Re: Penny: high c-reactive protein

[Guest guest]

Yikes! Thanks for that reference. It's odd. My 25-D was totally mid

range according to the normal reference range, when I tested for it

to start the 'protocol that can't be named'. I avoided the sun, and

D foods for a couple of months, then resumed my normal D/sun life

after dropping the other parts of the protocol (except Benicar). So

it's curious that I've since become deficient in D.

And what's really odd is that my CRP has always been normal, even

when I had so many inflammatory symptoms. Now that the inflammatory

symptoms are gone, and Benicar has been blocking the angiotensin II

receptors for a good year now, I'm really wondering why this sudden

4 times the normal CRP? And the high risk of a cardiac event.

Actually, when I was taking the minocycline, I thought I was having

a heart attack one night. I went to the ER the next day. The final

dx was a thyroid storm, and I believe it was all caused by the

minocycline, which I was trying to stick out while on the

aforementioned protocol. I later learned that Minocycline can have

some nasty side effects in some people, despite some people's claims

to the contrary. I hope screwing up my heart wasn't one of them. Or

that the Benicar isn't somehow bringing the heart thing to the

forefront. Perhaps the heart has to work harder to maintain the bp

and that's causing the symptoms to be more noticeable? This pumping

harder was an opinion put forth by more than one doctor, when

describing why people are so dizzy and weak in the beginning with

Benciar.

I'm glad I've been able to reduce my Benicar to 2x daily and still

maintaining the benefits.

penny

> > Speaking of defeciencies and tests, Tony, I got my SpectraCell

and

> > Igenex test results today. The Igenex testing for lyme IgM and

IgG

> > were both " indeterminate " . I have no idea how to read the

results

> so

> > that's all I know.

> >

> > What was really interesting to me was that my SpectraCell tests

> > showed me defecient in vitamin D, B2, B12 and Pantothenic Acid

as

> > well as Zinc and Asparagine. Everything else was good, including

> > glutathione, at least as far as this test goes. It's odd because

> > I've been supplementing with Bs so I guess I'm going to increase

> the

> > 3 that I need, over and above what I'm already doing.

> >

> > Conversely, my aldesterone was totally fine. My platelets were

> good.

> > Everything was good, although neutrophils, white blood cells,

etc

> > were on low side and my TSH was very high for me.

> >

> > But the most disturbing thing was my C reactive protein, a

cardiac

> > inflammation marker, was extremely high, putting me at " high

risk "

> > for a cardiac event. Pretty strange that I've got that much

> > inflammation while I'm on a major anti-inflammation protocol. :-(

> >

> > I've been thinking something's wrong with my heart ever since

the

> > minocycline fiasco, and now with the recent discovery that

fixing

> > the hole between the chambers cures 80% of migraines sufferers,

AND

> > the fact that Cheney had a heart transplant has had me thinking.

My

> > bp was 85 or 53 today too, unusual for the doc's office to be

that

> > low. It's time to see a cardiologist.

> >

> > Anyway, all this, and I'm actually feeling better than I have in

a

> > long time.

> >

> > Gotta run, so perhaps there's more I've forgotten.

> >

> > penny

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

<pennyhoule@y...> wrote:

" Pretty strange that I've got that much

inflammation while I'm on a major anti-inflammation protocol. "

Hi Penny, this is just a guess, but perhaps the Benicar was just

masking the real inflammation (or other aspects of the

inflammation, like CRP) or maybe your body was compensating

by raising the CRP to balance the effects of the drug?

Just guessing of course. My two cents...

d.

> Yikes! Thanks for that reference. It's odd. My 25-D was totally

mid

> range according to the normal reference range, when I tested

for it

> to start the 'protocol that can't be named'. I avoided the sun,

and

> D foods for a couple of months, then resumed my normal

D/sun life

> after dropping the other parts of the protocol (except Benicar).

So

> it's curious that I've since become deficient in D.

>

> And what's really odd is that my CRP has always been normal,

even

> when I had so many inflammatory symptoms. Now that the

inflammatory

> symptoms are gone, and Benicar has been blocking the

angiotensin II

> receptors for a good year now, I'm really wondering why this

sudden

> 4 times the normal CRP? And the high risk of a cardiac event.

>

> Actually, when I was taking the minocycline, I thought I was

having

> a heart attack one night. I went to the ER the next day. The final

> dx was a thyroid storm, and I believe it was all caused by the

> minocycline, which I was trying to stick out while on the

> aforementioned protocol. I later learned that Minocycline can

have

> some nasty side effects in some people, despite some

people's claims

> to the contrary. I hope screwing up my heart wasn't one of

them. Or

> that the Benicar isn't somehow bringing the heart thing to the

> forefront. Perhaps the heart has to work harder to maintain the

bp

> and that's causing the symptoms to be more noticeable? This

pumping

> harder was an opinion put forth by more than one doctor, when

> describing why people are so dizzy and weak in the beginning

with

> Benciar.

>

> I'm glad I've been able to reduce my Benicar to 2x daily and still

> maintaining the benefits.

>

> penny

>

>

>

>

>

>

> > > Speaking of defeciencies and tests, Tony, I got my

SpectraCell

> and

> > > Igenex test results today. The Igenex testing for lyme IgM

and

> IgG

> > > were both " indeterminate " . I have no idea how to read the

> results

> > so

> > > that's all I know.

