Re: Totally cool

[Guest guest]

The dose for Fosamax is quite low - 5 to 10 mg perday to save bone.

I think the dosages he's talking about here are really realy high..

Barb

> Look what I found:

>

> http://www.bentham.org/cdtid1-1/docampo/docampoMS.htm

[Guest guest]

I'm still in a research phase and a bit confused by how many people

cannot get over babesia.

I didn't look at dosages. I wrote him, tho, just now.

> > Look what I found:

> >

> > http://www.bentham.org/cdtid1-1/docampo/docampoMS.htm

[Guest guest]

Barb

I've had experience with biophosphonates, (fosomax) I do know a doctor

that uses pamidronate at high long term dosage for bone cancers. He

also uses clodromax which I also feel is a great drug done IV for

helping our conditions, they seem to make the environment inhospitable

to bacteria- I found bacteria don't grow near both of these drugs.

Theres adverse problems believed to come from the drugs, but for me

the jury is still out. I think if you have bone cancer you've got a

lot more going on than anyone is able to know about.

tony

> > Look what I found:

> >

> > http://www.bentham.org/cdtid1-1/docampo/docampoMS.htm

[Guest guest]

Tony--they seem to make the environment inhospitable for

infection....can you tell me more?

Howinteresting that you'd chime in here.

ly, high dose short term--what I'm thinking is to create a

program of aggressive rotation. A little bit like what Barb did with

the lyme/abx. Hit 'em, stop a little bit, hit 'em with something

else. Its one thing to be on high dose for months, another for a week

or two.

You'd have to do it that way as you don't know about mixing stuff and

what happens, its not studied.

> > > Look what I found:

> > >

> > > http://www.bentham.org/cdtid1-1/docampo/docampoMS.htm

[Guest guest]

Oh yeah, the biophosphonate Pamidronate was a huge beacon of hope

for those of us with chronic jaw infections for a while. And some

people took the extremely expensive injections. One person was

helped immensely when combining pamidronate with her abx therapy, so

we were really excited, but unfortunately it turns out that there's

high risk for the bone being damaged way more than it's helped

(don't remember the whole story, possibly some effect that destroys

bone and blood flow), and when we saw this occur in some people,

most of us backed WAY off that miracle cure.

Interestingly, my doctor friend, before his death from this

infection, was researching the idea that the pamidronate injections

made the body so intensely alkaline that the bacteria could not

live. Unfortunately, it sounds like the bone suffers as well.

penny

> > > > Look what I found:

> > > >

> > > > http://www.bentham.org/cdtid1-1/docampo/docampoMS.htm

[Guest guest]

Jill

I get pretty disillusioned by the attack stop, start, double back

approaches. When you have a mosnter infection bigger than

tuberculosis (the next best big infection) treat it appropriately.

You see when they treat tuberculosis they don't go for a remission

of sorts, they go for the whole hog permanent fix.They also don't

tease anything cause they know there's ahigh failure rate for people

that stop start therapy- aka russia.

I would think if you went under 'black light' that could illuminate

your bacteria beneath your skin and in your joints, you would make

this years hanging ornament in new yorks new years day parade.How

can you make progress on bugs that when the right conditions are met

multiply every 20 minutes.

The biophosphanates have a strong tendency to reach the center of

bone and possably stop bacterial replication right at the heart of

the problem.I do know of a couple of ladies that have done only a

couple of IV's and they have faired very well, another friend didn't

do OK because she relapsed and is now scared because she dug out

these necrosis cases being caused by biphosphonates, I'm more of

the opinion the actual necrosis is already a problem that hasn't

been discovered.I would not hesitate to do IV clodromax, as orally

it's useless.You could possably make a huge recovery on several IV's

of clodromax, as opposed to pamidronate which is a lesser known

quantity.Fortunately my health has taken another very strong upswing

and my inflammations- age and smoking related are almost non

existent.

> > > > Look what I found:

> > > >

> > > > http://www.bentham.org/cdtid1-1/docampo/docampoMS.htm

[Guest guest]

Tony, I think this is a great point. That perhaps the drugs are just

uncovering the existing necrosis, not creating it. I actually think

this is a fair bet. I think most of us who are sick are walking

around with dead and rotting bone.

