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Advice from an Angel

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I don't know if this is allowed or not, but I will give it a shot. I

have a little Angel on my lap that has shed more light in this awful

disease than I think most neurologist or neurosurgeons can ever give.

Today was not a good for her or I. She got up this morning with a

really bad headache and neck pain. I gave her, her normal meds and back

to her bedroom she went. As the day went on I have checked on her off

and on to make sure she was OK, each time she would say " I still OK

Mommy " , then this is the heartbreaker, I went in about 6 pm and said

how ya doin? She looked at me with a questioned look on her face, face

was beet red, she said to me " mommy when God comes to see me, will I

get to say good bye to you and daddy " ? What do you say to a question

like that? As we talked she went on to tell me that God had made people

like her with Chiari's special. And when they do go to heaven there is

a special place just for them. So from this little angel to all you

Chiarians out there she says to tell you " you are ALL very special,and

God loves you differently because he made you his special ANGEL " signed

Boo

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