Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 I bought that TeePee from a company called blue star in Montana, http://buffalo.craigslist.org/spo/773434454.html I couldnt find the company, I dont believe that they are in business anymore. I sold enough bows and arrows to buy this back in 1994. We camped in it until Ardis got so sick, in 2006, we never went up to the land where my pole are that year, and haven't been there since. That picture was taken at a mountain man rondevoux out her in the rocky mountains back in 2001. We did a lot of that historical re-enactment back then. I sure love that Teepee, but it is in need of a bit of repair now, as a bear tore a good sized hole in it the last time it was up. I used to set it up on my Cheyenne friend's land and leave it up all summer. Then, in the fall, my best friend and I would stay in it to hunt during the muzzleloading elk and deer season out here. There is no better way to spend the fall in the rocky mountains than in a teepee. Central air and heating, you know? http://robertwalkingeagle.googlepages.com/campingintheteepee HERE ARE SOME PICS, YOU CAN CLICK ON THEM TO ENLARGE. bOBBBY New member intro & questions > > > Hi everyone, my name is . I'm in Long Beach, So Cal. I found this > group whilst flailing around for answers. It's a real understatement > to say that my medicare-advantage- plan docs have been way less than > forthcoming with information, diagnosis, and prognosis-they' ve played > dumb & sandbagged me at every step. So, here's da short version of my > situation: I'm now 51, was a moderately heavy drinker most of adult > life. Had to pitch a fit to get doc sandbag to test me, but in 04 > found out I had HCV, (I'm proof, wear your raincoats people!) had > biopsy done: Stage 3. Stopped drinking. Insurance/IPA/ med group > refused to pay for pegasys treatment. > > My mind was still pretty clear back then. I got online & found the > Viser 2, research study. At that point, it was a phase 2 study > investigating Viramidine to treat HCV. Was included in that study & > was treated in 05 by the best med team I had ever met. I was very > fortunate, my treatment was successful!! ! I had thought my liver > problems were behind me. The HCV was then, and still is undetectable. > > However, in 07, I began feeling worse than ever, worse even than when > going through treatment. Got retested for C and several other things, > to no avail. > Spring of 08, switched insurance & docs. By that time, getting so > foggy I can't hardly complete a sentence, extreme hangover (no > booze), night/day sleep patterns reversed, often sleeping 16-18 hrs, > mostly two hrs at a time, can hardly move--80lb weight gain. New doc > couldn't figure it, med group wouldn't spring for an experienced > hepatologist, instead sent me to an in-house ID guy. > > I wrote down then my googled my symptoms, turns up as mild > Encephalopathy. > Well, DUH. Reluctant doc then tests for ammonia. 118 kinda high, put > me on Lactulose, got some sorta-okay relief for now. So, thank you if > you're patient enough to have read this far. I've a couple questions > if you all would be so kind as to indulge me. > > 1. Ballpark, roughly how long before the Lactulose quits working? > 2. On average, how long for the encephalopathy to run it's > course, to the point I'll lose independence and ability to function? > > I'm scared, but must face hard facts and prepare ASAP, because I live > alone and have no close friends, or family to depend upon. > Incidentally, I have a rather difficult time making new friends now > because I am late-deafened; I do have some limited hearing with a > cochlear implant. I would guess that without a support structure, I > won't even qualify for placement on transplant list. So, what to > do?? I apologize for this bein so wordy. Thanks in advance, for any > thoughts. > Peace & good wishes > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Walking Eagle.... Here is where I used to camp back when I felt better. Now I pretty much hang out at Camp Blue Recliner: :-) http://outdoors.webshots.com/album/56180638zpGppj From: jmcman57 <jmcman57yahoo (DOT) com> Subject: Re: New member intro & questions To: livercirrhosissuppo rtyahoogroups (DOT) com Date: Sunday, August 17, 2008, 1:56 AM You are fortunate to have a place for a garden to witness nature & help you to live in the now. peace & good thoughts > > From: Bob Aragon <robwalkingeagle@ ...> > Subject: Re: New member intro & questions > To: livercirrhosissuppo rtyahoogroups (DOT) com > Date: Saturday, August 16, 2008, 6:36 PM > > Hi, . I'm Bobby, a recovering alcoholic approaching my two year sobriety > date, suffering with end stage liver disease and some of it's fun fun fun > side effects. I have no ascites and only mild edema, but I do have elevated > ammonia, and hepatopulomnary syndrome from too much nitric oxide. I am very very > lactulose dependant, and I would caution you to not assume that it will stop > working. Lactulose is a strange substance, indeed. For some , it never works at > all. For others, they cant live long without it. I have found things that can > make it work better. I'm sure by now that you know that your colon is the > culprit here, so thinking along those lines, I have come to realize how and why > lactulose works for me. > WARNING WARNING WARNING- IF POOP,enemas AND COLONS BOTHER YOU, STOP READING > NOW!!! > When I get elevated ammonia, I can literally taste it in my mouth. Sometimes I > get a sweet flavor, and sometimes metallic. Other times, I get a solvent taste, > just like ammonia smells. So, since I take narcotic pain relievers, I have a > problem keeping things loose. If you don't have two or three loose stools a > day, the lactulose will not work or will not work as good. You need the two to > three loose stools a day. If I cant have loose stools for some reason, or just > don't get the urge to go, I use drastic measures. Now I am not recommending > you use drastic measures, but for me, I get very very sick if I have bowel > retention. Drastic measures can include other laxatives, fleet enema, > suppositories, etc. This is not very often, because I eat high fiber cereal as my > staple food. Three times a day, I am eating high fiber cereal. Instead of a > dessert at dinner with my cup of coffee, I will snack on a cup