Guest guest Posted March 24, 1999 Report Share Posted March 24, 1999 Hi Ken and others... yes I'm sorry I haven't been posting - the headaches have just been crippling and I haven't been able to look at the computer at all ((( Currently I'm trying a treatment called Feldenkrais - ony two sessions so far... It works on trying to get your body to move in new ways....strengthing it... Don't know if it will help...but willing to give it a go.. Take care... I hope that everyone else is doing as well as can be )))... and thanks Ken...for all your postings.....very informative... Always a hugsssssss Turbin wrote: > > > Hi everyone, > > Lately I have been wondering what our now 65 list members look to > the chronic_pain list for, and would like to see. > > I am asking this questions for several reasons: > * In the year we have existed, we seem to have gone through some > different stages--starting out was slow, then we became a high > participation list, now we're slow again. > * Over the time I have been involved with the list, I have learned from > the different styles of some of our members. Ray expresses his compassion > very well. Mike is straight from the hip with reality, candid, > caring & informative. While Lyn was with us, she too did a lot, and was > oriented to overall information, back-and -forth chat and prodigious > responding to many personally. And almost every one of you who post have > taught me something. > * In what seems to be a lull, I have taken to wondering how to make the > list a little livelier. I think we have come to a point where we mainly > respond to new introductions, and older members follow, but are not easily > moved to post. So I think things are a little lopsided now & am looking to > make it more balanced. > * We have not done much outreach to expand the list. At one point > awhile ago, the list activity had fallen off & I was talking with Ray about > his thoughts, and suddenly the action spiked to a much higher level. Had we > done outreach for new members, I doubt we moderators could have comfortably > handled more. Even though there are 4 of us, we are just as plagued as > everyone else. > * Most of the work has been done by the mods. If the list increased in > size, there might be more of varied input. With a larger participation, we > actually have to work less, because you participants can do a lot. > * Many of you are tied into resources some of us don't have access to. > AOL to name a biggie. If we decided to promote, there are many AOL areas to > make our presence known. It alone has 10 million people. And you people in > AOL know it better than we may. > So please consider my questions & your > thoughts, and don't let one go before it is sent on paper, because this > really is your list! > > Good wishes to everybody, > Ken > > ---------- > Turbin | Mailto:kturbin@... | webmaster@... > Net Biz Development | *Page me: http://www.mirabilis.com/1719872 > Tel. (702) 312- 6888 | Fax (702)312-6889 | GetICQ http://www.icq.com/ > > ------------------------------------------------------------------------ > Ta Da! Come see our new web site! > http://www.onelist.com > Onelist: A free email community service > ------------------------------------------------------------------------ > Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain, or write us at: chronic_pain @onelist.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 1999 Report Share Posted March 25, 1999 Hi and all, I was doing Feldenkrais treatment for about a year. I was amazed at how much better I felt. It was also a kind of emotional cleansing for me. As treatment went on I guess a lot of pent up emotional issues came to the surface. I was very lucky to have a woman who was completely supportive when I would just start to cry for no reason. I only wish she was still in this area so I could go back to her, especially because my health issues have changed quite drastically. Good luck with your treatments, and I hope for all of us that some of our pain is lifted. Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 1999 Report Share Posted March 25, 1999 Me again I just realized that I used 's name on the post I just wrote, but it was a who is trying Feldenkrais. Since a great deal of the time I can't remember my own name I am not suprised that I used the wrong name. I seem to live every day in the " Fibro-Fog. " Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 1999 Report Share Posted March 25, 1999 Thanks Kathleen... I'm hoping but I'm not expecting help - does that sound weird? *s* Take care.... hugssssssss a And don't worry about the name...it's hard to think straight myself KAKRAG@... wrote: > From: KAKRAG@... > > Hi and all, > > I was doing Feldenkrais treatment for about a year. I was amazed at how much > better I felt. It was also a kind of emotional cleansing for me. As > treatment