Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Hi ! I am new to this group and I am wondering the following: 1. I have the noise problem (eating, breathing, snoring, sniffing, throat clearing) but I also have a milder problem with foot wiggling, and rocking chairs. The motion drives me crazy. I will just about wreck if someone is in the passenger wiggling their foot within my peripreal vision. AGGGGGHHHH. Anyone else ? 2. I had night seizures a few years ago and therefore a MRI of my brain. The MRI showed abnormal white matter. The neurologist said it was " nothing " . Has anyone else had an MRI of their brain ? I recently started wondering (before I found the 4s website) if I was autistic because of my noise problem. 3. Is 4s grouped with autism ? Like sensory Integration Dysfunction is ? 4. Is there anyone out there with 4s who had a wonderful childhood? (before the 4s). It seems like all the stories I read, the trapped child subjected to the horrible parent starts to be bothered by his or her eating sounds. Is there someone who had a relativley good childhood and started to be bothered none the less ? 5. Ok here is my weirdest question. You know the gum popping thing ? If I am out in public and a stranger starts popping gum really loud, sometimes it makes me feel strange but in a good way. Kind of like when someone touches the back or your neck or lifts your hair. I do feel kind of frozen though, like I have to listen to it. It has to be a stranger though. If someone I know does it it will just drive me crazy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 My daughter had an MRI and they said everything looked normal. Who knows--maybe there was a white matter that they just thought was nothing. I don't want to boast, but has had a wonderful childhood. We live in suburban Virginia in a very nice home. She has two wonderful loving sisters and loving parents. We are a very close family. She has many neighborhood friends who are all like family to us. This syndrome just came out of left field and bit us all in the butt! I think that many of the sufferers on this site either a) coincidentally had a bad childhood and also got stuck with 4s, or got treated poorly by their families because of the 4s and remember having a bad childhood due to people reacting to their 4s. Although there are also many on this site who had good childhoods inspite of their 4s because they were lucky to have loving families who were able to overcome and cope with it. But speaking as a mom of a sufferer, I sympathize with all parents of sufferers because it is very difficult. It is so hard accepting that this can be happening to their child--it just seems so absurd! Even though I know it is a very real condition that can't help, I get so frustrated when she becomes evoked by someone's breathing or chewing. I try not to show it, and I'm not mad at her, I'm mad at this stupid condition that makes no sense! It's very tough on the family. But we are lucky to have a website that we can look to for support. I don't think bad childhoods caused this syndrome--I believe it is purely physical at its core and after dealing with it, sufferers over time develop many psychological overlays brought on by trying to cope. As far as being in the realm of autism, I would have to disagree. If you lump this in with autism, then you'd pretty much need to lump all neurological disorders as being autism. I work in autistic classrooms and I see basically 2 types of autistic children: The ones who are severly handicapped--they are in their own world and need help doing basic functions. And then I see the highly functional who are severly socially handicapped. They are extremely intelligent, but are almost robotic in socializing--they don't really get or care about other people's emotions or feelings--almost like Spock. I don't think that most of the people on this site would fall into either of these categories. They are just normal people who are trying to live their lives with a bizarre condition which hopefully some day will be figured out. I think that hopefully some answers are on the horizon. At least now someone is looking towards the horizon! I'm glad you found the site! Kathy Howe -----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of v_m_fenSent: Thursday, January 04, 2007 12:55 PMTo: Soundsensitivity Subject: emAnother newbie Hi !I am new to this group and I am wondering the following:1. I have the noise problem (eating, breathing, snoring, sniffing, throat clearing) but I also have a milder problem with foot wiggling, and rocking chairs. The motion drives me crazy. I will just about wreck if someone is in the passenger wiggling their foot within my peripreal vision. AGGGGGHHHH. Anyone else ?2. I had night seizures a few years ago and therefore a MRI of my brain. The MRI showed abnormal white matter. The neurologist said it was "nothing". Has anyone else had an MRI of their brain ? I recently started wondering (before I found the 4s website) if I was autistic because of my noise problem.3. Is 4s grouped with autism ? Like sensory Integration Dysfunction is ?4. Is there anyone out there with 4s who had a wonderful childhood? (before the 4s). It seems like all the stories I read, the trapped child subjected to the horrible parent starts to be bothered by his or her eating sounds. Is there someone who had a relativley good childhood and started to be bothered none the less ?5. Ok here is my weirdest question. You know the gum popping thing ? If I am out in public and a stranger starts popping gum really loud, sometimes it makes me feel strange but in a good way. Kind of like when someone touches the back or your neck or