hello dear fellow lymies

[Guest guest]

Hi friends,

I wanted to introduce myself as I have been reading the last 2 weeks and am

attempting to post. I just wrote a very long post which I accidentally just hit

the wrong key and deleted. Uggghh!! Anyway, I'm Debbie, a 49 year old mother of

5 (4 college age or older) and I just learned this summer through a positive WB

test what the root cause of the weird and terrible symptoms I have had most of

my life! I remember my heart racing at age 3 and light hurting my eyes. Reading

the posts is like looking in the mirror! And I am so happy to have found such a

caring and helpful group as I have been " on my own " for most of my 15 year

health journey. I only have a couple hours of energy each day for typing,

thinking, studying, minor chores, etc. but I hope to become a more contributing

member!

I have major bodywide muscle pain and weakness, profound fatigue and cognitive

problems, some neurological stuff like tremors and have had a few small

seizures, sensitivity to noise and light and eye pain, headaches, etc.

Although my joints have little pain, just crackling ! happy for that!

About 95% of the muscles above my shoulder blades and in my neck have turned to

scar tissue and now I know why! I have had weekly sessions of neural

therapy (about 70 shots of procaine which dissolves scar tissue) Dr. K trained

most the docs in the country for this. After 60 sessions, we are just getting

down to the bones in some spots where it was plastered to my ribs and spine in

the neck.

Paydirt! and am starting to be able to move the shoulder, but the problem is

there is no muscle in there to move anything, but is less painful and hopefully

is freeing up nerves to the organs, etc. I will get a neck brace next week to

hold my head up I hope. I guess this is lyme damage and I hope not an indicator

of what my brain and other parts have gone through.

In trying to get a handle on lyme treatments I have Rosner's book on the Top 10

treatments and rife. We got a rife machine from the dear man in upstate New

York and have tried it 4x. It really calms my brain down but then feel sick for

a few days.

It's great that I have many of the natural type treatments for years which

people do for lyme but now have questions about antibiotics tha I would love

feedback on. I realize they are only opinions and I will be respionsible for

the decision!

In studying, I see the big probs with pharma stuff--the hiding it causes after

awhile, the resistance, and t damage to probiotics. I know Rosner and

Connie Stasheim don't seem to recommend it as it if often prescribed. I was

surprised to read in Connie's book of Insights to Lyme Treatments that even the

most naturally minded docs seems to say antibiotics were very eseential in their

view. I have had symptoms my whole life so I am def a chonic case. I did see

an LLMD in Nashville TN who is being trained by Horowitz, etc. and his program

is some straight/not pulsed abx. I am unsure if I want to do his protocol if

the bacteria is just going to hide. But I wonder, is it worth the benefit of

just having it go dormant for awhile? Is that why many docs still recommend it?

I really have alot of bad symptoms--I wonder if that would make pharma abx more

necessary for awhile to give the body a break? Of course I would do as much

natural stuff as I can. And in the book they seemed to call the herbal abx

(little guns) and pharma (big guns) as if it was much better.

Of course I do have the Enem machine and seem to be getting some herxs and know

you have to be patient. I just feel so on my own in making the right choice--a

perhaps I will just have trial and error!

Well, thanks for any input you wonderful Lymie friends you!

Blessings,

Debbie