> > >

> > > What was really interesting to me was that my SpectraCell

tests

> > > showed me defecient in vitamin D, B2, B12 and

Pantothenic Acid

> as

> > > well as Zinc and Asparagine. Everything else was good,

including

> > > glutathione, at least as far as this test goes. It's odd

because

> > > I've been supplementing with Bs so I guess I'm going to

increase

> > the

> > > 3 that I need, over and above what I'm already doing.

> > >

> > > Conversely, my aldesterone was totally fine. My platelets

were

> > good.

> > > Everything was good, although neutrophils, white blood

cells,

> etc

> > > were on low side and my TSH was very high for me.

> > >

> > > But the most disturbing thing was my C reactive protein, a

> cardiac

> > > inflammation marker, was extremely high, putting me at

" high

> risk "

> > > for a cardiac event. Pretty strange that I've got that much

> > > inflammation while I'm on a major anti-inflammation

protocol. :-(

> > >

> > > I've been thinking something's wrong with my heart ever

since

> the

> > > minocycline fiasco, and now with the recent discovery that

> fixing

> > > the hole between the chambers cures 80% of migraines

sufferers,

> AND

> > > the fact that Cheney had a heart transplant has had me

thinking.

> My

> > > bp was 85 or 53 today too, unusual for the doc's office to be

> that

> > > low. It's time to see a cardiologist.

> > >

> > > Anyway, all this, and I'm actually feeling better than I have in

> a

> > > long time.

> > >

> > > Gotta run, so perhaps there's more I've forgotten.

> > >

> > > penny

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I don't know. I mean it's become very obvious to me that whatever's

being suppressed has knocked out my migraines, body and joint pain,

anxiety, and urgent bladder, among other things. It seems pretty

likely that these are inflammatory symptoms. Why my inflammation

marker is suddenly high is curious, but I vaguely recall reading in

the past why this can occur. In fact, I think our illness somehow

suppresses all of the normal markers for illness. At least in CFS.

That's what's so maddening about CFS, and the reason we get dx'd

with it (a dx of exclusion). Because we have all kinds of nasty

symptoms but no markers for anything, so we're told it's all in our

heads, we're just over tired, don't get enough exercise, etc.

Incredibly frustrating, and ridiculous to think millions of people

are just fabricating symptoms.

:-(

Benicar's the first drug that relieved all of my symptoms, except

the fatigue. The abx and diflucan seem to be doing that. In the mean

time, my heart seems to be getting weirder, which I'm not too happy

about and my guess is probably being exacerbated by the drugs trying

to kill the bugs. I've got to find a cardiologist, and find out

exactly what's going on. I won't be surprised at all to learn I have

this small hole between the two chambers, accounting for the heart

irregularities as well as the migraines. I keep thinking if I could

get my bp up a bit, and my heart regulated, I would be much less

fatigued. I mean the fact that my bp drops on standing, is exactly

opposite of normal (hypotension) but is fairly common for PWC and

may be a big factor in our fatigue.

It's funny, the Tibetan doctor felt my biggest area of concern was

my heart, and asked if there were heart disease in the family. That

was another disconcerting red flag that is prompting me to see a

cardiologist asap.

penny

> > > > Speaking of defeciencies and tests, Tony, I got my

> SpectraCell

> > and

> > > > Igenex test results today. The Igenex testing for lyme IgM

> and

> > IgG

> > > > were both " indeterminate " . I have no idea how to read the

> > results

> > > so

> > > > that's all I know.

> > > >

> > > > What was really interesting to me was that my SpectraCell

> tests

> > > > showed me defecient in vitamin D, B2, B12 and

> Pantothenic Acid

> > as

> > > > well as Zinc and Asparagine. Everything else was good,

> including

> > > > glutathione, at least as far as this test goes. It's odd

> because

> > > > I've been supplementing with Bs so I guess I'm going to

> increase

> > > the

> > > > 3 that I need, over and above what I'm already doing.

> > > >

> > > > Conversely, my aldesterone was totally fine. My platelets

> were

> > > good.

> > > > Everything was good, although neutrophils, white blood

> cells,

> > etc

> > > > were on low side and my TSH was very high for me.

> > > >

> > > > But the most disturbing thing was my C reactive protein, a

> > cardiac

> > > > inflammation marker, was extremely high, putting me at

> " high

> > risk "

> > > > for a cardiac event. Pretty strange that I've got that much

> > > > inflammation while I'm on a major anti-inflammation

> protocol. :-(

> > > >

> > > > I've been thinking something's wrong with my heart ever

> since

> > the

> > > > minocycline fiasco, and now with the recent discovery that

> > fixing

> > > > the hole between the chambers cures 80% of migraines

> sufferers,

> > AND

> > > > the fact that Cheney had a heart transplant has had me

> thinking.

> > My

> > > > bp was 85 or 53 today too, unusual for the doc's office to

be

> > that

> > > > low. It's time to see a cardiologist.

> > > >

> > > > Anyway, all this, and I'm actually feeling better than I

have in

> > a

> > > > long time.

> > > >

> > > > Gotta run, so perhaps there's more I've forgotten.

> > > >

> > > > penny

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >