Re: chlamydia, ReA - Flagyl

[Guest guest]

Gail, I've got a bottle of Flagyl sitting here and have been afraid

to start it. That's because I've been feeling so well and have been

so functional that I don't want to give that up yet. I want to enjoy

feeling good, not immediately hit myself with something that's going

to make me feel lousy again. :-)

Of course, I am going to start it soon. I want to. It would be

awesome if that was what put me over the edge into really conquering

these bugs.

I just need to get myself into a position where I can have some down

time if it hits really hard. I've been trying to take care of my

current responsiblities, plus so many things that I've let slide

(over several years). A lot of catching up to do. The good news is,

I'm not experiencing that typical high energy and then crash cycle

that I and many pwcs have done most of our lives (I think that

Myhill article on the heart/CFS connection has a good theory for

explaining the cause of CFS crashes). I'm much more even keel right

now. However, I'm not exerting myself hugely....taking it easy.

Don't really have a choice. I'm severely deconditioned. I've been

trying to jump rope a little, since benefitting from mild hiking

earlier this summer, but it's difficult. I've actually found it

easier to pretend to jump rope and go through the motions, because I

don't have the stamina to jump very high or deal with tripping on

the rope, so pretend jumping is working just as well, and will help

me work up to a real jump rope. :-) Also good for my shoulders. Tony

actually gave me the idea. It get's lymphatic stuff moving, helps

build bone, is aerobic etc. And you can work up as you get stronger.

It's a start. Plus, I " m in physical therapy for my shoulders where

they're spending a lot of time making me do bicep curls, etc. Which

I hate. They keep telling me they're going to get me " buffed out " ,

and I pretty much want to slap them. :-)

I could care less about buff, I want to be 100% well! It does seem

way more possible now than it did 6 months ago. So onward and

upward, and that means cracking open the Flagyl. :-)

penny

> I thought it was the Flagyl that was th real kicker for Cpn. I am

doing the Stratton protocol but having a hard time with Flagy. Bad

arthritis flare when I use it.

> Gail

>

[Guest guest]

Yes, I know I am in the same position. Have been

entertaining houseguests recently, before that

traveled to Atlanta and about to travel again so like

you I need the down time in case I crash. Also have

cocktail of supplements that are supposed to help me

detox the endotoxins. I have so many that it is hard

for a brainfogged person to keep track let alone

remember to take them. I know they help when I use

them.

DH brought home a palm pilot for me yesterday so I am

going to see if I can. I counted 17 meds that I have

to

keep track of besides the supplements. Yikes. I need a

case manager.

--- penny <pennyhoule@...> wrote:

> Gail, I've got a bottle of Flagyl sitting here and

> have been afraid

> to start it. That's because I've been feeling so

> well and have been

> so functional that I don't want to give that up yet.

> I want to enjoy

> feeling good, not immediately hit myself with

> something that's going

> to make me feel lousy again. :-)

>

> Of course, I am going to start it soon. I want to.

> It would be

> awesome if that was what put me over the edge into

> really conquering

> these bugs.

>

> I just need to get myself into a position where I

> can have some down

> time if it hits really hard. I've been trying to

> take care of my

> current responsiblities, plus so many things that

> I've let slide

> (over several years). A lot of catching up to do.

> The good news is,

> I'm not experiencing that typical high energy and

> then crash cycle

> that I and many pwcs have done most of our lives (I

> think that

> Myhill article on the heart/CFS connection has a

> good theory for

> explaining the cause of CFS crashes). I'm much more

> even keel right

> now. However, I'm not exerting myself

> hugely....taking it easy.

> Don't really have a choice. I'm severely

> deconditioned. I've been

> trying to jump rope a little, since benefitting from

> mild hiking

> earlier this summer, but it's difficult. I've

> actually found it

> easier to pretend to jump rope and go through the

> motions, because I

> don't have the stamina to jump very high or deal

> with tripping on

> the rope, so pretend jumping is working just as

> well, and will help

> me work up to a real jump rope. :-) Also good for my

> shoulders. Tony

> actually gave me the idea. It get's lymphatic stuff

> moving, helps

> build bone, is aerobic etc. And you can work up as

> you get stronger.

> It's a start. Plus, I " m in physical therapy for my

> shoulders where

> they're spending a lot of time making me do bicep

> curls, etc. Which

> I hate. They keep telling me they're going to get me

> " buffed out " ,

> and I pretty much want to slap them. :-)

>

> I could care less about buff, I want to be 100%

> well! It does seem

> way more possible now than it did 6 months ago. So

> onward and

> upward, and that means cracking open the Flagyl. :-)

>

> penny

>

>

>

>

> > I thought it was the Flagyl that was th real

> kicker for Cpn. I am

> doing the Stratton protocol but having a hard time

> with Flagy. Bad

> arthritis flare when I use it.

> > Gail

> >

>

>

>

__________________________________________________

[Guest guest]

Yeah, I know what you mean. If I won the lottery I'd hire a personal

assistant just for giving me all my meds and supplements. (And

probably a cook. :-)

Not sure what possessed me (maybe the weekend with not major

commitments ahead/), but I popped a flagyl today. I've been

nervously anticipating some nasty reaction. So far, so good. Maybe

I'll work my way up, just do a little at a time? I don't relaly know

what I " m talking about. I guess I just wanted to see if I noticed

any immediate kind of reaction.

penny

> Yes, I know I am in the same position. Have been

> entertaining houseguests recently, before that

> traveled to Atlanta and about to travel again so like

> you I need the down time in case I crash. Also have

> cocktail of supplements that are supposed to help me

> detox the endotoxins. I have so many that it is hard

> for a brainfogged person to keep track let alone

> remember to take them. I know they help when I use

> them.

