Nelly - reminicsing

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Nelly-

Have you mixed any particular abx with either Tini or Flagyl

that you thought worked well?

Flagyl's in the future for me I'm sure... I ws leary about it becuase

of the peripheral neuropthy side effects (which I had plenty of in

the past without any helps from drugs).

But now that the load is down, I think it would be beneficial for me.

Did you pulse it - or every day? Dose?

Barb

> Penny,

>

> >CFSExperimental was the only group that was broad minded enough to

> >entertain the notion (although people could get pretty riled up

> >there too, considering more people believed in viral infections

>

> I have been on CFSExperimental since it was created (in fact even

before that, when it was owned by Clements, does anyone

remember, in the 90s?) and I ALWAYS talked about bacterial infections

and abx. I don't think I was ever yelled off from other forums for

mentioning bacterial infections nor was I told I didn't have CFS.

>

> I became ill in late 81 (mainly gut symptoms with low-grade fever

weight loss and fatigue) and a few months later developed a very nice

EM Lyme rash. Doctors in Sydney-Australia made me look such a fool

for insisting it was infectious that I nearly lost it. Not only was I

desperately ill but I had to fight single-handedly against the whole

entire world!

>

> The 80s were one long and absolutely incredible struggle on all

fronts having lost absolutely everything-health, job, husband,

friends, family (I don't think I am forgetting anything:)). I had the

most incredible struggle with the %à§! & medical ç%!!!!ssss to get abx

and stay alive.

>

> BTW, Penny, Flagyl (metronidazole) was the abx that REALLY made a

difference back then, it made me feel cured. I remain convinced that

if I had been able to stay on it for a decent period at the time, I

would have had a good chance of a complete recovery.

>

> And all these years down the track, and after many other adventures

including many further tick-bites, Tinidazole is still the abx that

can get me vertical and functioning within hours of taking it. When I

am really, really bad, that's what I reach for (again a few days ago).

>

> I don't think you should feel terrified of Flagyl, although it can

give me really bad headaches (just about everything that works does

after a few days anyway), it is an absolute must for me. It saved my

present husband's brain too on many occasions, and he has got to keep

his job as I certainly can't work for a living.

>

> Nelly