Re: OCDs and SSSS and Strep

[Guest guest]

Hi Kathy

Keep up the good work! Its nice to know you are bouncing ideas on

the group, one of them might hit the bullseye.

I am interested in your point regarding strep throat and OCD, SSSS.

I had terrible tonsils as a child and right through to into

adulthood. I used to get tonsilitus (sorry if thats spelt wrong) all

the time and really bad sore throats. I have a mild OCD and SSSS. I

had my tonsils removed about 2 years ago (im 31 now) and the surgeon

said they were real nasty looking things full of infection and he

was suprised i was not ill all the time with them. Since having them

removed i have not been ill once but still have the SSSS. Maybe the

damage was done. I remember having bad tonsilitus around the age i

started to notice eating noises etc. I was around 9 years old.

Like i said early it might be nothing but its good to shoot in the

dark as you put it, so keep up the good work.

Neil

>

> I know that there has been talk comparing OCDs to SSSS before. I

> was just reading about how many OCDs have been recently found to

be

> caused by Strep. The article that I was reading says that nearly

> all the patients say that the symptoms come on overnight...that

they

> went to bed fine and woke up the next morning with a OCD. Sounds

> like SSSS. It says that it caused a compulsive fear of AIDS in a

> little girl who saw a hypdermic needle while visiting a doctors

> office...that visit was for strep throat.

>

> It causes damage to the basal ganglia part of the brain...couldn't

> it possibly cause the damage that causes SSSS?

>

> They treated these kids with penicillin prophylaxis and most of

> them improved tremendously.

>

> The website is www.mentalhealth.com and it is " Obsessive

Compulsion

> and Tics Linked to Sore Throats. "

>

> Just think it's interesting.

>

> Kathy Howe

>

[Guest guest]

This is very interesting, my son who is 9 was a very

poorly baby was born 2 months premature and always had one infection

after another, his last quite bad infection which only came about

after blood tests being done was glandular fever.

also suffers with a tic disorder meeting the criteria for

tourettes and also shows signs of OCD which he is currently being

assessed for by a child health team along with his identical twin.

His ssss only came to light over Christmas last year although he had

displayed dislike to a few sounds at a younger age coinciding with

the start of the tics.

>

> I know that there has been talk comparing OCDs to SSSS before. I

> was just reading about how many OCDs have been recently found to be

> caused by Strep. The article that I was reading says that nearly

> all the patients say that the symptoms come on overnight...that

they

> went to bed fine and woke up the next morning with a OCD. Sounds

> like SSSS. It says that it caused a compulsive fear of AIDS in a

> little girl who saw a hypdermic needle while visiting a doctors

> office...that visit was for strep throat.

>

> It causes damage to the basal ganglia part of the brain...couldn't

> it possibly cause the damage that causes SSSS?

>

> They treated these kids with penicillin prophylaxis and most of

> them improved tremendously.

>

> The website is www.mentalhealth.com and it is " Obsessive

Compulsion

> and Tics Linked to Sore Throats. "

>

> Just think it's interesting.

>

> Kathy Howe

>

[Guest guest]

I find this whole concept very interesting. I bet it is somehow tied to

possibly even autism. I'm going to call the number on the website and ask

more questions.

Thanks,

Kathy Howe

Re: OCDs and SSSS and Strep

This is very interesting, my son who is 9 was a very

poorly baby was born 2 months premature and always had one infection

after another, his last quite bad infection which only came about

after blood tests being done was glandular fever.

also suffers with a tic disorder meeting the criteria for

tourettes and also shows signs of OCD which he is currently being

assessed for by a child health team along with his identical twin.

His ssss only came to light over Christmas last year although he had

displayed dislike to a few sounds at a younger age coinciding with

the start of the tics.

>

> I know that there has been talk comparing OCDs to SSSS before. I

> was just reading about how many OCDs have been recently found to be

> caused by Strep. The article that I was reading says that nearly

> all the patients say that the symptoms come on overnight...that

they

> went to bed fine and woke up the next morning with a OCD. Sounds

> like SSSS. It says that it caused a compulsive fear of AIDS in a

> little girl who saw a hypdermic needle while visiting a doctors

> office...that visit was for strep throat.

>

> It causes damage to the basal ganglia part of the brain...couldn't

> it possibly cause the damage that causes SSSS?

