Myalgic Encephalomyelitis, Inc. (MAME) will create the > first universal access blood and tissue bank for ME-CFS patients. > > Casey was diagnosed with CFS at age 9 and again at age 15. It caused > him to > feel weak, unable to think, and exhausted. He was plagued with > headaches, > and had major sleep disorder among a list of daily symptoms. Casey > persevered and did not want people to know his condition. Early on, he > knew > that medical help was unavailable and furthermore, he was met with > disbelief in the school and in the doctor's office. > > Sound medical research is the key to understanding the cause of these > disorders and to developing treatments that can help patients manage > daily > living. Many recognized illnesses, such as Alzheimer's, were poorly > understood before the creation of tissue and blood banks. Precious > gifts > of tissue and blood benefit all individuals and families living with > illness. > > A universal access specimen bank means that any scientist can ask for > samples provided that their study meets careful guidelines. The > Institute > for Viral Pathogenesis, a Medical Diagnostic Laboratory in Milwaukee, > will > house the freezer for specimens. <www.ivpresearch.org> Government > regulated > procedures are already in place to care for donated tissue and blood. > > Right now, we are fund raising to buy an additional freezer for storage > at > the facility. The cost is about $10,000. Will you help us? Your > contribution is tax deductible through the Wisconsin CFS Association, > Federal ID number 39 -1614649. You can send a check to the association > at > the address listed below. Please specify CASEY'S FUND. > > > Wisconsin CFS Association > 747 Lois Drive > Sun Prairie, WI 53590 > > You can also donate online at <www.wicfs-me.org.> These contributions > are > dedicated to Casey and will not be used for any other purpose. > _________________________________________________ > > > Please let it be known that as of September 8th, 2005 the Fero's have > confirmation of the following: > > The University of Wisconsin forensic pathologist found that our son > Casey > died of myocarditis, that is, he had heart damage, inflammation and the > tissue was full of viral infection. Casey also had old fibrosis, > indicating that the viral infection was not of a new onset. The > pathologist was " shocked " at this finding. I am not shocked > considering Casey's long standing CFS and the research in this area. > > My inability to do anything to have helped my son is almost > intolerable. BUT... we loved him, taught him to love and to learn and > to question. Casey had bull dog determination. In his mind, he had > overcome all illness and if he just worked harder he could do anything. > Interesting, how he died so well, with so much enthusiasm to live. > > PAT FERO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2005 Report Share Posted September 14, 2005 To me if Cheneys model were correct, you would expect to see lots (meaning like maybe 2%) of CFSers dying (at all ages) of heart failure. Nature does not overbid. Unless the body could assess its heart-injury-caused limitations VERY precisely, there would be many whose CFS was significantly stronger than what was necessary for their particular heart condition. If two mammals have the same heart condition, but one of them has a 20% more severe CFS " activity auto- restraint program " , that one will be at a major disadvantage relative to the other one. Therefore alleles causing ones CFS restraint program to be mild would be present in the population, and the optimum distribution of alleles toward which nature would tend would see a significant excess of our kind dying (at all sorts of ages) of heart failure... just as the optimum abundance of the sickle cell trait gene in malarial regions sees many people die of sickle cell anemia (when they are so unlucky as to get 2 copies of the gene; people with only one copy enjoy good immunity to malaria). This sort of thing makes Cheneys model unlikely to be true, IMO. However I dont know how to explain the tightness of the Peckerman data, which is something his model can do. And, who knows, maybe a significant excess of us are dying of heart failure at all ages and we dont know it (even if so, cardiovascular inflammation is one possible cause). Also, there are people who have near-complete remissions of CFS and as far as we know they dont tend to die of heart failure in excess. To me that indicates strongly that their illness is not a restraint program due to permanent heart damage. But one could still fit these data into a CHeney model where the heart damage is somehow reversable. Also, I just dont see why nature wouldnt find a way to slow down our activity without causing severe migraines, depression, brain fog, etc etc etc etc (you could go on and onnnn), which *VASTLY* impinge on fitness. Therefore the only way this model is even conceivable is if CFS were a quick and VERY dirty fix which had evolved very recently, which is not likely. Actually, I dont think even quick and dirty will save it. Can you imagine significant numbers of monkeys, or cave dudes and ladies, coming down with a median case of CFS and ever reproducing successfully again? THats what it would take for this to evolve this way. > Hmmm. This is kind of in line with Cheney's theory of CFS (the > myocarditis). > > Let me pause here for a commercial break: I hate most doctors. HATE > THEM. They were SURPRISED? They should've done everything possible to > help him. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2005 Report Share Posted September 14, 2005 I don't get all this discussion of " Cheney's model. " Didn't we find holes in it large enough to drive a truck through months ago? His interpretation of that " key article " was terrible, and all of his hypotheses were based on that. > > Hmmm. This is kind of in line with Cheney's theory of CFS (the > > myocarditis). > > > > Let me pause here for a commercial break: I hate most doctors. HATE > > THEM. They were SURPRISED? They should've done everything possible > to > > help him. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2005 Report Share Posted September 14, 2005 When someone is anti antibiotics he looses and pisses me off pretty quick.The second thing that annoys me is if you have a model of heart disease the simple procedure of getting fluid from the pericardial region of the heart and culturing for viruses and bacteria may be a smart idea, instead of selling stories, we have enough of those.Imagine the up and down benefits of antibiotics and they've never been explored by this man..Shame, shame, shame on him. Basically you never see too much outside of theories. how about a little more exploration. > > > Hmmm. This is kind of in line with Cheney's theory of CFS (the > > > myocarditis). > > > > > > Let me pause here for a commercial break: I hate most doctors. HATE > > > THEM. They were SURPRISED? They should've done everything possible > > to > > > help him. