Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 What a beautiful relationship you share! You are indeed blessed to have her in your life. Hugs........... Diane ________________________________ To: livercirrhosissupport Sent: Monday, November 24, 2008 3:34:11 PM Subject: RE: Tina Thanks Diane. I'm staying up her with her as long as she needs me, so travel is minimal. Until she met Ed, she had been a single mom and we have had a 'best friend' bond all my life. I've cuddled up in bed with her and the dogs everynight.. ...last night we fell asleep holding hands. I am so honored to be here for her. She really is an amazing woman and I hate that she is losing the man she loves so dearly. Tina _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrhosissuppo rtyahoogroups (DOT) com] On Behalf Of diane chandler Sent: Monday, November 24, 2008 4:24 PM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: Re: Tina Tina, I am so glad his sister came. I know it will make all the difference for the both of them, as well as make your mom feel better. I'm also very happy that everyone has been so helpful to you all. I find that, in these circumstances, people are usually bending over backwards to be helpful and to make things as easy on the family as possible. Be careful traveling back and forth and take care of yourself. Continuing to pray! Hugs....... Diane ____________ _________ _________ __ From: Tina <beadin_beagle@ <mailto:beadin_ beagle%40yahoo. com> yahoo.com> To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com Sent: Monday, November 24, 2008 3:13:50 PM Subject: RE: Tina Everyone we have spoken to has been so wonderful. I just came back to my moms to feed her puppies and open some windows to get some fresh air in the house as my dad has smoked in the house the past few weeks. My dad's sister flew in today and will stay for a while. They got into a tiff a few months ago because she wanted him to get help for his drinking and he hasn't spoken to her since. Although he has been holding her hand all afternoon and I think that has helped them both. They should be transporting him to hospice now and I will meet them over there. Tina _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrho sissuppo rtyahoogroups (DOT) com] On Behalf Of Tammy Parsons Sent: Sunday, November 23, 2008 9:11 PM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: Re: Tina I have to agree that hospice is a great thing! I worked for Hospice until I had my daughter and she was born with all her medical problems. I loved my job, I think the best part about it was being there for the families and just sitting at times and listning to them tell me about there loved one. I did in-home hospice care. I was a CNA--so I really got to know the families since I was in the home for long periods a day. I often wonder if I was meant to go into that line of work since having my daughter and being told she had a terminal illness. Hope everyone has a great evening! Tammy ____________ _________ _________ __ From: Bob Aragon <robwalkingeagle@ <mailto:robwalkinge agle%40yahoo. com> yahoo.com> To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com Sent: Sunday, November 23, 2008 8:39:55 PM Subject: Re: Tina I'm so sorry. You make a good choice when you choose hospice. Inpatient hospice is the place to be. Thats where I want to be when I go. The entire philosophy if hospice nursing is very different from curative care. They are very equipped to deal with passing on as a part of life , not the ultimate enemy. May God be with you and your family in this difficult time. Love, Bobby long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: Tina <beadin_beagle@ yahoo.com> To: livercirrhosissuppo rtyahoogroups (DOT) com Sent: Sunday, November 23, 2008 5:04:48 PM Subject: RE: Tina Very bad day. He has been non-responsive all day and we are moving him to hospice tomarrow. Right now I'm staying with mom as long as needed. Tina _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrho sissuppo rtyahoogroups (DOT) com] On Behalf Of diane chandler Sent: Sunday, November 23, 2008 2:20 PM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: Re: Tina Be careful Tina. I'm praying. Hugs........ ... Diane ____________ _________ _________ __ From: Tina <beadin_beagle@ <mailto:beadin_ beagle%40yahoo. com> yahoo.com> To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com Sent: Sunday, November 23, 2008 1:08:33 PM Subject: RE: Tina Thanks Diane. She just called and hospice is coming at 2:30 today. I can't make it up there in time but I'm leaving right now and Bill & Sera will come up later. Tina _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrho sissuppo rtyahoogroups (DOT) com] On Behalf Of diane chandler Sent: Sunday, November 23, 2008 1:53 PM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: Re: Tina Oh, I'm so glad your Mom will get to see Sera! I know that will lift her spirits and make her day! I know this is a lot on you, but I am so glad you're going to be there for your Mom tomorrow. I will be praying for all of you. Thanks for keeping us posted. Hugs........ ... Diane ____________ _________ _________ __ From: Tina <beadin_beagle@ <mailto:beadin_ beagle%40yahoo. com> yahoo.com> To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com Sent: Sunday, November 23, 2008 12:27:21 PM Subject: RE: Tina Thanks Diane. My husband, daughter and i are going up this afternoon so my husband can see him. Then we are going to take mom to dinner and let her spend some time with Sera (thought it might cheer her up). The doctors said that his pneumonia hasn't gotten any better despite the antibiotics and respiratory therapy. Today he is very unresponsive and they have called hospice in to talk to mom tomorrow. Bill will bring Sera back with him tonight and I will stay there with her. I will keep you posted. Tina _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrho sissuppo rtyahoogroups (DOT) com] On Behalf Of diane chandler Sent: Sunday, November 23, 2008 12:07 AM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: Re: Tina Hi Tina! I am so sorry your baby is sick but I am so happy you got to spend the last few days with your Mom and your stepdad. I know he is facing a lot of issues, but it seems as if your Mom is doing well with everything. I pray he will not suffer and that, when the time comes, it will be a peaceful crossing and that your Mom will be at rest with the crossing. I know none of look forward to giving up our loved ones, but I have often said I would rather give up the ones I love than see them suffer. Take care of the baby and yourself. I am praying for all of you that the Lord will meet your needs and grant healing, understanding that for some, healing means leaving our body behind. Hugs........ .... Diane ____________ _________ _________ __ From: Tina <beadin_beagle@ <mailto:beadin_ beagle%40yahoo. com> yahoo.com> To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com Sent: Saturday, November 22, 2008 4:13:58 PM Subject: RE: Tina Hi family! Well, I came back home yesterday as my 3 year old was sick and my dad seemed stable. Yesterday the nurses gave my mom a list of nursing homes to check out. They said he will need physical therapy 3 times a day and with him not walking, she is unable to take care of him by herself. The kidney doctor was in today and said his kidneys were failing. He put it very bluntly wehn he told her that he would probably never go home again. Personally, I don't see how his body is still functioning. He has alcohol cirrhosis and has smoked for over 50 years (when he had heart surgery 5 years ago they saw early signs of emphasema). In addition to those 2, he has prostate cancer (gleason score was an 8), a brain aneyurism, has had heart bypass surgery and then a heart attack and stent. Now he's in the hospital with pneumonia and blood clots in his legs. I just don't know how long he can hang on with all of these issues. If he goes, at least I am at peace that I have spent the last 3 days by his side, holding his hand, feeding him and making sure he's comfortable and warm. Thanks everyone for all your support. Tina _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrho sissuppo rtyahoogroups (DOT) com] On Behalf Of Bob Aragon Sent: Friday, November 21, 2008 5:03 AM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: Re: Tina Ammonia is but one toxin. tyhe problem with ammonia is that veinous blood is not as acurate a meaurement as arterial blood, and they usually dont draw arterial blood. I found this. it seems to be fairly new, and the guy says he is a hepatologist. It seems right on the money to me as far as what my hepatologist says. http://knol. <http://knol. google.com/ k/tim-davern/ hepatic-encephal opathy/4ptrsx4j4 vcq/4#> google.com/k/ tim-davern/ hepatic-encephal opathy/4ptrsx4j4 vcq/4# long life, old age, everything good-Apache prayer ____________ _________ _________ __ From: Tina <beadin_beagle@ <mailto:beadin_ beagle%40yahoo. com> yahoo.com> To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com Sent: Thursday, November 20, 2008 4:53:47 PM Subject: RE: Tina Hi all. They drained EIGHT liters today. suprisingly they said his amonia levels weren't too high but he seems so confused. His eyes are so glassy and he sleeps with them half open....it's so sad and scary at the same time. Right now we are taking it day by day. Thanks for your support. Tina _____ From: livercirrhosissuppo rtyahoogroups (DOT) com [mailto:livercirrho sissuppo rtyahoogroups (DOT) com] On Behalf Of diane chandler Sent: Thursday, November 20, 2008 10:23 AM To: livercirrhosissuppo rtyahoogroups (DOT) com Subject: Re: Tina Good, this should make him more comfortable. Keep us informed. Still praying for all of you. Hugs........ Diane ____________ _________ _________ __ From: " beadin_beagle@ <mailto:beadin_ beagle%40yahoo. com> yahoo.com " <beadin_beagle@ <mailto:beadin_ beagle%40yahoo. com> yahoo.com> To: livercirrhosissuppo <mailto:livercirrho sissupport% 40yahoogroups. com> rtyahoogroups (DOT) com Sent: Thursday, November 20, 2008 9:15:20 AM Subject: Re: Tina They r draining some fluid today. Tina Sent from my Verizon Wireless BlackBerry Tina I hope your Dad is comfortable now. It is so hard on everyone when someone they love goes through so much. You want to do everything you can to help them and keep them out of pain. Most all things have to be placed in our creator's hand. We realize our limitations in life by going through this. Your Dad is truly blest to have a daughter who really loves and cares about him. Take it easy and be with him as much as you can. That is more important now than trying to keep him alive. Sometimes we can become so wrapped up in death and saving lives, we forget that the spirit of the person going through this needs to know how much our heart cares more than what we can do for them. I wish you the best..please let us know how he and you are both doing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Hi All, We got Ed transported and settle into Hospice yesterday afternoon. He is comfortable and semi-conscious but not very responsive. The hospice team has been beyond amazing. We flew Ed's sister in yesterday afternoon and she is staying with mom & I. The three of us sat and crying and told stories until late in the night. I am so glad she is here and has made peace with Ed. His 3 kids are coming some time today and I will head home to catch up with Bill & Sera before they