Re: to Barb--babesia

[Guest guest]

So anyway, five years ago when I first got the bullseye I tried to get

tested for babesia twice, my own doctor refused, and the ID doctor

agreed but then just drew my blood and re-tested for lyme. At that

time it would've been acute, obvious etc.

So most chronic lymies have both. Just lyme alone doesn't usually stay

chronic. So anyway, the fish test is positive.

Barb did her research to decide how to handle it, I am going to do a

lot of pubmed searches. It may be reinventing the wheel but once I

figure out my descending order of choices I will post them here and

would appreciate feedback.

I already know mepron/zith is off the list. People have to take

repeated courses and the zith will just give fungal issues. It just

does not seem that successful to me.

[Guest guest]

I'm out of town this week- on a local computer at the moment. Probably

will not be reading the list for while (and I haven't been on a

regular basis this week).

The opinion of the conventional medical establishment is that Babs

is only chronic in the asplenic - but they've never documented a

case. The LLMDs have a different opinion of course. The published

articles are all on acute cases.

Krause is a good name to research - and of course the VetMed

articles. There are 2 species - considered 'big' and 'little'

babesia - also the the 'babesia-like' species on the west coast.

There's plenty to read to prepare your therapy - every one has a

different opinion as to how to treat it, (FDA meds or otherwise) and

you should be able to estimate the % infection by your RBC profile and

symptoms.

There are schools of thought (especially in animals) that if you are

infected with more than one fairly major pathogen (Lyme and Babs for

example) that they compete in the body, and keep each others

population in check- so keep that in mind if you have both Lyme and

Babs when you start waging war.

Good luck.

Barb

> My fish test is positive. I have babesia.

> Anybody any thoughts?

[Guest guest]

Jill, I have brought this up before and someone else brought it up

recently. Heparin seems to work REALLY well on Babesia ALL BY

ITSELF. Quest Diagnostics has even commented on it. It seems to put

down some sort of coating on the Babs, preventing it from entering

into healthy cells. That leaves it wide open for our own immune

system.

My daughter and I were on heparin for 3 years and both of us made

HUGE and I mean HUGE progress over the long term WITHOUT anything to

treats Babs. I came up negative for babs, but my symptoms from the

past leaned heavily toward babs.

I rrecetnly searched for more info on the heparin and Babs, but at

this time only came up with 2 sources. One the study out of Japan

which basically says heparin obliterates Babesia and Quests

comments. I have the info stored if you are interested.

My duaghter had severe hypercoagulation, took no ABX and after 3

years, her blood is holding normal, which is a strong indicator,

that the infection that was there, is gone. I have also read a small

blurb about heparin doing the same to Lyme. I really believe it is

something we should all take a look at. To be able to fix ourselves

without massive drugs would be awesome. Heparin is naturally

occuring in the body.

> So anyway, five years ago when I first got the bullseye I tried to

get

> tested for babesia twice, my own doctor refused, and the ID doctor

> agreed but then just drew my blood and re-tested for lyme. At that

> time it would've been acute, obvious etc.

>

> So most chronic lymies have both. Just lyme alone doesn't usually

stay

> chronic. So anyway, the fish test is positive.

>

> Barb did her research to decide how to handle it, I am going to do

a

> lot of pubmed searches. It may be reinventing the wheel but once I

> figure out my descending order of choices I will post them here

and

> would appreciate feedback.

>

> I already know mepron/zith is off the list. People have to take

> repeated courses and the zith will just give fungal issues. It

just

> does not seem that successful to me.

[Guest guest]

Thanx so much Jelly. Can you send me the studies and any information.

I will search pubmed too. If you wouldn't mind sending me your phone

# too I'd be interested in talking to you. I really have to think

exactly how I'm going to tackle this.I've had it 5 years so I don't

have to start tomorrow. Email to jenbooks13@...

Thx

> > So anyway, five years ago when I first got the bullseye I tried

to

> get

> > tested for babesia twice, my own doctor refused, and the ID

doctor

> > agreed but then just drew my blood and re-tested for lyme. At

that

> > time it would've been acute, obvious etc.

> >

> > So most chronic lymies have both. Just lyme alone doesn't usually

> stay

> > chronic. So anyway, the fish test is positive.

> >

> > Barb did her research to decide how to handle it, I am going to

do

> a

> > lot of pubmed searches. It may be reinventing the wheel but once

I

> > figure out my descending order of choices I will post them here

> and

> > would appreciate feedback.

> >

> > I already know mepron/zith is off the list. People have to take

> > repeated courses and the zith will just give fungal issues. It

> just

> > does not seem that successful to me.

[Guest guest]

As you saw, Nelly but up the piece out of Japan. Here is the

information from Quest Diagnostics:

Effects of Heparin on Babesia

Babesia are malaria-like parasites of man and animals. Babesia

microti hasbeen identified as a newly emerging infection along the

Eastern seaboardfrom Cape Cod to New Jersey. The major vector

associated with its spreadis the deer tick (Ixodes scapularis) – the

same tick associated with Lyme disease. Investigators in Japan

studied the effect of various heparins on this parasite and found

that, depending on the concen-tration of heparin, there may be

complete clearance of intracellular parasites! The findings suggest

that the heparin coats the surface of the parasite and inhibits its

invasion of the red cells. Bork, S. et al. 2004. Growth-inhibitory

effect of heparin on Babesia parasites. AntimicrobialAgents and

Chemotherapy 48: 236-241.