lifts your hair. I do feel kind of frozen though, like I have to listen to it. It has to be a stranger though. If someone I know does it it will just drive me crazy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Hi and welcome! I recently joined this group myself. I joined out of a gnawing sense that what I have experienced most of my life and tried to deny was a problem bigger than me. The problem has been most closely associated with my mother. I now have a fiancee however and it has become an issue again. She is pretty understanding and a great person regardless. I know it hurts her feelings so I am making a really big effort to learn more about ssss and any remedies or treatments available. With regard to your questions I don't experience any issues with foot movements etc, except that when my mother eats. Even when I can't hear her watching her eat drives my friggin insane! She is VERY prim and proper when she eats and holds her hands and fingers at odd attitudes when she eats like she's doing a puppet show with them. I actually have an uncle who made this observation. The way she chews is over-exaggerated and she CONSTANTLY talks with her mouth full, OY! I have noticed that she waits until she has a mouthful of food to speak - I get so angry I feel lightheaded. What is interesting is that other people have pointed out these idiosyncrasies to me as well as I mentioned before though it does not trigger the anger and rage that I experience. I have felt a huge sense of relief at least when they tell me because I don't feel so crazy or paranoid that I am the only one who notices. Interesting you bring up autism because I have looked at symptoms of autism and some of them come frighteningly close - like sensory overload, etc. I seem to manage my life pretty well and have been successful with school and relationships mostly. Does make you wonder if there are degrees of Autism and perhaps we are the lowest level?? Asperger's Syndrome are familiar as well but the most severe symptoms don't seem to apply either. I have never had a brain scan though I'm sure I would light it up! I had a very good childhood up until the age of about 7. My family moved from a neighborhood that had a lot of great kids to play with to one that had very few with a little bastard that lived next door who threw my lunch down the street first day at the bus stop. I think that stress coupled with my parents having a rocky relationship at that point sent me over the ssss edge. My parents are still married, happily, I still have ssss, go figure. Who knows, it may have come on regardless though I see patterns of people on this site who have the onset due to some stress factor. One last thing gum poppers or popcorn sucking people at the movies have NO place in my world - period! Welcome to the wonderful, wacky and amusing world of the 4s'rs. ciao, r v_m_fen wrote: Hi !I am new to this group and I am wondering the following:1. I have the noise problem (eating, breathing, snoring, sniffing, throat clearing) but I also have a milder problem with foot wiggling, and rocking chairs. The motion drives me crazy. I will just about wreck if someone is in the passenger wiggling their foot within my peripreal vision. AGGGGGHHHH. Anyone else ?2. I had night seizures a few years ago and therefore a MRI of my brain. The MRI showed abnormal white matter. The neurologist said it was "nothing". Has anyone else had an MRI of their brain ? I recently started wondering (before I found the 4s website) if I was autistic because of my noise problem.3. Is 4s grouped with autism ? Like sensory Integration Dysfunction is ?4. Is there anyone out there with 4s who had a wonderful childhood? (before the 4s). It seems like all the stories I read, the trapped child subjected to the horrible parent starts to be bothered by his or her eating sounds. Is there someone who had a relativley good childhood and started to be bothered none the less ?5. Ok here is my weirdest question. You know the gum popping thing ? If I am out in public and a stranger starts popping gum really loud, sometimes it makes me feel strange but in a good way. Kind of like when someone touches the back or your neck or lifts your hair. I do feel kind of frozen though, like I have to listen to it. It has to be a stranger though. If someone I know does it it will just drive me crazy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 I am new to this group and I am wondering the following: 1. I have the noise problem (eating, breathing, snoring, sniffing, throat clearing) but I also have a milder problem with foot wiggling, and rocking chairs. The motion drives me crazy. I will just about wreck if someone is in the passenger wiggling their foot within my peripreal vision. AGGGGGHHHH. Anyone else ? Don't have a problem with that as such, but occasionally have issues with the rise and fall of the chest when people breathe. 2. I had night seizures a few years ago and therefore a MRI of my brain. The MRI showed abnormal white matter. The neurologist said it was " nothing " . Has anyone else had an MRI of their brain ? I recently started wondering (before I found the 4s website) if I was autistic because of my noise problem. I don't think I had an MRI, but I did have a brain scan - it was about 20 years ago so a lot less sophisticated than they would be now. Wasn't really told anything about it, but I don't think that there was anything to report. 