This same thing could probably also be said for a lot of drug " side

effects " when taken by someone who has a pre-existing bug that

reacts badly to that bug. I.E. heart, or thyroid problems caused by

a drug, when it's really the bugs that are doing the damage.

I still think pandindromate and biophosphanates may be risky but

definitely worth investigating. I'm just not willing to jump into

something with potentially irreversible side effects, without a lot

of evidence.. I already did that, out of desperation, with the jaw

surgery and it made things worse. As you know, I'm pretty cautious

today with any treatment that can't be halted with minimal lingering

effects.

penny

> > > > > Look what I found:

> > > > >

> > > > > http://www.bentham.org/cdtid1-1/docampo/docampoMS.htm

[Guest guest]

Tony,

I whent to my doc's for a zithro prescription and he called my LLMD today.

They say take 250 twice daily of zithro five days on five days off. i don't agree!

I've been on zithro for 2 weeks now and whatever it is it works for me at 1000 md daily period and every day !!!

I don't think 5oo mg is enough.

still no luck with the sinuses but still am spitting out the crystals. Seeing a new doc in the fall for infcetions so he'll look at them

Menatime, should I go see a dentist? I made an appointment. My gums are real swollen and there's white lines on them. my mouth tissue won't stop pealing off and whenever I drink something, this is growse, my mouth sheds...

I asked my doc to get a cat scan for me. He refused! I am devastated right now. Unbelievable!Lynn

[Guest guest]

Tony, then maybe the doses of mepron/zithromax are too low, who knows.

Too many are on long courses and then relapse.

[Guest guest]

I heard on lymenet that at last yr's ILADS a group discussed this and

decided to increase (double, I think) the atovaquone doses. Might be

true. I personally have no knowledge respecting the safety of such a

dose vs the regular dose.

> Tony, then maybe the doses of mepron/zithromax are too low, who

knows.

> Too many are on long courses and then relapse.

[Guest guest]

I don't want to see a dentist but It's a waiting game for me right now.

LLMD in the fall and no doc .. remember I got denied the right to a cat sca today, ridiculous!!!!!!

I don't know what it is with zithro. For some reason it's the first drug that's activating things!

Biaxin and ketek did nothing for me. But zithro has some properties that really make my infcetion respond.

My gums are soo sore and the tissue's peeling off my mouth and inflammed. My gums feel like steep mountains in my mouth. all new stuff just like the crystals, really think zithro's pushing somehitng.

Lynn

[Guest guest]

Penny

Remember they are used for cancer and the prognosis doesn't look

good for the patient when these drugs are used.I still don't

discount them especially the clodromax IV as it's used extensively

with good success. The pamidronate is a little more of an unknown

quantity.If your life is completely screwed with these types of

infections and as you know thyroid cancer, serious heart disease,

and a few other things make up a huge part of these ilnesses even

though they haven't been diagnosed clodromax is a small risk as the

disease progression isn't sweet.

> > > > > > Look what I found:

> > > > > >

> > > > > > http://www.bentham.org/cdtid1-1/docampo/docampoMS.htm

[Guest guest]

Lynn

The toxins will ulcerate your tissue, actually if you're not

carefull when eating you can rip your mouth internally, easily.That

burning is the problem, this is a toxin which makes everything in

it's path swiss cheese.Zithro is OK, but a little more of a

fashiolnable bull shit drug as I'm finding most are just made to

give relief without ever completely fixing the problems.You need

serious drugs for serious problems the pat me on the head and see

you next week drugs are just crap IMO.clarithromycin, zithromax,

roxithromycin are not really fixing anything serious. clarithromycin

is a very very good sinus drug but builds resistance vbefore it does

your sinuses any good.So your just lead down the garden path with

most of modern medicine.Juts so frustrating these common drugs.I

doubt that there's anyone that fixed a sinus problem with biaxin,

there's millions that got short term relief with a bigger problem

down the road.

--- In infections , bunnylyz@a...

wrote:

> Tony,

> I whent to my doc's for a zithro prescription and he called my

LLMD today.

> They say take 250 twice daily of zithro five days on five days

off. i don't

> agree!

> I've been on zithro for 2 weeks now and whatever it is it works

for me at

> 1000 md daily period and every day !!!

> I don't think 5oo mg is enough.