went on I guess a lot of pent up emotional issues came to the > surface. I was very lucky to have a woman who was completely supportive when > I would just start to cry for no reason. I only wish she was still in this > area so I could go back to her, especially because my health issues have > changed quite drastically. > Good luck with your treatments, and I hope for all of us that some of our pain > is lifted. > Kathleen > > ------------------------------------------------------------------------ > Did you know that we have over 85,000 e-mail communities at Onelist? > http://www.onelist.com > Come visit our new web site and explore a new interest > ------------------------------------------------------------------------ > Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain, or write us at: chronic_pain @onelist.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 1999 Report Share Posted March 26, 1999 Ken: I suspect in times when things are quiet, maybe just raising a question or two, where people can express their opinions? I'm on other lists and at times they go through similar times of lull and hyperactivity. I've been on this list for a while and have only gotten to know people as they post. Sometimes it can be pretty confusing as to who has what kind of pain and what their disabilities may be. I know for me it is hard not to define myself by my disabilities, but in a list like this it's pretty much why we are here, right? So - I have been disabled since 1971 by chronic pain as a result of a back injury while I was in the Army Nurse Corp. Since then I have developed, allergies and asthma, PTSD, chronic bursitis (left hip), fibromyalgia, osteoarthritis (OA), polyradiculopathy of the spine, rheumatoid arthritis (RA) and osteoporosis ( brittle bones). I have been learning to differentiate the different types of pain whether it is nerve pain or joint pain or muscle pain - not fun. I am married (since 1990) and am alone at home most of the day (have applied for a service dog to help me out). I started a home-based business doing desktop publishing and word processing, but my limitations have kept me from making it profitable. Anyone else? Lois Grace... Power Made Perfect in Weakness (2 Cor. 12:9) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 1999 Report Share Posted March 26, 1999 May I ask what is Feldenkrais treatment and what is it for? Lois Grace... Power Made Perfect in Weakness (2 Cor. 12:9) Re: What do people want from the list?--Please help me! From: KAKRAG@... Hi and all, I was doing Feldenkrais treatment for about a year. I was amazed at how much better I felt. It was also a kind of emotional cleansing for me. As treatment went on I guess a lot of pent up emotional issues came to the surface. I was very lucky to have a woman who was completely supportive when I would just start to cry for no reason. I only wish she was still in this area so I could go back to her, especially because my health issues have changed quite drastically. Good luck with your treatments, and I hope for all of us that some of our pain is lifted. Kathleen ------------------------------------------------------------------------ Did you know that we have over 85,000 e-mail communities at Onelist? http://www.onelist.com Come visit our new web site and explore a new interest ------------------------------------------------------------------------ Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain, or write us at: chronic_pain @onelist.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 1999 Report Share Posted March 26, 1999 Feldenkrais is a treatment that tries to get your body moving in new and better ways... Improving posture....loosening muscles....relieving pain... It's nothing like physio or chiro....very very VERY gentle (that's all I can stand...and even this hurts)... for example, I have some exercises to do...lying on my side...supported by pillows behind my back, between my legs and in front of my body...and I have to try and slowly move my shoulder forward and then back...just as much as I can (which is VERY little)..... I have chronic headaches, depression, back neck and shoulder pain - and he thinks that this could help in relieving me of my " hump " where my neck joins my body....and maybe that will help the nerves to straighten and work better without pain... Hope that explains it a little *s*.. take care hugsssssssssss a Lois A. Denier wrote: > > > May I ask what is Feldenkrais treatment and what is it for? > Lois > Grace... Power Made Perfect in Weakness > (2 Cor. 12:9) > > Re: What do people want from the list?