>

> They treated these kids with penicillin prophylaxis and most of

> them improved tremendously.

>

> The website is www.mentalhealth.com and it is " Obsessive

Compulsion

> and Tics Linked to Sore Throats. "

>

> Just think it's interesting.

>

> Kathy Howe

>

[Guest guest]

Thanks. I am going to call the number from the website tomorrow and ask

more questions. It looks like it's a land area code. I'm in Northern

Virginia which is very close to land. Maybe I can take Becca for a

consult.

Thanks for the input about your tonsilitus history. It just seems to

confirm this theory.

Kathy

Re: OCDs and SSSS and Strep

Hi Kathy

Keep up the good work! Its nice to know you are bouncing ideas on

the group, one of them might hit the bullseye.

I am interested in your point regarding strep throat and OCD, SSSS.

I had terrible tonsils as a child and right through to into

adulthood. I used to get tonsilitus (sorry if thats spelt wrong) all

the time and really bad sore throats. I have a mild OCD and SSSS. I

had my tonsils removed about 2 years ago (im 31 now) and the surgeon

said they were real nasty looking things full of infection and he

was suprised i was not ill all the time with them. Since having them

removed i have not been ill once but still have the SSSS. Maybe the

damage was done. I remember having bad tonsilitus around the age i

started to notice eating noises etc. I was around 9 years old.

Like i said early it might be nothing but its good to shoot in the

dark as you put it, so keep up the good work.

Neil

>

> I know that there has been talk comparing OCDs to SSSS before. I

> was just reading about how many OCDs have been recently found to

be

> caused by Strep. The article that I was reading says that nearly

> all the patients say that the symptoms come on overnight...that

they

> went to bed fine and woke up the next morning with a OCD. Sounds

> like SSSS. It says that it caused a compulsive fear of AIDS in a

> little girl who saw a hypdermic needle while visiting a doctors

> office...that visit was for strep throat.

>

> It causes damage to the basal ganglia part of the brain...couldn't

> it possibly cause the damage that causes SSSS?

>

> They treated these kids with penicillin prophylaxis and most of

> them improved tremendously.

>

> The website is www.mentalhealth.com and it is " Obsessive

Compulsion

> and Tics Linked to Sore Throats. "

>

> Just think it's interesting.

>

> Kathy Howe

>

[Guest guest]

Hi. I too always had soar throats throughout childhood and also had

strep around the same time that I developed my intolerances for

peoples " habits " . It makes sense.

Kim

> >

> > I know that there has been talk comparing OCDs to SSSS before. I

> > was just reading about how many OCDs have been recently found to

> be

> > caused by Strep. The article that I was reading says that nearly

> > all the patients say that the symptoms come on overnight...that

> they

> > went to bed fine and woke up the next morning with a OCD. Sounds

> > like SSSS. It says that it caused a compulsive fear of AIDS in a

> > little girl who saw a hypdermic needle while visiting a doctors

> > office...that visit was for strep throat.

> >

> > It causes damage to the basal ganglia part of the

brain...couldn't

> > it possibly cause the damage that causes SSSS?

> >

> > They treated these kids with penicillin prophylaxis and most of

> > them improved tremendously.

> >

> > The website is www.mentalhealth.com and it is " Obsessive

> Compulsion

> > and Tics Linked to Sore Throats. "

> >

> > Just think it's interesting.

> >

> > Kathy Howe

> >

>

[Guest guest]

My childhood was also filled brim full of sinus infections, and other

respiratory tract related infections. My adenoids were removed early

on, as a 4 or 5 year old. Not long after this my tonsils. They've tubed

my ears on several different occasions. And when I was 14.5

years old I had an ear infection that nearly cost me my life. This last

had me in the hospital for two weeks on an antibiotic drip. For the

first week they were really undecided on whether or not they'd have to

go in and surgically remove the infection, thus costing me my hearing

in that ear. When I was 28 I had my 75% upper and lower turbinates

removed in order to make room for AIR to go through my sinuses once and

for all.

To this day I have sore throat issues chronically, drainage problems,

dry eyes, popping clicking and what have you throughout my entire

facial structure that's sometimes audible to folks not in my head,

TMJ--in general just a mess.

