Re: Acetyl-L-Carnitine-Arginate...Any thoughts?

[Guest guest]

a,

Our daughter is taking the liquid. I don't know why - she can swallow tablets.

The neurologist insisted on liquid. Have you seen cognitive improvements since

starting the Carnitor? Wow - we have. It may be a combination of the Depakote

and Carnitor, but she took Depakote for 7 years without Carnitor and we didn't

see the improvements that we're currently seeing. I hope the fishy smell isn't a

problem - It shouldn't be since she smells from the Authia anyway. It doesn't

bother me anymore.

Shari

Re: Acetyl-L-Carnitine-Arginate...Any

thoughts?

>

>

>

> I found that Pure Encapsulations also makes a version of acetyl-

l-

> carnitine-arginate. I can buy it for half the cost at Emerson

> Ecologics. Their version only contains acetyl-l-carnitine-

arginate

> wheras the LE version contains both acetyl-l-carnitine and

acetyl-l-

> carnitine-arginate. The Pure Encapsulations bottle also says it

> helps with erectile function, which I may have a hard time

explaining

> to his Dad.

> I may do a trial of this, especially since he needs the

carnitine but

> has such a difficult time with the other types. Carnitor made

him

> walk down the hall dragging his head against the wall which is

not a

> usual behavior. When we did Bioset they also said that he was

> EXTREMELY sensitive to l-carnitine. They weren't even able to

treat

> him for the sensitivity. I've tried to look into how carnitine

is

> utilized in the body in order to try to solve the puzzle of why

he

> does so poorly on it, but for some reason I have only found very

> limited information.

> I'll post again to let everyone knows how he does on this

product.

> Vicki

>

>

> > Vicki,

> > I wonder if it is like the prescription Carnitor(L-Carnitine).

Our

> daughter just started that last night. I've heard so many good

> results from RS kids. Our daughter is taking it because of

Depakote -

> she was just switched from Tegretol to Depakote. Anyway - I'm

very

> interested in this as well.

> > Shari

> >

>

>

>

>

>

> Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

>

>

>

>

[Guest guest]

Shari,

I've never noticed a fishy smell. Fishy smells around here usually

mean cod liver oil has been spilled on clothes but after reading the

responses I see that others also smell a fishy smell from Carnitor.

My best guess is that my son's body is not utilizing the carnitine.

There must be some sort of metabolic process going on that creates

the fishy smell. We haven't gotten the smell with homeopathic

versions either so I suppose they aren't working either. I wonder

what makes a fish smell like a fish? It must be the oils/fatty acids

since cod liver oil has such a pungent smell.

I've also noticed that my son has a need for riboflavin. I was

actually quite proud as this was one of the few things I've been able

to determine by observation with my son. When we saw Dr McCandless

through the mini-DAN last year she added extra riboflavin to his

regimen. Following BIOSET for these supplements his lips had a much

healthier appearance but have gone back to being pale and sometimes

cracked or red looking.

Vicki

> Vicki,

> What causes the fishy smell? Neathery has smelled like this before

and I'm noticing it again. I think it's related to the Carnitor - not

sure - just a hunch. I also had to decrease her dosage because of

hyperactivity - but, I can't believe the words she saying. And - she

seems to understand her school work better and quicker. I'm just so

sorry that your son is doing poorly with the carnitine since he needs

it. We also use Pantethine to help with fat metabolism. I know that

our drug handout for Carnitor said that it can cause seizures. Has he

ever had an EEG?

> Shari