============================================================

I was put on 12,000 units of heparin a day. It was in the form of a

nasal spray, very nice, no shots. I was on it for the

hypercoagulation. My daughter was put on the same dose, both of us

were on it 3 years. She was forced to quit because of an abrupted

placenta during pregnancy. The thing is, she has never needed to go

back on, her coagulation has stayed normal. No ABX.

I took ABX, but REALLY tiny doses throughout the last 2 years. It

was very hit and miss. I would take the ABX for 6 weeks and then

have to quit, but I then found I didn't need the heparin anymore

either. We have both been of the heparin, well my daughter for a

little over 2 years and me about a year and a half. Both of us are

doing pretty darn good. I have often wondered why I have made this

kind of recovery with hardly any ABX. The heparin may be the key.

> > > So anyway, five years ago when I first got the bullseye I

tried

> to

> > get

> > > tested for babesia twice, my own doctor refused, and the ID

> doctor

> > > agreed but then just drew my blood and re-tested for lyme. At

> that

> > > time it would've been acute, obvious etc.

> > >

> > > So most chronic lymies have both. Just lyme alone doesn't

usually

> > stay

> > > chronic. So anyway, the fish test is positive.

> > >

> > > Barb did her research to decide how to handle it, I am going

to

> do

> > a

> > > lot of pubmed searches. It may be reinventing the wheel but

once

> I

> > > figure out my descending order of choices I will post them

here

> > and

> > > would appreciate feedback.

> > >

> > > I already know mepron/zith is off the list. People have to

take

> > > repeated courses and the zith will just give fungal issues. It

> > just

> > > does not seem that successful to me.

[Guest guest]

Jelly, were your tests for lyme and babesia documented from a good

lab like igenex? Just curious thanx. And thanx again for these refs.

> > > > So anyway, five years ago when I first got the bullseye I

> tried

> > to

> > > get

> > > > tested for babesia twice, my own doctor refused, and the ID

> > doctor

> > > > agreed but then just drew my blood and re-tested for lyme. At

> > that

> > > > time it would've been acute, obvious etc.

> > > >

> > > > So most chronic lymies have both. Just lyme alone doesn't

> usually

> > > stay

> > > > chronic. So anyway, the fish test is positive.

> > > >

> > > > Barb did her research to decide how to handle it, I am going

> to

> > do

> > > a

> > > > lot of pubmed searches. It may be reinventing the wheel but

> once

> > I

> > > > figure out my descending order of choices I will post them

> here

> > > and

> > > > would appreciate feedback.

> > > >

> > > > I already know mepron/zith is off the list. People have to

> take

> > > > repeated courses and the zith will just give fungal issues.

It

> > > just

> > > > does not seem that successful to me.

[Guest guest]

I was tested through Igenex. Babesia was negative, but doc said no

matter. He has Lyme and Babesia, but the Babs test came up negative

6 times. His doctor was sure he had Babs and they tested a seventh

time, BINGO, he came back positive. He is making fantastic progress

after having been bedridden.

> > > > > So anyway, five years ago when I first got the bullseye I

> > tried

> > > to

> > > > get

> > > > > tested for babesia twice, my own doctor refused, and the

ID

> > > doctor

> > > > > agreed but then just drew my blood and re-tested for lyme.

At

> > > that

> > > > > time it would've been acute, obvious etc.

> > > > >

> > > > > So most chronic lymies have both. Just lyme alone doesn't

> > usually

> > > > stay

> > > > > chronic. So anyway, the fish test is positive.

> > > > >

> > > > > Barb did her research to decide how to handle it, I am

going

> > to

> > > do

> > > > a

> > > > > lot of pubmed searches. It may be reinventing the wheel

but

> > once

> > > I

> > > > > figure out my descending order of choices I will post them

> > here

> > > > and

> > > > > would appreciate feedback.

> > > > >

> > > > > I already know mepron/zith is off the list. People have to

> > take

> > > > > repeated courses and the zith will just give fungal

issues.

> It

> > > > just

> > > > > does not seem that successful to me.

[Guest guest]

YOur doc was bedridden? I'm confused. HE did PCR testing? Serial

pcr's are necessary. I had the fish test, detects RNA.

Progress using heparin?

Or that PLUS something.

Jelly, can you tell me again even tho you posted recently, what you

did in terms of abx?

I see on lymenet you posted how your daughter has it.

> > > > > > So anyway, five years ago when I first got the bullseye I

> > > tried

> > > > to

> > > > > get

> > > > > > tested for babesia twice, my own doctor refused, and the

> ID

> > > > doctor

> > > > > > agreed but then just drew my blood and re-tested for

lyme.

> At

> > > > that

> > > > > > time it would've been acute, obvious etc.

> > > > > >

> > > > > > So most chronic lymies have both. Just lyme alone doesn't

> > > usually

> > > > > stay

> > > > > > chronic. So anyway, the fish test is positive.

> > > > > >

> > > > > > Barb did her research to decide how to handle it, I am

> going

> > > to

> > > > do

> > > > > a

> > > > > > lot of pubmed searches. It may be reinventing the wheel

> but

> > > once

> > > > I

> > > > > > figure out my descending order of choices I will post

them

> > > here

> > > > > and

> > > > > > would appreciate feedback.

> > > > > >

> > > > > > I already know mepron/zith is off the list. People have

to

> > > take

> > > > > > repeated courses and the zith will just give fungal

> issues.

> > It

> > > > > just

> > > > > > does not seem that successful to me.