--Please > help me! > > From: KAKRAG@... > > Hi and all, > > I was doing Feldenkrais treatment for about a year. I was amazed at how > much > better I felt. It was also a kind of emotional cleansing for me. As > treatment went on I guess a lot of pent up emotional issues came to the > surface. I was very lucky to have a woman who was completely supportive > when > I would just start to cry for no reason. I only wish she was still in this > area so I could go back to her, especially because my health issues have > changed quite drastically. > Good luck with your treatments, and I hope for all of us that some of our > pain > is lifted. > Kathleen > > ------------------------------------------------------------------------ > Did you know that we have over 85,000 e-mail communities at Onelist? > http://www.onelist.com > Come visit our new web site and explore a new interest > ------------------------------------------------------------------------ > Know someone who could profit from our list? Send our direct sign-up URL: > http://www.onelist.com/subscribe.cgi/chronic_pain, or write us at: > chronic_pain @onelist.com > > ------------------------------------------------------------------------ > New hobbies? New curiosities? New enthusiasms? > http://www.onelist.com > Sign up for a new email list today > ------------------------------------------------------------------------ > Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain, or write us at: chronic_pain @onelist.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 1999 Report Share Posted March 27, 1999 Dear a, ((((((((((((((((((((((HUGS)))))))))))))) Madeline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 1999 Report Share Posted March 27, 1999 > > > > I am married (since 1990) and am alone at home most of the day (have applied > for a service dog to help me out). I started a home-based business doing > desktop publishing and word processing, but my limitations have kept me from > making it profitable. > > Anyone else? > > Lois > I know this is a bit late considering you sent this a couple of days ago. With reference to your last paragraph, what is it that you've found has affected your ability to make your home business profitable? Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 1999 Report Share Posted March 27, 1999 At 04:14 PM 3/27/99 -0500, you wrote: >I started a home-based business doing >> desktop publishing and word processing, but Lois, another late follow-up from me. Doing basic web pages is a lot simpler than desktop publishing. And with the right (free) software you can do it in a normal word processor, & the program turns it into a complete web page. Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 1999 Report Share Posted March 27, 1999 In a message dated 3/26/99 3:58:23 PM Eastern Standard Time, ladenier@... writes: > > Anyone else? > > Lois > > Grace... Power Made Perfect in Weakness > (2 Cor. 12:9) > > Only God knows how I wound up in so much chronic pain. I thought I was leading a " normal " life. I used to clean houses, and institutions prior to developing what has since been diagnosed as an awful combination of Osteo- Arthitis and Fibromyalgia. At the time I gave up the strenuous lifestyle, I decided to put my hand at becoming skilled in the area of office management. After one year of trying and failing constantly, and also a year of severe verbal abuse, I collapsed. I was able to get on Social Security Disability based on what was then called Severe, Chronic, Major Depression. During the first few months of disability I attended a rehab place. There it was decided I had an attitude problem. I nagged them for 3 months before they agreed to let me go see the best eye school in the area. There more devastating news was the result of the intensive, and exhaustive testing that I went through. Not only did I have Immature Development of the Nerve endings in both my eyes, which resulted in my not being able to tract words, I had hidden learning disabilities that would prevent me from ever working in an office. Soon after that the diagnosis of Fibromyalgia, and Osteo-Arthitis were given to me. Apparently I had developed the Arthritis because of all the manual labor I had endured. The Fibromyalgia was a result of a flu that had been in my system for 5 days before being treated. The fever that had accompanied it was a steady 103.5. I had been too ill to get off the bed to call for help and no one noticed that I was not amongst them. Finally, I was forced to ask my landlady for help when I got sick in bed and could not stand to change my linens. She recognized how ill I was and took me to the doctors. Instead of hospitalizing me, they gave me antibiotics and sent me home. After another 5 days of this flu I was left with what later became known to me as Fibromyalgia. In the last 5 years I have also developed Diabetes, Hypertension, and High Cholesterol. Both Fibromyalgia, and Diabetes have conditions that are called Peripheral Neuropathy. This means that I constantly have flares from one or the other. Because Social Security does not allow for living, I have been