>

> DH brought home a palm pilot for me yesterday so I am

> going to see if I can. I counted 17 meds that I have

> to

> keep track of besides the supplements. Yikes. I need a

> case manager.

>

[Guest guest]

I took it for several days before the big reaction

hit. I had pain in my knees that sent me crying over

the phone to my Dr. Unbelievable pain. I guess I have

Cpn infection in my knees. Had to take prednisone for

several days to calm that inflammation down.

--- penny <pennyhoule@...> wrote:

> Yeah, I know what you mean. If I won the lottery I'd

> hire a personal

> assistant just for giving me all my meds and

> supplements. (And

> probably a cook. :-)

>

> Not sure what possessed me (maybe the weekend with

> not major

> commitments ahead/), but I popped a flagyl today.

> I've been

> nervously anticipating some nasty reaction. So far,

> so good. Maybe

> I'll work my way up, just do a little at a time? I

> don't relaly know

> what I " m talking about. I guess I just wanted to see

> if I noticed

> any immediate kind of reaction.

>

> penny

>

>

>

> > Yes, I know I am in the same position. Have been

> > entertaining houseguests recently, before that

> > traveled to Atlanta and about to travel again so

> like

> > you I need the down time in case I crash. Also

> have

> > cocktail of supplements that are supposed to help

> me

> > detox the endotoxins. I have so many that it is

> hard

> > for a brainfogged person to keep track let alone

> > remember to take them. I know they help when I use

> > them.

> >

> > DH brought home a palm pilot for me yesterday so I

> am

> > going to see if I can. I counted 17 meds that I

> have

> > to

> > keep track of besides the supplements. Yikes. I

> need a

> > case manager.

> >

>

>

>

__________________________________________________

[Guest guest]

Penny:

IMO- if you can metabolize it OK- Flagyl doesn't have as bad of

side effects as Cipro.. Cipro's the one that has the tendon side

effects.. but for some reason Flagyl is lumped in with it..

I'm not saying it's side effect free.. none are.

Are you still taking the other abx too?

Barb

> > Yes, I know I am in the same position. Have been

> > entertaining houseguests recently, before that

> > traveled to Atlanta and about to travel again so like

> > you I need the down time in case I crash. Also have

> > cocktail of supplements that are supposed to help me

> > detox the endotoxins. I have so many that it is hard

> > for a brainfogged person to keep track let alone

> > remember to take them. I know they help when I use

> > them.

> >

> > DH brought home a palm pilot for me yesterday so I am

> > going to see if I can. I counted 17 meds that I have

> > to

> > keep track of besides the supplements. Yikes. I need a

> > case manager.

> >

[Guest guest]

Well, I thought I was doing okay, but definitely noticed a few

twinges, in the knees as a matter of fact, and then my neck.

Definitely feeling some tightness in the neck this a.m. I think I'm

going to hold off on it for a little while, until I get a number of

important things wrapped up.

penny

> > > Yes, I know I am in the same position. Have been

> > > entertaining houseguests recently, before that

> > > traveled to Atlanta and about to travel again so

> > like

> > > you I need the down time in case I crash. Also

> > have

> > > cocktail of supplements that are supposed to help

> > me

> > > detox the endotoxins. I have so many that it is

> > hard

> > > for a brainfogged person to keep track let alone

> > > remember to take them. I know they help when I use

> > > them.

> > >

> > > DH brought home a palm pilot for me yesterday so I

> > am

> > > going to see if I can. I counted 17 meds that I

> > have

> > > to

> > > keep track of besides the supplements. Yikes. I

> > need a

> > > case manager.

> > >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

It's weird, I never felt anything but fantastic on Cipro (while it

lasted). But of course later I had tendon problems. Coincidence? I

don't know. Fortunately today, my tendons are completely back to

normal but it took close to a year on the Benicar before that

happened (and I definitely attribute the improvement to the Benicar).

I've been trying to remember back when I took Flagyl before. I was

traipsing around Europe, so must have been handling it okay,

although I was so much younger. And I did have that horrible stiff

neck for the first 3 days where I couldn't turn my head at all and

no amount of NSAIDs helped.

penny

> > > Yes, I know I am in the same position. Have been

> > > entertaining houseguests recently, before that

> > > traveled to Atlanta and about to travel again so like

> > > you I need the down time in case I crash. Also have

> > > cocktail of supplements that are supposed to help me

> > > detox the endotoxins. I have so many that it is hard

> > > for a brainfogged person to keep track let alone

> > > remember to take them. I know they help when I use

> > > them.

> > >

> > > DH brought home a palm pilot for me yesterday so I am

> > > going to see if I can. I counted 17 meds that I have

> > > to

> > > keep track of besides the supplements. Yikes. I need a

> > > case manager.

> > >

[Guest guest]

Barb, forgot to answer your other questions. Yes, I'm on at least 2g

of penicillin per day, plus zithromax. Plus Diflucan again (got the

prescript approved finally). Plus a bunch of Tibetan medicine. Plus

some supplements recommended from the SpectraCell tests! Arghhh. I

need a time manager! I don't want to change anything though, because I

feel the best I've felt in years. I think I just need to get this

heart thing straightened out, and I'm very hopeful once again that

this disease can be beat!

penny

" Barb Peck " wrote:

> > Are you still taking the other abx too?

> >

> > Barb