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Re: Digest Number 192

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Hi ,

Sorry it has taken so long to respond to your message.You asked how

the foot surgery went. They debrided the posterior tibial tendon and

trasferred the flexor tendon ( it is the one that curls your toes) to

that area. Because the foot was deformed.....turning outward....he

grafted bone from the iliac crest to the other side of the foto to

correct that problem. So there is a plate with 5 screws in that area to

hold the graft. Then he cut the calf area to lengthen the gastrocnemius

muscle to attach it to the transplanted tendon. The deformity is

corrected and the foot is straight, but i still have pain mostly from

the plate and screw. Last xray they did I noticed that 2 screws were

broken....don't think they were going to mention it.....but i noticed it

on the films. So this will all be removed in January.

As far as the psoriasisof the nails goes, it is not just the way they

look but as the psoiasis builds up it pushes up the nails and loosens

them which is very painful. Feels like ingrown toenails. I can hide my

feet but I also have 2 fingernails affected which is unsightly. The

dermatologist has seen thm and even took scrapings to culture it for

fungus and it was negative. He never offered any treatment. Actually

acted like it was no big deal.

You expressed your concerns about prednisone. I am aware of all the

damage it can do. When I took MTX the rheumy said I had to take it to

get the MTX to work properly. I am now off MTX and taking Arava. Not

having much luck with any of the meds. Not sure how long my stomach will

hold up! Alot of burning and indigestion with everything I have tried.

Going to give it a good try though.

Yes you do sound like my missing twin! Very similar problems. Do you

have any problems in the sternoclavicular joint?

This is all very frustrating but I am hanging in there. Just wish

people could understand what we go through! Thank God my husband finally

does but the rest of the famiy is clueless! I have tried to explain it

but they just don't get it Can't understand the fatigue mostly.

Also I tried to get into the chat room . Had a tough time. I am on web

tv so I clicked on to the button for that but my messages weren't

getting on like they should. When entered a message it would send my

screen back to the top of the page every time and some of my words would

be missing letters. Any ideas? Think people thoughI was nuts! Anyway

thanks for your input and responding to my letter. Look forward to

sharing with you and everyone in the group. Take care

P.S. Sorry this is so long!

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  • 6 months later...

In a message dated 2/7/00 7:09:58 PM Central Standard Time,

cloudgzr@... writes:

<< From: Cassandra <cloudgzr@...>

you can get good natural pigments from:

http://members.aol.com/pgmntlady

she has the most lovely mica colors and natural

coloring agents that wont stain >>

When I try to access this website AOL cannot locate it. I would love to find

some natural coloring agents.

Thanks,

Amy :o)

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you can get good natural pigments from:

http://members.aol.com/pgmntlady

she has the most lovely mica colors and natural

coloring agents that wont stain

=====

Desire is the treasure map. Knowledge is the treasure chest.

Wisdom is the jewel. Yet, without action, they all stay buried.

__________________________________________________

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aol can't find the page.?

Re: Digest Number 192

From: Cassandra <cloudgzr@...>

you can get good natural pigments from:

http://members.aol.com/pgmntlady

she has the most lovely mica colors and natural

coloring agents that wont stain

=====

Desire is the treasure map. Knowledge is the treasure chest.

Wisdom is the jewel. Yet, without action, they all stay buried.

__________________________________________________

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>> Subject: Re: Newcomer's soap problem

hmmm, when you say you melt it do you mean at rebatch? how are you melting

it down? >>

I think I mean at rebatch. I let it harden, grate it, and add the water and

grated soap and melt the combination down, and then put in my additives and

mold. I use 16 oz of grated soap with 12 oz of water and heat it over

medium low heat. It is during this melting process that it becomes a sticky

mess. However, the soap lathers and is not caustic at this point.

Thanks for your help, I really appreciate it.

