Guest guest Posted July 18, 1999 Report Share Posted July 18, 1999 Hi , Sorry it has taken so long to respond to your message.You asked how the foot surgery went. They debrided the posterior tibial tendon and trasferred the flexor tendon ( it is the one that curls your toes) to that area. Because the foot was deformed.....turning outward....he grafted bone from the iliac crest to the other side of the foto to correct that problem. So there is a plate with 5 screws in that area to hold the graft. Then he cut the calf area to lengthen the gastrocnemius muscle to attach it to the transplanted tendon. The deformity is corrected and the foot is straight, but i still have pain mostly from the plate and screw. Last xray they did I noticed that 2 screws were broken....don't think they were going to mention it.....but i noticed it on the films. So this will all be removed in January. As far as the psoriasisof the nails goes, it is not just the way they look but as the psoiasis builds up it pushes up the nails and loosens them which is very painful. Feels like ingrown toenails. I can hide my feet but I also have 2 fingernails affected which is unsightly. The dermatologist has seen thm and even took scrapings to culture it for fungus and it was negative. He never offered any treatment. Actually acted like it was no big deal. You expressed your concerns about prednisone. I am aware of all the damage it can do. When I took MTX the rheumy said I had to take it to get the MTX to work properly. I am now off MTX and taking Arava. Not having much luck with any of the meds. Not sure how long my stomach will hold up! Alot of burning and indigestion with everything I have tried. Going to give it a good try though. Yes you do sound like my missing twin! Very similar problems. Do you have any problems in the sternoclavicular joint? This is all very frustrating but I am hanging in there. Just wish people could understand what we go through! Thank God my husband finally does but the rest of the famiy is clueless! I have tried to explain it but they just don't get it Can't understand the fatigue mostly. Also I tried to get into the chat room . Had a tough time. I am on web tv so I clicked on to the button for that but my messages weren't getting on like they should. When entered a message it would send my screen back to the top of the page every time and some of my words would be missing letters. Any ideas? Think people thoughI was nuts! Anyway thanks for your input and responding to my letter. Look forward to sharing with you and everyone in the group. Take care P.S. Sorry this is so long! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2000 Report Share Posted February 7, 2000 In a message dated 2/7/00 7:09:58 PM Central Standard Time, cloudgzr@... writes: << From: Cassandra <cloudgzr@...> you can get good natural pigments from: http://members.aol.com/pgmntlady she has the most lovely mica colors and natural coloring agents that wont stain >> When I try to access this website AOL cannot locate it. I would love to find some natural coloring agents. Thanks, Amy ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2000 Report Share Posted February 7, 2000 you can get good natural pigments from: http://members.aol.com/pgmntlady she has the most lovely mica colors and natural coloring agents that wont stain ===== Desire is the treasure map. Knowledge is the treasure chest. Wisdom is the jewel. Yet, without action, they all stay buried. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2000 Report Share Posted February 7, 2000 aol can't find the page.? Re: Digest Number 192 From: Cassandra <cloudgzr@...> you can get good natural pigments from: http://members.aol.com/pgmntlady she has the most lovely mica colors and natural coloring agents that wont stain ===== Desire is the treasure map. Knowledge is the treasure chest. Wisdom is the jewel. Yet, without action, they all stay buried. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2000 Report Share Posted February 8, 2000 >> Subject: Re: Newcomer's soap problem hmmm, when you say you melt it do you mean at rebatch? how are you melting it down? >> I think I mean at rebatch. I let it harden, grate it, and add the water and grated soap and melt the combination down, and then put in my additives and mold. I use 16 oz of grated soap with 12 oz of water and heat it over medium low heat. It is during this melting process that it becomes a sticky mess. However, the soap lathers and is not caustic at this point. Thanks for your help, I really appreciate it. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2000 Report Share Posted February 8, 2000 if you're letting your soap harden to just cured before melting it down, you dont need to add water (then again i rebatch in the oven at 250 degrees in a cassorole dish) i also usually use milk, rebatched soap needs fat either milk or another oil also i believe that its 16oz soap 9 oz liquid so you might want to play around with the amount of liquid you use until you find out what is best for you hth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 Hi Everyone, I need advice. I have a terrible yeast infection in my mouth. I always get them after antibiotics, but I haven't taken any. I did have that terrible stomache virus last week and after two days of no food I only could keep down chicken broth, ginger ale and sherbert. I am back on my eating plan but my mouth is on fire. My own saliva burns. All I have been doing is applying oral-jel and it's just not doing the job. Any secret remedies would be greatly appriciated. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2000 Report Share Posted March 9, 2000 , Get some colloidal silver and swoosh that around in your mouth. It kills all yeast, bacteria, virus, and staff infections. Also, open a garlic capsule and let the garlic gel (I know it is gross) coat your mouth. Garlic kills yeast also. Hope you feel better. http://home.sol.no/~dusan/silver.html Silver will not hurt you at all, and I have given you a site that will explain how good it is. Debbie Re: Digest Number 192 > From: jroesle@... > > Hi Everyone, > I need advice. I have a terrible yeast infection in my mouth. I always > get them after antibiotics, but I haven't taken any. I did have that terrible > stomache virus last week and after two days of no food I only could keep down > chicken broth, ginger ale and sherbert. I am back on my eating plan but my > mouth is on fire. My own saliva burns. All I have been doing is applying > oral-jel and it's just not doing the job. Any secret remedies would be > greatly appriciated. > Thanks, > > ------------------------------------------------------------------------ > PERFORM CPR ON YOUR APR! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > 1/2121/4/_/473523/_/952577015/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2000 Report Share Posted March 9, 2000 PAM, I'M BEEN TRYING TO EMAIL YOU AS YOU SUGGESTED YESTERDAY, BUT THE EMAIL KEEPS BEING RETURNED. LOUISE >From: " debbie " <debmcb@...> >Reply-onelist ><onelist> >Subject: Re: Digest Number 192 >Date: Thu, 9 Mar 2000 08:42:59 -0500 > >, >Get some colloidal silver and swoosh that around in your mouth. It kills >all yeast, bacteria, virus, and staff infections. Also, open a garlic >capsule and let the garlic gel (I know it is gross) coat your mouth. >Garlic >kills yeast also. Hope you feel better. >http://home.sol.no/~dusan/silver.html >Silver will not hurt you at all, and I have given you a site that will >explain how good it is. > >Debbie > Re: Digest Number 192 > > > > From: jroesle@... > > > > Hi Everyone, > > I need advice. I have a terrible yeast infection in my mouth. I >always > > get them after antibiotics, but I haven't taken any. I did have that >terrible > > stomache virus last week and after two days of no food I only could keep >down > > chicken broth, ginger ale and sherbert. I am back on my eating plan but >my > > mouth is on fire. My own saliva burns. All I have been doing is applying > > oral-jel and it's just not doing the job. Any secret remedies would be > > greatly appriciated. > > Thanks, > > > > ------------------------------------------------------------------------ > > PERFORM CPR ON YOUR APR! > > Get a NextCard Visa, in 30 seconds! Get rates as low as > > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > > Apply NOW! > > 1/2121/4/_/473523/_/952577015/ > > ------------------------------------------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 Good suggestion Kathleen. , are you feeling better. Hope so. Louise >From: kmschafer101@... >Reply-onelist >onelist >Subject: Re: Digest Number 192 >Date: Fri, 10 Mar 2000 20:09:46 EST > >, > >I have heard that massive doses of acidophilus can help. I used to take it >for vaginal yeast infections. I would recommend that you take New >Chapter's >D'Adamo 4 Your Type Probiotic for Type O. It replaces the friendly >bacterial >that get killed by antibiotics. I take 1 capsule a day as part of my daily >regimen. Given your condition, you'll probably want to take more. The >container recommends 2 per day. That is probably the dosage if you don't >have any obvious problem. You can order from North American Pharmacal at >www.4yourtype.com or through www.dadamo.com. > >Happy Healing!! > >Kathleen ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 , I have heard that massive doses of acidophilus can help. I used to take it for vaginal yeast infections. I would recommend that you take New Chapter's D'Adamo 4 Your Type Probiotic for Type O. It replaces the friendly bacterial that get killed by antibiotics. I take 1 capsule a day as part of my daily regimen. Given your condition, you'll probably want to take more. The container recommends 2 per day. That is probably the dosage if you don't have any obvious problem. You can order from North American Pharmacal at www.4yourtype.com or through www.dadamo.com. Happy Healing!! Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2000 Report Share Posted March 23, 2000 Are there people that try to sell their soaps based on the fact that it DOESN'T have lye/sodium hydroxide? I did not know that. In fact, someone answered this for me but now I can't remember, how was it first discovered that lye would turn into soap originally? It's so odd in a way. (I'm not a soapmaker.) However, if soap can be made without lye wouldn't that be the " safer " way to go anyway? Does soap WITHOUT lye have better cleansing or other properties or is it just another alternative? It's interesting that something that is so harmful in its original " raw " state can become so benign. Thanks for your thoughts and information. best, cathryn. ---------- >From: onelist >onelist >Subject: Digest Number 192 >Date: Thu, Mar 23, 2000, 12:37 AM > > If I buy a loaf of bread, I believe I am entitled to > know, and I want to know, what went into the making of the bread so I can > make an informed decision as to whether I want to put it in my body. I don't > care that it is bread, I can see that, I want to know what originally went > in to making it. If every soapmaker listed sodium hydroxide, we wouldn't > have the perceived problem that we think we have now. The main problem we > have are the people that use fear based advertising to sell their products > and not being truthful. In my opinion they should be turned in to the > regulatory agencies and let them deal with them. Then the rest of us will be > playing on a level playing field and we won't have this problem to deal > with. > > > Pat. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2000 Report Share Posted March 23, 2000 In a message dated 3/22/00 11:38:30 PM Central Standard Time, onelist writes: << I am thinking of having my soaps and lotions in a small craft space at a local store. My question is since I have not made big batches (MP and pre-made lotions that I just add scent to), can I find out what the shelf life would be? >> My first advice to this question would be to kindly answer that youprobably need more experience in manufacturing your product so that you can answer these questions yourself. There is nothing like experience - both successful and unsuccessful - - to know all you can know about your product. And be sure you look into product liability insurance; you never know who will decide you are an easy target for a lawsuit for a lotion or soap that made a red mark on their arm or leg or face. Good Luck. Diane s Wheaton Soapworks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2000 Report Share Posted April 20, 2000 In a message dated 04/20/2000 1:33:07 AM Pacific Daylight Time, Dregroups writes: << armoured thyroid (not sure of the exact spelling). It is a more natural replacement hormone, and according to Alan Gaby, MD at a seminar I attended, it works better in about 90% of cases. >> I take 1/2 grain of Armour thyroid daily. It is a natural thyroid used for many, many years by doctors. It has helped tremendously with the depression as well as a higher energy level. The dr. had prescribed 1 gr and I found that it made me too nervous and agitated....so I cut it in half. Works for me! love and joy Kiasi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Thanks , That site is a great one! It gives a concise plain English explanation of this condition. The little graphics are great. , if you read this I wonder if the site could be quoted in an introduction to this website for prospective new users?? Is that possible at all? Regards Jeanne Re: Do I / Don't I? > >Hi Jess >Where abouts in the UK do you live? My consultant is Miss at the >Norfolk and Norwich Hospital in Norwich. She is very experienced for the UK >in that she does 10+ myotomy operations per year. I was operated on in Jan >this year and have been fully recovered for several weeks. The operation was >a great success. I have no problem with swallowing and, luckily, have no >problems with reflux. For more details you can see my earlier messages on >the web site. >Good luck with your operation, Jane >*************************************************************************** * >********************************* >Dr Jane >Senior Research Associate >CSERGE (Centre for Social and Economic Research on the Global Environment >School of Environmental Sciences >University of East Anglia >Norwich NR4 7TJ >UK > >j.c.powell@... >Tel: +44 (0) 1603 592822 >Fax: +44 (0) 1603 593739 >http://www.uea.ac.uk/env/cserge/ > Do I / Don't I? > > >> Hello everyone, >> I went to see my consultant on Wednesday and he basically said that >> the longer I leave having the surgery the less likely it is to be >> successful. I suppose this is true but i'm still apprehensive having >> it done. The consultant sais that when I have it done he is going to >> bring another surgeon with him. I told him about this group and >> about the very experienced surgeons there are in the US. There only >> seem to be a handful of surgeons in the UK that have experience of >> achalasia related surgery and even that experience is very limited, >> there are just not enough cases. He would like to look at some >> achalasia websites, specifically in the US, and to get in touch with >> surgeons who have a vast experience. Can anyone suggest any good >> websites? I shall try looking myself and looking through past >> messages. >> >> I think I'm going to put my name on the waiting list as it could be >> 3 - 6 month wait (if i'm lucky) I just think that my life cannot >> begin again until I have this surgery done. Things are getting worse >> each day and there's only so much I can put up with. >> >> Speak to you all soon >> Jess >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Jane, That's wonderful news - congratulations. I hope the improvements last a lifetime Regards Jeanne Re: Do I / Don't I? > >Hi Jess >Where abouts in the UK do you live? My consultant is Miss at the >Norfolk and Norwich Hospital in Norwich. She is very experienced for the UK >in that she does 10+ myotomy operations per year. I was operated on in Jan >this year and have been fully recovered for several weeks. The operation was >a great success. I have no problem with swallowing and, luckily, have no >problems with reflux. For more details you can see my earlier messages on >the web site. >Good luck with your operation, Jane >*************************************************************************** * >********************************* >Dr Jane >Senior Research Associate >CSERGE (Centre for Social and Economic Research on the Global Environment >School of Environmental Sciences >University of East Anglia >Norwich NR4 7TJ >UK > >j.c.powell@... >Tel: +44 (0) 1603 592822 >Fax: +44 (0) 1603 593739 >http://www.uea.ac.uk/env/cserge/ > Do I / Don't I? > > >> Hello everyone, >> I went to see my consultant on Wednesday and he basically said that >> the longer I leave having the surgery the less likely it is to be >> successful. I suppose this is true but i'm still apprehensive having >> it done. The consultant sais that when I have it done he is going to >> bring another surgeon with him. I told him about this group and >> about the very experienced surgeons there are in the US. There only >> seem to be a handful of surgeons in the UK that have experience of >> achalasia related surgery and even that experience is very limited, >> there are just not enough cases. He would like to look at some >> achalasia websites, specifically in the US, and to get in touch with >> surgeons who have a vast experience. Can anyone suggest any good >> websites? I shall try looking myself and looking through past >> messages. >> >> I think I'm going to put my name on the waiting list as it could be >> 3 - 6 month wait (if i'm lucky) I just think that my life cannot >> begin again until I have this surgery done. Things are getting worse >> each day and there's only so much I can put up with. >> >> Speak to you all soon >> Jess >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 I was thinking the same thing, that all this information, compiled in a file for new people to read would be really helpful. I did up my own word document and printed it for my family to read so they would understand better. People who don't actually have the problem are less inclined to do the difficult research involved with this rare disease, and when you are first looking, there are now so many posts here to read through. Janet --- In achalasia@y..., " S. R. & J. E. Streater " <struth@i...> wrote: > Thanks , > That site is a great one! It gives a concise plain English explanation of > this condition. The little graphics are great. > , if you read this I wonder if the site could be quoted in an > introduction to this website for prospective new users?? Is that possible > at all? > > Regards Jeanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2001 Report Share Posted November 24, 2001 lol Raf!!! The smoking is the only thing I haven't given up yet! I will have four years clean and sober soon. I'm glad you to hear that you've given smoking up too. How difficult was that??? I've talked to other people who have done it and they said they used the steps of aa to help. How did you do it? I'd love to be a totally clean girl!!! Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2001 Report Share Posted November 24, 2001 Hang in there , the light is at the end of the tunnel! Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Hi, How do you know the agression is a sensory issue? Has a Funcional Analysis " been performed? This type of analysis, if done correctly, will indicate why he is behaving this way. Once it is determined what function the agression serves, then there are different ways to deal with. Sometimes we unknowinly react in a way that makes the problem worst. Hope it helps to get you started. Date sent: 19 Jul 2002 16:02:20 -0000 From: autism autism Subject: Digest Number 192 Send reply to: autism [ Double-click this line for list subscription options ] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 Kate- Thanks for raising the question. This is the quote from the Stratton handout which I put on the list a couple of days ago, relating to countering secondary porphyria symptoms: " 10. Hydroxychloroquine Hydroxychloroquine (100 - 200 mg once or twice per day) is often used to treat porphyria. For patients with symptoms of porphyria, a single 100 mg dose of hydroxychloroquine may be tried. If this trial dose relieves the symptoms, hydroxychloroquine may be continued. The hydroxychloroquine dose must be adjusted for each patient. This is done by increased the dose slowly, starting with 100 mg every other day, then slowly increasing to a maximum dose of no more than 200 mg twice per day. Most patients do well on 100 mg once per day. Visual/eye exams should be done periodically as per manufacturer’s recommendations (See PDR). " Since this is on a treatment using metronidazole (flagyl) and tini is in the same family, I expect they are compatible. I'm intending to try it as suggested to see if it counters and of the tini herx, not stay on it long term. Anyone know of any contraindications before I barge on? Having this group as a cross-check may just save my butt from the risks of self-experiment! Jim From: Kate <KateDunlay@...> Subject: Re: Porphyria, Stratton, etc On Saturday, June 25, 2005, at 09:34 AM, Jim Kepner wrote: > As for drugs vs clearing, I have some > hydrochloroquinine to try and see if it makes a > difference in my reactions to the Tini. Somewhere I read that these shouldn't be taken together but I can't find the reference now. Did Stratton say it was okay? - Kate D. Quote Link to comment Share on other sites More sharing options...
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