> still no luck with the sinuses but still am spitting out the

crystals.

> Seeing a new doc in the fall for infcetions so he'll look at them

> Menatime, should I go see a dentist? I made an appointment. My

gums are real

> swollen and there's white lines on them. my mouth tissue won't

stop pealing

> off and whenever I drink something, this is growse, my mouth

sheds...

> I asked my doc to get a cat scan for me. He refused! I am

devastated right

> now. Unbelievable!Lynn

[Guest guest]

Should you see a dentist? They are the pople that gave you this

ilness. They are also people that deal everyday, day in, day out

with tooth infections and have no idea what is causing them.I'm very

troubled seeing anyone that is pathetic at there job.I don't think

they've helped anyone I know with these diseases, they create

hundreds yearly in there practises though.

--- In infections , bunnylyz@a...

wrote:

> Tony,

> I whent to my doc's for a zithro prescription and he called my

LLMD today.

> They say take 250 twice daily of zithro five days on five days

off. i don't

> agree!

> I've been on zithro for 2 weeks now and whatever it is it works

for me at

> 1000 md daily period and every day !!!

> I don't think 5oo mg is enough.

> still no luck with the sinuses but still am spitting out the

crystals.

> Seeing a new doc in the fall for infcetions so he'll look at them

> Menatime, should I go see a dentist? I made an appointment. My

gums are real

> swollen and there's white lines on them. my mouth tissue won't

stop pealing

> off and whenever I drink something, this is growse, my mouth

sheds...

> I asked my doc to get a cat scan for me. He refused! I am

devastated right

> now. Unbelievable!Lynn

[Guest guest]

and Jill

I feel going after the babs is a mistake at any doses. You would light

up like a christmas tree if you could black light your infection. Why

I say this is I recall an incident at a nightclub with blacklight and

the state of my hands was incredable compared to the regular folk.When

you light up your infection (if it's 100% possable) you can see how

fruitless chasing what your chasing can become.my hands alway's had a

huge amount of inflammation after my ilness struck hard. There's also

a tendency for people with severe sepsis to have hands and feet

amputated due to overwhelming infection.

> > Tony, then maybe the doses of mepron/zithromax are too low, who

> knows.

> > Too many are on long courses and then relapse.

[Guest guest]

I try and teach you how to deal with these people.I know exactly

what to do to get anything out of my doctor, the fact that you

failed tells me your not paying attention to the fine points of

dealing with these bogons.Who went with you to this appointment? Did

you start of well before you got let down. I would have your mother

and father staring down on the doctor and let him try and refuse

another simple request.Lynn you've basically got to get your head

around who and what your dealing with and put a strtegy in place

that makes all your efforts worthwhile. Even if you have to visit

his office with 20 relatives.You just got to get your head around

what's required.You see last week you couldn't get cultured then you

could.

tony

--- In infections , bunnylyz@a...

wrote:

> I don't want to see a dentist but It's a waiting game for me

right now.

> LLMD in the fall and no doc .. remember I got denied the right to

a cat sca

> today, ridiculous!!!!!!

> I don't know what it is with zithro. For some reason it's the

first drug

> that's activating things!

> Biaxin and ketek did nothing for me. But zithro has some

properties that

> really make my infcetion respond.

> My gums are soo sore and the tissue's peeling off my mouth and

inflammed. My

> gums feel like steep mountains in my mouth. all new stuff just

like the

> crystals, really think zithro's pushing somehitng.

> Lynn

[Guest guest]

When I really want a test out of doctors, I

1) bring them the scientific literature that is relevant

2) put things in such a way that if they refused to test and I

turned out to have the condition it would be cause for malpractice

(don't say it directly tho but, they get the meaning)

But Rx is another thing. Mepron costs $800/month...

Tony, I realize that every single bad case of lyme I know of has

both babesia AND lyme, when they finally figure it out. It ain't

great having parasites in your red blood cells. I'm just not sure

how I'm going to treat it. I kind of like the idea that riboflavin

kills gametocytes. A researcher/pathologist in this area emailed me

today that he has looked for years for babesia gametocytes and can't

find them. But there has to be some reason people tkae tons of drugs

for months and can't clear babesia. I don't know...I like to

research and figure out my own way.