Lynn

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if you're letting your soap harden to just cured before melting it down, you

dont need to add water

(then again i rebatch in the oven at 250 degrees in a cassorole dish) i also

usually use milk, rebatched soap needs fat either milk or another oil

also i believe that its 16oz soap 9 oz liquid

so you might want to play around with the amount of liquid you use until you

find out what is best for you

hth

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  • 1 month later...
Guest guest

Hi Everyone,

I need advice. I have a terrible yeast infection in my mouth. I always

get them after antibiotics, but I haven't taken any. I did have that terrible

stomache virus last week and after two days of no food I only could keep down

chicken broth, ginger ale and sherbert. I am back on my eating plan but my

mouth is on fire. My own saliva burns. All I have been doing is applying

oral-jel and it's just not doing the job. Any secret remedies would be

greatly appriciated.

Thanks,

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Guest guest

,

Get some colloidal silver and swoosh that around in your mouth. It kills

all yeast, bacteria, virus, and staff infections. Also, open a garlic

capsule and let the garlic gel (I know it is gross) coat your mouth. Garlic

kills yeast also. Hope you feel better.

http://home.sol.no/~dusan/silver.html

Silver will not hurt you at all, and I have given you a site that will

explain how good it is.

Debbie

Re: Digest Number 192

> From: jroesle@...

>

> Hi Everyone,

> I need advice. I have a terrible yeast infection in my mouth. I always

> get them after antibiotics, but I haven't taken any. I did have that

terrible

> stomache virus last week and after two days of no food I only could keep

down

> chicken broth, ginger ale and sherbert. I am back on my eating plan but my

> mouth is on fire. My own saliva burns. All I have been doing is applying

> oral-jel and it's just not doing the job. Any secret remedies would be

> greatly appriciated.

> Thanks,

>

> ------------------------------------------------------------------------

> PERFORM CPR ON YOUR APR!

> Get a NextCard Visa, in 30 seconds! Get rates as low as

> 0.0% Intro or 9.9% Fixed APR and no hidden fees.

> Apply NOW!

> 1/2121/4/_/473523/_/952577015/

> ------------------------------------------------------------------------

>

>

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Guest guest

PAM, I'M BEEN TRYING TO EMAIL YOU AS YOU SUGGESTED YESTERDAY, BUT THE EMAIL

KEEPS BEING RETURNED. LOUISE

>From: " debbie " <debmcb@...>

>Reply-onelist

><onelist>

>Subject: Re: Digest Number 192

>Date: Thu, 9 Mar 2000 08:42:59 -0500

>

>,

>Get some colloidal silver and swoosh that around in your mouth. It kills

>all yeast, bacteria, virus, and staff infections. Also, open a garlic

>capsule and let the garlic gel (I know it is gross) coat your mouth.

>Garlic

>kills yeast also. Hope you feel better.

>http://home.sol.no/~dusan/silver.html

>Silver will not hurt you at all, and I have given you a site that will

>explain how good it is.

>

>Debbie

> Re: Digest Number 192

>

>

> > From: jroesle@...

> >

> > Hi Everyone,

> > I need advice. I have a terrible yeast infection in my mouth. I

>always

> > get them after antibiotics, but I haven't taken any. I did have that

>terrible

> > stomache virus last week and after two days of no food I only could keep

>down

> > chicken broth, ginger ale and sherbert. I am back on my eating plan but

>my

> > mouth is on fire. My own saliva burns. All I have been doing is applying

> > oral-jel and it's just not doing the job. Any secret remedies would be

> > greatly appriciated.

> > Thanks,

> >

> > ------------------------------------------------------------------------

> > PERFORM CPR ON YOUR APR!

> > Get a NextCard Visa, in 30 seconds! Get rates as low as

> > 0.0% Intro or 9.9% Fixed APR and no hidden fees.

> > Apply NOW!

> > 1/2121/4/_/473523/_/952577015/

> > ------------------------------------------------------------------------

> >

> >

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Guest guest

Good suggestion Kathleen. , are you feeling better. Hope so.