of granola, or > honeybunches of oats. I also take colase, > which is a stool sofener recommended by all of my doctors. My diet is low > protien, and that helps too. If I have nachos for instance, there is only > sprinkling of meat. I could put the meat in the salt shaker, because I dont use > the salt shaker anymore, and I only have a sprinkling of meat usually. Now, > occasionally I do go to Mac 's and have a hamburger, but that is once > a month. Thats when I taste the ammonia and mercaptans. Plus, I get all kinds of > mental goofiness. Hope this helps. BTW, so you have end stage liver disease? I > never got weather you do or not? Bobby, Moderator, Livercirrhosissuppo rt. > > > > New member intro & questions > > > Hi everyone, my name is . I'm in Long Beach, So Cal. I found this > group whilst flailing around for answers. It's a real understatement > to say that my medicare-advantage- plan docs have been way less than > forthcoming with information, diagnosis, and prognosis-they' ve played > dumb & sandbagged me at every step. So, here's da short version of my > situation: I'm now 51, was a moderately heavy drinker most of adult > life. Had to pitch a fit to get doc sandbag to test me, but in 04 > found out I had HCV, (I'm proof, wear your raincoats people!) had > biopsy done: Stage 3. Stopped drinking. Insurance/IPA/ med group > refused to pay for pegasys treatment. > > My mind was still pretty clear back then. I got online & found the > Viser 2, research study. At that point, it was a phase 2 study > investigating Viramidine to treat HCV. Was included in that study & > was treated in 05 by the best med team I had ever met. I was very > fortunate, my treatment was successful!! ! I had thought my liver > problems were behind me. The HCV was then, and still is undetectable. > > However, in 07, I began feeling worse than ever, worse even than when > going through treatment. Got retested for C and several other things, > to no avail. > Spring of 08, switched insurance & docs. By that time, getting so > foggy I can't hardly complete a sentence, extreme hangover (no > booze), night/day sleep patterns reversed, often sleeping 16-18 hrs, > mostly two hrs at a time, can hardly move--80lb weight gain. New doc > couldn't figure it, med group wouldn't spring for an experienced > hepatologist, instead sent me to an in-house ID guy. > > I wrote down then my googled my symptoms, turns up as mild > Encephalopathy. > Well, DUH. Reluctant doc then tests for ammonia. 118 kinda high, put > me on Lactulose, got some sorta-okay relief for now. So, thank you if > you're patient enough to have read this far. I've a couple questions > if you all would be so kind as to indulge me. > > 1. Ballpark, roughly how long before the Lactulose quits working? > 2. On average, how long for the encephalopathy to run it's > course, to the point I'll lose independence and ability to function? > > I'm scared, but must face hard facts and prepare ASAP, because I live > alone and have no close friends, or family to depend upon. > Incidentally, I have a rather difficult time making new friends now > because I am late-deafened; I do have some limited hearing with a > cochlear implant. I would guess that without a support structure, I > won't even qualify for placement on transplant list. So, what to > do?? I apologize for this bein so wordy. Thanks in advance, for any > thoughts. > Peace & good wishes > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Wow, very nice. Looks good to me. New member intro & questions > > > Hi everyone, my name is . I'm in Long Beach, So Cal. I found this > group whilst flailing around for answers. It's a real understatement > to say that my medicare-advantage- plan docs have been way less than > forthcoming with information, diagnosis, and prognosis-they' ve played > dumb & sandbagged me at every step. So, here's da short version of my > situation: I'm now 51, was a moderately heavy drinker most of adult > life. Had to pitch a fit to get doc sandbag to test me, but in 04 > found out I had HCV, (I'm proof, wear your raincoats people!) had > biopsy done: Stage 3. Stopped drinking. Insurance/IPA/ med group > refused to pay for pegasys treatment. > > My mind was still pretty clear back then. I got online & found the > Viser 2, research study. At that point, it was a phase 2 study > investigating Viramidine to treat HCV. Was included in that study & > was treated in 05 by the best med team I had ever met. I was very > fortunate, my treatment was successful!! ! I had thought my liver > problems were behind me. The HCV was then, and still is undetectable. > > However, in 07, I began feeling worse than ever, worse even than when > going through treatment. Got retested for C and several other things, > to no avail. > Spring of 08, switched insurance & docs. By that time, getting so > foggy I can't hardly complete a sentence, extreme hangover (no > booze), night/day sleep patterns reversed, often sleeping 16-18 hrs, > mostly two hrs at a time, can hardly move--80lb weight gain. New doc > couldn't figure it, med group wouldn't spring for an experienced > hepatologist, instead sent me to an in-house ID guy. > > I wrote down then my googled my symptoms, turns up as mild > Encephalopathy. > Well, DUH. Reluctant doc then tests for ammonia. 118 kinda high, put > me on Lactulose, got some sorta-okay relief for now. So, thank you if > you're patient enough to have read this far. I've a couple questions > if you all would be so kind as to indulge me. > > 1. Ballpark, roughly how long before the Lactulose quits working? > 2. On average, how long for the encephalopathy to run it's > course, to the point I'll lose independence and ability to function? > > I'm scared, but must face hard facts and prepare ASAP, because I live > alone and have no close friends, or family to depend upon. > Incidentally, I have a rather difficult time making new friends now > because I am late-deafened; I do have some limited hearing with a > cochlear implant. I would guess that without a support structure, I > won't even qualify for placement on transplant list. So, what to > do?? I apologize for this bein so wordy. Thanks in advance, for any > thoughts. > Peace & good wishes > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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