Guest guest Posted June 5, 2008 Report Share Posted June 5, 2008 Art, I became the same way - irritable, self-centered and always preoccupied with 'something' MSish. I became a real bitch for a while - sorry to be so expressive but it's true. LDN has helped me to 'lighten' up. > > > > I have been on LDN since Nov 2006 after 7 years on Avonex. I > started > > with 3 mg then increased to 3.5 about 9 months ago. I have been > under > > an extreme amount of stress for the past 4 months and 2 weeks ago > some > > of my symptoms have gotten much worse. I can barely walk and > holding a > > pen is difficult. I have SPMS and did start the high vitamins > > mentioned for those who are on LDN and think they are having a > > relapse. I am getting a little scared. In February, my husband > wrote > > a letter to me telling me he couldn't deal with the MS and wanted > to be > > with someone who was physically fit. He's still with me and > working on > > his feelings, but it's always in my mind and now with this, I'm > > remaining hopeful. My question is ... is there anything else I can > do > > to help my condition? If I go to my doctor, she will want to do > > steroids and insist I start another treatment. Advice? Input? > > > > Dorene > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2008 Report Share Posted June 5, 2008 Art; I'm presently on LDN, have been on LDN over two years, my doctor said, my MS is inactive. Prior, I was on Avonex for about a year until it almost killed me, my wife had a hard time waking me one morning and said, get off Avonex, best thing I ever did. My question is; is there any prolonged side effects after stopping Avonex. Best to you, Jim H. On Thu Jun 5 10:21 , 'Art' sent: When I was using Avonex, Copaxone, Novantrone, IV Solumedrol and oral Prednisone, and other worthless treatments my personality became that of an ill, moody monster. Thank you government controlled FDA and big pharmaceutical companies for your 'wonderful MS medications'! I really do appreciate risking congestive heart failure, leukemia, suicidal thoughts AND an increase in MS symptoms AND disease progression. I am so happy I was able to fill your bank accounts with my hard earned money. And a special thank you to the wealthy,influential folks who could really help us funding LDN research, but don't. Bill Gates, Warren Buffett, Dell etal... (expletives deleted). Had I started LDN sooner I wouldn't be dealing with the physcical problems I now have. I have NO doubt about this statement. -Art Diagnosed with MS April 1988 Using LDN since March 2005 My MS/LDN story: http://tinyurl.com/5tcp6r -- > > Art, > I became the same way - irritable, self-centered and always > preoccupied with 'something' MSish. I became a real bitch for a while > - sorry to be so expressive but it's true. LDN has helped me to > 'lighten' up. Msg sent via CableONE.net MyMail - http://www.cableone.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2008 Report Share Posted June 5, 2008 Hello Jim. I have MS and I do my injection- Avonex evey week. I want to try LDN frrom next week and I want to stop Avonex. My question is- when you started to take LDN and stoped your Avonex injection- did you wait some times while you body will clean after AVONEX? What side effectes did you have after avonex? How do you feel after LDN? Thank you, Svetlana --- " jharbott@... " <jharbott@...> wrote: --------------------------------- Art; I'm presently on LDN, have been on LDN over two years, my doctor said, my MS is inactive. Prior, I was on Avonex for about a year until it almost killed me, my wife had a hard time waking me one morning and said, get off Avonex, best thing I ever did. My question is; is there any prolonged side effects after stopping Avonex. Best to you, Jim H. On Thu Jun 5 10:21 , 'Art' sent: When I was using Avonex, Copaxone, Novantrone, IV Solumedrol and oral Prednisone, and other worthless treatments my personality became that of an ill, moody monster. Thank you government controlled FDA and big pharmaceutical companies for your 'wonderful MS medications'! I really do appreciate risking congestive heart failure, leukemia, suicidal thoughts AND an increase in MS symptoms AND disease progression. I am so happy I was able to fill your bank accounts with my hard earned money. And a special thank you to the wealthy,influential folks who could really help us funding LDN research, but don't. Bill Gates, Warren Buffett, Dell etal... (expletives deleted). Had I started LDN sooner I wouldn't be dealing with the physcical problems I now have. I have NO doubt about this statement. -Art Diagnosed with MS April 1988 Using LDN since March 2005 My MS/LDN story: http://tinyurl.com/5tcp6r -- > > Art, > I became the same way - irritable, self-centered and always > preoccupied with 'something' MSish. I became a real bitch for a while > - sorry to be so expressive but it's true. LDN has helped me to > 'lighten' up. --------------------------------- Msg sent via CableONE.net MyMail - http://www.cableone.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2008 Report Share Posted June 5, 2008 Jim, I used Avonex for over three years. Self-injected, too. Stabbing that long needle into a muscle every week was an ordeal in itself (never could get used to that - Ouch!) and the side-effects were terrible. Flu- like symptoms, fever, headache, chills, depression, nausea, lowered libido, injection site reactions. Avonex did nothing to slow MS progression, actually the only thing that really helped was IV Solumedrol and oral Prednisone, but after a while that ceased to work. Henceforth LDN. So to answer your question directly I would say the long term side- effects to stopping Avonex was I no longer had the above mentioned symptoms. What a deal! Art -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2008 Report Share Posted June 5, 2008 Pardon me for jumping into this conversation, but my advice would be to start LDN immediately. No need to wean yourself off of Avonex. Art -- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2008 Report Share Posted June 6, 2008 Thank you for your advice. I'll start LDN next week --- Art <rtee54@...> wrote: > Pardon me for jumping into this conversation, but my > advice would be > to start LDN immediately. No need to wean yourself > off of Avonex. > > Art > -- > > > > > > > Quote Link to comment Share on other sites More sharing options...
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