forced to work. I am now a cashier in a major supermarket. This means that I am living in chronic pain that will not be relieved. I come home at night and crawl into bed, sleep for a few hours and wake because of the pain that never seems to go very far away. What really bothers me is that there is not one person, on this earth, that cares enough to help me in practical ways. Please understand, I don't expect anyone on this list to do anything. Prayer, sympathy and empathy are valid and so appreciated, but does not do much to change my life of suffering to one of relief. Now that I have shared, is there anyone out there who is willing to remain my friend? Usually, when I am this open, people avoid me. Mad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 1999 Report Share Posted March 27, 1999 In a message dated 3/26/99 3:59:51 PM Eastern Standard Time, ladenier@... writes: > > > May I ask what is Feldenkrais treatment and what is it for? > Lois > Grace... Power Made Perfect in Weakness > (2 Cor. 12:9) > Add me to that inquiry, please. Mad. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 1999 Report Share Posted March 28, 1999 Hi Mad... I'm guessing that you didn't see my posting on Feldenkrais??? Feldenkrais is basically trying to get your body to move in different ways....get your body back into synch as it were... At the moment I'm doing very very gentle exercises...moving my shoulder back and forth as much as I can (which isn't much)...with lots of support for the legs and arms (I lie on my side for this) It's a lot different from physio or chiro...very very gentle... it is hurting me more...and it's not meant to....but I'm trying it out for a while to see if anything does happen.. If you need more info...just let me know.. hugsssssssssssssssssss a MadMad4JC@... wrote: > From: MadMad4JC@... > > In a message dated 3/26/99 3:59:51 PM Eastern Standard Time, > ladenier@... writes: > > > > > > > May I ask what is Feldenkrais treatment and what is it for? > > Lois > > Grace... Power Made Perfect in Weakness > > (2 Cor. 12:9) > > > Add me to that inquiry, please. > Mad. > > ------------------------------------------------------------------------ > Come check out our brand new web site! > http://www.onelist.com > Onelist: Making the Internet intimate > ------------------------------------------------------------------------ > Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain, or write us at: chronic_pain @onelist.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 1999 Report Share Posted March 28, 1999 Hello to all, Mad you have incredible strength and absolutely I am still your friend. I am in a similar situation in that my doctors don't want me working but I need to support myself and my child so I work. Two jobs. I am also exhausted all the time and pain always follows me every where. It has become a way of life. I understand your frustration. I know that when I had a spinal surgery soon after my daughter was born that I received help for myself and her from people at my church. It was very hard for me to accept help from people that I didn't know. But I was so grateful for all the people who helped us. I know that there are agencies that help but I think that you have to pay for them, which of course I can't afford. I can only say that I understand what your going thru and I wish that I could help by more than just posting notes here. I'll keep you in my thoughts and prayers. A Friend Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 1999 Report Share Posted March 28, 1999 Hi again..... I think you mean Mad........................ But seeing as I feel alot of what she's going thru......thank you. Your friend Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 1999 Report Share Posted March 28, 1999 Kathleen: Why would we abandon you? This list is for situations just like yours. Right now I am not at my speediest, but when I am farther back on my feet [surgery recently] I would like to interact with you to show that you have validity and are a needed part of this world. Be Blest D. -- ---------------------------------------------------- Reach me by ICQ. My ICQ# is 24385601 or, Page me online through my Personal Communication Center: http://wwp.mirabilis.com/24385601 (go there and try it!) or, Send me E-mail Express directly to my computer screen 24385601@... For downloading ICQ at http://www.icq.com/ For adding similar signatures to your e-mail go to : http://www.icq.com/emailsig.html E.Darwent ---------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 1999 Report Share Posted March 28, 1999 In a message dated 3/28/99 1:58:22 PM Eastern Standard Time, KAKRAG@... writes: > A Friend > Kathleen You are indeed a friend, my friend. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 1999 Report Share Posted March 29, 1999 In a message dated 3/28/99 5:20:40 AM Eastern Standard Time, MadMad4JC@... writes: << Now that I have shared, is there anyone out there who is willing to remain my friend? Usually, when I am this open, people avoid me. >> Mad: How can you even ask? That's what we're all here for: to accept each other with our own problems and disabilities, provide support and information, as well as comfort. I wish there were some other way I could help you, but the best I can do is put you on my thoughts and prayers lists. Plus, lend an ear whenever you need it. {{{and pain-free wishes}}} Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 1999 Report Share Posted March 29, 1999 In a message dated 3/29/99 5:22:03 PM Eastern Standard Time, ladenier@... writes: > My ability to push myself just isn't there anymore. Dear Lois, So many times I find myself unable to push myself on. I have discovered that for me it is usually the Fibromyalgia Depression that is getting to me. Since I have been taking Celexa the depression has been gone and my endurance has improved. I am firmly convinced that Fibromyalgia has a component where depression is a major factor. It is not just an attitude adjustment that is needed but the medicine to correct the biological imbalance. Perhaps you may be suffering from the depression that accompanies pain. Fondly, Mad. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 1999 Report Share Posted March 29, 1999 In a message dated 3/29/99 5:25:21 PM Eastern Standard Time, ladenier@... writes: > Have you been to a pain center? HEY, I put a note at the bottom! Ken Hi Lois, I tried a pain center, locally. There all they did was suggest Elavil. Fibromyalgia is a syndrome that few clinics know how to treat. At this time the combination of drugs I am on alleviate the tension involved and the gentle stretching relieves the level of the pain. Unless something unusual comes along, I think this is the best I can do. Thanks for the kind thoughts, Mad **MOD NOTE: Hi Mad, forgive me for poppong up in your email this way. In my experience, the best alternative is to good expert care is a local family doctor whom you know & can trust, and would involve you bringing information on treatments to him/her. I have found that such people do understand you are ill, perfect care is unavailable, and generally have the confidence to work with you in terms of honoring medically reasonable requests. This is what I have done for the past 6 years in Las Vegas; and I couldn't have a better doctor, even an expert. He sees to my Rx needs, helps think through problems (don't always love his solutions, but they are good), and has helped me medically with things that would have been ignored in a chronic pain center or perhaps by a specialist. Not every doc can work like this, but many can & will. You are a hardy & capable computer user. That's where I get many of my ideas from. You can & eventually become your own case manager, join the treatment team, & help manage your own care. Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 1999 Report Share Posted March 29, 1999 Hi, Mike: A home-based business, or just any type I guess, needs to have consistency and the ability to respond to clients when they call. My energy has hit rock bottom lately (more pain due to meds being changed) and I just did not feel up to taking on new clients who call. I do desktop publishing and professional word processing. I'd been in the yellow pages under both areas, until this year. I also used to have a Donnelly directory ad and let that go. Some clients would be able to give me regular work (like a local printer I talked to last week), but the problem is, that I'm not dependable. I over-extended for years, working hard to be dependable and consistent, but I'm just not up to it any more. My ability to push myself just isn't there anymore. But it's not as if I am dependent on my income. We manage pretty well on my husband's income, so mine really isn't necessary. This is a great relief and takes alot of pressure off me to help make ends meet. Did I answer your question? Lois Grace... Power Made Perfect in Weakness (2 Cor. 12:9) Re: What do people want from the list?--Please help me! > > > > I am married (since 1990) and am alone at home most of the day (have applied > for a service dog to help me out). I started a home-based business doing > desktop publishing and word processing, but my limitations have kept me from > making it profitable. > > Anyone else? > > Lois > I know this is a bit late considering you sent this a couple of days ago. With reference to your last paragraph, what is it that you've found has affected your ability to make your home business profitable? Mike ------------------------------------------------------------------------ New hobbies? New curiosities? New enthusiasms? http://www.onelist.com Sign up for a new email list today ------------------------------------------------------------------------ Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain, or write us at: chronic_pain @onelist.