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Another upper and lower GI story.......my husband, Ed, as you know has EGDs

frequently. He always ...without fail....gets VERY romantic in the recovery

area. He says funny things, talks about my hair,pinches or pats my bottom, asks

me to get into the bed...you get the picture....AND he's never quiet about it!!!

The nurses just laugh and Ed never remembers anything about it! Oh my

goodness!!!

                                       

                                    Love,Jill

 

We don't remember days, we remember moments.

Life is not measured by the breaths we take,but by the moments that take our

breath away.

Subject: Re: Diane

To: livercirrhosissupport

Date: Tuesday, October 14, 2008, 7:25 PM

happy to hear about your day sorry for the ulcers though. i had to laugh at my

husband when he had an upper and lower last year. we could not wake him....tried

and tried...i finally told him thru his fog that they were charging us more

money if he did not wake up...he responded to this...he was so funny... he got

his pant half way on and had to be laid back down the doc came in to check on

him we were laughing the nurse and i ...not my husband. but he was so hard to

wake.

sandra

Diane

Diane,

So glad to hear things look good, now to fix that ulcer. Will be praying for

you!

How is Terry today?

Love,

Pamela

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Jill, that is so funny!  I say so because the sedation has that effect on Terry

as well!  Dang, if I'd only known a few years ago, I'd have kept some of that

stuff around all the time!!! LOL!!!!

Hugs.............

Diane

Diane

Diane,

So glad to hear things look good, now to fix that ulcer. Will be praying for

you!

How is Terry today?

Love,

Pamela

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Isn't that the truth!!

                                       

                                    Love,Jill

 

We don't remember days, we remember moments.

Life is not measured by the breaths we take,but by the moments that take our

breath away.

From: sandra <sgonz48yahoo (DOT) com>

Subject: Re: Diane

To: livercirrhosissuppo rtyahoogroups (DOT) com

Date: Tuesday, October 14, 2008, 7:25 PM

happy to hear about your day sorry for the ulcers though. i had to laugh at my

husband when he had an upper and lower last year. we could not wake him....tried

and tried...i finally told him thru his fog that they were charging us more

money if he did not wake up...he responded to this...he was so funny... he got

his pant half way on and had to be laid back down the doc came in to check on

him we were laughing the nurse and i ...not my husband. but he was so hard to

wake.

sandra

Diane

Diane,

So glad to hear things look good, now to fix that ulcer. Will be praying for

you!

How is Terry today?

Love,

Pamela

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i try to get secrets out of him when he is sedated. he never gives them

up....hes a tough nut to crack

Diane

Diane,

So glad to hear things look good, now to fix that ulcer. Will be praying for

you!

How is Terry today?

Love,

Pamela

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FOFLOL!!!!  I've given up on the secrets thing.  I figure if I don't know it by

now, I'm better off just to be in the dark!  Terry's has always been a

friendly/flirty type and he's hilarious when he's medicated.  After his

accident, they had him doped up on morphine for the pain in the trauma assesment

area.  My sister and I were there with him.  He rolled his head toward my sister

and said " Stand up " , so she stood up.  He said " Turn around " , so she turned

around.  He then just so matter-of-factly said " You know, you'd be a good lookin

woman if you'd do something about that hair " !  My sister and I all the nurses

around just laughed hilariouly!!!!

Then, they brought in a man who had been in an accident and who was high on

cocaine.  He kept hollering out " I want my cocaine!  Who got my cocaine?! " . 

Terry was a smoker at that time and had been asking for a cigarette which, of

course, he couldn't have.  When heard this dude raving about his cocaine, he

looked at me and said " I just want to know why he can get cocaine and I can't

get a cigarette?! " !  Again, everyone in earshot just rolled laughing!!!!

It's sad, he was in so much pain, but he was DARN FUNNY!!!!!!

Hugs.

Diane

Diane

Diane,

So glad to hear things look good, now to fix that ulcer. Will be praying for

you!

How is Terry today?

Love,

Pamela

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Hey Barbie.  had a disease, I can't remember it's name, but it's one of

the more rare causes of cirrhosis.  He has been sick with differnt things for a

while, but he was diagnosed with end stage liver disease this last April.  He

did not persue transplant due to other health issues.  Bobby, I think, knows the

name of the disease.  Help me out here, Bobby?!  Anyway, has

deteriorated very quickly.  More so than anyone else I can think of at this

time.

Don't get lost in the sink!!!!

Hugs........

Diane

 

diane

hey girl NAP TIMEEEEE LAAAAAAAAAA lol lol lol.i was wondering and dint

want to ask nacy and i am not trying to pry but i am curios about

richard ,like what caused his cirrohsis how long has he been sick? i

look at their photos and it makes me so sad the one of their hands ate

me up.how long did it take him to be this sick ?? see here i go again

fretting trying to calculate what time we have ,did richard do

treatment or get a new liver? theres so many thing bobby and i want to

do, swim with the dolphins in the grand bahama islands, travel,go to

rome lol, some of our wish list will of course always be out of our

grasp, but i want to really start making plans to do some of our things

we have always planned on doing someday,and i need ammo for when and if

he decides hes not gonna do treatment lol,i can bribe him with our next

adventure lol.anyways if you arent comfortable with answering i

understand, its really non of my business i was just curious, much love

barby who is headed into her SCARY kitchen to do 2 days worth of dishes

ugggggggggggg

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  • 1 month later...

,

I stand corrected.  This is a definite change in Medicare laws.  Of course, we

haven't had to deal with this for over 8 years because both of us have been

disabled for over 8 years and I have been disabled for over 10 years.  This can

be good for you or it can work against you, depending on how good your plan

is.  If Medicare is primary, you are not required pay more than the Medicare

approved amount, which is always much lower than the charges submitted.  That

is for Parts A and B.  Part D, as I have said earlier, is quite different. 

Thank you for informing me about this and helping me stay up-to-date on Medicare

laws.  I appreciate it.

Hugs..........

Diane

________________________________

To: livercirrhosissupport

Sent: Wednesday, November 19, 2008 5:16:36 AM

Subject: diane

How Your Bills Get Paid If You Have Other Health Insurance

When you have other insurance, there are rules that decide whether Medicare or

your other insurance pays first. The insurance that pays first is called the

“primary payer†and pays up to the limits of its coverage. The one that pays

second, called the “secondary payer,†only pays if it covers any of the

costs left uncovered by the primary coverage.

If your other coverage is from an employer or union group health plan, these

rules apply:

If you are â– â– retired, Medicare pays first.

 

    ( If your coverage is based on your or a family member’s ■■current

employment, who pays first depends on your age, the size of the employer,

and    

 

     whether you have Medicare based on age, disability, or ESRD:

 

—If you are under age 65 and disabled, your plan pays first if your employer

has 100 or more employees. ) <<<<<this is us

 

— If you are over age 65 and still working, your plan pays first if your

employer has 20 or more employees.

If you have Medicare because you have ESRD, in all cases your â– â– plan pays

first for the first 30 months you have Medicare.

The following types of coverage always pay first:

No-fault insurance (including automobile insurance) â– â– 

Liability (including automobile insurance) â– â– 

Black lung benefits â– â– 

Workers’ compensation

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When I see all of you trying to figure out how to get the best coverage, I

am so glad I have nothing. Because I have no assets, I qualify for Arizona

state insurance. When I turned 65, they selected the best primary care

policy for me, similar to medicare, and they became the secondary payor and

pay the rest. I have trouble remembering all the strains on here, there is

no way I could try to make the decisions a lot of you have to make. Jan H

On Wed, Nov 19, 2008 at 8:15 AM, diane chandler wrote:

> I know it's confusing and it's even moreso when you're under so much

> stress otherwise. You're doing well at keeping on top of things though. I

> don't think you have any worries about his care being interrupted. Believe

> me, when he starts filing on Medicare, they will get the whole thing

> straightened out! You just try to relax and know that you are doing all

> that is humanly possible to be done in order to make a smooth transition.

> Momma and Daddy always taught us that, when you give your best, God will

> give the rest. You have most definitely given this effort your best. Rest

> in the Lord and know the He will meet your needs.

>

> Love and hugs.........

> Diane

>

> ________________________________

> From: sandra <sgonz48@... <sgonz48%40yahoo.com>>

> To:

livercirrhosissupport <livercirrhosissupport%40yahoogroups.com>

> Sent: Wednesday, November 19, 2008 6:03:21 AM

> Subject: Re: diane

>

> it is so confusing ...i dont want anything to work against me...i dont want

> any thing to jeopardize his care...

>

> ____________ _________ _________ __

> From: diane chandler <dianechandler@ att.net>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Wednesday, November 19, 2008 6:44:29 AM

> Subject: Re: diane

>

> ,

> I stand corrected. This is a definite change in Medicare laws. Of course,

> we haven't had to deal with this for over 8 years because both of us have

> been disabled for over 8 years and I have been disabled for over 10 years.

> This can be good for you or it can work against you, depending on how good

> your plan is. If Medicare is primary, you are not required pay more than

> the Medicare approved amount, which is always much lower than the charges

> submitted. That is for Parts A and B. Part D, as I have said earlier, is

> quite different. Thank you for informing me about this and helping me stay

> up-to-date on Medicare laws. I appreciate it.

>

> Hugs........ ..

> Diane

>

> ____________ _________ _________ __

> From: sandra <sgonz48yahoo (DOT) com>

> To: livercirrhosissuppo rtyahoogroups (DOT) com

> Sent: Wednesday, November 19, 2008 5:16:36 AM

> Subject: diane

>

> How Your Bills Get Paid If You Have Other Health Insurance

> When you have other insurance, there are rules that decide whether Medicare

> or your other insurance pays first. The insurance that pays first is called

> the " primary payer " and pays up to the limits of its coverage. The one that

> pays second, called the " secondary payer, " only pays if it covers any of the

> costs left uncovered by the primary coverage.

> If your other coverage is from an employer or union group health plan,

> these rules apply:

> If you are ¢£¢£retired, Medicare pays first.

>

> ( If your coverage is based on your or a family member's ¢£¢£current

> employment, who pays first depends on your age, the size of the employer,

> and

>

> whether you have Medicare based on age, disability, or ESRD:

>

> ¡½If you are under age 65 and disabled, your plan pays first if your

> employer has 100 or more employees. ) <<<<<this is us

>

> ¡½ If you are over age 65 and still working, your plan pays first if

your

> employer has 20 or more employees.

> If you have Medicare because you have ESRD, in all cases your ¢£¢£plan

pays

> first for the first 30 months you have Medicare.

> The following types of coverage always pay first:

> No-fault insurance (including automobile insurance) ¢£¢£

> Liability (including automobile insurance) ¢£¢£

> Black lung benefits ¢£¢£

> Workers' compensation

>

>

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Hi sweetie,

I'm glad somebody missed me <smiling>

I'm so sorry to hear about your heart attack & so grateful that

you're ok.

I've been meaning to write to you Diane. I want to tell you how much

I look up to you. With all you're going thru, you STILL show such

care & compassion for others. You're a great,smart woman & I wish the

best for you. I always keep you in my prayers.

Now, take care of yourself too sweetie, take some of your own advice

LOL I know most fibro folks are type A, caretaker type people.

Remember to take care of YOU!

Here's some irony for ya, I joined this group to help my stepsis who

had cirrohsis. NOW, my blood work looks like my liver & kidney aint

happy. How IRONIC !

It could be many other things, an auttoimmune disease? lots of

stuff, I don't knowwwww theres too many things to worry about so I'm

NOT GONNA WORRY till the fat lady sings ( & I'm not singin yet

hehehe) I don't drink but I am on pain meds. Maybe that's it? I just

don't knowwww. The blood work DOE'S explain why I feel like crapola

LOL !