3. Is 4s grouped with autism ? Like sensory Integration Dysfunction is ? If you look in the archives somewhere I have posted about a train of thought that one neurologist has put forward that a lot of these disorders are linked. The list that was put forward was ADD, ADHD, Tourettes, Autism, Dyspraxia, Dyslexia and OCD and I know that the person concerned has looked into hyperacusis (not exactly 4S I know, but the more people we have looking into similar conditions the better). Try http://www.tinsleyhouseclinic.co.uk/ for the website of the guy looking into this. 4. Is there anyone out there with 4s who had a wonderful childhood? (before the 4s). It seems like all the stories I read, the trapped child subjected to the horrible parent starts to be bothered by his or her eating sounds. Is there someone who had a relativley good childhood and started to be bothered none the less ? I can't say that there was anything particularly bad about my childhood. It was fairly average - until the 4S took hold in my adolescence. 5. Ok here is my weirdest question. You know the gum popping thing ? If I am out in public and a stranger starts popping gum really loud, sometimes it makes me feel strange but in a good way. Kind of like when someone touches the back or your neck or lifts your hair. I do feel kind of frozen though, like I have to listen to it. It has to be a stranger though. If someone I know does it it will just drive me crazy. Sorry - can't relate to that at all. Gum should be banned! _________________________________________________________________ MSN Hotmail is evolving – check out the new Windows Live Mail http://ideas.live.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 I can't stand to even watch my mother eat either. She hunches over, takes huge mouthfuls, and her lips are always wrinkled and puckery and greasy. Luckily she finishes her plate first. Unluckily, she always waits until every is done eating and then takes seconds. She likes to keep every at the table as long as possible (I mean hours). She told my husband I always eat and leave the table immediately. I don't think she's ever thought of things like mabye my ancient arthritic inlaws would be more comfortable on the couch. She has done daily exercises since I was about 5. She lays on the floor and does leg lifts and SLAPS her face to improve circulation and keep her skin looking young. She's finally figured out to quit slapping within my ear distance or I'll pick on her for punishing herself. To her credit her very thickened old shiney skin does look younger than her sisters. Plus why won't she close the door when she brushes her teeth ? Yuk ! Unfortunatley I can't stand to hear my husband floss his teeth (he uses this weird device and it " plucks " ) and brush his teeth either. When he rocks in a rocking chair, his rocking drives me crazy also. I keep blaming it on the fact that he rocks fast and never stops ... but it deosn't bother anyone else. One more thing, I can't stand the angle at which my husband holds his ice cream sandwhich. I feel so weird admitting all this ... and I wouldn't wish this on anyone, but it's oddly comforting knowing that I'm not alone. Sometimes I just have to shut my eyes. Oh and I've convinced my husband to sneak desserts when I'm not looking. An added benefit is I don't feel compelled to eat one also ! Good Luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 I used the word 'amusing' in reference to 4S in my last posting and hope people don't take offense to that or think I take this condition lightly. I suffer from from the condition mightily. This is SUCH an absurd condition I have to laugh sometimes. Perhaps I laugh so that I don't go completely insane. I chuckled at the thought of someone exercising and slapping their face to stir the circulation and how annoying that might be. Rock on!v_m_fen wrote: I can't stand to even watch my mother eat either. She hunches over, takes huge mouthfuls, and her lips are always wrinkled and puckery and greasy. Luckily she finishes her plate first. Unluckily, she always waits until every is done eating and then takes seconds. She likes to keep every at the table as long as possible (I mean hours). She told my husband I always eat and leave the table immediately. I don't think she's ever thought of things like mabye my ancient arthritic inlaws would be more comfortable on the couch.She has done daily exercises since I was about 5. She lays on the floor and does leg lifts and SLAPS her face to improve circulation and keep her skin looking young. She's finally figured out to quit slapping within my ear distance or I'll pick on her for punishing herself. To her credit her very thickened old shiney skin does look younger than her sisters.Plus why won't she close the door when she brushes her teeth ? Yuk !Unfortunatley I can't stand to hear my husband floss his teeth (he uses this weird device and it "plucks") and brush his teeth either.When he rocks in a rocking chair, his rocking drives me crazy also. I keep blaming it on the fact that he rocks fast and never stops ... but it deosn't bother anyone else.One more thing, I can't stand the angle at which my husband holds his ice cream sandwhich.I feel so weird admitting all this ... and I wouldn't wish this on anyone, but it's oddly comforting knowing that I'm not alone.Sometimes I just have to shut my eyes. Oh and I've convinced my husband to sneak desserts when I'm not looking. An added benefit is I don't feel compelled to eat one also !Good Luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Sometimes I feel like it is getting worse! BUT- last night there was a note left on our door. It said, hi, I am so and so's father and I will be living in my daughters apartment next door for a few months. I never play my music or tv loud and if the walls are very thin then please just knock on the wall so that I will know to turn the volume down. WELL, I