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 ME TOO ! my son is now 22 diagnosed with heart problems at birth VSD -although resolved - was also diagnosed with four separate epstein barr virus outbreaks between 1999-2001, it was as if his immune system didn't remember him having mono each time, and he would get the full blown version all over. He is in college takeing the slower route, am teaching him about immunity as we go along. When I talk to doctor's about " forfeited generation " I am always fearful that as this " lyme and other pathogenic " emergence unfolds it will affect two generations because so many young are affected who don't even realize it enough to say " Hey, I'm sick " That is the part that breaks my heart, the ones living in pain and fog who thing that is what normal life is. Or maybe those watching their mother and fathers batttling with this demon and therefore vow to not burden them further, therefore they keep quite and downplay their own suffering. ... I say if the doctor's look at a patient and decide that 50% of that patient's complaints are dramatics. Then a parent needs to look at their children and ADD to the intensity of their complaints and advocate to that extent. If we know that we are our own advocates and can see how our suffering is miniminalized, then surely we must know what our children are feeling. I have often wondered if God's plan wasn't realized for a reason that mothers and fathers should know this disesase first... purely for the reason that we would have lost even more children if this emerging disease had started with the children. Peg -- In infections , " jellybelly92008 " <herranenb@h...> wrote: > It not only saddens me, it scares the CRAP out of me. My son had his > first bought of pericarditis at the age of 23. He is almost 25 now > and has had what we think/thought is CFS since he was about 15. > Suspisions are high that it is actually Lyme at least in part, born > with it. He feels terrible, but with a new family he doesn't have > time to seek out treatment. I hate to scare him to death, but maybe > if I email this to him, he will taken action. > > > > > I think this is so important that I'm re-posting it here, in case > you > > didn't see it on Co-Cure today. > > > > Sue , > > Upstate New York > > ------------------------- > > > > Date: Mon, 12 Sep 2005 13:24:50 -0400 > > From: " Pat Fero <bp.fero@v...> via Co-Cure Moderators " > > <co-cure-mod@L...> > > Subject: NOT,ACT: Casey Fero ME/CFS Tissue and Blood Bank > > > > [Moderator's Note: The first part of this message comes from a > flyer > > created by the Wisconsin CFS Association. ly, this plain text > > rendition doesn't do it justice. Please see the actual flyer at > > http://www.co-cure.org/flyer_WI.pdf . > > > > [AOL: <a href= " http://www.co-cure.org/flyer_WI.pdf " >Here</a>] > > ___________________________________________________________ > > > > From Pat Fero <bp.fero@v...>: > > > > > > Casey Fero > > ME/CFS Tissue and Blood Bank > > > > > > On July 4, 2005, at the age of 23, Casey Fero died in his sleep. > He > > died of > > unknown causes far too young. As a lasting tribute to Casey, the > Fero > > family, the Wisconsin Chronic Fatigue Syndrome Association, Inc., > and > > Mothers against Myalgic Encephalomyelitis, Inc. (MAME) will create > the > > first universal access blood and tissue bank for ME-CFS patients. > > > > Casey was diagnosed with CFS at age 9 and again at age 15. It > caused > > him to > > feel weak, unable to think, and exhausted. He was plagued with > > headaches, > > and had major sleep disorder among a list of daily symptoms. Casey > > persevered and did not want people to know his condition. Early > on, he > > knew > > that medical help was unavailable and furthermore, he was met with > > disbelief in the school and in the doctor's office. > > > > Sound medical research is the key to understanding the cause of > these > > disorders and to developing treatments that can help patients > manage > > daily > > living. Many recognized illnesses, such as Alzheimer's, were > poorly > > understood before the creation of tissue and blood banks. > Precious > > gifts > > of tissue and blood benefit all individuals and families living > with > > illness. > > > > A universal access specimen bank means that any scientist can ask > for > > samples provided that their study meets careful guidelines. The > > Institute > > for Viral Pathogenesis, a Medical Diagnostic Laboratory in > Milwaukee, > > will > > house the freezer for specimens. <www.ivpresearch.org> Government > > regulated > > procedures are already in place to care for donated tissue and > blood. > > > > Right now, we are fund raising to buy an additional freezer for > storage > > at > > the facility. The cost is about $10,000. Will you help us? Your > > contribution is tax deductible through the Wisconsin CFS > Association, > > Federal ID number 39 -1614649. You can send a check to the > association > > at > > the address listed below. Please specify CASEY'S FUND. > > > > > > Wisconsin CFS Association > > 747 Lois Drive > > Sun Prairie, WI 53590 > > > > You can also donate online at <www.wicfs-me.org.> These > contributions > > are > > dedicated to Casey and will not be used for any other purpose. > > _________________________________________________ > > > > > > Please let it be known that as of September 8th, 2005 the Fero's > have > > confirmation of the following: > > > > The University of Wisconsin forensic pathologist found that our > son > > Casey > > died of myocarditis, that is, he had heart damage, inflammation > and the > > tissue was full of viral infection. Casey also had old fibrosis, > > indicating that the viral infection was not of a new onset. The > > pathologist was " shocked " at this finding. I am not shocked > > considering Casey's long standing CFS and the research in this > area. > > > > My inability to do anything to have helped my son is almost > > intolerable. BUT... we loved him, taught him to love and to learn > and > > to question. Casey had bull dog determination. In his mind, he had > > overcome all illness and if he just worked harder he could do > anything. > > Interesting, how he died so well, with so much enthusiasm to live. > > > > PAT FERO Quote Link to comment Share on other sites More sharing options...
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