Guest guest Posted January 28, 2007 Report Share Posted January 28, 2007 Hello, My name is Michele, I am 30 years old. I was diagnosed last year with ACM I. I am still feeling like I know about Chiari but then everyday with each new posting I llearn something new. It helps me to not feel like I am going crazy!!! I read some of them to my roomate and tell her see I am not lying about these things, no one ever believes the way I explain the way I feel, sounds that I hear within my body or the way my eyes see things. Thanks for all your hard work and support!!!!!!!!!!!!! Take Care, Michele > > Just thought I would introduce myself, my name is Tonya and I am mom to > 5 kids. My youngest son was dx with CM in Oct 06, SM in Nov 06, > decompressed Dec 06 ( in Ft Worth, TX) > and now has been dx with pseudomeningocele as of Jan 07. That is our > Chiari experience. Not exactly a long time and not exactly what we had > in mind, but our journey is what it is. I am really looking forward to > the information shared here as well, since we are so new to this. I > like the idea of a yearly meeting as well as the idea of support groups > locally. I wouldn't even know where to begin in starting a support > group but sure would like to help someone with it. I know there are > many in the DFW area with Chiari and all " his " friends. Thanks again > for all the hard work and keep it up! We need to raise awareness that > is for sure! > > Tonya > Quote Link to comment Share on other sites More sharing options...
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