Also been full of ticks throughout my childhood, most of them voice

related (like an "nnnnnt" sound or a sort of grunting pull within my

throat). But there have been a lot of non-voice related ticks. I have a

feeling that the massive pain I deal with in my throat on a daily basis

might be due to tissue damage caused by a neck tick that's been with me

most of my life. One of the things I've done over the years is to get a

handle on visible ticks, but this just moved them "in" to where they're

not so visible, but apparently more damaging to cartilage and such as

time goes on.

So, there's so more stuff.

kimpulsive wrote:

Hi. I too always had soar throats throughout childhood and also had strep around the same time that I developed my intolerances for peoples "habits". It makes sense. Kim

[Guest guest]

Hi, I'm new here... I was reading through this thread and I've never

had strep throat in my life, nor anything really mentioned throughout

here. I do believe I'm slightly more prone to sore throats than the

average person, but that's about it. And I do have mild OCD.

However, what caught my eye was the " like an " nnnnnt " sound or a sort

of grunting pull within my throat " written in the previous email. I've

been doing that since I was.. I'd say 12 or 13. Maybe younger. Any

ideas what that could be or why? When I was a kid and I started it, I

thought I was doing it to make sure I still had my voice because I

never really spoke. But it's continued to now, at 19, where I do it

subconsciously and I have NO idea why. I do believe it was around that

age that I developed my intolerance to people's habits though. I can't

really remember when it started because I feel like I've been annoyed

at everybody forever.

wrote:

>

> My childhood was also filled brim full of sinus infections, and

other respiratory tract related infections. My adenoids were removed

early on, as a 4 or 5 year old. Not long after this my tonsils.

They've tubed my ears on several different occasions. And when I was

14.5 years old I had an ear infection that nearly cost me my life.

This last had me in the hospital for two weeks on an antibiotic drip.

For the first week they were really undecided on whether or not they'd

have to go in and surgically remove the infection, thus costing me my

hearing in that ear. When I was 28 I had my 75% upper and lower

turbinates removed in order to make room for AIR to go through my

sinuses once and for all.

>

> To this day I have sore throat issues chronically, drainage

problems, dry eyes, popping clicking and what have you throughout my

entire facial structure that's sometimes audible to folks not in my

head, TMJ--in general just a mess.

>

> Also been full of ticks throughout my childhood, most of them

voice related (like an " nnnnnt " sound or a sort of grunting pull

within my throat). But there have been a lot of non-voice related

ticks. I have a feeling that the massive pain I deal with in my throat

on a daily basis might be due to tissue damage caused by a neck tick

that's been with me most of my life. One of the things I've done over

the years is to get a handle on visible ticks, but this just moved

them " in " to where they're not so visible, but apparently more

damaging to cartilage and such as time goes on.

>

> So, there's so more stuff.

>

>

> kimpulsive wrote:

>> Hi. I too always had soar throats throughout childhood and also had

>> strep around the same time that I developed my intolerances for

>> peoples " habits " . It makes sense.

>>

>> Kim

>>

[Guest guest]

Another? You mean I'm not the only one? lol

I believe these are referred to as "vocal ticks", which can be

related to things like Tourettes (if I've spelled that right). My

childhood self was practically a poster-boy for Tourettes. One case in

point: I would walk up to a gang of scary looking older kids and, when

I became nervous and intimidated, I'd involuntarily scream, "F-ck

You!!!!", giving them the finger, and then while they stood there in

shock trying to decide whether the half-pint was worth their anger, I'd

be bolting in fear of my life. Got beat up a lot.

My father was driven completely out of his mind by my vocal ticks,

and he was already very abusive, so you can imagine how that turned out.

Looking back I can't really be sure what caused them. Even today I'll

find myself having the same "feeling" or "urges" that would inspire the

ticks, and to this day I feel a little too comfortable making sounds

similar to them, like it could again become a habit that quickly. I put

those previous words in quotations because I don't know a word that

feels accurate to the actual experience, so those are approximates.

ilovesajj wrote:

However, what caught my eye was the "like an "nnnnnt" sound or a sort

of grunting pull within my throat" written in the previous email. I've

been doing that since I was.. I'd say 12 or 13. Maybe younger. Any

ideas what that could be or why? When I was a kid and I started it, I

thought I was doing it to make sure I still had my voice because I

never really spoke. But it's continued to now, at 19, where I do it

subconsciously and I have NO idea why. I do believe it was around that

age that I developed my intolerance to people's habits though. I can't

really remember when it started because I feel like I've been annoyed

at everybody forever.