Louise

>From: kmschafer101@...

>Reply-onelist

>onelist

>Subject: Re: Digest Number 192

>Date: Fri, 10 Mar 2000 20:09:46 EST

>

>,

>

>I have heard that massive doses of acidophilus can help. I used to take it

>for vaginal yeast infections. I would recommend that you take New

>Chapter's

>D'Adamo 4 Your Type Probiotic for Type O. It replaces the friendly

>bacterial

>that get killed by antibiotics. I take 1 capsule a day as part of my daily

>regimen. Given your condition, you'll probably want to take more. The

>container recommends 2 per day. That is probably the dosage if you don't

>have any obvious problem. You can order from North American Pharmacal at

>www.4yourtype.com or through www.dadamo.com.

>

>Happy Healing!!

>

>Kathleen

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

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Guest guest

,

I have heard that massive doses of acidophilus can help. I used to take it

for vaginal yeast infections. I would recommend that you take New Chapter's

D'Adamo 4 Your Type Probiotic for Type O. It replaces the friendly bacterial

that get killed by antibiotics. I take 1 capsule a day as part of my daily

regimen. Given your condition, you'll probably want to take more. The

container recommends 2 per day. That is probably the dosage if you don't

have any obvious problem. You can order from North American Pharmacal at

www.4yourtype.com or through www.dadamo.com.

Happy Healing!!

Kathleen

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  • 2 weeks later...
Guest guest

Are there people that try to sell their soaps based on the fact that it

DOESN'T have lye/sodium hydroxide? I did not know that. In fact, someone

answered this for me but now I can't remember, how was it first discovered

that lye would turn into soap originally? It's so odd in a way. (I'm not a

soapmaker.) However, if soap can be made without lye wouldn't that be the

" safer " way to go anyway? Does soap WITHOUT lye have better cleansing or

other properties or is it just another alternative? It's interesting that

something that is so harmful in its original " raw " state can become so

benign.

Thanks for your thoughts and information.

best,

cathryn.

----------

>From: onelist

>onelist

>Subject: Digest Number 192

>Date: Thu, Mar 23, 2000, 12:37 AM

>

> If I buy a loaf of bread, I believe I am entitled to

> know, and I want to know, what went into the making of the bread so I can

> make an informed decision as to whether I want to put it in my body. I don't

> care that it is bread, I can see that, I want to know what originally went

> in to making it. If every soapmaker listed sodium hydroxide, we wouldn't

> have the perceived problem that we think we have now. The main problem we

> have are the people that use fear based advertising to sell their products

> and not being truthful. In my opinion they should be turned in to the

> regulatory agencies and let them deal with them. Then the rest of us will be

> playing on a level playing field and we won't have this problem to deal

> with.

>

>

> Pat.

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Guest guest

In a message dated 3/22/00 11:38:30 PM Central Standard Time,

onelist writes:

<< I am thinking of having my soaps and lotions in a small craft space at a

local store. My question is since I have not made big batches (MP and

pre-made lotions that I just add scent to), can I find out what the shelf

life would be?

>>

My first advice to this question would be to kindly answer that youprobably

need more experience in manufacturing your product so that you can answer

these questions yourself.

There is nothing like experience - both successful and unsuccessful - - to

know all you can know about your product.

And be sure you look into product liability insurance; you never know who

will decide you are an easy target for a lawsuit for a lotion or soap that

made a red mark on their arm or leg or face.

Good Luck.

Diane s

Wheaton Soapworks

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  • 4 weeks later...
Guest guest

In a message dated 04/20/2000 1:33:07 AM Pacific Daylight Time,

Dregroups writes:

<< armoured thyroid (not sure of the

exact spelling). It is a more natural replacement hormone, and according

to Alan Gaby, MD at a seminar I attended, it works better in about 90% of

cases. >>

I take 1/2 grain of Armour thyroid daily. It is a natural thyroid used for

many, many years by doctors. It has helped tremendously with the depression

as well as a higher energy level. The dr. had prescribed

1 gr and I found that it made me too nervous and agitated....so I cut it in

half. Works for me!

love and joy

Kiasi

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  • 11 months later...
Guest guest

Thanks ,

That site is a great one! It gives a concise plain English explanation of

this condition. The little graphics are great.