NEVER IN MY LIFE SAW SUCH A WONDERFUL LETTER!! His daughter and her boyfriend were very loud and I was always knocking on the wall when they were living there. Of course they must have told the father BUT IT SOUNDS LIKE HE JUST MIGHT BE ONE OF US!! I will leave him a cheery thank you note today!! PHEW, wondering who might be moving in next door was stressful but for now all is good. pia > >Reply-To: Soundsensitivity >To: Soundsensitivity >Subject: Re: Re: emAnother newbie >Date: Fri, 5 Jan 2007 11:00:51 -0800 (PST) > >I used the word 'amusing' in reference to 4S in my last posting and hope >people don't take offense to that or think I take this condition lightly. I >suffer from from the condition mightily. > > This is SUCH an absurd condition I have to laugh sometimes. Perhaps I >laugh so that I don't go completely insane. I chuckled at the thought of >someone exercising and slapping their face to stir the circulation and how >annoying that might be. > > Rock on! > >v_m_fen wrote: > I can't stand to even watch my mother eat either. She hunches >over, >takes huge mouthfuls, and her lips are always wrinkled and puckery >and greasy. Luckily she finishes her plate first. Unluckily, she >always waits until every is done eating and then takes seconds. She >likes to keep every at the table as long as possible (I mean hours). >She told my husband I always eat and leave the table immediately. I >don't think she's ever thought of things like mabye my ancient >arthritic inlaws would be more comfortable on the couch. > >She has done daily exercises since I was about 5. She lays on the >floor and does leg lifts and SLAPS her face to improve circulation >and keep her skin looking young. She's finally figured out to quit >slapping within my ear distance or I'll pick on her for punishing >herself. To her credit her very thickened old shiney skin does look >younger than her sisters. > >Plus why won't she close the door when she brushes her teeth ? Yuk ! > >Unfortunatley I can't stand to hear my husband floss his teeth (he >uses this weird device and it " plucks " ) and brush his teeth either. > >When he rocks in a rocking chair, his rocking drives me crazy also. >I keep blaming it on the fact that he rocks fast and never stops ... >but it deosn't bother anyone else. > >One more thing, I can't stand the angle at which my husband holds >his ice cream sandwhich. > >I feel so weird admitting all this ... and I wouldn't wish this on >anyone, but it's oddly comforting knowing that I'm not alone. > >Sometimes I just have to shut my eyes. Oh and I've convinced my >husband to sneak desserts when I'm not looking. An added benefit is >I don't feel compelled to eat one also ! > >Good Luck > > > > _________________________________________________________________ Get FREE Web site and company branded e-mail from Microsoft Office Live http://clk.atdmt.com/MRT/go/mcrssaub0050001411mrt/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 I'm new to this group so I don't want to get myself in trouble ... but I've had a few chuckles myself. I'm still in shock that there are other people like me out there .. I hadn't even heard of hyperacusis (?) let alone 4S until a few days ago. I just knew I had a " secret " eating sounds problem since about 8 years of age. However, now everyone will definitely hate me .... I am mostly sensitive to certain " trigger " people and do ok with strangers. I have been occasionally bothered by popcorn at the theatre but not for years now. I'm one of the crunchers ! There. I've said it. In my defense I'm usually at a matinee with 7000 wild noisy children including my own so I doubt there are too many " sensitive " people there. Reading other people's accounts of " offensive " behavior (especially when it is something that doesn't happen to be one of my triggers) is giving me a better idea of how all of the non-sensitives must see this ! In conclusion, I agree. Sometimes you just have to laugh. Especially when you are alone in a quiet room without someones chewing sounds making you want to kill them right now ! > > I used the word 'amusing' in reference to 4S in my last posting and hope people don't take offense to that or think I take this condition lightly. I suffer from from the condition mightily. > > This is SUCH an absurd condition I have to laugh sometimes. Perhaps I laugh so that I don't go completely insane. I chuckled at the thought of someone exercising and slapping their face to stir the circulation and how annoying that might be. > > Rock on! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Hello! I also am a mother of a ten yr old daughter who suffers from ssss. I have to say she has had a great childhood. She was an only child for 9 of those years and has had the opportunity to be involved in many activities. She was a fertility baby and wanted so very badly that she is just a tiny bit spoiled. Anyway, as Kathy said, this just came out of left field. I also agree that it is not necessarily related to autism. One of my best friends has an autistic son. I do believe that it has to do somewhat with OCD. Also I believe that it has to do with being gifted. I have read a lot about overexcitabilities and intensities in gifted children and feel this could be part of it. There's still a missing link that needs to be found. I can't wait for this syndrome to become known in the medical field so I don't have to explain it over and over again. It breaks my heart when she says to me that she isn't normal. I hope this makes sense, it's very late and I'm tired. Thanks for listening. Robin __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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