Thank you for your prayers ( I may need them)

oh, get your Vit D checked, they're finding fibro folk have low Vit

D. Mine is 15, it should be 30-60!

Love you lady,

> >

> > From: diane chandler <dianechandler@ att.net>

> > Subject: Re: abijann/penny more on

> medicare

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Date: Wednesday, November 19, 2008, 4:50 AM

> >

> > Speaking with experience as one who has had nothing but Medicare

> for over 10 years, let me tell you that, if you have prescription

> coverage anywhere else, it is most likely much better than

Medicare. 

> That is because the Part D Medicare plans have a " donut hole "

during

> which you have to pay 100% of your drug costs out-of-pocket.  The

> plan we currently have does cover generics during the " hole " , but

it

> will not cover brand names.  Even though most of our scripts are

> generic, a few are not, which includes Terry's insulin and some of

my

> heart medications.  Our average pharmacy bill per month during

> the " hole " is upwards of $1500.  So, if you have coverage for

scripts

> for him with your insurance, even if it's not great, it is probably

> better.  I will add that we live in TN and it may be some different

> in FL, but not much because Federal laws govern the Medicare

rules. 

> Also, as far as I am aware, Medicare is always the primary

insurance

> when a

> > Medicare patient has a supplemental policy.  Any additional

> coverage is always considered supplemental, even if it is a full

> coverage policy.  As I said, we have been on Medicare for over 10

> years and it has been that way from the time we began.  Also, if

you

> are on Disability, you cannot get Supplemental Insurance.  You must

> buy a full coverage policy at the full coverage  premium and it

will

> be treated as a supplemental policy by Medicare.  You cannot

qualify

> for Medicare Supplemental Coverage until you reach the age to

switch

> over to Retirement Social Security.

> >

> > Diane

> >

> > ____________ _________ _________ __

> > From: sandra <sgonz48yahoo (DOT) com>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Wednesday, November 19, 2008 4:22:57 AM

> > Subject: abijann/penny more on medicare

> >

> > i read in the medicare booklet on line that if you have coverage

> then medicare is now secondary... i think that maybe that was not

the

> case in the past....I'm not too sure since i am new at all this. i

am

> trying to place us in a position so as to not loose the house when

> and if he is called...i am such a preplanner i make myself crazy

and

> you know what i think i am crazy cause although i preplan this way

i

> am not an organized person...i need psychoanalyzed :).

> >

> > any ways i thought i would go ahead and  sign up for part  " B "

> part  " A " is a given. what kind of money do we expect on drugs when

he

> is transplanted? Penny did you have supplemental prescription

> coverage? 

> >

> >

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Hi ,

I am so, so sorry to hear all that's going on with you!  Well, there's one thing

for sure, you're among friend who love you dearly here.  We're praying already,

so we're one up on whatever the tests says!!  LOL!  Please, keep me informed

about what's going on.  I hope so much it's not as bad as they think it might

be.  Hang in there and know that I love you and I'm praying.

Thank you so much for your kind words.  It's not me, it's just God.  I couldn't

face the things I do without Him.  Without His strength, I could not go on. 

Take care of yourself, .  Keep me informed.  Luv ya, sweetie!

Hugs........

Diane

________________________________

To: livercirrhosissupport

Sent: Thursday, November 20, 2008 6:31:00 AM

Subject: Re: Diane

Hi sweetie,

I'm glad somebody missed me <smiling>

I'm so sorry to hear about your heart attack & so grateful that

you're ok.

I've been meaning to write to you Diane. I want to tell you how much

I look up to you. With all you're going thru, you STILL show such

care & compassion for others. You're a great,smart woman & I wish the

best for you. I always keep you in my prayers.

Now, take care of yourself too sweetie, take some of your own advice

LOL I know most fibro folks are type A, caretaker type people.

Remember to take care of YOU!

Here's some irony for ya, I joined this group to help my stepsis who

had cirrohsis. NOW, my blood work looks like my liver & kidney aint

happy. How IRONIC !