, if you read this I wonder if the site could be quoted in an

introduction to this website for prospective new users?? Is that possible

at all?

Regards Jeanne

Re: Do I / Don't I?

>

>Hi Jess

>Where abouts in the UK do you live? My consultant is Miss at the

>Norfolk and Norwich Hospital in Norwich. She is very experienced for the

UK

>in that she does 10+ myotomy operations per year. I was operated on in Jan

>this year and have been fully recovered for several weeks. The operation

was

>a great success. I have no problem with swallowing and, luckily, have no

>problems with reflux. For more details you can see my earlier messages on

>the web site.

>Good luck with your operation, Jane

>***************************************************************************

*

>*********************************

>Dr Jane

>Senior Research Associate

>CSERGE (Centre for Social and Economic Research on the Global Environment

>School of Environmental Sciences

>University of East Anglia

>Norwich NR4 7TJ

>UK

>

>j.c.powell@...

>Tel: +44 (0) 1603 592822

>Fax: +44 (0) 1603 593739

>http://www.uea.ac.uk/env/cserge/

> Do I / Don't I?

>

>

>> Hello everyone,

>> I went to see my consultant on Wednesday and he basically said that

>> the longer I leave having the surgery the less likely it is to be

>> successful. I suppose this is true but i'm still apprehensive having

>> it done. The consultant sais that when I have it done he is going to

>> bring another surgeon with him. I told him about this group and

>> about the very experienced surgeons there are in the US. There only

>> seem to be a handful of surgeons in the UK that have experience of

>> achalasia related surgery and even that experience is very limited,

>> there are just not enough cases. He would like to look at some

>> achalasia websites, specifically in the US, and to get in touch with

>> surgeons who have a vast experience. Can anyone suggest any good

>> websites? I shall try looking myself and looking through past

>> messages.

>>

>> I think I'm going to put my name on the waiting list as it could be

>> 3 - 6 month wait (if i'm lucky) I just think that my life cannot

>> begin again until I have this surgery done. Things are getting worse

>> each day and there's only so much I can put up with.

>>

>> Speak to you all soon

>> Jess

>>

>>

>>

>>

>>

>>

>>

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Guest guest

Jane,

That's wonderful news - congratulations. I hope the improvements last a

lifetime

Regards Jeanne

Re: Do I / Don't I?

>

>Hi Jess

>Where abouts in the UK do you live? My consultant is Miss at the

>Norfolk and Norwich Hospital in Norwich. She is very experienced for the

UK

>in that she does 10+ myotomy operations per year. I was operated on in Jan

>this year and have been fully recovered for several weeks. The operation

was

>a great success. I have no problem with swallowing and, luckily, have no

>problems with reflux. For more details you can see my earlier messages on

>the web site.

>Good luck with your operation, Jane

>***************************************************************************

*

>*********************************

>Dr Jane

>Senior Research Associate

>CSERGE (Centre for Social and Economic Research on the Global Environment

>School of Environmental Sciences

>University of East Anglia

>Norwich NR4 7TJ

>UK

>

>j.c.powell@...

>Tel: +44 (0) 1603 592822

>Fax: +44 (0) 1603 593739

>http://www.uea.ac.uk/env/cserge/

> Do I / Don't I?