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 1999 Report Share Posted March 29, 1999 In a message dated 3/29/99 7:32:04 PM Eastern Standard Time, MsVVarrior@... writes: > How can you even ask? That's what we're all here for: to accept each other > with our own problems and disabilities, provide support and information, as > well as comfort. Thanks for your friendship. Mad. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 1999 Report Share Posted March 29, 1999 Thanks, Ken. That's exactly what one of my clients, the Greater Philadelphia Women's Yellow Pages, keeps on telling me. I have a feeling though that this is an opportunity for a change of venue. I have been working in a disability ministry at my church and I've been doing some writing, to share what I've learned about the church (in general) and the disabled. The time I've been expending on my business I feel would be better spent on these other things. For someone who is actually trying to start a home-based business, they have to take into consideration the fact that networking and advertising are crucial to drawing in more work, i.e., money. They also should be able to take the stress of people coming in last minute demanding to have something done right then and there. I just couldn't take it - I've been a flaming co-dependent in a past life and a people pleaser - yuck! Also, being able to pick up and deliver jobs is the way to do today, but for someone like myself with physical and energy limitations, it just doesn't work out. Just a few things I've learned over the last 7 years. Those who can do web design I know are in demand. Someone like myself would be fine in designing pages for individuals and small businesses that aren't too complicated. Beyond that, it would take someone with more programming experience I suspect (my husband's a programmer, but I'm not - he's mathematical and flunked algrebra in high school, I just play well with computers). I appreciate your ideas, though. Thanks! Lois Grace... Power Made Perfect in Weakness (2 Cor. 12:9) Re: What do people want from the list?--Please help me! At 04:14 PM 3/27/99 -0500, you wrote: >I started a home-based business doing >> desktop publishing and word processing, but Lois, another late follow-up from me. Doing basic web pages is a lot simpler than desktop publishing. And with the right (free) software you can do it in a normal word processor, & the program turns it into a complete web page. Ken ------------------------------------------------------------------------ Come check out our brand new web site! http://www.onelist.com Onelist: Making the Internet intimate ------------------------------------------------------------------------ Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain, or write us at: chronic_pain @onelist.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 1999 Report Share Posted March 29, 1999 My prayers are with you Mad! Wow, what you've been through is draining. I did the same thing, forcing myself to work with pain, since it was the only way I could survive. Did welfare and food stamps in 1977: I had just come out of a 7 week stay the VA hospital, but because they had my diagnosis and diagnostic rating code wrong, they couldn't give me enough disability to live on. I can sympathize - maybe even empathize. Have you been to a pain center? I found it helped me get back on my feet - and working almost pain free for 12 years. Hope you get the relief you need! Lois Grace... Power Made Perfect in Weakness (2 Cor. 12:9) Re: What do people want from the list?--Please help me! Only God knows how I wound up in so much chronic pain. I thought I was leading a " normal " life. I used to clean houses, and institutions prior to developing what has since been diagnosed as an awful combination of Osteo- Arthitis and Fibromyalgia. At the time I gave up the strenuous lifestyle, I decided to put my hand at becoming skilled in the area of office management. After one year of trying and failing constantly, and also a year of severe verbal abuse, I collapsed. I was able to get on Social Security Disability based on what was then called Severe, Chronic, Major Depression. During the first few months of disability I attended a rehab place. There it was decided I had an attitude problem. I nagged them for 3 months before they agreed to let me go see the best eye school in the area. There more devastating news was the result of the intensive, and exhaustive testing that I went through. Not only did I have Immature Development of the Nerve endings in both my eyes, which resulted in my not being able to tract words, I had hidden learning disabilities that would prevent me from ever working in an office. Soon after that the diagnosis