[Fwd: Neurosurgeon's bad information to class]

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> Date: 2007/03/12 Mon AM 09:46:53 CDT

> To: <chiari >

> Subject: Neurosurgeon's bad information to class

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> Good morning group,

>

> Last week at a local " class " for medical, or clinical personnel, a

Neurosurgeon gave a talk on ACM. My son-in-law is a paramedic and attended,

relaying to me the jist of the discussion, one sided that it was. No one in the

class knew anything about Chiari, therefore the doctor was at liberty to give

his estimation of the condition as a situation with not much more signifigance

than the common cold. He stated that Chiari surgery--surgeries that he has

performed--is done on an outpatient basis!!! That patients who needed

decompression surgery were in for a relatively simple procedure which, obviously

according to him, involved the same risks of having your tonsils removed. I was

furious that this man gave to our community the idea that ACM is a common

disorder and having surgery for it is nothing to warrant any special precautions

or concerns. He even stated that there was absolutely no reason whatsoever for

patients to travel to have this surgery when it can be safely performed right

here by himself or his partner-- one of them. Funny that when my NS diagnosed

me, he recommended neither of his two partners (the doctor who gave the speech

is a partner). My NS no longer performs brain surgery due to the huge

malpractice premiums associated with brains.

> My local neurologist has several Chiari patients who have been

decompressed--most of them locally--and have not done well. Imagine that!!!

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> In any event, I am going to try and find out if there is a transcript of the

class, or at least minutes I can obtain before making any action. I would like

to at least " educate " this poor misguided doctor bozo about the serious

consequences which can occur with this " simple " brain surgery. I know it might

be impossible for him to learn anything from a " non-medical " underling, but one

feels the need to try and enlighten the public after such grossly inacurate

information.

> If any of you have any suggestions or comments I would love to hear them. I

know I can send him Dr. M's paper as well as some personal experiences

(anonymous of course) to let him know it is not as simple as he is claiming.

> I could surely use your help in this effort.

> Thanks

> Debby in TX

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