>

>

>> Hello everyone,

>> I went to see my consultant on Wednesday and he basically said that

>> the longer I leave having the surgery the less likely it is to be

>> successful. I suppose this is true but i'm still apprehensive having

>> it done. The consultant sais that when I have it done he is going to

>> bring another surgeon with him. I told him about this group and

>> about the very experienced surgeons there are in the US. There only

>> seem to be a handful of surgeons in the UK that have experience of

>> achalasia related surgery and even that experience is very limited,

>> there are just not enough cases. He would like to look at some

>> achalasia websites, specifically in the US, and to get in touch with

>> surgeons who have a vast experience. Can anyone suggest any good

>> websites? I shall try looking myself and looking through past

>> messages.

>>

>> I think I'm going to put my name on the waiting list as it could be

>> 3 - 6 month wait (if i'm lucky) I just think that my life cannot

>> begin again until I have this surgery done. Things are getting worse

>> each day and there's only so much I can put up with.

>>

>> Speak to you all soon

>> Jess

>>

>>

>>

>>

>>

>>

>>

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Guest guest

I was thinking the same thing, that all this information, compiled in

a file for new people to read would be really helpful. I did up my

own word document and printed it for my family to read so they would

understand better. People who don't actually have the problem are

less inclined to do the difficult research involved with this rare

disease, and when you are first looking, there are now so many posts

here to read through. Janet

---

In achalasia@y..., " S. R. & J. E. Streater " <struth@i...> wrote:

> Thanks ,

> That site is a great one! It gives a concise plain English

explanation of

> this condition. The little graphics are great.

> , if you read this I wonder if the site could be quoted in an

> introduction to this website for prospective new users?? Is that

possible

> at all?

>

> Regards Jeanne

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  • 7 months later...

lol Raf!!!

The smoking is the only thing I haven't given up yet! I will have four years clean and sober soon. I'm glad you to hear that you've given smoking up too. How difficult was that??? I've talked to other people who have done it and they said they used the steps of aa to help. How did you do it? I'd love to be a totally clean girl!!!

Vicky

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  • 7 months later...
Guest guest

Hi,

How do you know the agression is a sensory issue? Has a

Funcional Analysis " been performed? This type of analysis, if done

correctly, will indicate why he is behaving this way. Once it is

determined what function the agression serves, then there are

different ways to deal with. Sometimes we unknowinly react in a

way that makes the problem worst. Hope it helps to get you

started.

Date sent: 19 Jul 2002 16:02:20 -0000

From: autism

autism

Subject: Digest Number 192

Send reply to: autism

[ Double-click this line for list subscription options ]

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  • 2 years later...
Guest guest

Kate-

Thanks for raising the question.

This is the quote from the Stratton handout which I

put on the list a couple of days ago, relating to

countering secondary porphyria symptoms:

" 10. Hydroxychloroquine

Hydroxychloroquine (100 - 200 mg once or twice per

day) is often used to treat porphyria. For patients

with symptoms of porphyria, a single 100 mg dose of

hydroxychloroquine may be tried. If this trial dose

relieves the symptoms, hydroxychloroquine may be

continued. The hydroxychloroquine dose must be

adjusted for each patient. This is done by increased

the dose slowly, starting with 100 mg every other day,

then slowly increasing to a maximum dose of no more

than 200 mg twice per day. Most patients do well on

100 mg once per day. Visual/eye exams should be done

periodically as per manufacturer’s recommendations

(See PDR). "

Since this is on a treatment using metronidazole

(flagyl) and tini is in the same family, I expect they

are compatible. I'm intending to try it as suggested

to see if it counters and of the tini herx, not stay

on it long term. Anyone know of any contraindications

before I barge on? Having this group as a cross-check

may just save my butt from the risks of

self-experiment!

Jim

From: Kate <KateDunlay@...>

Subject: Re: Porphyria, Stratton, etc

On Saturday, June 25, 2005, at 09:34 AM, Jim Kepner

wrote:

> As for drugs vs clearing, I have some

> hydrochloroquinine to try and see if it makes a

> difference in my reactions to the Tini.

Somewhere I read that these shouldn't be taken

together but I can't

find the reference now. Did Stratton say it was okay?

- Kate D.

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