leave for Orlando and I come back up to Stuart. Thanks for all you support and prayers. t Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Tina, thank you so much for the update on your dad. I am so thankful everything went well and that he is settled where he can be taken care of and your mom care spend quality time with him without the struggles of trying to meet his daily needs. I am also happy to learn that his children will be coming in today. Have a safe trip home and enjoy your time with your DH and Sera. I know you have missed them terribly, as they have you. I continue to pray for all of you, that the Lord will grant you peace and that Ed's homegoing will be as painfree as is possible. Hugs......... Diane ________________________________ To: Tina ; livercirrhosissupport Sent: Tuesday, November 25, 2008 5:57:06 AM Subject: RE: Tina Hi All, We got Ed transported and settle into Hospice yesterday afternoon. He is comfortable and semi-conscious but not very responsive. The hospice team has been beyond amazing. We flew Ed's sister in yesterday afternoon and she is staying with mom & I. The three of us sat and crying and told stories until late in the night. I am so glad she is here and has made peace with Ed. His 3 kids are coming some time today and I will head home to catch up with Bill & Sera before they leave for Orlando and I come back up to Stuart. Thanks for all you support and prayers. t Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 I'm glad you got him into a good hospice. I think hospice people are nothing short of amazing. The made our experience from something horrible into something beautiful. My prayers are with you.Love, Bobby long life, old age, everything good-Apache prayer ________________________________ To: Tina ; livercirrhosissupport Sent: Tuesday, November 25, 2008 4:57:06 AM Subject: RE: Tina Hi All, We got Ed transported and settle into Hospice yesterday afternoon. He is comfortable and semi-conscious but not very responsive. The hospice team has been beyond amazing. We flew Ed's sister in yesterday afternoon and she is staying with mom & I. The three of us sat and crying and told stories until late in the night. I am so glad she is here and has made peace with Ed. His 3 kids are coming some time today and I will head home to catch up with Bill & Sera before they leave for Orlando and I come back up to Stuart. Thanks for all you support and prayers. t Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 > > Hi All, > > We got Ed transported and settle into Hospice yesterday afternoon. He is > comfortable and semi-conscious but not very responsive. The hospice team > has been beyond amazing. We flew Ed's sister in yesterday afternoon and she > is staying with mom & I. The three of us sat and crying and told stories > until late in the night. I am so glad she is here and has made peace with > Ed. His 3 kids are coming some time today and I will head home to catch up > with Bill & Sera before they leave for Orlando and I come back up to Stuart. > > Thanks for all you support and prayers. Tina, Glad to hear Ed is in a Hospice, they really are very helpful! So nice that his sister is here too. Tough times ahead, I know, but it is so much nicer when you have people around you to hug and cry with! Blessings, Pamela > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 It truly is an amazing place. Tina _____ From: livercirrhosissupport [mailto:livercirrhosissupport ] On Behalf Of Bob Aragon Sent: Tuesday, November 25, 2008 1:23 PM To: livercirrhosissupport Subject: Re: Tina I'm glad you got him into a good hospice. I think hospice people are nothing short of amazing. The made our experience from something horrible into something beautiful. My prayers are with you.Love, Bobby long life, old age, everything good-Apache prayer ________________________________ From: Tina <beadin_beagle@ <mailto:beadin_beagle%40yahoo.com> yahoo.com> To: Tina <beadin_beagle@ <mailto:beadin_beagle%40yahoo.com> yahoo.com>; livercirrhosissuppo <mailto:livercirrhosissupport%40yahoogroups.com> rt Sent: Tuesday, November 25, 2008 4:57:06 AM Subject: RE: Tina Hi All, We got Ed transported and settle into Hospice yesterday afternoon. He is comfortable and semi-conscious but not very responsive. The hospice team has been beyond amazing. We flew Ed's sister in yesterday afternoon and she is staying with mom & I. The three of us sat and crying and told stories until late in the night. I am so glad she is here and has made peace with Ed. His 3 kids are coming some time today and I will head home to catch up with Bill & Sera before they leave for Orlando and I come back up to Stuart. Thanks for all you support and prayers. t Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Thanks for your sweet compliments! Tina _____ From: livercirrhosissupport [mailto:livercirrhosissupport ] On Behalf Of abijann Sent: Tuesday, December 02, 2008 6:27 PM To: livercirrhosissupport Subject: Tina I used to make jewelry, too. But not medical jewelry...I looked at your site and your selection and jewelry is wonderful. I hope others here will take a look. You can hardly tell that it has medical info. I am glad you are back with us. I think all of us tend to disappear once in awhile...especially, with computer trouble. We still have dial up...can't get broadband, so our connection is so slow it hardly brings up the pages. I miss out on alot posted here with U tube and other video things that I want so badly to look at. This is the time of the year that people do tend not to post as much because of all the work and planning and buying that needs done. Quote Link to comment Share on other sites More sharing options...
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