Guest guest Posted September 6, 2005 Report Share Posted September 6, 2005 I just came across the following, which claims the Mayo Clinic is a " world renowned center for porphyria research and will analyze your test results. Anyone have experience with this, or the doctors mentioned below? penny How can one be tested for Porphyrin Metabolism? MCS Referral & Resources offers a detailed testing protocol developed by Dr. Grace Ziem and Albert Donnay to assist doctors in evaluating disorders of porphyrin metabolism in chemically-injured patients. It contains this fact sheet as well as a laboratory request form, instructions for patients, diagnostic information for physicians, interpretive tables, and a long list of drugs and chemicals known to trigger symptoms of acute porphyrin disorders. We encourage patients to discuss this protocol with their physician(s) to see if it is appropriate for them. Any lab can collect the required blood, urine and stool specimens, but the protocol requires that these be sent for analysis to the Mayo Medical Laboratory, which is a world-renowned center for porphyria research. http://www.mcsrr.org/resources/articles/S5.html Quote Link to comment Share on other sites More sharing options...
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