I could imagine a clinic based on your way Tony . People would get

a ton of abx changing based on daily cultures, some biophosphonates

IV, dialysis, etc. It's not a bad program...

> > I don't want to see a dentist but It's a waiting game for me

> right now.

> > LLMD in the fall and no doc .. remember I got denied the right

to

> a cat sca

> > today, ridiculous!!!!!!

> > I don't know what it is with zithro. For some reason it's the

> first drug

> > that's activating things!

> > Biaxin and ketek did nothing for me. But zithro has some

> properties that

> > really make my infcetion respond.

> > My gums are soo sore and the tissue's peeling off my mouth and

> inflammed. My

> > gums feel like steep mountains in my mouth. all new stuff just

> like the

> > crystals, really think zithro's pushing somehitng.

> > Lynn

[Guest guest]

Jill

My problem is that I read real people and real; stories and find

something is not adding up, treatments are just poor band aid

measures. I suppose this is the beauty of the internet..I would also

look at getting my blood smears to show me my babesia as opposed to

fish and chip tests.I did have a few communictions with tarello and

he does find bacterial zoo's in people's blood, he is also

comfortably diagnosing babesia.His informative blood smear will get

you going in the right directionIMO.

You see there's nothing like viewing your blood at 1000 times to see

what is going on in real life testing.All the tests your subjected

to are full of false and misleading information that keeps the

patient in the dark unfortunately.If you had leprosy for egs. you'd

have a false positive for syphillis.

Myself I am fortunate to have nice pictures of my red blood cells

being parasitised by cocci. If there was ehrlichia or babesia

present there's no way they could hide.

Spiked red blood cells, damaged red blood cells all have a story to

tell as well- TOXIN RELATED DAMAGE.(IMO)There's just something about

the approach towards getting a diagnosis from the back door labs

that are frowned on by most of medicine medicine.I sort of got away

from a lot of this as reading people's experiences left a sour

taste. Fir egs. great smokies will diagnose enterobacter clocae with

everyones stool sample,. yet no one gets any benefit from the

treatment.

Jill your still subject to out there tests, pay attention to what is

happening to all the real people with similar tests and how

fruitless they often are.

I think- this is my message to you.

> > > I don't want to see a dentist but It's a waiting game for me

> > right now.

> > > LLMD in the fall and no doc .. remember I got denied the right

> to

> > a cat sca

> > > today, ridiculous!!!!!!

> > > I don't know what it is with zithro. For some reason it's the

> > first drug

> > > that's activating things!

> > > Biaxin and ketek did nothing for me. But zithro has some

> > properties that

> > > really make my infcetion respond.

> > > My gums are soo sore and the tissue's peeling off my mouth and

> > inflammed. My

> > > gums feel like steep mountains in my mouth. all new stuff just

> > like the

> > > crystals, really think zithro's pushing somehitng.

> > > Lynn

[Guest guest]

Exactly why I did not take the USA standard treatments (for Babs).

Barb

> Tony, then maybe the doses of mepron/zithromax are too low, who

knows.

> Too many are on long courses and then relapse.

[Guest guest]

Tony you do make a lot of sense, everything you say. I just don't

know if I have the wherewithal right now to do what you did, which is

get training and cultures and do my own microscopy. Can you give me

references to reach Tarello again?

BTW, the speed and suddenness with which I became ill after that

tickbite, and the stories I hear about coinfection with

babesia/borrelia, do make me think in combo they are pretty nasty. I

really would love to do a GOOD parasite smear, not some stupid Quest

Lab thing.

> > > > I don't want to see a dentist but It's a waiting game for me

> > > right now.

> > > > LLMD in the fall and no doc .. remember I got denied the

right

> > to

> > > a cat sca

> > > > today, ridiculous!!!!!!

> > > > I don't know what it is with zithro. For some reason it's the

> > > first drug

> > > > that's activating things!

> > > > Biaxin and ketek did nothing for me. But zithro has some

> > > properties that

> > > > really make my infcetion respond.

> > > > My gums are soo sore and the tissue's peeling off my mouth

and

> > > inflammed. My

> > > > gums feel like steep mountains in my mouth. all new stuff

just

> > > like the

> > > > crystals, really think zithro's pushing somehitng.