It could be many other things, an auttoimmune disease? lots of

stuff, I don't knowwwww theres too many things to worry about so I'm

NOT GONNA WORRY till the fat lady sings ( & I'm not singin yet

hehehe) I don't drink but I am on pain meds. Maybe that's it? I just

don't knowwww. The blood work DOE'S explain why I feel like crapola

LOL !

Thank you for your prayers ( I may need them)

oh, get your Vit D checked, they're finding fibro folk have low Vit

D. Mine is 15, it should be 30-60!

Love you lady,

> >

> > From: diane chandler <dianechandler@ att.net>

> > Subject: Re: abijann/penny more on

> medicare

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Date: Wednesday, November 19, 2008, 4:50 AM

> >

> > Speaking with experience as one who has had nothing but Medicare

> for over 10 years, let me tell you that, if you have prescription

> coverage anywhere else, it is most likely much better than

Medicare. 

> That is because the Part D Medicare plans have a " donut hole "

during

> which you have to pay 100% of your drug costs out-of-pocket.  The

> plan we currently have does cover generics during the " hole " , but

it

> will not cover brand names.  Even though most of our scripts are

> generic, a few are not, which includes Terry's insulin and some of

my

> heart medications.  Our average pharmacy bill per month during

> the " hole " is upwards of $1500.  So, if you have coverage for

scripts

> for him with your insurance, even if it's not great, it is probably

> better.  I will add that we live in TN and it may be some different

> in FL, but not much because Federal laws govern the Medicare

rules. 

> Also, as far as I am aware, Medicare is always the primary

insurance

> when a

> > Medicare patient has a supplemental policy.  Any additional

> coverage is always considered supplemental, even if it is a full

> coverage policy.  As I said, we have been on Medicare for over 10

> years and it has been that way from the time we began.  Also, if

you

> are on Disability, you cannot get Supplemental Insurance.  You must

> buy a full coverage policy at the full coverage  premium and it

will

> be treated as a supplemental policy by Medicare.  You cannot

qualify

> for Medicare Supplemental Coverage until you reach the age to

switch

> over to Retirement Social Security.

> >

> > Diane

> >

> > ____________ _________ _________ __

> > From: sandra <sgonz48yahoo (DOT) com>

> > To: livercirrhosissuppo rtyahoogroups (DOT) com

> > Sent: Wednesday, November 19, 2008 4:22:57 AM

> > Subject: abijann/penny more on medicare

> >

> > i read in the medicare booklet on line that if you have coverage

> then medicare is now secondary... i think that maybe that was not

the

> case in the past....I'm not too sure since i am new at all this. i

am

> trying to place us in a position so as to not loose the house when

> and if he is called...i am such a preplanner i make myself crazy

and

> you know what i think i am crazy cause although i preplan this way

i

> am not an organized person...i need psychoanalyzed :).

> >

> > any ways i thought i would go ahead and  sign up for part  " B "

> part  " A " is a given. what kind of money do we expect on drugs when

he

> is transplanted? Penny did you have supplemental prescription

> coverage? 

> >

> >

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Thank you so much.  He's about the same tonight, very lethargic and has hardly

eaten today, but still determined that he'll be here on Friday for the family.

________________________________

From: abijann <no_reply >

To: livercirrhosissupport

Sent: Wednesday, November 26, 2008 6:19:44 PM

Subject: Diane

I wish I could be there with you...this is awfully hard to handle.

Please let me know how he is doing. I'll keep you both in my

prayers. :-(

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Hi , yes he is feeling much better today.  He is alert and talking and is

actually laughing some today.  He says the pain is there, but not quite so bad

as the last few days.  I know it's because everyone has been prying so much.  I

cannot tell you how thankful I am.  I pray you have a wonderful day.

Hugs.........

Diane

________________________________

To: livercirrhosissupport

Sent: Thursday, November 27, 2008 7:17:07 AM

Subject: diane

how is everthing this morn? been checking the post last night. are you cooking

today? may be with family around your husband will respond better...am praying

as always for you, your husband and your family. love sandra

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