hello all

[Guest guest]

Hello,

My name is Michele, I am 30 years old. I was diagnosed last year

with ACM I. I am still feeling like I know about Chiari but then

everyday with each new posting I llearn something new. It helps me

to not feel like I am going crazy!!! I read some of them to my

roomate and tell her see I am not lying about these things, no one

ever believes the way I explain the way I feel, sounds that I hear

within my body or the way my eyes see things. Thanks for all your

hard work and support!!!!!!!!!!!!!

Take Care,

Michele

>

> Just thought I would introduce myself, my name is Tonya and I am

mom to

> 5 kids. My youngest son was dx with CM in Oct 06, SM in Nov 06,

> decompressed Dec 06 ( in Ft Worth, TX)

> and now has been dx with pseudomeningocele as of Jan 07. That is

our

> Chiari experience. Not exactly a long time and not exactly what we

had

> in mind, but our journey is what it is. I am really looking

forward to

> the information shared here as well, since we are so new to this. I

> like the idea of a yearly meeting as well as the idea of support

groups

> locally. I wouldn't even know where to begin in starting a support

> group but sure would like to help someone with it. I know there are

> many in the DFW area with Chiari and all " his " friends. Thanks

again

> for all the hard work and keep it up! We need to raise awareness

that

> is for sure!

>

> Tonya

>