> > > > Lynn

[Guest guest]

Barb, you took tetracycline on the assumption babs nests in the liver

like malaria.

I'm making the assumptoin there is a gametocyte form. Who knows.

I fear my riamet may not reach me. I hope it does but it should be

here already. How depressing.

> > Tony, then maybe the doses of mepron/zithromax are too low, who

> knows.

> > Too many are on long courses and then relapse.

[Guest guest]

Yes-

Artemos plus Doxy for Babs.

..but then again who knows maybe I really had uncomplicated Malaria,

as it appears thru recent WB research for Malaria bands 36, 37 kDa may

be expressed during a certain life-cycle of the malaria parasite (which

are the bands I tested positive for on my WB for Babs in 2002.

B

> > > Tony, then maybe the doses of mepron/zithromax are too low, who

> > knows.

> > > Too many are on long courses and then relapse.

[Guest guest]

Jill

You just need to chase him down on the net ifhe gives his email

details. The guy will give you an honest view of what he see's.He

sent me pictures with arrows,which is abov and beyond what anyone

else can do for you. Just get the full facts of what he thinks he

fixes animals,there's no half way with walter. Most people are happy

with temporary or relief.only to relapse often worse.I wouldn't

recommend you worry about learning the whole gammit as it still

takes a trained eye looking over the shoulder to give you guidance

which made me send my smeras off to walter. He charges 100 bucks and

tells you how much of a percentage that your blood cells are

compromised.It's basically all good with someone using this

powerfull tool in all aspects of vetenary medicine.He goes out into

the wilds of italy with his new girlfriend who works as a vet and

they just screen wild animals for parasites and the like.

> > > > > I don't want to see a dentist but It's a waiting game for

me

> > > > right now.

> > > > > LLMD in the fall and no doc .. remember I got denied the

> right

> > > to

> > > > a cat sca

> > > > > today, ridiculous!!!!!!

> > > > > I don't know what it is with zithro. For some reason it's

the

> > > > first drug

> > > > > that's activating things!

> > > > > Biaxin and ketek did nothing for me. But zithro has some

> > > > properties that

> > > > > really make my infcetion respond.

> > > > > My gums are soo sore and the tissue's peeling off my mouth

> and

> > > > inflammed. My

> > > > > gums feel like steep mountains in my mouth. all new stuff

> just

> > > > like the

> > > > > crystals, really think zithro's pushing somehitng.

> > > > > Lynn

[Guest guest]

Tony,

just got my mom. Wish I could have a bus full of relatives!

[Guest guest]

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Hi,

I have so many health concerns that I don't get around to reading this list very often but today's posts really got my attention. I had two teeth extracted about 8 months ago and afterwards a bump came up on the jaw just under where one tooth was pulled. This dentist says that it is nothing and said he could do a little incision and remove what ever it is but I haven't been back to him. He made me a partial plate and it really serves the purpose but he wants to remove the bump so he can make me a $1,000 partial plate.

But I had a bone scan a few months ago ( like I said I have a lot of health problems). It is really something, I literally lite up like a Christmas tree, it is full body, even your toes.

The report was good except that it said that there was dental disease on my left jaw and of course that is where the bump is. There is a dentist about 60 miles away that removes silver fillings and has a machine to diagnose problems but expensive.

Where can I real more about what I should do?

Can only take 2 antibiotics one being Augmention, which I take every day for my headaches, think I have Lyme.

Thanks,

H.

Message: 14 Date: Tue, 16 Aug 2005 03:17:57 -0000 From: "dumbaussie2000" <dumbaussie2000@...>Subject: Re: Totally coolShould you see a dentist? They are the pople that gave you this ilness. They are also people that deal everyday, day in, day out with tooth infections and have no idea what is causing them.I'm very troubled seeing anyone that is pathetic at there job.I don't think they've helped anyone I know with these diseases, they create hundreds yearly in there practises though.

--------- Re: New page on possible model for Adrenal connection to CFIDS.

Excellent to know -- and as a FYI, EBV is a APS infection (i.e.

known to trigger coagulation).

As a reminder to others: it's a model, not reality --- something that

describes the general cases, not specific cases.

> Tony, then maybe the doses of mepron/zithromax are too low, who

knows.

> Too many are on long courses and then relapse.

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