of Fibromyalgia, and Osteo-Arthitis were given to me. Apparently I had developed the Arthritis because of all the manual labor I had endured. The Fibromyalgia was a result of a flu that had been in my system for 5 days before being treated. The fever that had accompanied it was a steady 103.5. I had been too ill to get off the bed to call for help and no one noticed that I was not amongst them. Finally, I was forced to ask my landlady for help when I got sick in bed and could not stand to change my linens. She recognized how ill I was and took me to the doctors. Instead of hospitalizing me, they gave me antibiotics and sent me home. After another 5 days of this flu I was left with what later became known to me as Fibromyalgia. In the last 5 years I have also developed Diabetes, Hypertension, and High Cholesterol. Both Fibromyalgia, and Diabetes have conditions that are called Peripheral Neuropathy. This means that I constantly have flares from one or the other. Because Social Security does not allow for living, I have been forced to work. I am now a cashier in a major supermarket. This means that I am living in chronic pain that will not be relieved. I come home at night and crawl into bed, sleep for a few hours and wake because of the pain that never seems to go very far away. What really bothers me is that there is not one person, on this earth, that cares enough to help me in practical ways. Please understand, I don't expect anyone on this list to do anything. Prayer, sympathy and empathy are valid and so appreciated, but does not do much to change my life of suffering to one of relief. Now that I have shared, is there anyone out there who is willing to remain my friend? Usually, when I am this open, people avoid me. Mad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 1999 Report Share Posted March 30, 1999 Hi, Mad: Thanks for your input! I've know that there is a component of depression with pain but I never thought it to be nothing more than just getting tired of the pain; it didn't dawn on me that there is a chemical component to it. I have been on Pamelor in varying amounts since 1992 and am currently up to 50 mgm which is just the point that it changes from helping with sleep (the suspected cause of my fibromyalgia) to being an anti-depressant. I am also on Paxil now (after Zoloft sent my triglycerides off the scale last fall), plus I'm on Atarax for anxiety. For nerve pain they have me on Neurontin 2700 mgm per day (spread out in varying doses throughout the day) which I know has really konked me out. I had to go back to caffeine in the morning just to get up. I've recent seen a new pain doctor who seems to think that I'm on pretty much what is used for chronic pain (beside pain killers, which I am not on). My rheumatologist is reluctant to put me on anything stronger than Oruvail, which I'm currently maxed out on. Right now I've caught my husband's bug (sleeping on the couch didn't protect me!) and I know because of my asthma that it will go to my chest the first thing. I suspect it'll take me a couple weeks to recuperate. I've been trying to work up my strength and stamina to be able to get back to my aquatic physical therapy in a heated pool (close to 90 degrees) - I know that will help alot, especially with my muscles and joints. I've got to get moving or I'll be sunk. Appreciate your prayers! What is Celexa? Thanks! Lois Grace...power made perfect in weakness (2 Corinthians 12:9) > Re: What do people want from the > list?--Please > help me! > > > From: MadMad4JC@... > > In a message dated 3/29/99 5:22:03 PM Eastern Standard Time, > ladenier@... writes: > > > My ability to push myself just isn't there anymore. > Dear Lois, > So many times I find myself unable to push myself on. > I have discovered that > for me it is usually the Fibromyalgia Depression that is > getting to me. Since > I have been taking Celexa the depression has been gone and > my endurance has > improved. > I am firmly convinced that Fibromyalgia has a > component where depression is a > major factor. It is not just an attitude adjustment that is > needed but the > medicine to correct the biological imbalance. > Perhaps you may be suffering from the depression that > accompanies pain. > Fondly, > Mad. > > ------------------------------------------------------------ > ------------ > Did you know that we have over 85,000 e-mail communities at Onelist? > http://www.onelist.com > Come visit our new web site and explore a new interest > ------------------------------------------------------------ > ------------ > Know someone who could profit from our list? Send our > direct sign-up URL: > http://www.onelist.com/subscribe.cgi/chronic_pain, or write > us at: chronic_pain @onelist.com > Quote Link to comment Share on other sites More sharing options...
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